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Sickle Cell Disease:     more books (100)

Troubled Dream of Genetic Medicine Ethnicity & Innovation in Tay-Sachs, Cystic Fibrosis, & Sickle Cell Disease by KeithWailo&StephenPemberton, 2006 The Sickle Cell Disease Patient by Felix I.D. Konotey-Ahulu, 1996-12-31 Advances in the Pathophysiology, Diagnosis, and Treatment of Sickle Cell Disease: Proceedings of the Tenth Annual Postgraduate Conference on Sickle Cell Disease Sickle Cell Disease: A Guide for Families by Elizabeth Anionwu, H. Jibril, 1992-01 Sickle Cell Disease: Screening, Diagnosis, Management, and Counseling in Newborn and Infants (Clinical Practice Guideline) by Jeanne A. Smith, Thomas R. Kinney, 1997-01 Sickle Cell Disease (Hematology/Oncology Clinics of North America, 10:6) by ed. Samuel Charache and Cage S. Johnson, 1996 ADOLESCENTS WITH SICKLE CELL DISEASE: Determinants of Support Group Attendance and Satisfaction.: An article from: Health and Social Work by Joseph Telfair, Marilyn M. Gardner, 2000-02-01 Development of Therapeutic Agents for Sickle Cell Disease: INSERM Symposium Proceedings (Inserm symposium ; 9) Sickle Cell Disease. A Guide for Patients, Carers and Health Workers by Ian Franklin, 1990 The handbook on the psychology of hemoglobin-S: A perspicacious view of sickle cell disease by Samuel Rayford McElroy, 1980 Sickle Cell Disease: Diagnosis, Management, Education and Research The clinical features of sickle cell disease (Clinical studies) by Graham R Serjeant, 1974 Sickle Cell Disease (Oxford Medical Publications) by Graham R. Serjeant, Beryl E. Serjeant, 2001-06-24 Comparative Clinical Aspects of Sickle Cell Disease (The University of Chicago Sickle Cell Center Hemoglobin Symposia)

lists with details

21. James R. Clark Sickle Cell Foundation Web Page
    Foundation working to optimize the social, psychological and physiological well being of residents with sickle cell disease through the provision of services to individuals, families, and communities.  
    http://www.midnet.sc.edu/jrcsc
    
    Extractions: Email: jrcsc@bellsouth.net The James R. Clark Memorial Sickle Cell Foundation, Inc. was chartered in 1972 in Columbia, South Carolina as a comprehensive community-based health organization to serve the needs of patients with sickle cell disease. The foundation is named after James R. Clark, MD, who was a founder and advocate for patients with the sickle cell disease. The mission of the James R. Clark Memorial Sickle Cell Foundation is to optimize the social, psychological and physiological well being of residents with sickle cell disease with in the fifteen county area of the State that we serve. This mission shall be accomplished through the provision of comprehensive services to individuals, families, and communities and shall be further enhanced by collaboration with appropriate federal, state, and local resources and through the involvement of volunteers and contributors. A staff of thirty-one (31) full-time, part-time and paid staff members assure accessible services for our clients.

22. Alumni Medical Library: Page Not Found
    sickle cell disease. Blood Diseases and Sickle Cell Anemia Hemoglobin SC Disease, Sickle Cell Trait, sickle cell disease information from CliniWeb International. sickle cell disease  
    http://med-libwww.bu.edu/library/sickle.html
    
    Extractions: The page you requested was either not found or has moved. Please visit our homepage at http://medlib.bu.edu/ If you cannot find the information you are looking for please email refquest@medlib.bu.edu , or call the reference desk at (617) 638-4228. Contact a librarian Boston University Medical Center Boston University

23. Sickle Cell Disease Management, NHLBI
    The Management of sickle cell disease. (Final VersionJuly 12, 2002). Picture of cover linked to PDF file. The fourth edition of The  
    http://www.nhlbi.nih.gov/health/prof/blood/sickle/
    
