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Rombergs Syndrome:     more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10 Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

41. The Info Service
    Progressive Hemifacial Atrophy Queensland Association for People with Spina Bifidaor Hydrocephalus Rombergs Connection rombergs syndrome Smiles Spina Bifida  
    http://info-s.com/birthdefects.html
    
    Extractions: Info Service Categories all free arcade interactive art now ask the expert automobile computer problems e-text and e-books ebay site map entire subject list for kids! games and more! genealogy world great outdoors health and fitness history archive home decorating home pages plus icw info search it's fun law enforcement let's travel library of congress malls and stores meal time mega sites mega sports main page motorcycle my hobbies newstand our awards our home pets world programming random play reference desk say cheese software stop super sites the beatles the earth the military the outreach the web helper triplet color chart weather station what's new

42. What Is Localized (Morphea And Linear) Scleroderma?  By  Surviving Scleroderma
    Parryrombergs syndrome, The Romberg s Connection; Photo of en coup de sabre ,Dermatlas; Scleroderma en coup de sabre and progressive facial hemiatrophy.  
    http://www.sclerodermasupport.com/medical/facts/localized.htm
    
    Extractions: Read Site Go To Top Return Home Scleroderma Facts What is Localized Scleroderma? There are two main types of the localized form of scleroderma. These are Linear and Morphea. These forms of scleroderma happen most often to children however some cases are reported in young and older adults. Below is an alphabetical listing of information resources I hope will be of value to you. Adopt-A-Page Care Bear For The Scleroderma Fact Pages Sandra Lehman is your Adopt-a-page care bear for the Scleroderma Fact Pages. Sandra volunteers to ensure the links here are current and researches online for related information.

43. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd
    Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome. Health and Home. Parry-rombergs syndrome.  
    http://www.health-home.net/Support_Groups/Conditions_and_Diseases/Facial_Differe

44. Leather Sofa Bed
    Eliminating Debt Financial planner Ric b b Parry-rombergs syndrome rank 223 Up One Level Topia! Health Support Groups Conditions and Diseases  
    http://www.esofastore.com/sofa/leather sofa bed&start=50
    
    Extractions: Investing rank:       Up One Level   Topia!: Regional: Europe: Ireland: Dublin: Municipalities: Dublin City: Business and Economy: Investing (1) Dublin Stock Exchange - Provides share prices for all companies quoted on the Dublin Stock Exchange with a brief introduction into the history of the exchange. Additional categories: International Freight childrens beds safety glasses leather sectional sofa Northumberland rank:       Up One Level   Topia!: Recreation: Birding: Europe: United Kingdom: England: Northumberland (3) Fat Birder - Northumberland - Resources and links. Birds of Northumberland - General information and birding locations. Pictures of Atlantic Puffins - Photographs from the Farne Islands. Additional categories: Indianapolis Colts sofa beds mens high waist leather Parry-Rombergs Syndrome rank:       Up One Level   Topia!: Health: Support Groups: Conditions and Diseases: Facial Differences: Parry-Rombergs Syndrome (4) The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Additional categories: premier mortgage bankers Spitfire instant loans convertible

45. Scleroderma (in Children)
    The Romberg s Connection is an international support group made up of over 200individuals and families whose lives are affected by rombergs syndrome  
    http://ibis-birthdefects.org/start/sclerode.htm
    
    Extractions: Scleroderma in childhood may occur as localized morphea, linear scleroderma, progressive systemic sclerosis or the CREST syndrome ... begin as areas of either increased or decreased pigmentation which are reddish at first and then become progressively hardened and "shrunken" ... no intervention is warrented unless the area of involvement overlies a joint ... progressive tightening of the skin and underlying tissues may produce flexion contractures ... Sclerodermatomyositis is an infrequent, but well - described entity ... characteristic changes of linear scleroderma accompanied by a dermatomyositis - like rash, weakness, and muscle inflammation ... Progressive systemic sclerosis and CREST syndrome are potentially severe, life threatening illnesses in children ...

