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Progeria:     more books (16)

Progeria - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-01-28 Progeria Medical Guide by Qontro Medical Guides, 2008-07-09 This is My Life: With Ashley, a Girl Living Up with Progeria by Lori Hegi, 2004 Hutchinson-Gilford Progeria Syndrome - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-17 Vieillissement: Déhydroépiandrostérone, Déprise, Sénescence, Espérance de Vie Humaine, Aubrey de Grey, Progéria, Prix de La Souris Mathusalem (French Edition) 21st Century Complete Medical Guide to Metabolic Disorders, Mucolipidoses, Progeria: Authoritative Government Documents, Clinical References, and Practical Information for Patients and Physicians by PM Medical Health News, 2004-05 Accelerated Aging: Progeria: An entry from Macmillan Reference USA's <i>Macmillan Reference USA Science Library: Genetics</i> by Michael Fossel, 2003 21st Century Ultimate Medical Guide to Progeria and Genetic Disorders - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-27 Progeria syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Laith, MD Gulli, Nicole, MS Mallory, 2005 Progeria: A Form of Senilism by Hastings GILFORD, 1904 Paa (film): R. Balakrishnan, Amitabh Bachchan, Abhishek Bachchan, VidyaBalan, Progeria The Hutchinson-Gilford progeria syndrome (The journal of pediatrics) by Franklin L DeBusk, 1972 Old at Age 3, the story of Zachary Moore by Keith Moore, 2007-09-18 Pretty Like Us by Carol Lynch Williams, 2008-10-01

lists with details

1. The Progeria Project Foundation - "It's About Time" - This Web Site Is For All T
   progeria A very rare terminal condition. From the Greek meaning prematurelyold . The progeria Project Foundation It s About Time .  
   http://www.progeriaproject.com/

2. NORD - National Organization For Rare Disorders, Inc.
   General Discussion. progeria, or HutchinsonGilford progeria syndrome, is a rare fatal, genetic condition of Children with progeria usually have a normal appearance in early infancy  
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Progeria, Hut

3. The Progeria Research Foundation Homepage
   progeria Research Foundation conducts the support of Medical Research,Promotion of Education and Awarness, and Fundraising.  
   http://www.progeriaresearch.org/
   
   Extractions: Prairie Lanes in Markesan, Wisconsin. The all-day, all-night fundraiser featured a silent and live auction, bake sale, sponsored bowling, raffles, and much, much more! Organized by Megan's Aunt Sue Giese, hundreds of friends, family and others who heard of Megan's fight for a cure came together in a tremendous show of support for the Nighbor family and PRF's efforts. In the May 10th issue of TIME magazine (Connections Bonus Section) PRF co-founder and Medical Director Dr. Leslie Gordon is highlighted for her efforts towards finding the cause, treatment and cure of Hutchinson-Gilford Progeria Syndrome. The article also presents the moving stories of two other parents whose lives were also transformed when their children were diagnosed with serious genetic diseases. To read the entire article, click on this link:

4. Progeria / The Family Village
   Who to Contact. Where to Go to Chat with Others. Learn More About It. Web Sites. Search Google for "progeria" Who to Contact. Sunshine Foundation Dream Village (Main Office) 5400 C.R. 547 North. P.O .  
   http://www.familyvillage.wisc.edu/lib_prog.htm
   
   Extractions: Website: http://www.sunshinefoundation.org/progeria.htm Since 1976 The Sunshine Foundation® has fulfilled over 23,500 dreams and wishes for chronically ill, terminally ill, and abused children. Whether it's a visit with a celebrity hero, a family outing, a trip to Disney World® or a special gift Sunshine has never said "no" to a deserving child. The majority of wishes Sunshine fulfils are to visit Central Florida attractions. Therefore in February of 1990 Sunshine opened the doors of its' Dream Village and since then approximately 1000 special children and their families have enjoyed the facilities at this special place for special children. In a fairytale like setting with a gingerbread facade, the Sunshine Foundation Dream Village is a place where children and their families stay while they briefly forget the pain and suffering that is part of their everyday lives. In addition, each year Sunshine sponsors a worldwide reunion of children suffering from Progeria. The Progeria Reunion gives those children suffering from this rare disease the opportunity to meet and get to know others with this rare genetic disease. International Progeria Registry

5. Progeria Syndrome
   progeria syndrome information, national and international support groups, clinics with genetic counselors, geneticists Werner Syndrome, Cockayne Syndrome, RothmundThomson Syndrome) progeria Research Foundation. P.O Fax 978.535.5849. E-mail progeria@netzero.net. Web site www.progeriaresearch  
   http://www.kumc.edu/gec/support/progeria.html
   
   Extractions: Sunshine Foundation, Dream Village PO Box 255, 5400 C.R. 547 North Loughman, FL 33858 Phone: 800.457.1976 or 863.424.4188 Fax: 863.424.4360 E-mail: florida@sunshinefoundation.org Web site: www.sunshinefoundation.org/dream_village.htm Sunshine Foundation, Volunteer Chapters California, Colorado, Delaware, District of Columbia, Georgia, New Jersey, Pennsylvania, West Virginia

