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Vulvodynia: more books (19)

A case of vulvodynia and dyspareunia by Nancy A Scarlett, 1997
Chronic vulvar pain: It can be helped.: An article from: International Journal of Humanities and Peace by Gale Reference Team, 2006-01-01
The Simple Secrets of Reinvention for Every Woman Over 40 by Susan Lark, 2008
Audio-digest: Obstetrics/gynecology: Sexual Medicine Issues (Vol. 49, Issue 9, May 7, 2002) by MD Deborah A. Metzger, MA, CSW, PhD (Cand) Hope E. Ashby, 2002

lists with details

MayoClinic.com - Vulvodynia
The pain and irritation of vulvodynia (chronic vulvar pain) can be quite bothersome for women. vulvodynia By Mayo Clinic staff Overview
http://www.mayoclinic.com/invoke.cfm?id=DS00159
Vulvodynia: Diagnosis And Treatment
vulvodynia Diagnosis and Treatment. by Tori Hudson, ND. Recognizing the four specific subtypes of vulvodynia is important in the management approach.
http://www.tldp.com/issue/166/166vulvo.htm

Extractions: Previous Article Menu SUBSCRIBE TO TOWNSEND LETTER FOR DOCTORS AND PATIENTS Vulvodynia: Diagnosis and Treatment by Tori Hudson, ND Vulvodynia or vulvar pain syndrome is a multifactoral clinical syndrome of vulvar pain, sexual dysfunction, and psychological distress. Recognizing the four specific subtypes of vulvodynia is important in the management approach. The most common four subtypes are vulvar vestibulitis syndrome, cyclic vulvovaginitis, dysesthetic vulvodynia, and vulvar dermatoses. Simple clinical guidelines can be developed to improve the evaluation and treatment of these often long-suffering patients. Vulvodynia is different from itching or vulvar pruritus. Vulvodynia actually precludes itching because the burning and pain cause an intolerance to scratching. Over the years, the terminology used to describe vulvodynia has varied. The term vulvodynia has now been recommended by the International Society for the Study of Vulvar Disease (ISSVD) to describe any vulvar pain, regardless of etiology. The incidence of vulvodynia is not known but it is clearly more common than is generally thought. In a general gynecological practice the prevalence can be as high as 15% when actively looked for.
New Page 1
Provides information about disorders, selfexams and self-care tips. Disorders that are included are vulvodynia, lichen sclerosus, cancer and vulvar varicose veins.
http://www.vulvarhealth.org

Extractions: A Study on the Effectiveness of Elidel (topical pimicrelimus) for Women with Lichen Sclerosus For more information, or to learn how to participate, click here! * Still recruiting * Recommended Books about Vulvar Health "The V-Book: A Doctor's Guide to Complete Vulvovaginal Health " A landmark publication by respected vulvar specialist Dr. Elizabeth Stewart! Read our review here. "The Vulvodynia Survival Guide: How to Overcome Painful Vaginal Symptoms and Enjoy an Active Lifestyle" by Dr. Howard Glazer and Dr. Gae Rodke Buy it here! Recommend a Healthcare Provider Click here to recommend or click here to locate a provider near you New listings added on March 26 Share Your Story! Read others' experiences or submit your own. Visit our Stories page for more info. Contribute to Research on Vulvar Pain! Visit the National Vulvodynia Assocation for more information A 1995 medical article referred to vulvar cancer as "the Cinderella of gynaecologic oncology" because of the vast neglect paid to this type of cancer. There is something about the vulva that apparently makes it difficult, if not impossible, to talk about with one's friends, partner or healthcare provider. In most circles - among the general public and among healthcare providers -talking about the vulva means risking being told that the word "vulva" is offensive or even vulgar. We don't say those things in polite company.
Vulvodynia And Vulvar Vestibulitis: Challenges In Diagnosis And Management - Mar
March 15, 1999 AFP. vulvodynia and Vulvar Vestibulitis Challenges in Diagnosis and Management. vulvodynia is frequently misdiagnosed.
http://www.aafp.org/afp/990315ap/1547.html

