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Rombergs Syndrome: more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

Parry Romberg Survey
Scotland. For the last 2 years I have been carrying out the largestever survey of Parry Romberg syndrome using this website. Thank
http://www.martis.freeserve.co.uk/Parry/home.htm

Extractions: Click on the buttons on the left to navigate around the site Calton Hill in Edinburgh My name is Dr Jon Stone I am a research fellow in Neurology in Edinburgh Scotland For the last 2 years I have been carrying out the largest ever survey of Parry Romberg Syndrome using this website Thank you to all the people who took the trouble to take part in the survey - your effort in taking part is hugely appreciated II have now stopped the survey but the results will hopefully be published soon in a medical journal. I will contact everyone who took part again at that point. I cannot publish the results sooner because it may prejudice their publication You can access a copy of the questions that were asked here Hopefully the results will be of some help to people with Parry Romberg just in terms of finding out how common various symptoms are and what sort of experience people have had with different treatment In the meantime I have put some information on this website as well as some links A much better website is Rombergs Connection . If you haven't visited it then I can thoroughly recommend it Wishing you all the best from Scotland Jon Stone Dept Clinical Neurosciences, Western General Hospital, Crewe Road, Edinburgh EH4 2XU jstone@skull.dcn.ed.ac.uk
Romberg Syndrome - HealthBoards Bulletin Board
Author, Topic Romberg syndrome Page views 55. degreesofsanity Thisopted me to check the net and came up with Romberg syndrome. From
http://www.healthboards.com/ubb/Forum103/HTML/000393.html

Extractions: Registered: Jul 2003 posted 10-22-2003 12:13 PM Has anyone ever heard of this or have any experience with it. A couple of weeks ago, I noticed in my reflection in the side of my office building that my right cheek was a little sunken. This opted me to check the net and came up with Romberg Syndrome. From what I read it's an atrophy of one side of the face, usually before you're 20/years old. I'm 33 and know that others in their 30's and 40's have gotten this. This problem causes facial disfigurement. Starts in the fat and can move on to muscle and bone. Is there anything else that anyone here knows of that could cause your cheek to sink or atrophy? It makes me very nervous. Thanks for any help.
Facial/ Craniofacial Anomalies
Ear Atresia), Moebius syndrome, Opitz, Pierre Robin syndrome, Robinow syndrome,Romberg syndrome, Stickler syndrome, SturgeWeber syndrome, Treacher Collins
http://www.kumc.edu/gec/support/facial_d.html

Extractions: Facial anomalies / Craniofacial conditions Apert Syndrome , Arhinia (absent nose) , Blepharophimosis, Crouzon Syndrome ear anomalies Goldenhar Syndrome (hemifacial microsomia) ... Cleft Lip, Cleft Palate Jackson-Weiss, Kabuki Syndrome Nager Miller Syndrome neurofibromatosis , Microtia (Ear Atresia) , Moebius Syndrome, Opitz, Pierre Robin Syndrome Robinow Syndrome , Romberg Syndrome, Stickler Syndrome, Sturge-Weber Syndrome, Treacher Collins syndrome , and other conditions
Health Library -
groups. ParryRomberg syndrome. This information is provided as aresource and does not constitute an endorsement for any group.
http://myhealth.barnesjewish.org/library/healthguide/selfhelp/topic.asp?hwid=shc
Any Search Info - Directory: Health Support Groups Conditions And Diseases Facia
Directory Results Web Site Matches Any Search Info. Parry Romberg syndrome Storiesfrom people affected by Parry Romberg syndrome, support and information.
http://search-info.com/search/engine/index/Health/Support_Groups/Conditions_and_
Dictionary Definition Of ROACH, F EWING
romanticism romanticist romanticness romany romaunt Romberg test Romberg s diseaseRomberg s sign Romberg s symptom Romberg s syndrome Romberg s trophoneurosis
http://www.dictionarybarn.com/ROACH-F-EWING.php
Penn State Faculty Research Expertise Database (FRED)
ParryRomberg syndrome, Progressive Facial Hemiatrophy. Progressive Hemifacial Atrophy,Romberg s Disease. Parry Romberg syndrome, Progressive Facial Hemiatrophies.
http://fred.hmc.psu.edu/ds/retrieve/fred/meshdescriptor/D005150
Allzone: Health/Consumer Support Groups/Facial Differences/Parry-Rombergs Syndro
Parry Romberg syndrome Stories from people affected by Parry Romberg syndrome,support and information. Parry Romberg syndrome Information
http://dir.allzone.com/Health/Consumer_Support_Groups/Facial_Differences/Parry-R
Healthfinder® FACES: The National Craniofacial Association
Microtia, Moebius syndrome; Miller syndrome; Nager syndrome; Nasal Encephaloceles;Orbital Hypertension; ParryRomberg syndrome; Pfeiffer syndrome; Pierre
http://www.healthfinder.gov/orgs/HR0395.htm
MeSH
Hemifacial; Atrophy, Hemifacial; Hemifacial Atrophies; ParryRombergsyndrome; Parry Romberg syndrome; syndrome, Parry-Romberg; Parry-Romberg
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=mesh&list_uids=680
Red Box Portal
Odkazy v této kategorii seznamu. Parry Romberg syndrome Stories frompeople affected by Parry Romberg syndrome, support and information.
http://portal.redbox.cz/portal/directory/Health/Support_Groups/Conditions_and_Di
GREENSEEK
Parry Romberg syndrome Stories from people affected by Parry Rombergsyndrome, support and information. » Parry Romberg syndrome
http://www.greenseek.de/internet/index.php/Health/Support_Groups/Conditions_and_
Webverzeichnis
Parry Romberg syndrome Stories from people affected by Parry Rombergsyndrome, support and information. Parry Romberg syndrome
http://www.online-reise-buchen.com/odp/index.php/Health/Support_Groups/Condition