6. Progeria - Welkom Op De Website Van Michiel - Last Updated: 28.05.2004
   Persoonlijke site van ouders met een kind dat lijd aan progeria. Informatie over deze aandoening, foto album en relevante links.  
   http://www.progeria.centerall.com/
   
   Extractions: Toen Wim en ik trouwden, wilden wij net zoals zovelen trouwen, huisje bouwen en een gezinnetje stichten.  Op een gegeven moment vonden wij de tijd rijp om aan het gezinnetje te beginnen.  Een eerste keer in verwachting: joepie!  Echter helaas; deze liep in een miskraam uit.  Enige maanden later opnieuw: joepie!  Wij kregen een kindje!  Opnieuw de teleurstelling en het verdriet toen het wederom misging.  Heel veel traantjes gelaten.  Ja, derde keer goede keer dachten wij!  Extra voorzichtig.  Goede zwangerschap achter de rug, niet te veel ziek geweest en na een paar maanden héél blij want de vrucht zat er nog.  Het was niet misgegaan deze keer. Iedere dag een beetje blijer en jawel hoor: op 13 juni 1998 ziet Michiel het eerste levenslicht in het ziekenhuis te Hasselt tijdens de voetbalmatch België – Nederland.  Regelmatig moest de verpleegster van de dokter en van Wim gaan horen wie er voor stond en wie ging winnen.  Heel spannend allemaal terwijl het mij op dat moment geen bal scheelde want ik stond op het punt om voor het eerst “mama” te worden.  Na een gewone, rustige bevalling was hij daar.  Toen ik hem voor het eerst in mijn armen had, kreeg ik zo een zalig gevoel over mij.  Ik lag op een wolk te drijven; zo héérlijk voelde ik mij met mijn jongen in mijn armen.

7. Progeria (Hutchinson-Gilford) Syndrome
   a CHORUS notecard document about progeria (HutchinsonGilford) syndrome  
   http://chorus.rad.mcw.edu/doc/00334.html

8. Progeria
   Informatie over deze aandoening van Antwerpse verpleegkundigen.  
   http://members.lycos.nl/progeria/

9. Index
   „gnar sig ¥t fastighetsf¶rmedling och fortbildning.  
   http://www.progeria.se/

10. Niederländische Version
    Stichting voor kinderen met progeria, met informatie over deze aandoening en contact informatie.  
    http://www.progeriafamilycircle.de/holl/
    
    Extractions: window.open('http://ptbanner.gmx.de/werbungpt1.php3?domain=progeriafamilycircle.de','ptxkEx5h1dQE','width=488,height=50'); Op deze site vindt u veel informatie over de ziekte PROGERIA, een aandoening die bij kinderen verschijnselen van vroegtijdige veroudering veroorzaakt. Progeria is ook wel bekend onder de namen HUTCHINSON-GILFORD of PROGERIA INFANTILITIS.

11. Index
    Overview of the rare disorder, symptoms, and experiences of children with progeria and their families.  
    http://www.progeriafamilycircle.de/

12. Telefacts -- The Site
    Telefacts reportage van de Vlaamse Televisie Maatschappij gewijd aan de aandoening progeria, inclusief dossier.  
    http://www.vtm.be/telefacts/details.htm?id=20121

13. Hutchinson-Gilford Progeria Syndrome Network
    Provides an overview of the disease as well as links to resources.  
    http://www.laze.net/progeria/index.html
    
    Extractions: @import "/hgps.css"; Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures around the world have been affected. Physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria don't live beyond their early teenage years, though one or two have lived to their early 20s. ... more about Progeria and this site Fri, 19 Mar 2004

14. The Progeria Research Foundation Homepage
    progeria Research Foundation conducts the support of Medical Research, Promotionof Education and Awarness, and Fundraising. What is progeria?  
    http://www.progeriaresearch.org/what_is_progeria.shtml
    
    Extractions: What is Progeria? Hutchinson-Gilford Progeria Syndrome ("Progeria", or "HGPS") is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means "prematurely old." While there are different forms of Progeria*, the classic type is Hutchinson-Gilford Progeria Syndrome, which was named after the doctors who first described it in England; in 1886 by Dr. Jonathan Hutchinson and in 1897 by Dr. Hastings Gilford. HGPS is caused by a mutation in the gene called LMNA (pronounced, lamin - a). The LMNA gene produces the Lamin A protein, which is the structural scaffolding that holds the nucleus of a cell together. Researchers now believe that the defective Lamin A protein makes the nucleus unstable. That cellular instability appears to lead to the process of premature aging in Progeria. Although they are born looking healthy, children with Progeria begin to display many characteristics of accelerated aging at around 18-24 months of age. Progeria signs include growth failure, loss of body fat and hair, aged-looking skin, stiffness of joints, hip dislocation, generalized atherosclerosis, cardiovascular (heart) disease and stroke. The children have a remarkably similar appearance, despite differing ethnic background. Children with Progeria die of atherosclerosis (heart disease) at an average age of thirteen years (with a range of about 8 - 21 years).

