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Spinal Muscular Atrophy: more books (27)

Current Concepts in Childhood Spinal Muscular Atrophy
The Official Parent's Sourcebook on Spinal Muscular Atrophy: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-11-18
Progressive Spinal Muscular Atrophies (The International Review of Child Neurology) by Ingrid Gamstorp, 1984-04
Living with Spinal Muscular Atrophy: The True Story of Kassidy Jade Sears by Trina Allen, 2006-09-28
Spinal Muscular Atrophy Medical Guide by Qontro Medical Guides, 2008-07-09
Spinal Muscular Atrophy - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-18
Spinal muscular atrophy: An entry from Thomson Gale's Gale Encyclopedia of Neurological Disorders by Borut, MD, PhD Peterlin, 2005
Spinal muscular atrophy: An entry from Thomson Gale's Gale Encyclopedia of Genetic Disorders, 2nd ed. by Philip Young, Christian, PhD Lorson, 2005
Nutrition issues associated with spinal muscular atrophy. (Review).: An article from: Nutrition & Dietetics: The Journal of the Dieticians Association of Australia by Sarah Leighton, 2003-06-01
Motor Neuron Disease: Motor Neurone Disease, Amyotrophic Lateral Sclerosis, Post-Polio Syndrome, Survival Motor Neuron Spinal Muscular Atrophy
Spinal Muscular Atrophy by Lambert M. Surhone, Miriam T. Timpledon, et all 2010-07-03
Spinal muscular atrophy: An entry from Thomson Gale's Gale Encyclopedia of Children's Health: Infancy through Adolescence by Rosalyn, MD Carson-DeWitt, 2006
Spinal and Bulbar Muscular Atrophy - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-20
Spinal muscular atrophy: An overview, apoptosis and osicative stress theories, and ethics by Jennifer Melissa Almonte, 1999

lists with details

Spinal Muscular Atrophy - Families Of SMA Home Page
Information on spinal muscular atrophy, Types I, II, II and IV and Kennedy s Disease. International Alliance for spinal muscular atrophy. Other Languages.
http://www.fsma.org/

Extractions: Spinal Muscular Atrophy About Families of SMA Local Chapters ... FAQ If your child is newly diagnosed with SMA , please see Coping with a Diagnosis of SMA for help. If you need basic information on SMA - for a research project or personal use, see Introduction to SMA Be sure you hear about it - when a cure or treatment for SMA is found! Join the FSMA email list for research updates FSMA Canada International Alliance for Spinal Muscular Atrophy Other Languages Français Español Deutsch Italiano For more translation help, see www.freetranslation.com or www.systransoft.com Make a Donation to FSMA through Network for Good Contact Families of SMA Welcome to the web site of Families of Spinal Muscular Atrophy - a comprehensive, on-line information and resource center. We invite you to explore our pages and reach out to our 'extended family.' Click here to Make a Donation to find a Cure News and Updates
Understanding Spinal Muscular Atrophy
Understanding spinal muscular atrophy A Comprehensive Guide. What Is spinal muscular atrophy? spinal muscular atrophy (SMA) is a
http://www.fsma.org/booklet.htm
SPINAL MUSCULAR ATROPHY
This site contains a collection of material pertaining to SMA. I have been searching facts on SMA ever since our son was diagnosed with the disease in 1994.
http://members.rogers.com/mwcunning/sma.htm

Extractions: Introduction Our family lives in Ajax, Ontario Canada. My wife and I have two children. Our youngest child Andrew Since that time I have been searching the internet for information on SMA. I decided to make a web page so that other parents and people who are affected by this disease could find information about SMA. I have been playing around with this page on and off ever since. So come back your sure to see a change. I hope that you will be able to find some information here to answer some of your questions. If you can help me with some ideas I would be very happy. Please take the time to leave a note on my GuestBook . Thank you. The following information are direct links to information that you can find at the web site of Families of Spinal Muscular Atrophy (FSMA) . Just to make it a little easier to get to the information directly, just click on the information that you are interested in learning about.You will also find further down on this page my bookmarks with a link to the home page of FSMA.
JTSMA Home Page
The Jennifer Trust for spinal muscular atrophy. The Jennifer Trust is the UK support group for people with spinal muscular atrophy and for their families.
http://www.jtsma.org.uk/

