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Usher Syndrome:     more books (26)

Usher syndrome in four Norwegian counties by Jan Grøndahl, 1986 A patient's guide to vision testing for Usher's Syndrome by Natalie Powell, 1981 Facing the future with Usher's Syndrome by Linda Annala, 1977 My son has Usher's Syndrome by Louise S Boardman, 1985 Ushers Syndrome by G H Marshall, 1980-10 Answers to your questions about Usher's syndrome (retinitis pigmentosa with hearing loss) by McCay Vernon, 1986 Orchid of the Bayou: A Deaf Woman Faces Blindness by Cathryn Carroll, Catherine Hoffpauir Fischer, 2001-02-02 And the Journey Begins by Cyril Axelrod, 2006-01-15 A sign to remember by Ron Podmore, 2002 "All About Hearing Loss" by Michelle Tason, 2008-11-23 Self-advocacy (SuDoc ED 1.310/2:375560) by U.S. Dept of Education, The Indiana Deafblind Services Project services for children with deafblindness program : final performance report (SuDoc ED 1.310/2:437788) by U.S. Dept of Education, 1999

lists with details

21. Gene Therapy For Usher 1B
    more usher syndrome Type 1 Progress Towards a Mouse Model An FFBsupported scientist and his colleagues have discovered a mouse that could help propel  
    http://www.blindness.org/disease/default.asp?type=4

22. GeneReviews: Usher Syndrome Type I
    Your browser does not support HTML frames so you must view usher syndrome Type I in a slightly less readable form. Please follow this link to do so.  
    http://www.genetests.org/query?dz=usher1

23. Driving With Usher Syndrome
    Driving with usher syndrome. compiled answer. For parents of children with usher syndrome confronting this issue, I encourage you to  
    http://www.tsbvi.edu/Outreach/seehear/winter98/driving.htm
    
    Extractions: from the Winter 98 issue compiled from conversation on the Deaf-Blind List by Kate Moss , TSBVI Deafblind Outreach For many parents of children with low vision, deciding whether or not to let their son or daughter get a driver's license or attempt to drive is a difficult decision. Even though some individuals may have substantial visual field impairments at an early age, they may still be able to pass the Department of Motor Vehicle's (DMV) eye exam since a visual field test which checks peripheral vision is not a part of that exam. Additionally, the driving portion of the test may not take place during the evening hours, so night blindness may also go undetected by the examiners. Students who go through driver education generally do have to undergo part of their driving during twilight conditions, which can create problems for the student with Usher's and some other eye conditions. As you will learn from this discussion, there does not seem to be a "right" answer. For parents of children with Usher Syndrome confronting this issue, I encourage you to: Discuss your child's visual functioning and prognosis with your ophthalmologist or low vision specialist especially as it relates to driving;

24. Usher Syndrome: Families Come Together For Support
    usher syndrome Families Come Together for Support. Many had never met another family who was dealing with the issues of usher syndrome.  
    http://www.tsbvi.edu/Outreach/seehear/spring98/usher.html
    
    Extractions: Home Site TOC Site Search Outreach ... Spring 1998 Table of Contents by Connie Miles, Educational Specialist and Kate Moss , Family Training Coordinator, TSBVI Deafblind Outreach Parents of children with Usher Syndrome had an opportunity to meet with each other during this year's Symposium on Deafblindness in Austin, TX. The parents came from urban and rural areas of Texas. Some of these parents had just recently learned of their child's condition, while others had known about it for years. Many had never met another family who was dealing with the issues of Usher Syndrome. All these families welcomed the opportunity to share information, questions, concerns, and resources with each other. All arrived accompanied by dreams and photos of their children. Each family went away with hopes to come together again. sheditor@tsbvi.edu Go to Top of Page Spring 1998 Table of Contents SendEMail to SEE / HEAR Please complete the comment form or send comments and suggestions to: Jim Allan ( Webmaster-Jim Allan Last Revision: May 7, 2004

25. Deafblindness - Usher Syndrome
    Text version. Contact Us. Cause. usher syndrome. Communication. Training opportunities. Home Deafblindness . usher syndrome. What is usher syndrome?  
    http://www.deafblindscotland.org.uk/db/indexus.htm