Extractions: Advanced Search A patient information handout on vulvodynia, written by the author and Elizabeth S. Smoots, M.D., is provided on page 1561. V ulvodynia is frequently misdiagnosed. In a general gynecologic practice population, the prevalence of this condition may be as high as 15 percent. Before the 1980s, very little was written about vulvodynia. In the 1980s, renewed interest was generated with the publication of articles by Friedrich, Lynch and McKay. Epidemiology Vulvodynia is a syndrome of unexplained vulvar pain that is frequently accompanied by physical disabilities, limitation of daily activities (such as sitting and walking), sexual dysfunction and psychologic disability. Originally suggested by McKay, the term "vulvodynia" has also been suggested by the International Society for the Study of Vulvar Disease Task Force to describe any vulvar pain. The incidence and prevalence of vulvodynia have not been well studied. Age distribution for the condition may range from the 20s to the 60s, and it is limited almost exclusively to white women.
Vulval Pain Society
Aims to provide women with vulvodynia and other vulval diseases upto-date, accurate, non-biased information on treatment.
http://www.vul-pain.dircon.co.uk/

Extractions: @import "vps.css"; A UK volunteer group providing information to women who suffer from vulval pain, and their partners VPS Home Search Vulval Pain site The VPS Handbook VPS workshops What is vulval vestibulitis? What is vulvodynia? ... VPS lending library A VPS supporter is featured in an article on vulvodynia and vestibulitis in this week's issue of Best magazine, issue no. 17, 27th April, on pages 28-29. Please buy a copy! IS ...but you can visit the Vulval Health Awareness Campaign all year round, at www.vulvalhealthawarenessmonth.org Many thanks to Doug Bailey (the webmaster's wonderful brother) for his smashing redesign of the VPS website. Also, please visit the new London Vulval Pain Support Group's microsite at www.vul-pain.dircon.co.uk/london/ . The LVPSG meets every six weeks. This year's VPS workshops will be held in Cardiff, Sunderland and Edinburgh. We have just learned of the existence of the Institute of Psychosexual Medicine (IPM) www.ipm.org.uk
Israel Vulvodynia Association
The summary for this Hebrew page contains characters that cannot be correctly displayed in this language/character set.
http://www.vulvodynia.org.il/
Salon.com Life | Trouble Down There
So why is there no cure for vulvodynia? - - - By Lynn Harris. In her case, vulvodynia literally, pain in the vulva.
http://www.salon.com/mwt/feature/2003/09/04/vulvodynia/index_np.html

Extractions: By Lynn Harris Leslie tried creams, topical acid, surgery, horse tranquilizers even denial but for over 10 years, nothing would stop the pain. She ended a relationship, stopped having sex, filled in the gaps in her social life with gay men. Why? Because Leslie (not her real name), a 34-year-old corporate lawyer in Manhattan, suffers from, arguably, the most uncomfortable kind of discomfort: genital pain. In her case, vulvodynia literally, pain in the vulva. "People are talking and learning about it more now, but I feel like I'm on the forefront of this shit," sighs Leslie who, with the right combination of doctors, therapists and treatments, finally has the condition under control. "Twice now I've brought it up to someone who's said, 'Oh, I know someone else who has that.' There are all these women fumbling in the dark."
Discovery Health Vulvodynia
vulvodynia is the medical term for pain the in the vulva area of a women s body. The search, vulvodynia. By Gail Hendrickson, RN, BS. vulvodynia
http://health.discovery.com/diseasesandcond/encyclopedia/3057.html
Discovery Health :: Vulvodynia
vulvodynia is the medical term for pain the in the vulva area of a women s body. May 13, 2004 EDT. vulvodynia. By Gail Hendrickson, RN, BS.
http://health.discovery.com/encyclopedias/3057.html

