Rare Disorders - Articles In addition there are a variety o. http//www.cancerindex.org/clinks2d.htm.WWW.TERADEX.COM Health/Fitness/Diseases/Rare Disorders/vater syndrome. http://www.allhealthlinks.com/dir/624/295.php
Extractions: Rare Disorders - Articles Home Conditions and Diseases > Rare Disorders General Health Information > Articles Allhealthlinks Directory is a human edited directory, which only includes quality sites that we have approved, in the interest of creating a comprehensive directory of quality health resources. Click below for more info: google_ad_client = 'pub-2815073187333366'; google_ad_width = 300; google_ad_height = 250; google_ad_format = '300X250_as'; google_ad_channel = '3846168253'; google_color_border = "f7f7f7"; google_color_bg = "f7f7f7"; google_color_link = "blue"; google_color_url = "blue"; google_color_text = "000001";
Extractions: Blepharophimosis Ptosis Epicanthus Inversus Syndrome - The BPEI (BPES) Family Network encourages people to get in touch with each other, share information and ask questions. Explanation of this rare eye disorder. Dr. Greene's HouseCalls - A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease. Gene Clinics - Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. Genetic Disorders: The Links to Diet - Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. Genetic and Rare Conditions Site - Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.
Extractions: Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrosing Mediastinitis - The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations.
Semissourian.com: Article It provides support for families affected by vater syndrome, a seriesof birth defects. How do I know this? I have vater syndrome. http://semissourian.com/story.html$rec=134812
Extractions: I love the Internet. Technology and I sometimes don't get along, but the Internet, in my opinion, is one of the absolute best inventions ever. The best thing about the Internet is that it connects you to people. In one night, I can talk to my father who lives in Jackson, my best friend who lives across town and my cousin who lives in New York. I love that. Then of course, I spend about an hour on something called the VATER board. This message forum is run by an organization called the VATER Connection. It provides support for families affected by VATER Syndrome, a series of birth defects. Each letter stands for something: V vertebrae defects, A anal defects, T/E tracheal and esophagus problems, and R stands for both Renal and Radial (kidney and thumb abnormalities). How do I know this? I have VATER Syndrome. Through this board, I have met people like myself, and I think I've learned to deal with my condition a lot better. When I log onto the board, I get excited. Sometimes I have messages waiting for me in my inbox, which I always go to first. After that's taken care of, I read the most recent messages on the board. Sometimes I reply, sometimes I don't it all depends on what the post is about. In one session, I read about everything, from dealing with swallowing issues to hearing about some VATER children's most recent doctor appointments, from heart specialists to bone specialists. The entire reason the board exists is for VATER children and their families to have a place to both give and get support and advice. Every time people ask me questions about the condition, I refer them to the board.
»»VATER Syndrome Movie Reviews«« vater syndrome Movie Reviews. Related Subjects Conditions_and_Diseases. Familymovie reviews for vater syndrome sorted by average review score http://www.family-movie-review.com/Health/Conditions_and_Diseases/VATER_Syndrome
Extractions: Related Subjects: Family movie reviews for "VATER Syndrome" sorted by average review score: The China Syndrome Released in DVD by Columbia/Tristar Studios (28 August, 2001) MPAA Rating: PG (Parental Guidance Suggested) Director: James Bridges Starring: Jane Fonda, Jack Lemmon, and Michael Douglas James Bridges ( Urban Cowboy Bright Lights, Big City ) directed this 1979 film that became a worldwide sensation when, just weeks after its release, the Three Mile Island nuclear accident occurred. Jane Fonda ( Klute Julia ) plays a television news reporter who is not taken very seriously until a routine story at the local nuclear power plant leads her to what may be a cover-up of epic proportions. She and her cameraman, played by Michael Douglas ( Wall Street American President ), hook up with a whistleblower at the plant, played by Jack Lemmon ( Save the Tiger Missing ). Together they try to uncover the dangers lurking beneath the nuclear reactor and avoid being silenced by the business interests behind the plant. Though topical, the film (produced by Douglas) works on its own as a socially conscious thriller that entertains even as it spurs its audience to think. Robert Lane Average review score: Takes itself more seriously than it can I don't think time has been kind to this flick. Even though recession, Enron and the rise-and-fall of another era of cheap gas make it nuclear power look attractive as it did in the late 1970's, this movie just doesn't radiate.
Re: Imperferate Anus Related To Other Syndromes??? posted by Amy on May 20, 2003 at 135229 Hi Amy, vater syndrome is oftencalled VACTERLS syndrome. The C was added for cardio problems. http://www.uoa.org/discussion/pocboard2/messages/586.html
Extractions: VATER syndrome is often called VACTERLS syndrome. The C was added for cardio problems. Cameron also had a VSD that closed on its own (finally a break!). He also has the Renal, Anus, and Vertebral issues. I've heard that a child is often classified with VATER Syndrome if they have 2 or more anomalies, but I've also heard 3 or more. I assume they've done kidney testing on your daugther(?) VATER actually isn't a chromosomal defect, so it's not genetic, to me VATER is just a label and it keeps me aware of other VATER issues that may arise and we keep an eye on those things. I do know of a mom who considers her child to have VATER and he has just 2 anomalies, I guess there are varying degrees. I've also heard of kids who have almost all of the anomalies. You may find the vaterconnection.org site helpful in your search for answers! I'm going to write another note to you re: the anoplasty under the topic, Cameron had that done too.