26. Deafblindness - Usher Syndrome
    Genetics in usher syndrome. usher syndrome is a genetic condition, caused by an autosomal recessive gene. Children of Parents with usher syndrome.  
    http://www.deafblindscotland.org.uk/db/usher/gene.htm
    
    Extractions: Deafblindness Home About us What's new Support Us ... Usher Syndrome Genetics in Usher Syndrome Usher Syndrome is a genetic condition, caused by an autosomal recessive gene. Most people with Usher Syndrome are the only ones in their families with the condition although some families do have more than one affected child. In fact, in many families no one else had either a hearing loss or RP. So how can this possibly be inherited? We inherit much from our parents via genes. Each gene has a different function, one may determine what colour of hair we may have or another may determine whether we have curly or straight hair. Some traits need two or more genes working together. For example, your height is determined by several genes, as well as by diet and general health levels throughout childhood. Genetic Conditions What happens in a 'genetic condition' is that the gene that carries out a particular function is either missing or not working correctly. An abnormal gene sends the wrong message to the body, and the body part that the message is sent to is unable to function correctly. Some genes are called 'dominant' genes, and some are called 'recessive' genes. Dominant genes always prevail. Many conditions are the result of a recessive gene, cystic fibroses is one of the most common.

27. Clinical Trial: A Genetic Analysis Of Usher Syndrome In Ashkenazi Jews
    A Genetic Analysis of usher syndrome in Ashkenazi Jews. usher syndrome is the name of a disease where people have both hearing loss and visual loss.  
    http://www.clinicaltrials.gov/ct/show/NCT00016471?order=1

28. Usher Syndrome.
    usher syndrome is a genetic disorder characterised by the loss of both hearing and vision. Some people also experience problems with balance. usher syndrome.  
    http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Usher_syndrome
    
    Extractions: Home Contact Us About Us Subscribe ... Links Search site All Topics Medicines Recipes Service directory Ask the experts Events/Activities News Topics Health conditions Genetic issues Other conditions ... Need help? Thursday Jun 3 Usher syndrome is a genetic disorder characterised by partial or total hearing loss from birth, and a gradual vision loss caused by retinitis pigmentosa (RP). The name retinitis pigmentosa refers to the deposits of black pigment found in the retina of people with this condition. This is a form of eye disease that results in the gradual loss of vision over time due to deterioration of the retina. At first, the person becomes night blind, as the eyes can no longer see in dim light. Over time, the field of vision diminishes until the person has only a 'tunnel' of central vision. Some people with Usher syndrome also experience problems with their balance. Usher syndrome is categorised into three broad groups according to the type and severity of symptoms. Type 1 and Type 2 account for around 10 per cent of children who are born deaf. There is no cure. Services aim to help the person prepare for and cope with this dual loss.

29. HKNC Usher Syndrome Book Table Of Contents
    usher syndrome Book. “Understanding usher syndrome An Introduction for School Counselors”. Table of Contents. Preface. Part I Understanding usher syndrome.  
    http://www.hknc.org/UsherSynTblofCnts.htm
    
    Extractions: Usher Syndrome Book “Understanding Usher Syndrome: An Introduction for School Counselors” Table of Contents updates: last modified 13 November 2003 THIS IS THE " USHER SYNDROME 'UNDERSTANDING USHER SYNDROME: AN INTRODUCTION FOR SCHOOL COUNSELORS' TABLE OF CONTENTS" PAGE IN "FYI" (Go to: Page Menu) Table of Contents: Preface Part I: Understanding Usher Syndrome What do I need to know about… Types of Usher syndrome Retinitis pigmentosa Identification and diagnosis of Usher syndrome Personal and counseling issues for children with Usher syndrome and their parents Lifespan chart Communication issues The effects of Usher syndrome in the educational setting Career planning Cochlear implants Orientation and mobility Specialists who can help people dealing with Usher syndrome Technology Part II: Living with Usher syndrome “Dealing with Usher Syndrome” by Harry C. Anderson “Meeting Challenges Head On” by Kathie Anderson “Journey to Understanding” by Jeffrey Bohrman “One Day at a Time” by Patti Lago-Avery “Growing Up with Usher Syndrome” by Arthur Roehrig “If I Can Do It, So Can You” by Heather Schoenwald