Extractions: You are here: Home Home How to use the Web Site New Diagnosis SMA Information News and Views ... Site Map Acrobat Reader Some of the documents on this site are in Portable Document Format. Click to get the free Acrobat Reader The Jennifer Trust is the UK support group for people with Spinal Muscular Atrophy and for their families. Since 1985 the Trust has grown to have more than 1,500 member families, and is in contact with other groups and families all round the world. This pool of knowlege and experience is available through this website and in all the Trust's activities. Read more about the JTSMA Please click here now to donate on-line Please try the office number first on For Out of Hours contact, for non urgent calls please leave a message on the answer phone. For urgent assistance, you can contact us on 0870 774 3653. Please use this only for newly diagnosed families and those who need to talk to someone immediately. If you have not used this web site before, or have just received a new diagnosis of SMA and are not sure where to start, please follow one of these links:
The Spinal Muscular Atrophies | MDA Research
Provides information aimed at health professionals about this disease. Includes definition, classification, epidemiology, clinical features, therapy and research into the congenital condition.
http://www.mdausa.org/research/munsat.html

Extractions: by Theodore L. Munsat, M.D. Director, Neuromuscular Research Unit, New England Medical Center Hospitals, Professor of Neurology and Pharmacology, Tufts University School of Medicine, Boston, Massachusetts. "The Spinal Muscular Atrophies," by Theodore L. Munsat M.D., a long-time MDA Researcher. From CURRENT NEUROLOGY, Chapter 3, Vol. 14, 1994, pp. 55-71. Used by permission of Mosby-Year Book, Inc. Note: Numbers in "(_)" denote footnotes. DEFINITION AND CLASSIFICATION This chapter was written as a review of the spinal muscular atrophies (SMAs) for the practicing neurologist. Emphasis in text and references will be placed on developments in the past 5 years on the background of a general review of the subject. The SMAs constitute a group of neuromuscular disorders defined by a disease process limited to the anterior horn cell (AHC). Other neurologic systems and other organs are rarely involved. Many patients with SMA have a family history of similarly affected individuals, and the phenotypic similarity between familial and nonfamilial cases suggests that the sporadic disease may also be inherited. Most patients with SMA experience clinical onset in childhood and demonstrate autosomal recessive inheritance. A smaller number show autosomal dominant or X-linked inheritance, and onset begins later in life. A major breakthrough occurred in 1990 when the gene causing the more common autosomal recessive childhood-onset SMA was mapped to the proximal portion of the long arm of chromosome 5.(1) Subsequent work has progressively narrowed the suspect region, and it is anticipated that within the near future the gene will be cloned, its protein product identified, and an effective therapy devised for the first time. Importantly, these developments have already led to reliable prenatal testing.
Spinal Muscular Atrophy / Family Village
See Also Muscular Dystrophy. Who to Contact. Where to Go to Chat with Others. Learn More About It. Web Sites. Search Google for "spinal muscular atrophy" Who to Contact. Families of S.M.A. ( Spinal
http://www.familyvillage.wisc.edu/lib_spma.htm

Extractions: Website: http://www.fsma.org/ The Families of S.M.A. (Spinal Muscular Atrophy) organization promotes and funds research, provides families with the use of their equipment pool to help alleviate the high cost of medical equipment, promotes public awareness, provides networking, and funds a roster at Indiana University, enabling researchers a central location from which to access necessary family information. They also provide families who have little or no insurance with financial assistance in the purchase of necessary equipment. Families of S.M.A. has local support groups with a directory available. They will provide assistance to individuals who wish to start a chapter in their area, and provide parent-to-parent matching through network listings. SMA publishes a quarterly newsletter, Directions , which is included in membership fees, and offer a brochure that describes the organization. They offer a new parent packet that includes; back issues of the newsletter, information on daily management of affected persons, research updates, and networking. There is also a bibliography of books, a lending library and a video that are available to members. Call or write for further information.
Melissa's Page On Spinal Muscular Atrophy
Personal web page about spinal muscular atrophy. Describes growing up with the disease and current events in Melissa's life.
http://www.geocities.com/sma4mel/

Extractions: Melissa's Page on Spinal Muscular Atrophy Hi, my name is Melissa, welcome to my page about Spinal Muscular Atrophy. I know that we are all different, and that a neuromuscular disease doesn't affect us all in the same way, so I decided to do this page from a totally personal point of view, on how SMA affected me as I grew up. My hope is that it might be of help to kids and/or their parents, who might just be finding out they have a neuromuscular disease, who don't know much about it, how it might affect them or what they might expect on down the line. It is my hope that kids and/or their parents not only find my page informative, but also that when they leave here, they might leave with a little less fear of, and a little more hope for, the future. If you are viewing this text, your browser lacks the ability to read frames. Don't worry, you can still visit my site. Please come inside! Melissa's Page
Spinal Muscular Atrophy
spinal muscular atrophy. ( SMA, WerdnigHoffman, Kugelberg-Welander, Kennedy) Families of SMA ( spinal muscular atrophy) P.O. Box 196
http://www.kumc.edu/gec/support/spinal_m.html
Spinal Muscular Atrophy - SMA
Web site promoting public awareness for spinal muscular atrophy.
http://www.fightsma.com