    Extractions: HOME SITE INDEX CONTACT US TIPS ... Publications (Final VersionJuly 12, 2002) The fourth edition of The Management of Sickle Cell Disease developed by physicians, nurses, psychologists, and social workers who specialize in the care of children and adults with sickle cell diseasedescribes the current approach to counseling and also to management of many of the medical complications of sickle cell disease. It is organized into four parts: Diagnosis and Counseling, Health Maintenance, Treatment of Acute and Chronic Complications, and Special Topics. Multiple new therapies are now available for children and adults with sickle cell disease, and often the options to be chosen present a dilemma for both patients and physicians. This book does not provide answers to many of these newer questions but rather explains the choices available. It is to serve as an adjunct to recent textbooks that delve more deeply into all aspects of the disorder. NIH Publication No. 02-2117. 188 pages. You may obtain the document in the following ways: [PDF document, 768 K

24. Passive Tobacco Smoke Increases Complications In Children With Sickle Cell Disea
    Research finds hat children with sickle cell disease who are exposed to tobacco smoke in the home have more complications from the disease than those who live in a smokefree environment.  
    http://www.eurekalert.org/pub_releases/2003-12/uocd-pts121603.php
    
    Extractions: University of California, Davis - Medical Center (SACRAMENTO, Calif.) Physicians and researchers at the UC Davis School of Medicine and Medical Center found that children with sickle cell disease who are exposed to tobacco smoke in the home have more complications from the disease than those who live in a smoke-free environment. The study was published in the December issue of the Archives of Pediatrics and Adolescent Medicine. "Exposure to environmental or passive tobacco smoke increased the risk of sickle cell crisis by 90 percent, and was not influenced by other factors known to increase complications, such as age of the patient or type of sickle cell disease," said Daniel C. West, associate professor of pediatrics at UC Davis and lead author of the study. "Exposure to tobacco smoke has a tremendous impact on children with sickle cell disease. In fact, the study suggests that removing passive tobacco smoke from the home might not only reduce the suffering of children with sickle cell disease, but also reduce the cost of medical care." Sickle cell disease is a hereditary disease that affects hemoglobin, the protein in red blood cells that carries and delivers oxygen to tissues. The presence of sickle hemoglobin can lead to damaged and misshapen red blood cells that do not flow normally through blood vessels and deliver less than the normal amount of oxygen to peripheral tissues. These abnormalities can cause episodes of severe pain, known as sickle cell crises, and life-threatening damage to vital organs, such as the lungs and the brain.

25. Blood Diseases And Resources Information For Patients And The General Public, NH
    Contains health information related to blood diseases and disorders for the general public; topics include sickle cell disease, Raynaud s phenomenon, hemophilia  
    http://www.nhlbi.nih.gov/health/public/blood/
    
    Extractions: HOME SITE INDEX CONTACT US TIPS ... Information for Patients and the Public Topics from the Diseases and Conditions A-Z Index (DCI) are also listed below and identified by this image: Back to Top Back to Top Health topics on this page: See also: Blood Information for Health Care Professionals List of Publications Information Center National Cancer Institute (for cancers of the blood) ... CONTACT US

26. USA Medical Center Home
    Teaching hospital for the University of South Alabama offering care for trauma, burns, cancer, cardiovascular disease, strokes, organ transplant and sickle cell disease.  
    http://www.southalabama.edu/usamc/

27. Sickle Cell Anemia Disease Profile
    treatment. Blood test More than 40 states now perform a simple, inexpensive blood test for sickle cell disease on all newborn infants.  
    http://www.ornl.gov/sci/techresources/Human_Genome/posters/chromosome/sca.shtml

28. MayoClinic.com - Sickle Cell Anemia
    Sickle cell anemia is one form of sickle cell disease — a category of blood disorders caused by defective hemoglobin. Hemoglobin  
    http://www.mayoclinic.com/invoke.cfm?id=DS00324