Extractions: Vulvodynia is the medical term for pain the in the vulva area of a women's body. The term is generally reserved for chronic pain in the vulva with no known cause. What is going on in the body? The vulva is a general term for the external part of a woman's genitals. The vulva includes the area of skin directly above the vagina, the clitoris, the inner and outer labia or lips of the vagina, the opening to the vagina, and the urethra. The urethra is the tube that carries urine from the bladder to the outside of the body. Pain in the vulva can be due to many known conditions. These include infection, injury, and allergic reactions to medications , soaps, or feminine products. If no cause can be found, the condition is called vulvodynia. What are the signs and symptoms of the condition? Symptoms of this condition include: discomfort in the vulva area. This is often described by affected women as pain, burning, stinging, itching, aching, stretching, throbbing, or irritation. pain only when pressure is applied to the opening of the vagina. This usually only occurs in a subtype of vulvodynia known as vulvar vestibulitis. The vestibule is a term that describes the opening to the vagina. In this subtype, redness is often seen in the painful area during flare-ups. Pain may make sexual intercourse impossible, and may even be aggravated by walking, sitting, or riding a bike.
Vulvodynia; Treatment, Prevention, Cure
vulvodyniaSearch information from many of the best vulvodynia health sites. Quickly find information treatments, prevention, support and more. vulvodynia
http://www.healthlinkusa.com/content/331.html
HealthlinkUSA Vulvodynia Links
Kanoodle.com. You can find vulvodynia right now at Info.com. Kanoodle.com. Click here for page 1 of vulvodynia information from the HealthlinkUSA directory.
http://www.healthlinkusa.com/331.html
Familydoctor.org/handouts/367.html
vulvodynia familydoctor.orgvulvodynia. What is vulvodynia? vulvodynia (say vulvo-din-ee-a ) is the word for pain in the vulva. Return to top. How did I get vulvodynia?
http://familydoctor.org/handouts/367.html

Extractions: Advanced Search familydoctor.org Home Women Reproductive Health Vulvodynia What is vulvodynia? How did I get vulvodynia? How is vulvodynia diagnosed? How is vulvodynia treated? ... What else can I do to help my symptoms? Printer-friendly version Email this article Vulvodynia (say: "vul-vo-din-ee-a") is the word for pain in the vulva. The vulva is the external genital area in womenthe area around the opening to the vagina. The pain is usually described as a burning, stinging, itching, irritating or raw feeling. Sexual intercourse, walking, sitting or exercising can make the pain worse. Vulvodynia is more common in white women. It's rare in women of other races. It usually starts suddenly and may last for months to years. Although it isn't life-threatening, the pain may make you cut back on some of your normal activities. It can also make you upset or depressed. It might even cause problems in your relationship with your spouse or partner. Return to top The exact cause of vulvodynia isn't known. Some factors that may be involved include:
Vulvodynia
vulvodynia. Chronic disorders. vulvodynia Information Web Portal Welcome to the first stop in an extensive collection of vulvodynia resources!
http://www.cannylink.com/diseasevulvodynia.htm

Extractions: Chronic Vulvar Pain Dr. Glazer's Vulvodynia Website National Vulvodynia Association - nonprofit organization for women with vulvodynia, vulvar pain, and related disorders. Vulvodynia Information Web Portal Welcome to the first stop in an extensive collection of vulvodynia resources! Vulval Pain Society - information, links and resources for women who suffer from chronic vulval pain: vulvar vestibulitis, vulvodynia and/or dyspareunia. Vulvar Pain Foundation - grassroots support and information network for women with chronic vulvar pain.
VULVODYNIA
HELLENIC ASSOCIATION DERMATOLOGY VENEREOLOGY vulvodynia G. Karakatsanis. 100 vulva. Are you aware of a condition called vulvodynia?
http://www.edae.gr/vulvodynia.html

