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Spina Bifida: more books (100)

Spina bifida: An entry from Thomson Gale's <i>Gale Encyclopedia of Science, 3rd ed.</i> by Rosalyn Carson-DeWitt, Bryan, Ph.D. Cobb, 2004
A Parents Guide to Spina Bifida -- 1988 publication by Bloom, 1988
Comprehensive Care of the Child with Spina Bifida Manifesta, Rehabilitation Monograph XXXI (31) by Chester A.; New York University Spina Bifida Study Group Swinyard, 1966-01-01
Fetal surgery for spina bifida trial looks promising: short-term findings.(Clinical Rounds): An article from: Pediatric News by Sharon Worcester, 2003-10-01
The many layers of social support: capturing the voices of young people with spina bifida and their parents.(Report): An article from: Health and Social Work by Beverley J. Antle, Gert Montgomery, et all 2009-05-01
Spina Bifida and Cranium Bifidum: Papers Reprinted from the New England Journal of Medicine with the Addition of a Comprehensive Bibliography by Franc D. Ingraham, 1944
Dermal and Subcutaneous Growths: Acrochordon, Peyronie's Disease, Mastocytosis, Keloid, Teratoma, Spina Bifida, Neurofibroma, Lipoma
Peripersonal spatial attention in children with spina bifida: Associations between horizontal and vertical line bisection and congenital malformations ... cortex [An article from: Neuropsychologia] by M. Dennis, K. Edelstein, et all 2005-01
In utero fetal surgery looks promising for spina bifida: short-term data.(Children's Health): An article from: Family Practice News by Sharon Worcester, 2003-08-01
Spina Bifida surgery improves bladder control.(Clinical Rounds): An article from: Pediatric News by Sherry Boschert, 2005-02-01
Health professional expectations for self-care skill development in youth with spina bifida.(Survey): An article from: Pediatric Nursing by Rachel Neff Greenley, 2010-03-01
SPINA BIFIDA FOR THE CLINICIAN by GORDON BROKLEHURST, 1976
Spina Bifida : Anatomie Pathologique et Embryogenie by Dr. M. Denuce, 1906
Spina bifida: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Maria, PhD Basile, 2005

lists with details

Gingerblue.com
Information about a 27 year old woman with spina bifida. Includes photos, information about depression, and detailed personal experiences.
http://gingerblue.com/koyaanisqatsi

Extractions: ...Two weeks after birth I underwent the first of many operations that were to come- a ground breaking procedure in which the neurosurgeons opened my back up by a horizontal incision on the small of my back from one side to the other, unraveled a "tumor" full of knotted nerves at the base of my spine and "plugged" each nerve back into my spine... : scar tissue : ...I stood in front of the many mirrors in my bathroom, naked, and studied all of my scars. I looked at them, touched them, saw them. I never do this because it makes things too real, because I can recall every scar, when it was made. If I don't look at the scars, then I can escape from everything and pretend that that is another girl. That's another person, another life, another set of emotions : images : ... I think understanding comes only when you realize that depression is its own living and breathing thing, and that it has its own free will, and there is very little you can do to intercept it or prevent it. The scariest part of it is when you come to terms with those facts. It's so hard when you realize you have nothing in your current life to "blame" it on. Nothing you can fix to make it all better. It's just there, lurking...
Spina Bifida
spina bifida. spina bifida also known as myelomeningocele means cleft spine, which is an incomplete closure in the spinal column. spina bifida from NOAH.
http://www.genomelink.org/spina/

Extractions: Spina bifida also known as myelomeningocele means cleft spine, which is an incomplete closure in the spinal column. It is a congenital disorder that occurs when one or more vertebrae do not develop properly from the neural tube. Spina bifida is usually an isolated birth defect. Most scientists believe that genetic and environmental factors work together to cause this defect and other Neural Tube Defects. The defect usually occurs within the first month of pregnancy. It affects 0.5 to 1 out of 1,000 infants born in the United States. Research Articles, Informational Links, Associations - NINDS Spina Bifida Information Page - spina bifida information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Spina Bifida: Managing Bowel Dysfunction in the School-Aged Child - by Brenda Benner, Health Center Supervisor, TSBVI. Spina Bifida Genetic Research Project - by Northwestern University and Children's Memorial in Chicago. Spina Bifida Facts - from Asba.
Kristin Carroll.Com - Site Index
Site in memory of a woman with spina bifida.
http://www.kristin-carroll.com/site_index.html
AllRefer Health - Myelomeningocele (Children) (Spina Bifida)
Myelomeningocele (Children) (spina bifida) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests
http://health.allrefer.com/health/myelomeningocele-children-info.html