Extractions: Das DMOZ Verzeichnis wird Ihnen präsentiert von: Search: search the entire directory search this category only Top Health Parry-Rombergs_Syndrome Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The content of this directory is based on the Open Directory and may have been modified by DWodp Powered by DWodp live Dominion Web Viel Erfolg bei der Suche im DMOZ Verzeichnis wünscht:
BioDirectory.Net - Biological Sciences Search Engine
Web Sites. Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. url www.cannylink
http://www.bioinformatics.vg/cgi-bin/odp/index.cgi?base=/Health/Support_Groups/C
Untitled Document
http://www.martis.freeserve.co.uk/Parry/
Gimenei >> Health >> Support_Groups >> Conditions_and_Diseases >> Facial_Differe
Gimenei.com, Search for Scope All Words, Results per page 10.Request Timeout 2,
http://www.gimenei.com/directory/top/Health/Support_Groups/Conditions_and_Diseas

Extractions: Gimenei Health Support Groups Conditions and Diseases ... Facial Differences Parry Rombergs Syndrome Electronics: Motorola T5720 GMRS/FRS 2-Way Radio (Pair, AA Batteries) - It is not as good as i hoped. Bottom line, too much batteries, (batteries are expensive) and it goes through them like a fat woman through chocolate.I will write a review on batteries as soon as i find them and boy will they get theirs.Motorola is not the best walkie talkie company. Its range is only 5 miles that five miles can make the difference between life and death when you are lost in a vietnamese jungle during the rainy season.And it is too quiet and their are not enough channels. And when you are playing mission impossible in the heating vents the range is reduced to like, 30 feet more or less. And shortly after mission impossible it ran out of batteries. Electronics: Motorola T5950 Rechargeable GMRS 2-Way Radios (Pair) - These are terrific little units with awesome range. I keep a pair in every car I have for trips to Costco, the Mall, Seaworld or wherever. My only complaint if the NiCAD batteries. They do get a memory if you don't use them a lot. NiMHD would have been a better choice considering the way you'll likely use them. The batteries will lose their charge whe sitting unused so they are less available for last minute emergency use.
SearchBug Directory: Health: Support_Groups: Conditions_and_Diseases: Facial_Dif
Search the Web Web. Open Directory. Search ParryRombergsSyndrome,
http://www.searchbug.com/directory.aspx/Health/Support_Groups/Conditions_and_Dis

Extractions: Health Support Groups Conditions and Diseases Facial Differences ... Go to Directory Home Web Pages - ranked by popularity Parry Romberg Syndrome Information Page http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection http://www.geocities.com/HotSprings/1018/ International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome http://www.familyvillage.wisc.edu/lib_rombs.html General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome http://www.cannylink.com/diseaseparryromberg.htm Stories from people affected by Parry Romberg syndrome, support and information.
P From Linkspider UK Health Directory
Parasitic Infections; Paresthesia; Parkinson s Disease; ParryRombergsSyndrome; Passive-Aggressive Personality Disorder; Patellofemoral
http://linkspider.co.uk/Health/ConditionsandDiseases/P/

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America S Contacts - Only Contacts
Database United States of America . Illinois ParryRomberg s SyndromeSupport Group (International). The relatively small and very
http://contacts.nechron.com/dir1/america's_contacts.html

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