Extractions: G. Karakatsanis 100 Ways To Love Your Mate A Guide for Patients with Fibromyalgia Syndrome A Western Medicine view of Fibromyalgia A Word About Vulvar Pain Reprinted from The Vulvar Pain Newsletter Spring 1993, Number 1. The Vulvar Pain Foundation Aging And Reproduction Randy S. Morris, M.D. An exclusive OBGYN.net interview with C. Paul Perry,M.D., president of The International Pelvic Pain Society,on the organization's progress, goals and vision. An Evaluation of Modified Vestibulectomy in the Treatment of Vulvar Vestibulitis: Preliminary Results, Kehoe Sean, and David Luesley. Acta Obstetricia et Gynecologica Scandinavica 75, no. 7 (August 1996): 676-7. Anatomy of the vulva. Are you aware of a condition called vulvodynia? ``The symptoms are burning, pain and sometimes itching in the vulva, plus pain during intercourse or even on contact. I read a question from a boyfriend of a woman with some of these symptoms and you did not mention vulvodynia in your answer. Those of us who suffer with it are trying to spread the word. There is no identifiable cause or totally effective treatment at the present time, but we are hopeful and commited to sharing information. ``-Elysa Arizona Doctors - Dr. Gordon Davis
Dermatology.cdlib.org/rxderm-archives/vulvodynia
vulvodynia 1) imidazoles 2) amitriptyline 3) calcium citrate, low oxalate diet 4) The Vulvar Pain Foundation 5
http://dermatology.cdlib.org/rxderm-archives/vulvodynia