15. The Progeria Research Foundation Homepage
    Medical research, education, support, and fundraising for this premature aging disease.  
    http://progeriaresearch.org
    
    Extractions: Prairie Lanes in Markesan, Wisconsin. The all-day, all-night fundraiser featured a silent and live auction, bake sale, sponsored bowling, raffles, and much, much more! Organized by Megan's Aunt Sue Giese, hundreds of friends, family and others who heard of Megan's fight for a cure came together in a tremendous show of support for the Nighbor family and PRF's efforts. In the May 10th issue of TIME magazine (Connections Bonus Section) PRF co-founder and Medical Director Dr. Leslie Gordon is highlighted for her efforts towards finding the cause, treatment and cure of Hutchinson-Gilford Progeria Syndrome. The article also presents the moving stories of two other parents whose lives were also transformed when their children were diagnosed with serious genetic diseases. To read the entire article, click on this link:

16. Hutchinson-Gilford Progeria Syndrome Network
    HutchinsonGilford progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to progeria affects between 1 in 4 million (estimated actual) and 1 in  
    http://www.laze.net/progeria
    
    Extractions: @import "/hgps.css"; Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures around the world have been affected. Physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria don't live beyond their early teenage years, though one or two have lived to their early 20s. ... more about Progeria and this site Fri, 19 Mar 2004

17. Hutchinson-Gilford Progeria Syndrome Network
    Introduction. HutchinsonGilford progeria Syndrome is an extremely rare genetic diseasethat accelerates the aging process to about seven times the normal rate.  
    http://www.hgps.net/
    
    Extractions: @import "/hgps.css"; Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease that accelerates the aging process to about seven times the normal rate. Because of this accelerated aging, a child of ten years will have similar respiratory, cardiovascular, and arthritic conditions that a 70-year-old would have. Progeria affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) children, with a total reported incidence of just over 100 in the century since it's been identified. There are currently between 30 and 40 known cases worldwide of Progeria. Children from all races and cultures around the world have been affected. Physical features of Progeria children include dwarfism, wrinkled/aged-looking skin, baldness, and a pinched nose. Mental growth is equivalent to other children of the same age. Most children with Progeria don't live beyond their early teenage years, though one or two have lived to their early 20s. ... more about Progeria and this site Fri, 19 Mar 2004

18. Progeria News Feed [HGPS.net]
    Home News Feed. progeria News Feed. Below are current news stories mentioningprogeria. Valid CSS Copyright ©19962004, Ryan A. MacMichael.  
    http://www.hgps.net/feed/

19. ORPHANET® : Progeria
    Fiche dinformation pratiques sur  la progeria de HutchinsonGilford, signes de la maladie, autres sites internet et types de consultations.  
    http://www.orpha.net/static/FR/progeria.html
    
    Extractions: La progeria de Hutchinson-Gilford est une affection caractérisée par un vieillissement prématuré de début postnatal. Les signes cliniques et radiologiques principaux comprennent une alopécie, une peau fine, une hypoplasie des ongles, une absence de graisse sous cutanée, et une ostéolyse. L'intelligence est normale. Les patients décèdent précocement dans un contexte d'athérosclérose. La plupart des observations sont sporadiques, et l'élévation de l'âge paternel suggère la possibilité d'une nouvelle mutation dominante. Récemment, une mutation tronquante du gène LMNA qui code pour la laminine A, a été retrouvée chez la majorité des patients atteints de progeria. Il existe de nombreux syndromes progeroïdes représentant des diagnostics différentiels. *Auteurs : Drs L. Faivre et V. Cormier-Daire (mai 2003)*. Signes de la maladie CHEVEUX RARES/HYPOTRICHIE/ATRICHIE CLAVICULE ANOMALIE DENTS ERUPTION TARDIVE DIFFICULTE D'ELEVAGE DOIGTS PHALANGE DISTALE HYPOPLASIE EXOPHTALMIE FACE ETROITE HYDARTHROSE/ARTHROSE LUXATION DE HANCHE MAIGREUR (AUTRE QUE LIPODYSTROPHIE) ONGLES FINS / HYPOPLASIQUES (PIEDS) ONGLES FINS/HYPOPLASIQUES (MAINS) PEAU FINE PEAU GLABRE / ABSENCE DE POILS PETITE TAILLE / NANISME RAIDEUR ARTICULAIRE RETARD PUBERTAIRE/HYPOGONADISME RETROGNATHISME/MICROGNATHISME SENILITE PRECOCE/VIEILLISSEMENT PREMAT.

20. Redirect
    http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176670

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