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Rombergs Syndrome:     more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10 Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

1. Romberg Syndrome / Family Village Library
   Romberg Syndrome. Rombergs This mailing list consists of the members of the Romberg sConnection, which is a support group for people with rombergs syndrome.  
   http://www.familyvillage.wisc.edu/lib_rombs.html

2. Welcome To The Romberg's Connection
   individuals and families whose lives are affected by rombergs syndrome. We have come together to offer our Parryrombergs syndrome Information. National Organization of Rare Disorders  
   http://www.geocities.com/rombergs
   
   Extractions: Where: Dillon, Colorado When: June 18 - 19, 2004 Location Details: The Dillon Inn The Historic Mint The Dillon, Frisco and Silverthorne area Please contact Donna for more information. Parry-Rombergs Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album Our Stories Our Kelley's story appeared in the Rocky Mountain News recently. We are so proud of her for letting us all into her life. Read it here A follow-up to Kelley's story can be read here Parent's Page Share your experiences (New Story Added May 31, 2004) Romberg's Connection Meetings Where our members are located (Updated January 18, 2004) Our Own Romberg's Survey Results Parry-Rombergs: A Clinical Survey Surgery Soundboard ... Read Our Guestbook Guestbook Archives

3. The DRM WebWatcher: Parry Romberg Syndrome
   personal website represents an international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome and who  
   http://www.disabilityresources.org/PARRY.html
   
   Extractions: Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 3/2003 A B C D ... About/Hint/Link Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face. Beyond the Mirror This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family. Hemifacial Atrophy, Progressive A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database. NINDS Parry Romberg Syndrome Information Page A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke. The Romberg's Connection This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links. Related Subjects Craniofacial Disorders Neurological Disorders Rare Disorders Resources in your state (c) 1997-2001 Disability Resources, inc.

4. Support Groups - Parry-Rombergs Syndrome Top Links
   Beauty, Child Health, Conditions and Diseases, Dentistry. Parryrombergs syndrome Web Site Links group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome  
   http://www.support-group-directory.com/Top_Health_Support_Groups_Conditions_and_
   
   Extractions: Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Other Useful Health Web Links National Institutes of Health (NIH) US Government department in charge of medical research.

5. Parry Romberg Syndrome
   Click Here to Refinance. Parry Romberg Syndrome. rombergs syndrome;This is Kelley Sperry s story Back to The Cannylink home page.  
   http://www.cannylink.com/diseaseparryromberg.htm

6. Omniseek: /Health /Consumer Support Groups /Facial Differences /Parry-Rombergs S
   Consumer Suppo . . . al Differences Parry-rombergs syndrome. Featured On Lycos A Facial_Differences/ParryRombergs_ Syndrome/) Parry-rombergs syndrome Information. No  
   http://www.omniseek.com/srch/{26968}

7. Support Groups - Parry-Rombergs Syndrome
   Health All Topics. by Category. Health. Conditions. AZ. Gurus. Links. home support groups conditions and diseases facial differences parry-rombergs syndrome. Parry-rombergs syndrome published articles for news on Parry-rombergs syndrome. The eLibrary newspaper and  
   http://www.healthcyclopedia.com/parry-rombergs_syndrome.html
   
   Extractions: Web Directory: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome General information, contacts, on-line discussion groups and links.

8. Rombergs Disorder
   Syndrome and Plastic Surgery (1/28/98) 243 PM. rombergs syndrome (1/26/98) 156 PM 97) 939 AM. rombergs syndrome (10/23/97) 628 PM  
   http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderMenu.html
   
   Extractions: This is a webforum to discuss and comment on Rombergs Disorder. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

9. Support Groups - Parry-Rombergs Syndrome
   home support groups conditions and diseases facial differences parryrombergs syndrome Parry-rombergs syndrome. Information  
   http://www.healthcyclopedia.com/support-groups/conditions-and-diseases/facial-di
   
   Extractions: Web Directory: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome General information, contacts, on-line discussion groups and links.

10. Omniseek: /Health /Diseases And Conditions /All Diseases And Conditions /Parry R
    available Health/Diseases_and_ailments/Parry_ Romberg_syndrome) Drug Therapies Parry Romberg Syndrome ncbi.nlm.nih.gov/htbinpost/Omim/dispmim? 141300) rombergs syndrome. No  
    http://www.omniseek.com/srch/{78033}

11. Parry Rombergs Syndrome Facial Differences Conditions And Diseases Support Group
    Support Groups. Most comprehensive resource on Support Groups Conditions And DiseasesFacial Differences Parry rombergs syndrome. Parry Romberg Syndrome .  
    http://support-groups.health.designerz.com/support-groups-conditions-and-disease
    
    Extractions: Designerz Portals Store Sign up for our mailing list ... Show Health support groups (Support Groups Conditions And Diseases Facial Differences Parry Rombergs Syndrome) content on your web site Press Releases, Stories and Articles on Support Groups Conditions And Diseases Facial Differences Parry Rombergs Syndrome View all press releases