Extractions: VULVODYNIA - 1) imidazoles 2) amitriptyline 3) calcium citrate, low oxalate diet 4) The Vulvar Pain Foundation 5) isoprenosine 6) doxepin 7) biofeedback 8) SSRIs 9) capsaicin 10) Aquanil HC 11) CAM 12) zonolon 13) dibucaine I have been caring for a 40 year old woman with dysplastic nevi for the past 6 or 7 years - one year ago she developed vulvar inflammation which has clinically cleared but has left her with vulvodynia which is severe enough to completely disrupt her life She has been seen by some of the best gynecologists in New York and they really have little to offer - she and I would be very happy to receive some clinical suggestions. She has been treated with Zovirax orally and topically, steroids topically, zinc oxide paste, silvadene,local anaesthetics, and topical antibacterials. A friend recently told here to use Crisco which helps a bit but the problem persists. What are the therapeutic pearls which I have not yet learned? Irwin Freedberg It is possible that the original inflammation was due to yeast, and that now she has the chronic low grade yeast described by Marilyn Mackay (?sp) which causes mild tender erythema of the vault. She treats with long term, months, of p.o. azoles. If she needs a lubricant the word in the community is Astroglide. Diane Thaler - The literature on vulvodynia is confusing, the nomenclature is ambiguous and the data is often sparse. One framework in which to approach vulvodynia is to try to differentiate it into vulvar vestibulitis, essential vulvodynia and cyclic vulvovaginitis. Topical treatment, though we all use it as first-line therapy, often is not sufficient in controlling the symptoms of any of these subtypes. Essential vulvodynia often responds to tricyclic anti-depressants such as amitriptyline. If you choose to use a tricyclic anti-depressant, to aid in compliance you might consider emphasizing its effect in altering the sensation of pain rather than its effect on depression. Concurrent emotional and psychological support can be invaluable. The use of oral calcium citrate along with a low oxalate diet is controversial but may help some women; the "natural" and nutritional approach is certainly attractive to many people. Even if these dietary measures are not helpful, they probably will not hurt your patient and may indeed assist in buying some time for other modalities to be efficacious. If finances permit, you might also consider referral to one of the nationally known vulvar specialists outside of NYC, as patients with vulvodynia are often desperate. A support group can be beneficial. While I have limited experience with "The Vulvar Pain Foundation", one patient of mine was grateful that I alerted her to them, as she no longer feels so isolated and embarrassed. The Vulvar Pain Foundation also publishes a newsletter. The address that I have is: The Vulvar Pain Foundation Post Office Drawer 177 Graham, NC 27253 Telephone, Tuesdays and Thursdays (910) 226-0704; Fax (910) 226-8518 Good luck with your patient-vulvodynia is a complex disorder that is frequently frustrating to both practitioner and patient. Some recent references: Dysesthetic ("Essential") Vulvodynia Treatment with Amitriptyline. McKay M. Jour Reprod Medicine 1993;38:9-13. Vulvar Pain Syndrome: A review. CME Review Article. Baggish MS, Miklos JR. Obstet and Gyn Survey 1995;50:618-27. Diagnosis and Treatment of Vulvodynia. Paavonen J. Annals of Medicine 1995;27:175-81. Stephen L. Comite MD - Here's one to try: Petersen CS and Weismann K, Isoprenosine improves symptoms in young females with chronic vulvodynia, Acta Dermatovenereologica, 1996:76(5) 404. Ten patients with chronic vulvodynia were treated with 1g po TID for 12 weeks. 4 of 10 became asymptomatic, 2 showed marked reduction of symptoms, no effect on the other 4. No adverse reactions were seen. Haines Ely - Amitriptyline or doxepin are the most helpful in my experience. I start with 25mg 2 to 3 hours before bedtime and then increase by 25mg increments at 1 to 2 week intervals as tolerated. The entire dose is given in the evening. Most women (and men with penile and scrotal pain) who will respond, do so at about 75mg per day. 60% of patients get enough relief to make life tolerable and about 40% will clear completely. Gae Rodke MD, a gynecologist in New York is doing some excellent work on biofeedback to allow pelvic floor relaxation. She is the best person in NYC for vulvodynia, I think. Her address is 146 Central park West, Suite 1G; tele # 496-9891. Peter Lynch - What does pelvic floor relaxation have to do with vulvodynia for goodness sake! Does this mean that women who do Kegel exercises (which I find suspect as well) will be at greater risk for vulvodynia? May we try oropharnx relaxation for glossodynia, or, do as Freud did and offer surgeries on the nose, removing bone and cartilage, as it is the organ most resembling the genitals, at least the male's? Diane Thaler - Re: the several posts questioning the rationale for the use of tricyclics and biofeedback for vulvodynia. First, definition and diagnosis. Before using the term vulvodynia it is, of course, necessary to rule out any recognizable (clinical or histological) disease such as LP, LS, candidiasis etc. Assumming that has been done, you are left with what (given today's level of knowledge, at least) is an idiopathic process. This idiopathic vulvar pain is then divided into two groups: those with visible (often punctate)vestibular redness (vestibulitis) and those with no visible change (essential vulvodynia). Second, is the process inflammatory? Biopsies from either vestibulitis (with redness) and from vulvodynia (without redness) reveal a few inflammatory cells (lymphocytes and plasma cells). However Moyal-Barracco et al note that redness of the type seen in vestibulitis occurs with equal frequency in a control population and Nylander Lundquist et al found about the same number of inflammatory cells in vulvar biopsies from control women. (I do not believe that either of these studies are as yet in press.) This suggests to me that inflammation is not a critical part of the condition. In any event, anti-inflammatory therapy does not work. Third, as is true with most idiopathic processes, treatment plans are arrived at empirically. Taking a leaf from the treatment of other chronic pain syndromes, tricyclics were tried. They worked. Published and presented reports indicate about a 60% response rate. It is interesting to speculate on why they might work. Since effectiveness, if it is to occur at all, begins more quickly, and at lower doses, than are required for the treatment of depression, the effect is probably via a different mechanism. That is, there may be a biochemical effect on neuropeptides that has nothing whatsoever to do with "psychologic" considerations. Fourth, tricyclics (and biofeedback) seem to me to represent a far safer approach to the treatment of pain than the laser and surgical options that are favored by many gynecologists. I have no problem with the use of other "reversible" medical