29. Uhs.bsd.uchicago.edu/uhs/topics/sickle.cell.html
    sickle cell disease Information for School Personnelsickle cell disease Information For School Personnel New Jersey Department of Health Senior Services Division of Family Services  
    http://uhs.bsd.uchicago.edu/uhs/topics/sickle.cell.html

30. CNN - Another First: Healthy Twins Born To Carriers Of Sickle Cell Disease - May
    http://www.cnn.com/HEALTH/9905/11/sickle.cell.success/index.html
    
    Extractions: Web posted at: 11:33 a.m. EDT (1533 GMT) NEW YORK (CNN) A New York-area couple who are both carriers of sickle cell disease have twin babies who are completely free of the sickle cell gene, thanks to a technique called pre-implantation genetic diagnosis (PGD), in which fertilized embryos are tested for the disorder before implantation in the woman's uterus. This first successful use of PGD to eliminate sickle cell disease was reported in Tuesday's Journal of the American Medical Association.

31. Sickle Cell Disease: Family Guide
    sickle cell disease Family Guide New groups Children with sickle cell disease and their families for their constructive comments;; Drs.  
    http://www.state.nj.us/health/fhs/sicklecell/familyguide/

32. Sickle Cell Disease Complication
    http://www.cnn.com/2000/HEALTH/mayo/06/26/sickle.cell/index.html

33. HuGE Review - Sickle Hemoglobin (Hb S) Allele And Sickle Cell Disease
    Sickle Hemoglobin (Hb S) Allele and sickle cell disease print version. Most individuals with sickle cell disease have African and Mediterranean ancestry.  
    http://www.cdc.gov/genomics/hugenet/reviews/sickle.htm
    
    Extractions: Medical Literature Search At-A-Glance Beta globin is a major component of adult hemoglobin. The gene for beta globin is located on chromosome 11 and there are over 475 allelic variants. One of these variants, sickle hemoglobin ( Hb S ), is responsible for sickle cell disease, one of the most prevalent genetic diseases, affecting over 50,000 Americans. Most individuals with sickle cell disease have African and Mediterranean ancestry. It is believed that the high frequency of the (

34. CNN.com - Health - Devastation Of Sickle Cell Disease Chronicled - February 22,
    http://cnn.com/2001/HEALTH/conditions/02/22/sickle.cell.anemia/index.html
    
    Extractions: CNN.com Health Writer ATLANTA, Georgia (CNN) - Although research continues, sickle cell anemia remains an "orphan disease" attracting little notice despite its harvest of pain and early death. But a new film documentary may help to educate viewers about the disease, which affects about 80,000 people in the United States and millions worldwide. Called "Sickle Cell: The Forgotten Disease," the film will air at 10 p.m. EST on the Discovery Health Channel. It is being co-produced by the Dr. Spock Company. "It's hard to get funding or people interested in trials," said Dr. James Eckman, director of the Georgia Comprehensive Sickle Cell Center at Grady Health System. "But because this is a lifelong, chronic problem, it has a greater impact." CONDITION CLINIC Sickle Cell disease A genetic disorder, sickle cell disease attacks red blood cells, making them rigid and distorting their normally round shape into crescents and points. These misshapen cells can easily clog tiny blood vessels and deprive organs and tissues of vital oxygen, causing intractable pain crises. In addition, children with sickle cell are more prone to stroke, pneumonia, infection and other long-term complications.

35. Sickle Cell Disease Information For Health Professionals
    Basic facts, symptoms, how to recognise a crisis, diagnosis and management are some of the topics covered.  
    http://www.sicklecellsociety.org/healthpr.htm

36. Howard University Hospital
    The Howard University Center for sickle cell disease was founded in 1972 by Dr. Roland B. Scott following the passage of the Sickle Cell Anemia Control Act of  
    http://www.huhosp.org/sicklecell/
    