46. HighIndex - Health: Support Groups: Conditions And Diseases: Facial Differences:
    Category Search Engine Directory / Health / Support Groups / Conditions and Diseases/ Facial Differences / Parryrombergs syndrome. Directory Listings  
    http://www.highindex.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di

47. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd
    Information on Support Groups, Conditions and Diseases, Facial Differences,Parryrombergs syndrome and much more Treasure Coast Health.  
    http://treasurecoasthealth.com/woman_index.php/Health/Support_Groups/Conditions_

48. Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge
    http//www.geocities.com/HotSprings/1018/, We are a newly founded internationalsupport group for people whose lives are affected by rombergs syndrome.  
    http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html
    
    Extractions: Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

49. Parry-Rombergs Syndrome
    Top Health Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome (4) http//www.inter-change-search.net/directory/Health  
    http://www.inter-change-search.net/directory/Health/SupportGroups/ConditionsandD

50. Parry-Rombergs Syndrome Info.
    Overstock.com! Top Health Support Groups Conditions and Diseases Facial Differences Parryrombergs syndrome (4). The Romberg s  
    http://www.searching-1.com/Health/SupportGroups/ConditionsandDiseases/FacialDiff

51. AJE Dir Health Support Groups Conditions And Diseases
    Parryrombergs syndrome. Site Listings. The Romberg s Connection Internationalsupport group for families whose lives are affected by Romberg s syndrome.  
    http://www.ajemalaga.org/web.directory/Health/Support_Groups/Conditions_and_Dise

52. Parry Romberg Syndrome
    Back Home Next. Parry Romberg syndrome. NORD Parry Romberg syndrome. rombergssyndrome. rombergs Connection - support group for people with Romberg s.  
    http://www.ability.org.uk/Parry_Romberg_Syndrome.html
    
    Extractions: "see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Parry Romberg Syndrome NORD - Parry Romberg Syndrome Judy's Parry-Romberg Story Marie's History With Romberg's Deformity Rombergs Syndrome ... Rombergs Connection - support group for people with Romberg's. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

53. AllRefer Health Health Links Directory Support Groups
    Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome . Uncover resources and links to Web sites  
    http://health.allrefer.com/links/facial-differences-parry-rombergs-syndrome.html

54. Rombergs Connection
    rombergs Connection httphttp//www.geocities.com/HotSprings/1018/ Our primary purposeis to locate other people with Romberg s syndrome, (also known as Parry  
    http://www.pslgroup.com/dg/3d7b2.htm

55. DermIS / Main Menu / DOIA / Hemiatrophia Faciei Progressiva / Info
    Facial Hemiatrophies, Facial Hemiatrophy, Hemiatrophies, Facial, Hemiatrophy, Facial,PARRYROMBERG syndrome, Romberg Disease, rombergs Disease, Romberg s  
    http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=701030&topic=i

56. PharmGKB: Facial Hemiatrophy
    Hemifacial Atrophies; Progressive Hemifacial Atrophy; Romberg Disease; Romberg FacialHemiatrophy; Romberg s Disease; rombergs Disease; syndrome, ParryRomberg.  
    http://www.pharmgkb.org/do/serve?objId=PA444129&objCls=Disease

57. Facial Neuralgia Resources: Template Conditions
    PARRYROMBERG syndrome Related Disorders. DISCLAIMER. The majority of individualswith Parry-Romberg syndrome experience symptoms before the age of 20 years.  
    http://facial-neuralgia.org/conditions/romberg.html
    
    Extractions: Related Disorders DESCRIPTION CAUSES SYMPTOMS ONLINE RESOURCES The names Progressive Facial Hemiatrophy, Progressive Hemifacial Atrophy, Romberg Syndrome, PRS, HFA are synonyms for this disorder TAKE A CLOSER LOOK READ ABOUT KELLEY , an extraordinary little girl who suffers from Parry-Romberg Syndrome, in an article published in the Rocky Mountain News. Don't miss reading the MANY MESSAGES sent to her from people all over the world. The following information is excerpted from the National Organization for Rare Disorders, Inc.database on rare disorders and is posted in compliance with the FAIR USE DOCTRINE and is for educational purposes only and not for commercial use. Description

58. NORD - National Organization For Rare Disorders, Inc.
    Parry Romberg syndrome. To purchase fulltext report ($7.50) Copyright 1987,1989, 1996, 1998, 1999, 2003 Synonyms of Parry Romberg syndrome HFA;  
    http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Parry Romberg

59. Parry Romberg Syndrome
    Parry Romberg syndrome Important It is possible that the main title ofthe report Parry Romberg syndrome is not the name you expected.  
    http://my.webmd.com/hw/raising_a_family/nord489.asp
    
    Extractions: Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy); distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg Syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg Syndrome experience symptoms before the age of 20 years.

60. Parry-Romberg Syndrome
    The Romberg s Connection. ParryRomberg syndrome The Romberg s ConnectionOnline. Founded 1997. Mutual support for persons affected  
    http://my.webmd.com/hw/health_guide_atoz/shc29par.asp
    
    Extractions: Mutual support for persons affected by Parry Romberg's Syndrome (aka progressive facial hemiatrophy or Romberg's Syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Pen pal program online and via mail. Some face to face meetings. Phone support network in U.S. Future newsletter planned. The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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