12. Parry-Rombergs Syndrome Information
    Parryrombergs syndrome. Listed below are links to clinic descriptionsof rombergs syndrome. rombergs syndrome is also known as Progressive  
    http://www.geocities.com/HotSprings/1018/info.html

13. Romberg's Syndrome
    Browse entry words starting with A, B, C, D, E, F, G, H, I, J, K, L, M,N, O, P, Q, R, S, T, U, V, W, X, Y, Z, Other characters, Romberg s syndrome,.Print this article,  
    http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/ROMBERGS SYNDROM
    
    Extractions: Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Romberg's syndrome, (Moritz Romberg, 17951873, German neurologist), wasting of the soft tissues on one side of the face with a sharp delineation. It may be associated with alopecia and neurological disorders such as trigeminal neuralgia, Horner's syndrome and epilepsy. Radiologically, there may be bone atrophy corresponding to the site of the soft tissue atrophy.

14. Support Groups Parry-Rombergs Syndrome
    A B C D E F G H I J K L M N O P Q R S T U V W X Y Z . Back Home Next. Support Groups Parryrombergs syndrome.  
    http://www.ability.org.uk/support_groups_parry-rombergs.html
    
    Extractions: "see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

15. Parry-Rombergs Syndrome
    Submit Your Site to the Parryrombergs syndrome category. Submit Your Siteto the Parry-rombergs syndrome category. Sponsored Results. Health Spotlight.  
    http://www.iseekhealth.com/parry-rombergs_syndrome-5611.php

16. Parry-Rombergs Syndrome
    The Romberg s Connection International support group for families whoselives are affected by Romberg s syndrome. Romberg s Syndrome  
    http://www.thenewhealthfind.com/Health/SupportGroups/ConditionsandDiseases/Facia

17. :: Ez2Find :: Parry-Rombergs Syndrome
    Guide Parryrombergs syndrome, Global Metasearch Any Language Guides,Parry-rombergs syndrome. ez2Find Home Directory Health  
    http://ez2find.com/cgi-bin/directory/meta/search.pl/Health/Support_Groups/Condit
    
    Extractions: Any Language English Afrikaans Arabic Bahasa Melayu Belarusian Bulgarian Catala Chinese Simplified Chinese Traditional Cymraeg Czech Dansk Deutsch Eesti Espanol Euskara Faroese Francais Frysk Galego Greek Hebrew Hrvatski Indonesia Islenska Italiano Japanese Korean Latvian Lietuviu Lingua Latina Magyar Netherlands Norsk Polska Portugues Romana Russian Shqip Slovensko Slovensky Srpski Suomi Svenska Thai Turkce Ukrainian Vietnamese Mode Guides Parry-Rombergs Syndrome Web Sites Parry Romberg Syndrome [Site Info] [Translate] [Open New Window] Parry Romberg Syndrome Information Page [Site Info] [Translate] [Open New Window] Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. URL: http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm

18. :: Ez2Find :: P
    Panic (33) Papillotonic Psuedotabes (4) Paraphimosis (2) Parasitic Infections (155)Paresthesia (2) Parkinson s Disease (84) Parryrombergs syndrome (4) Passive  
    http://ez2find.com/cgi-bin/directory/meta/search.pl/Health/Conditions_and_Diseas
    
    Extractions: Any Language English Afrikaans Arabic Bahasa Melayu Belarusian Bulgarian Catala Chinese Simplified Chinese Traditional Cymraeg Czech Dansk Deutsch Eesti Espanol Euskara Faroese Francais Frysk Galego Greek Hebrew Hrvatski Indonesia Islenska Italiano Japanese Korean Latvian Lietuviu Lingua Latina Magyar Netherlands Norsk Polska Portugues Romana Russian Shqip Slovensko Slovensky Srpski Suomi Svenska Thai Turkce Ukrainian Vietnamese Mode

19. Rombergs Syndrome
    rombergs syndrome. Email Address rombergs@hotmail.com My name is TheresaHildebrand, I live in Chicago, Illinois, and I have rombergs syndrome.  
    http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/10.23.976.28PMRombergsS
    
    Extractions: My name is Theresa Hildebrand, I live in Chicago, Illinois, and I have Rombergs Syndrome. I used to think that I was alone in the world until I found Terry. Terry lives in Washington and he has Rombergs too. We decided to join forces and search for other people who also have Rombergs. Today is Thursday, October 22, 1997, and we have found 12 other people with Rombergs. They live mostly in the USA, but some are from Great Britain, South Africa, and Australia. There may be someone with Rombergs in your neighborhood that you could talk to. You are definitely not alone when it comes to Rombergs !! You can get in touch with us by e-mailing: rombergs@hotmail.com Or visit us, on our webpages: http://www.geocities.com/HotSprings/1018 OR http://www.geocities.com/HtoSprings/Spa/4818 Hope to hear from you soon, Theresa Next Article

20. Rombergs Syndrome
    rombergs syndrome. Email Address LAPUDGE@aol.com I am looking for anyinformation on Romberg s Syndrome including surgical information.  
    http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/1.26.981.56PMRombergsSy

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