forms of therapy but none of these has the established track record of tricyclics. Retin A and Zostrix, for instance have been tried and have failed to help. Fifth, I use tricyclics for men with penile and scrotal pain (as indicated earlier) as well as for lip, tongue, facial and scalp pain. They are equally (that is about 60%) effective in these conditions as well. Peter Lynch - Agreed that tricyclics work for certain pain. I agree with the distaste for the gyn approach. What about the pelvic floor relaxation, though. Or is the biofeedback working some other way. Another interesting idea in terms of pain is the SSRIs increasing ones pain threshold-maybe these could be given along with/without the tricyclics. And seriously, I have never seen a patient of Elavil informed of its obesity side effect. Diane Thaler - SSRIs don't work for pain in post-herpetic neuralgia (according to Dr. Peter Watson of Toronto, a world authority on that subject.) Elavil is thought to work (when it works) by increasing the tone in the adrenergic descending spinothalamic tracts which INHIBIT ascending pain impulses, preventing permanent (or long-lasting) modification of pain perception at the level of the CNS. This is why I give Elavil on Day One to people with zoster - to prevent post-herpetic neuralgia. A little Elavil early on saves a lot of trouble later. By analogy with PHN, I would choose Elavil over SSRI for vulvodynia - and I would administer it early rather than saving it for a last resort when all else has failed. Having said all of that, I have had better CLINICAL results in burning mouth and burning vagina with SSRIs than with Elavil, perhaps because what I'm treating in these cases is not a chronic pain syndrome per se, but a manifestation of depression. I've now moved on from SSRIs to the RIMA class of MAOIs - notably Manerix - because of a better side effect profile and almost complete absence of effect on sexual function. Kevin C. Smith MD FRCPC The sexual dysfunction with SSRIs may be overcome with amantadine, in some reports. Also, there is an OTC antihistamine which also works, but I have blanked out on which one. Wellbutrin also is a good one for people experiencing this problem on Prozac and Zoloft. Diane Thaler. - Periactin is probably the antihistamine you were trying to think of - has been reported to counter SSRI-associated sexual dysfunction. KC Smith MD FRCPC - How much will That cost? I can't even imagine the costs for this type of therapy near Park Avenue! Robert I. Rudolph, M.D., FACP - In reply to Dr. Rudolph regarding the cost of biofeedback (for vulvodynia) in NYC, I'm sorry, I don't know. Gae Rodke and her co worker presented their work as part of a study and I don't know if the study is ongoing or not. Peter Lynch - Two additional references on Vulvodynia Fitzpatricks's Journal of Clincial Dermatology Sept?Oct 1995 vol3 #5 pp9-12 Articles by Caroline S. Koblenzer, MD andLibby Edwards, MD Same Journal Jan/Feb 1994 pp37-38 Author Elaine T. Kaye, MD Bill Liss I might consider MRI of lower spine to r/o metastatic OR occult melanocytic disease or other disease, such as, degenerative osteoarthritis of spine with neural compression. Then, I would consider capsaicin, diluted in vehicle of your choice, with gradual increase in strength titrated to efficacy (as long as mucous membrane isn't involved). Patrick Carrington, M.D. - I have long considered that some cases of vulvodynia...and related pain syndromes at the same segments...might be related to occult entrapment syndromes similar to meralgia paresthetica. I was abit hesitant to suggest same in a public forum, but since Dr. Carrington brings up the subject, I think such an etiology merits some consideration. I might think of the situation in the same way as meralgia paresthetica, or even notalgia paresthetica. I am not sure how to prove it. I have been working with a very creative physiatrist in designing some tests to prove or disprove my theory. Certainly, Elavil is a very good agent in neuropathies of various types...I agree with Peter Lynch, and I use a similar approach. At the risk of being pilloried, would any of you wonder if standard chiropractic manipulations of the lumbar and sacral segments be of any value? Is accupunture to be considered? Elliot Puritz - Is the vulvodynia chronic or intermittant. If you do try Elavil, please warn the patient about weight gain. It brings to mind a survey done several years ago. When women were asked would they rather have a happy marriage or lose 10 pounds, they chose the weight loss. This might apply. I assume that vestibul"itis" implies histological/clinical inflammation. Clinically I understand the diagnosis is based on minute erythematous dots in the vestibule, associated with pain with Qtip pressure. For the life of me I can't understand why this "itis", as opposed to other inflammatory dermatoses, is treated with tricyclics and surgical excision. Where is the Plaquenil, the Dapsone, the ASA, the Doxycyline, and yes, the Accutane (as it is "glandular"). Dr. Fishers column in Cutis this month is about the perplexing problem of men who can't tolerate their pants. Elavil was not listed as therapies attempted, nor was surgical excision of their thighs. Diane Thaler - For topical Rx: 1. Topical doxepin is absorbed too much and ends up being sedating. It also occasionally behaves as a severe irritant. 2.. For local Rx of vulvar and perianal dermatoses I like Aquanil HC - lathered gently with a cotton ball or bare hand, then wiped off with a soft tissue. Not rinsing it leaves a thin soothing layer of it on raw tender skin. For daily cleansing plain Aquanil is great - less irritating than water when tested on diaper dermatitis. Gene Sienkiewicz, M. D. Gene, when I give acne patients samples of Aquanil, Cetaphil, SFC, and CAM lotion to try (along with Retin A), they always chose CAM. Have you tried the other soapless soaps? (CAM is made by Herald) Diane Thaler - Irwin, you might consider a consultation with a neurologist for a TCA, sometimes used in a variety of chronic pain syndromes. Jay Barnett Have you tried Zonolon cream? I recently had a similar patient who was helped tremendously by this. Jeff Marmelzat, M.D. I know it is not a cure for her problem, but perhaps Nupercainal ointment might afford her some relief. It is a vaseline base and delivers 1% dibucaine, an amide type anesthetic like lidocaine. She can buy it without a prescription next to the Anusol and Preparation H type stuff. E. Zabawski, DO, RPh I had a patient with intractable vulvdynia respond to capsacian cream. It might be worth a try, however, you would first warn her of the initial burning sensation accompanying the substance P depletion. Nortryptiline might also be worth trying. Rhett Drugge -
"Vulvodynia", By Lauren Kunis - DrDonnica.com - The First Name In Women's Health
Developing vulvodynia has been lifealtering. Being an outspoken voice in the community seems like second nature to me. vulvodynia by Lauren Kunis
http://www.drdonnica.com/champions/00003536.htm