Extractions: AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Spina Bifida (Degrees of Severity) Myelomeningocele is one of the most common birth defects of the central nervous system . It is a neural tube defect in which the bones of the spine do not completely form, and the spinal canal is incomplete. This allows the spinal cord and meninges (the membranes covering the spinal cord) to protrude out of the child's back. Spina bifida includes any congenital defect involving insufficient closure of the spine. Myelomeningocele accounts for about 75% of all cases of spina bifida and may affect as many as 1 out of every 800 infants. The rest of the cases are most commonly spina bifida occulta (where the bones of the spine do not close, the spinal cord and meninges remain in place, and skin usually covers the defect) and meningoceles (where the meninges protrude through the vertebral defect but the spinal cord remains in place).
T.J.'s Page
Information about living with a disability due to spina bifida and Hydrocephalus. Includes a photo album, informative links and personal experiences.
http://members.cox.net/johnsonclan1
Neuroscience For Kids - In The News - Fetal Surgery For Spina Bifida
Fetal Surgery for spina bifida, spina bifida is a relatively common birth defect which occurs in 1 to 2 of every 1,000 babies born in the United States.
http://faculty.washington.edu/chudler/spibi.html

Extractions: Fetal Surgery for Spina Bifida November 18, 1999 Spina bifida is a relatively common birth defect which occurs in 1 to 2 of every 1,000 babies born in the United States. "Spina bifida" literally means "split spine"; it is caused by failure of the spinal cord to develop properly. The nervous system develops from embryonic tissue called the ectoderm. The first sign of the developing nervous system is the neural plate which can be seen at about the 16th day of development. Over the next few days, a "trench" is formed in the neural plate - this creates a neural groove. By the 21st day of development, a neural tube is formed when the edges of the neural groove meet. The rostral (front) part of the neural tubes goes on to develop into the brain and the rest of the neural tube develops into the spinal cord. Spina bifida occurs when the neural tube is not formed properly; the bones of spinal column (the vertebrae) and muscle fail surround the spinal cord properly. No one knows exactly what causes spina bifida, but it is thought that both environmental and genetic factors play a role. Development of the Nervous System
Welcome To The Customer Site
A young man's journey through life with spina bifida, and what he's done to overcome his disability.
http://users.lvcm.com/soaringeagle
Spina Bifida
national and international spina bifida resources, support groups, genetic clinics with genetic counselors and geneticists. spina bifida.
http://www.kumc.edu/gec/support/spinabif.html
Charlies Site - Home Page
Containins information and links to information and sites connected with the disabilities of spina bifida and Hydrocephalus and other allied or related conditions.
http://myweb.tiscali.co.uk/cpharper
Youth With Special Needs: Spina Bifida
spina bifida. Classification. spina bifida Cystica. Characterized by a cystic protrusion of the spinal cord, usually noticeable on the back. Myelomengocele.
http://www.urbanext.uiuc.edu/specialneeds/spinebif.html

Extractions: Cerebral Palsy Deaf/Hearing Impaired Epilepsy Learning Disability ... Other Health Impairments Spina (spine) bifida (split or divided) is a "condition resulting when the bones of the spine form abnormally and fail to unite in the midline of the back" (Woodburn, 1975). If this split occurs, the spinal cord and its coverings may bulge out through the opening and cause a lump on the back. This malforming of the spine takes place within the first 28 days of pregnancy and varies in severity from a simple lump on the back to severe malformation of the back and lower limbs. Professor Nicholas Tulp gave spina bifida its name and gave the first formative description of the disability. Although the term and real medical description are somewhat recent, it is estimated that spina bifida occurred almost 12,000 years ago. It is also worth noting that it wasn't until 1761 that a man named Morgagni linked lower-limb deformity and hydrocephalus (an excessive amount of cerebro-spinal fluid within the head) with spina bifida. As a result of this finding, much has been done to find a "cure" for hydrocephalus, one of the major problems associated with spina bifida. One such discovery was in the late 1950s; the Spitz-Holter valve and the ventriculatrial shunt (a bypass or replacement of a major cavity between the brain and spinal cord implanted to control the flow of the cerebro-spinal fluid, so as to prevent pressure on the brain). Because of this find and other developments, an increasing number of children survive the more severe forms of spina bifida. Of these children, about 70 percent have normal intelligence (Menelaus, 1971).
Disability Awareness Kit
What causes physical disability? spina bifida. Many children with spina bifida attend regular preschool, primary and secondary schools and universities.
http://www.openroad.net.au/access/dakit/physical/phhandout4.htm

Extractions: Physical Disability SECTION HOME Spina Bifida is a developmental defect which occurs within the first six weeks of pregnancy, caused possibly by a combination of genetic and environmental factors. Some of the spinal bones which normally protect and cover the delicate nerves of the spinal cord do not close. Consequently the spinal nerve tissue protrudes through this gap and forms an open swelling on the back. This could occur anywhere from the back of the head to the lowest part of the spine. Even though surgery at birth closes the gap, the damage to the spinal nerve tissues can never be repaired. The degree of paralysis will depend on the extent of damage to the spinal cord and the position of the lesion. Usually there is some paralysis and loss of sensation in the legs and lower trunk. This could result in: a need to use a mobility aid such as callipers, crutches, a walking frame, walking sticks or a wheelchair various degrees of bowel and bladder incontinence. There are several methods available to manage this problem.
Annie's Page
A life with spina bifida. Poems, pictures, and helpful links.
http://www.geocities.com/flnatasha
Spina Bifida - Medical Dictionary Definitions Of Popular Medical Terms
MedicineNet Home MedTerms medical dictionary AZ List spina bifida. In the US as a whole, spina bifida occurs in about one in every 12,000 births.
http://www.medterms.com/script/main/art.asp?articlekey=5526
Index28spinabif.html
spina bifida. spina bifida Occulta There is an opening in one or two of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord.
http://www.westworld.com/~barbara/index28spinabif