30. GeneReviews: Usher Syndrome Type II
    Your browser does not support HTML frames so you must view usher syndrome Type II in a slightly less readable form. Please follow this link to do so.  
    http://www.geneclinics.org/profiles/usher2/

31. Usher Syndrome - Information / Diagnosis / Treatment / Prevention
    home genetic disorders usher syndrome usher syndrome. usher syndrome A description of this disease from Retinal Preservation Foundation of South Africa.  
    http://www.healthcyclopedia.com/genetic-disorders/usher-syndrome.html
    
    Extractions: Web Directory: A-Z Deafblindness An in depth article by Mary Guest, Head of Usher Services at Sense, about Usher syndrome. Includes detailed description of what it is, the symptoms, genetics, transmission, the problems associated with it and what can be done. Usher Syndrome A description of this disease from Retinal Preservation Foundation of South Africa.

32. Support Group
    Support Page usher syndrome. usher syndrome, Boystown; What is usher syndrome, Texas Association Retinitis Pigmentosa; usher syndrome  
    http://www.kumc.edu/gec/support/usher.html

33. Usher Syndrome
    usher syndrome. From a pamphlet by the National Institute on Deafness and Other Communication Disorders. What Is usher syndrome?  
    http://www.jwen.com/rp/ushers/ushers.html
    
    Extractions: Usher syndrome (US) is the most common condition that involves both hearing and vision problems. A syndrome is a disease or disorder that has more than one feature or symptom. The major symptoms of US are hearing impairment and an eye disorder called retinitis pigmentosa, in which vision worsens over time. Some people with US also have balance problems. There are three different types of US. Although it was first described by Albrecht Von Graefe in 1858, US was named for Charles Usher, a British eye doctor, who believed that this condition was inherited or passed from parents to their children.

34. Introduction: Usher Syndrome - WrongDiagnosis.com
    Introduction to usher syndrome as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis.  
    http://www.wrongdiagnosis.com/u/usher_syndrome/intro.htm
    
    Extractions: Usher Syndrome: Usher syndrome is an inherited condition that causes 1) a serious hearing loss that is usually present at birth or shortly thereafter and 2) progressive vision loss caused by retinitis pigmentosa (RP). RP is a group of inherited diseases that cause night-blindness and peripheral (side) vision loss through the progressive degeneration of the retina, the light-sensitive tissue at the back of the eye that is crucial for vision.

35. Usher Syndrome - Hearing Loss And Communication Disorders
    usher syndrome. What is usher syndrome? Some people with usher syndrome also have balance problems. How common is usher syndrome?  
    http://www.medicinenet.com/usher_syndrome/article.htm
    
    Extractions: Printer-Friendly Format Add to Favorites Email to a Friend ... Next page What is Usher syndrome? Usher syndrome is a genetic disorder that is characterized by hearing impairment as well as an eye disease called retinitis pigmentosa in which vision degenerates (gets worse) over time. Some people with Usher syndrome also have balance problems. How common is Usher syndrome? Usher syndrome is the most common condition (aside from aging) that affects both hearing and vision. More than half of all deaf-blind people in developed countries (such as the US, Canada, and France) have Usher syndrome. How is Usher syndrome inherited? The syndrome is transmitted (passed along) in families by autosomal recessive inheritance, which requires the presence of two copies of the Usher gene for the disorder to be manifest. Each parent of a boy or girl with Usher syndrome is a "carrier" with one standard and one mutated Usher gene but no sign of the syndrome. A child with the syndrome has it because he or she received two mutated Usher genes , one from each of the carrier parents.