Extractions: by Lauren Kunis In September, 1999, I was diagnosed with Vulvodynia after suffering for 2 months with intense swelling, pinching, tingling, and ripping sensations, 24 hours a day, 7 days a week. Before I was finally diagnosed I saw - one family practitioner, my then - current gynecologist, and finally the gynecologist that diagnosed me. After hearing, "yes you look swollen but it probably is just your detergent", and, "well I don't see any signs of a yeast infection, but I am going to give you some suppository yeast medication anyway" and after trying every prescribed Herpes medicine (even though I tested negative for the disease), I decided to comb the Internet for help. Through an Internet referral from a STD site, I found the doctor who diagnosed me. After the initial shock of the diagnosis wore off I thought to myself, Okay, we live in the information age, I will go to the Internet. I typed the name of this disease in the search engines. I thought I would find doctors and medicines and whatever I needed to help me cope with this disease. However, I learned there was little to no information available. I remember the pain I was in, the flares I had almost everyday for hours with no relief. I was taking a low dose of anti-depressants, (to help dull the nerves so that the pain would lessen,) nothing was helping the flares (severe swelling) and with what little energy I had left after battling the pain all day long, I would get on the Internet and try (in vain) to find information on possible treatments. The process was exhausting!
Interstitial Cystitis Association - Related Diseases - Vulvar Pain
Some women experience sharp pains or deep aching. WHO GETS vulvodynia? WHAT CAUSES vulvodynia? The precise cause of vulvodynia is unknown.
http://www.ichelp.com/RelatedDiseases/VulvarPain.html