    Extractions: The Howard University Center for Sickle Cell Disease was founded in 1972 by Dr. Roland B. Scott following the passage of the Sickle Cell Anemia Control Act of 1971 into U.S. Law. Because of Dr. Scott's efforts, legislation was developed and passed which authorized the implementation of a series of Comprehensive Centers for Sickle Cell Disease under the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH). The Howard University Center was one of the centers to be developed under this concept. The Center provides for patient care, research, education, counseling, screening and community involvement concerning all aspects of sickle cell diseases. All services of the Center are provided free of charge except for those services that involve Howard University Hospital. Screening tests for sickling disorders are done at the Center and are free. The Center is located at 2121 Georgia Avenue, NW, Washington, DC. It can be reached by telephone (voice) at 202-806-7930 or by Fax at 202-806-4517

37. Natural History Of Sickle Cell Disease In India
    Lists and describes the contribution of Dr. Bimal Chandra Kar. Patient resources, papers and publications.  
    http://bimal_chandra_kar.tripod.com/SicklecellinIndia/
    
    Extractions: This web site highlights the research and the contribution of Dr. Bimal Chandra Kar in the field of Sickle Cell Disease. Choosing a healthcare provider is one of the most important decisions you can make. You want someone who is caring, knowledgeable, and accessible. Someone willing to take the time to go over all of your options and treat you as a person, not just a patient.

38. Sickle Cell Disease In Childhood: Part I. Laboratory Diagnosis, Pathophysiology
    AFP September 1, 2000. sickle cell disease in Childhood Part I. Laboratory Diagnosis, Pathophysiology and Health Maintenance. Variants of sickle cell disease.  
    http://www.aafp.org/afp/20000901/1013.html
    
    Extractions: Advanced Search A patient information handout on sickle cell disease, written by Clarissa Kripke, M.D., assistant editor of AFP, is provided on page 1027. S ickle cell disease is the most common single gene disorder in black Americans, affecting approximately one in 375 persons of African ancestry. Sickling conditions are also common in persons from Mediterranean countries, Turkey, the Arabian peninsula and the Indian subcontinent. Many Spanish-speaking persons in the United States, as well as people from the Caribbean and parts of South and Central America, are affected. The first description of sickle cell disease, published in 1910, was followed by six decades of genetic, hematologic, pathologic, clinical and molecular observations. Since the mid-1970s, two longitudinal prospective studies of children with sickle cell disease have produced a large body of clinical data on the evolution of the disease from birth. The U.S. study followed 3,500 patients with sickle cell disease through sickness and health.

39. Sickle Cell Disease Review
    Promotes and disseminates research into the scientific, clinical and social aspects of this disorder. Literature review, bibliography, and general information on the disease.  
    http://scdreview.tripod.com/

40. Sickle Cell Disease In Childhood: Part II. Diagnosis And Treatment Of Major Comp
    AFP September 15, 2000. sickle cell disease in Childhood Part II. 6. TABLE 1 sickle cell disease Primary Care Management and Recommendations on Consultation.  
    http://www.aafp.org/afp/20000915/1309.html
    
    Extractions: Advanced Search Treatment advances over the past 25 years have significantly decreased morbidity and mortality in children with sickle cell disease. Aggressive management of fever, early diagnosis of acute chest syndrome, judicious use of transfusions and proper treatment of pain can improve quality of life and prognosis for these children. Prophylactic hydroxyurea therapy has been shown to reduce the incidence and severity of pain crises in adults with sickle cell disease and has been effective in limited studies conducted in children. Research into stem cell transplantation provides hope that a cure for sickle cell disease may be possible. (Am Fam Physician 2000;62:1309-14.) C omplications of sickle cell disease occur suddenly and can rapidly become severe. Infection, acute splenic sequestration crisis, aplastic crisis, acute chest syndrome, stroke, cholelithiasis, renal disease and pain are the major complications of this disease in children. Some complications lend themselves to simple management, whereas others, including aseptic necrosis of the hip, priapism and leg ulcers, require prompt referral for specialized treatment Table 1 ). A child with sickle cell disease who is acutely ill is usually best managed in a facility that can provide pediatric tertiary care.

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