Extractions: CHILDREN'S WEAR DIGEST JOINS IN THE FIGHT Exciting news!! We have established a partnership with Children's Wear Digest ("CWD"), a dynamic national line of children's clothing, headquartered in Richmond, for 2004. For Mother's Day, an SMA mother and daughter from this area will be photographed in a pre-selected mother/daughter outfit and pictured with an article explaining what spinal muscular atrophy is and the need for support. A preview of this initiative is posted in the January CWD catalogue. CWD will donate a portion of the proceeds of the mother/daughter's outfit to FightSMA!
Medical Information
Medical Information Article Detail. Background to spinal muscular atrophy. What is SMA? Types of SMA. Is SMA Hereditary? What is spinal muscular atrophy?
http://www.jtsma.org.uk/mdi/sma0.html

Extractions: You are here: SMA Information Medical Information : Background to Spinal Muscular Atrophy Home SMA Information Medical Information Information Sheets Research Personal Stories (Type 1) Personal Stories (Type 2) ... Site Map Acrobat Reader Some of the documents on this site are in Portable Document Format. Click to get the free Acrobat Reader Background to Spinal Muscular Atrophy What is SMA? Types of SMA Is SMA Hereditary? Spinal Muscular Atrophy is a neuromuscular condition causing weakness of the muscles. Muscles contract, moving parts of the body, when signals from the brain pass down the spinal cord through the anterior horn cells. Each anterior horn cell is responsible for passing a signal down another nerve to a muscle. The group of structures made up by one anterior horn cell, the nerve fibre and the muscle it supplies, is known as a motor unit (see diagram). In Spinal Muscular Atrophy it is the anterior horn cell which is abnormal. Not all nerve impulses can be passed from the brain to the muscles. The result of this is that some muscles become weak and wasted (atrophied). Next Page: Types of SMA
SPINAL MUSCULAR ATROPHY
spinal muscular atrophy. The Intermediate Form . A Brochure For Parents and Caregivers. spinal muscular atrophy (SMA) is one of the neuromuscular diseases.
http://www.mda.org.au/specific/mdasma.html

Extractions: Spinal Muscular Atrophy (SMA) is one of the neuromuscular diseases. Muscles weaken and waste away (atrophy) due to degeneration of motor neurones which are nerve cells in the spinal cord. Normally, these motor neurones relay signals, which they receive from the brain, to the muscle cells. When these neurones fail to function, the muscles deteriorate. The brain and the sensory nerves (that allow us to feel sensations such as touch, temperature, pain etc.) are not affected. Intelligence is normal. From the description just given it can be seen why the condition is called Spinal Muscular Atrophy - the muscles atrophy because of a problem in the nerve cells in the spine. What are the common types of SMA? In general we can distinguish three common types of SMA in childhood : Type 1 Severe Infantile SMA, or Werdnig-Hoffmann disease Type 2 Intermediate type Type 3 Mild Juvenile SMA, or Kugelberg-Welander disease
WebRing: Hub
Allows individuals and families affected by SMA to join their homepages together.
http://p.webring.com/hub?ring=smatrophy&list
Spinal Muscular Atrophy - SMA
Andrew's Buddies fights spinal muscular atrophy, the leading genetic and inherited cause of infant death. We fund neuromuscular research and SMN, SMA nonprofit drug trials. and pictured with an
http://www.andrewsbuddies.com/

Extractions: CHILDREN'S WEAR DIGEST JOINS IN THE FIGHT Exciting news!! We have established a partnership with Children's Wear Digest ("CWD"), a dynamic national line of children's clothing, headquartered in Richmond, for 2004. For Mother's Day, an SMA mother and daughter from this area will be photographed in a pre-selected mother/daughter outfit and pictured with an article explaining what spinal muscular atrophy is and the need for support. A preview of this initiative is posted in the January CWD catalogue. CWD will donate a portion of the proceeds of the mother/daughter's outfit to FightSMA!
SMA.net Main Page
The purpose. The purpose of SMA.net is to provide a source of information for research, prevention and treatment of spinal muscular atrophy (SMA).
http://www.affari.com/smanet/