36. NORD - National Organization For Rare Disorders, Inc.
    usher syndrome. To purchase fulltext report ($7.50) Copyright 1989, 1990, 1993, 1996, 1997, 1998, 1999, 2000, 2001 Synonyms of usher syndrome  
    http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Usher Syndrom

37. Usher Information
    Information for parents on usher syndrome and services available in Victoria, Australia. time. An example is usher syndrome. Usher  
    http://www.dba.asn.au/usherinf.htm
    
    Extractions: About Services Awareness The Link ... Contact Us Brief information for parents on vision and hearing impairment and Usher Syndrome Victorian-based services. DOES YOUR CHILD HAVE? This information is designed to alert parents to changes in their children's hearing and vision. It provides details on the relevant organisations to contact for further information. This information has been developed by the Victorian Usher Syndrome Project Committee (1998) VISION IMPAIRMENT Poor vision is not always apparent with children. Children themselves are not always aware that they see worse than other people - the child believes that everyone sees the way he/she does. Children may suffer from one of the frequent vision impairments such as short-sightedness, cross-eye astigmatism, etc. In most cases, these vision impairments can be easily corrected. Symptoms in children alerting you to vision impairment include:

38. Usher Syndrome Information Kit
    usher syndrome Information Kit. An informative usher syndrome information kit is currently available from The Deafblind Association.  
    http://www.dba.asn.au/usherkit.htm
    
    Extractions: About Services Awareness The Link ... Contact Us Usher Syndrome Information Kit In large print format, the kit deals with a number of informative topics including explanations of the different types and effects, reactions to diagnoses, a guide for parents, the facts about retinitis pigmentosa, the state of research, cataracts, interpreting, hints for classroom teachers and stories about people with Usher. The kits are available to people living in Australia for $8 (individuals) or $13 (organisations) inclusive of postage. NOTE: These are Australian prices. Overseas airmail per-copy cost for individuals is $US15.00. You may order the information kit in a number of ways Contact The Deafblind Association, PO Box 1213, Camberwell Vic. 3124 for an order form. Print out this page and send the form below to the Association by mail or fax with your credit card details. Print out this page and mail the form below to the Association with your cheque or postal order. If ordering from overseas, please pay by banker's draft.

39. Usher Syndrome - Deafblindness Cause
    usher syndrome Deafblindness Cause. I am your Guide, From Jamie Berke, Your Guide to Deafness / Hard of Hearing. usher syndrome Information Resources.  
    http://deafness.about.com/cs/deafblindarticles/a/ushersyndrome.htm
    
    Extractions: zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') About Deafness / Hard of Hearing Hearing Loss Basics Medical Causes ... Free E-courses zau(256,152,145,'gob','http://z.about.com/5/ad/go.htm?gs='+gs,''); Sign Language Deaf People Hearing Devices Deaf Community ... Help zau(256,138,125,'el','http://z.about.com/0/ip/417/0.htm','');w(xb+xb); Subscribe to the About Deafness / Hard of Hearing newsletter. zau(256,152,100,'hs','http://z.about.com/5/ad/hs.htm?zIhsid=00',''); Search Deafness / Hard of Hearing Email to a friend Print this page Stay Current Subscribe to the About Deafness / Hard of Hearing newsletter. Recent Discussions Got the shock of my life... All Deaf Babies Implanted Now? homeschooling Suggested Reading Deafblindness Causes of Hearing Loss Other Comments? Questions? Articles by Date Articles by Topic Most Popular Sign Language Dictionaries Online Helen Keller Fingerspelling - Learn the Manual Alphabet Law, Legal Rights, and Deaf and Hard of Hearing ... Ear Wax What's Hot Deaf Expo Law, Legal Rights, and Deaf and Hard of Hearing Deaf Erotica Insurance and Hearing Aids ... History of the TTY From Jamie Berke Sign up for my Newsletter If you are having difficulty seeing at night, and are hearing impaired, you may be experiencing the onset of Usher Syndrome. Usher is a hereditary condition that results in the progressive loss of eyesight as well as deafness. It is also a condition that is often not diagnosed until later in life, which can result in major psychological impact on the individual. I once knew someone whose Usher Syndrome was not discovered until college, but the student's parents had known about it for years and did not tell their child for fear that the child might not strive to achieve as much if the child had known.

40. UAB Health System | Usher Syndrome
    usher syndrome. What is usher syndrome? usher syndrome is passed from parents to their children genetically. What are the different types of usher syndrome?  
    http://www.health.uab.edu/show.asp?durki=15229

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