Conditions And Diseases: Rare Disorders: VATER Syndrome Health and Home. vater syndrome. receive titanium rib implants. http//www.zoelambert.com.vater syndrome. Last Update Mon May 10 2004. http://www.health-home.net/Conditions_and_Diseases/Rare_Disorders/VATER_Syndrome
MSN Groups vater syndrome family support group (38 members), i am aiming tocreate a group for families of children With vater syndrome can http://groups.msn.com/browse.msnw?catid=96&sortby=2&alphastart=V
ThinkQuest : Library : Living With Prader-Willi Syndrome My cousin has a rare disease called vater syndrome, and I wish people would treathim normally or find out about vater syndrome so they understand him better. http://library.thinkquest.org/5696/gather/cgi-bin/gbook.html
Extractions: Index Diseases In a brainstorming session, the students came up with the idea of doing a site on Prader-Willi Syndrome. Their fellow classmate and friend, Kelsey, has the disease, and little was known about it. The students thought this was a good way to learn and to teach others about this disease. The students would like to incorporate this project into Prader-Willi awareness week which is April 24 through May 2, 1999. Visit Site 1999 ThinkQuest USA Want to build a ThinkQuest site? The ThinkQuest site above is one of thousands of educational web sites built by students from around the world. Click here to learn how you can build a ThinkQuest site. Privacy Policy
Karger Publishers pathology, reconstruction enabled assessment of basic anatomical structures andtwo temporal bones show malformation of the stapes (vater syndrome) and the http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext&ProduktNr=
Wuup.de - /Health/Conditions_and_Diseases/Rare_Disorders vater syndrome. Siehe auch Top/Health/Conditions and Diseases/V.Links. » A Problem Shared The TOFS Support Group was founded in http://wuup.de/index.php/Health/Conditions_and_Diseases/Rare_Disorders/VATER_Syn
Clete's Hotlist Whew! Down Syndrome WWW Page This site pertains to Down Syndrome and offers linksto a number of other DS explorations. vater syndrome vater syndrome page http://www.novia.net/~cletus/hotlist.html
Extractions: Cletus Baker cletus@novia.net Document last updated Sunday 14 Sep 1997. Note that this list began simply as a repository for URLs once my browsers' hotlists became unwieldly. As I use different browsers between work and home, it was also a location to maintain a hotlist common to both. The commentaries about the sites were intended as personal notes, not public reviews. The list, however, seems to have since gained a life of its own, attracting numerous visitors daily. It is my intention to continue to maintain this list as a personal notespace which I'll freely share with any who accept that at face value. Bearing in mind that others can and do access it, I'll endeavor to keep the commentary factually accurate, but it will always be my own reaction to a site which is portrayed, not a "review". Webmasters of sites at which I've levelled criticism are free to challenge my perception via e-mail Return to Clete Baker's Homely Page Indices and Master Lists Stuff That Only Nina Could Love Business and Commercial Sites Disability Related Sites ... New Additions (as yet uncategorized) Indexes and Master Lists.....
Extractions: Syndrome VATER (vertebral defects-anal atresia-tracheoesophageal fistula-esophageal atresia-radial and renal dysplasia) association or syndrome Synonyms Kaufman syndrome Quan-Smith syndrome Say-Gerald syndrome hydronephrocolpos-postaxial polydactyly-congenital heart disease syndrome imperforate anus-polydactyly syndrome polydactyly-imperforate anus syndrome polydactyly-imperforate anus-vertebral anomalies syndrome VACTERL (vertebral anomalies-anal atresia-cardiac abnormalities-tracheoesophageal fistula-renal agenesis-limb defects) association or syndrome Summary Originally reported as VATER association, the syndrome consists of an association of vertebral abnormalities, anal atresia, cardiovascular defects, tracheoesophageal fistula, esophageal atresia, renal agenesis or dysplasia, and limb abnormalities. Additional abnormalities later observed in VATER patients include vertebral anomalies, and spondylocostal dysplasia, and intestinal, cardiac, renal, and respiratory malformations, leading to expansion of the acronym to VACERL association. Central nervous system malformations and mental retardation were noted in a small number of cases. The acronyms emphasize only the most frequently malformations and a wide variety of other defects affecting most parts of the body may be associated. See also VACTERL association with hydrocephalus syndrome. Major Features Head and neck: Potter facies (flattened palpebral fissures, prominent epicanthus, flat nasal bridge, mandibular micrognathia, and low-set malformed ears).
VACTERL (VATER) Association, Cincinnati Children's Hospital Medical Center VACTERL (vater) Association. VACTERL or vater association is an acronym used to describea series of characteristics which have been found to occur together. http://www.cincinnatichildrens.org/health/heart-encyclopedia/disease/syndrome/va
Extractions: Home Contact Us Site Map Go to Advanced Search ... Velo-Cardio-Facial Syndrome VACTERL (VATER) Association Signs and Symptoms Cardiac-Related Diagnostic Methods Treatment Options Glossary ... Contact Us Causes, Defects, Heart Problems and Prognosis Explanation Heart Problems Other Defects Causes ... More Information VACTERL or VATER association is an acronym used to describe a series of characteristics which have been found to occur together. V stands for vertebrae, which are the bones of the spinal column. A stands for imperforate anus or anal atresia, or an anus that does not open to the outside of the body. C is added to the acronym to denote cardiac anomalies. TE stands for tracheoesophageal fistula, which is a persistent connection between the trachea (the windpipe) and the esophagus (the feeding tube). R stands for renal or kidney anomalies and radial or arm anomalies. L is often added to stand for limb anomalies. Babies who have been diagnosed as having VACTERL association usually have at least three or more of these individual anomalies. There is a wide range of manifestation of VACTERL association so that the exact incidence within the population is not exactly known. Return to Top What are the heart problems seen with VACTERL association?