Extractions: Medical Information Welcome to SMAnet The purpose of SMA .net is to provide a source of information for research, prevention and treatment of Spinal Muscular Atrophy (SMA). Spinal muscular atrophy is a hereditary disorder of the spinal and bulbar motoneurons causing muscle atrophy and weakness, which is usually symmetrical, affects the legs more than the arms and the proximal muscles more than the distal; facial muscles are spared and intellect is normal or advanced. SMA.net is intended to provide information for both the medical and non-medical communities.
Hill Family Donation Fund
Family with medical needs seeking people around the world to help. Plus background information on spinal muscular atrophy, progress report and donor list with links.
http://www.celestialnet.com/hill-family-donation-fund/

Extractions: Hello and thank you for taking your time to visit this site. Here is my story Hello My name Is Richard, I am 35 years old. I have a form of Muscular Dystrophy called (KW and or SMA3, Also Known As; Kugelberg - Welander Disease, or S pinal M uscular Atrophy type III You can read more on the right side about it. I now live in Arizona, transplanted from Southern California. My father retired in 2002. We, my mother, father, and myself moved here because the cost of living in Southern California was to high for a family on a fixed income. I am fully disabled and my father collects social security retirement. We are just barely getting by, and it's getting harder with the monthly medical bills. My father suffered a stroke April, 28th 2003 and rang up a rather large hospital bill. My mother is unable to work as she is my father's full time care giver. I have been reluctant about making this page and sharing my story with the world. But I am taped out of ideas. I am seeking donations to purchase a handicapped van with a wheel chair lift/ramp. Or a wheel chair lift for my car.
SMA.net
SMA groups around the world. Families of SMA (spinal muscular atrophy). promotes public awareness Jennifer Trust for spinal muscular atrophy (JTSMA).
http://www.affari.com/smanet/smagroups.html
Vehicle Fund
Woman born with spinal muscular atrophy, needs help purchasing a vehicle specialized for her needs.
http://members.cox.net/vehiclefund/

Extractions: Vehicle Fund What is the Vehicle Fund? Why support the fund? Who Is Laura? Frequently Asked Questions ... Pictures Updates May 24, 2004 April 25, 2004 March 21,2004 The Goal Goal = $30,000 Received = $4,067 Need = $25,933 What is the Vehicle Fund? Why support the fund? In all modesty, you should support this fund because I am a fabulous person! No, all kidding aside, this fund is designed to give back to the community. First, the initial vehicle purchased with the fund, for me, will enable me to continue working with members of the disability community. My primary job will be to assist individuals with disabilities to increase or maintain their independence through the use of service animals. Top Who Is Laura? My name is Laura, and like Martin Luther King Jr., I have a dream. My dream is to be as independent and self-sufficient as I possibly can be. I was born in 1961 with Spinal Muscular Atrophy. The doctors told my parents that I would not live past the age of 3. I had other plans. On the other hand, I consider myself to be very independent. I left home at the age of 18 and moved across the country to attend the University of Arizona. I have lived on my own since that time. I hire people to assist me with the things I cannot do for myself. I would love to offer you the opportunity to help me make my dreams come true. I will need at least $30,000 in order to drive. I plan to purchase a 2004 Dodge Grand Caravan.
Spinal Muscular Atrophy
a CHORUS notecard document about spinal muscular atrophy spinal muscular atrophy. 2nd most common autosomal recessive disease in Caucasians degeneration of the spinal anterior horn cells. atrophy and wasting of skeletal muscles
http://chorus.rad.mcw.edu/doc/02038.html
NINDS Spinal Muscular Atrophy Information Page
spinal muscular atrophy (SMA) information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_and_medical/disorders/sma.htm

Extractions: Spinal muscular atrophy (SMA) is a genetic, motor neuron disease caused by progressive degeneration of motor neurons in the spinal cord. The disorder causes weakness and wasting of the voluntary muscles. Weakness is often more severe in the legs than in the arms. The childhood SMAs are all autosomal recessive diseases. This means that they run in families and more than one case is likely to occur in siblings or cousins of the same generation. Parents usually have no symptoms, but still carry the gene. The gene for SMA has been identified and accurate diagnostic tests exist. There are many types of SMA; some of the more common types are described below.
Spinal Muscular Atrophy - Learn More From MedlinePlus
Find the latest news stories, overviews, research and more on spinal muscular atrophy from MedlinePlus, the National Library of Medicine's consumer health site.
http://rdre1.inktomi.com/click?u=http://www.nlm.nih.gov/medlineplus/spinalmuscul

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