Extractions: Spina Bifida Occulta: There is an opening in one or two of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin, in others, tissue and nerves are exposed. Generally, people use the terms "spina Bifida" and "myelomeningocele" interchangeably. Incidence Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptons, very few of them ever know they even have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximtely one out of every thousand births. Of these infants born with "spina Bifida manifesta," about 4% have the meningocele form, while about 96% have the myelomeningocele form.
Spina Bifida And Hydrocephalus Association Of Northern Alberta
This is the home page of the spina bifida and Hydrocephalus Association of Northern Alberta. Your Browser Does not support Frames.
http://www.telusplanet.net/public/sbhana/
John's Spina Bifida Page.
John s spina bifida Page. Agent Orange Benefits Act of 1996. VA spina bifida Healthcare Program. spina bifida chat areas and groups.
http://www.sapyta.com/jsbp.html

Extractions: Yahoo's Spina Bifida Chat Central. Disabilities-R-Us alt.support.Spina-bifida Spina Bifida mailing lists SB-Parents mailing list subscribe: SB-parents with your E-mail address SB-General mailing list To unsubscribe: Bifida-l-unsubscribe@yahoogroups.com SB-Teen Mailing list Wheelchair Products. Quickie Wheelchairs Rock N' Roll Cycles Colours by Permobil Levo AG ... Roho People of Spina Bifida Carolee Laird David M. Rushton Keith Piskur Jim Connelly ... Mary Dufton Keith Jones Spina Bifida Chapters online. Spina Bifida Association of America. Arizona Spina Bifida Association Spina Bifida Association of Jacksonville FL. Spina Bifida Association of the Tri-State Region ... SBHANS Disability Magazine's Online. New Mobility Magazine Reach Out Magazine Spina Bifida Search Engine Results. AbilityWeb Search Engine Healthlink USA Rehabmall Yahoo search result's on Spina Bifida ... Discovering Spina Bifida Web Ring This site is owned by
Spina Bifida Association Of Texas - San Antonio - SBATX
Promoting prevention, educating individuals, and by providing support and encouragement to families affected with spina bifida in Central and South Texas.
http://www.sbatx.org

Extractions: Make sure that your browser is Java enabled... Our organization is committed to helping every person affected with Spina Bifida reach his or her maximum potential. Our goal is to increase public awareness and understanding of Spina Bifida. Our efforts concentrate on promoting prevention, educating individuals, and by providing support and encouragement to families affected by Spina Bifida. Our goal for the future is to have a Spina Bifida Center for families affected by this sometimes overwhelming condition. Services that would be provided would include tutoring, computer instruction, job training, and community assistance referrals. We would also like to develop fine arts and physical fitness programs for individuals with Spina Bifida. June 12, 2004
Spina Bifida
DEZE HOMEPAGE GAAT OVER ONZE ZOON KARST,DIE MET spina bifida IS GEBOREN. IN HET KORT PROBEREN WIJ TE VERTELLEN,WAT DIT VOOR HEM
http://home.hetnet.nl/~wemky/
Susete's Home Page
Mother of Andrew a child with spina bifida. Welcome to A spina bifida Site (Since January 1996) Please reload/refresh page as we update this site often.
http://www.the-callahans.com/susete/susete.shtml

Extractions: We are Patrick and Susete Callahan we have been happily married for 1 yrs. We are proud parents of two beautiful children, Shane Eric , is our youngest and Andrew James , our oldest son was born October 30th 1995 at Brigham's Hospital in Boston Ma with Spina Bifida and Hydrocephalus . We live in a small town in Massachusetts and have a beautiful country home. Patrick works as an Engineer. I am a full time mom, but I work at home as a web designer and love it! I am of Portuguese decent and Patrick is of Irish decent. We are originally from Plymouth Mass and our families are still living there. We visit as often as we can which sometimes is difficult. Let me tell you a bit about why this page was developed.
Essex Association For Spina Bifida And Or Hydrocephalus: Home Page
Inmformation on a voluntary charity which aims to help and support individuals and their families.
http://beehive.thisisessex.co.uk/EssexSpinaBifida

Extractions: var strSite = "beehive.thisisessex.co.uk"; Pages Home Page Fact File Charity Aims List of Benefits ... Guestbook Where Now? Beehive Homepage Other sites in the Charities and Fund-raising category Click here to mail the helpdesk if you have a comment to make about the Beehive or this Beehive site Click here to email this page to a friend. Essex Association for Spina Bifida and or Hydrocephalus INFORMATION ABOUT ESSEX ASBAH ESSEX ASBAH IS A VOLUNTARY GROUP run by parents of children and adults with Spina Bifida and/or Hydrocephalus. The aims of this group are to give mutual support and help.

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