Extractions: ABOUT THE ICA PRESS RELEASES FEATURE ARTICLES PHYSICIANS' RESOURCES ... OUR SPONSORS (and free sample offers) IC Terminology Guide ICA Resource Materials Guide VULVAR PAIN What is Vulvodynia? The term vulvodynia is derived from "vulva" and the Greek word "odynia" meaning pain (pronounced vul-vo-DIN-ee-ah). There are two basic subtypes of vulvodynia, and they are not always easy to distinguish from each other: There are several other conditions that cause chronic vulvar pain that may coexist with vulvodynia. The most common of these are: Many doctors are still not familiar with vulvodynia and, as a result, patients are frequently misdiagnosed or go undiagnosed. The pain of vulvodynia isn't always accompanied by visible skin changes and sometimes patients are told, "It's all in your head." But the condition is very real.
Interstitial Cystitis Association - Related Diseases - The Latest Research On Vu
Like the ICA, the National vulvodynia Association (NVA) updates its membership about the latest research by mining the medical literature for the best and
http://www.ichelp.com/RelatedDiseases/TheLatestResearchOnVulvodynia.html

Extractions: ABOUT THE ICA PRESS RELEASES FEATURE ARTICLES PHYSICIANS' RESOURCES ... OUR SPONSORS (and free sample offers) IC Terminology Guide ICA Resource Materials Guide Like the ICA, the National Vulvodynia Association (NVA) updates its membership about the latest research by mining the medical literature for the best and latest studies on vulvodynia. These are the articles appearing in the medical literature or studies presented at meetings between December 2003 and March 2004 that the NVA identified as important to women with vulvodynia. Because many women with IC also have vulvodynia, we bring you this research, too, summarized for patients. Receptors Important in IC Bladder Pain are Important in Vulvar Pain, Too Tympanidis P, Casula MA, Yiangou Y, Terenghi G, Dowd P, Anand P. Increased vanilloid receptor VR1 innervation in vulvodynia. Eur J Pain 2004;8(2):129-33. Research on vulvodynia is showing that the vulvar area has some of the same types of receptors that IC researchers think could be important in the bladder. These are receptors for compounds called vanilloids, which include capsaicin and resiniferatoxin. They are found on pain-sensing nerves and are sensitive, not only to these compounds, but also to noxious heat, protons, and chemicals produced during inflammation. When these researchers looked at vulvar tissue under the microscope, they found these receptors and the nerve fibers they are on are much more common in tissue from vulvodynia patients than in tissue from healthy subjects. The researchers hope that this means that compounds that block the vanilloids could provide new treatments for vulvodynia.
Vulvodynia Q & A Treatments Prevention Support
Explore vulvodynia treatments, and prevention. Learn where to find support for women with vulvodynia or vulvar pain. Q. What are the treatments for vulvodynia?
http://womenshealth.about.com/library/weekly/aa102000a.htm

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Vulvodynia
Note All links within content go to MayoClinic.com. Diseases and Conditions. vulvodynia. There are several reasons vulvodynia may be underreported.
http://www.cnn.com/HEALTH/library/DS/00159.html

Extractions: RELATED STORIES You have chronic pain: Now what? INFORMATION CENTERS: Pick a category Health Centers Family Health Men's Health Women's Health Children's Health Seniors' Health Working Life Pain Management Condition Centers Immune System Allergy Alzheimer's Arthritis Respiratory System Cancer Endocrine System Digestive System Heart and Blood Infectious Disease Mental Health Note: All links within content go to MayoClinic.com Diseases and Conditions Vulvodynia From MayoClinic.com Overview These descriptions may be characteristics of a lasting pain in the area around the opening of your vagina (vulva) called vulvodynia (vul-vo-DIN-ee-uh) or chronic vulvar pain. At least 200,000 women in the United States have vulvodynia, but experts believe the condition is greatly underrecognized. Some research suggests the disorder may affect as many as one in six women at some point in their lives. There are several reasons vulvodynia may be underreported. It may be partly due to the absence of visible signs of the condition. Or it could be the reluctance of many women to talk about their symptoms. If you or someone you know is living with chronic vulvar pain, don't hesitate to get help. Treatment options are available to lessen the pain.

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