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Neurofibromatosis:     more books (99)

Neurofibromatosis: Trusting God in the midst of NF by Renee B Wilson, 1999 Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals Neurofibromatosis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-02-13 Neurofibromatosis Type 1: From Genotype to Phenotype (Human Molecular Genetics) by MEENA UPADHYAYA, 1998-05-01 Neurofibromatosis: Phenotype, Natural History, and Pathogenesis (Johns Hopkins Series in Contemporary Medicine and Public Health) Neurofibromatosis (von Recklinghausen disease): Genetics, cell biology, and biochemistry (Advances in neurology) Neurofibromatosis Type I: From Genotype to Phenotype (Human Molecular Genetics) Living with Genetic Disorder: The Impact of Neurofibromatosis 1 by Joan Ablon, 1999-08-30 Neurofibromatosis Medical Guide by Qontro Medical Guides, 2008-07-09 Neurofibromatosis Type 1 - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-18 Neurofibromatosis Type II Neurofibromatosis Type I Neurofibromatosis Type 2 - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-20 21st Century Ultimate Medical Guide to Neurofibromatosis - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-30

lists with details

1. THE NF, INC. WEB SITE! THE NEUROFIBROMATOSIS, INC. HOMEPAGE
   Support and information for those with neurofibromatosis.  
   http://www.nfinc.org/

2. Neurofibromatosis Resources
   Lots of links to understandable information about NF and acoustic neuroma, conditions associated with those disorders, personal stories, and hardto-locate photos of visible signs of NF-1. One stop shopping for the BEST neurofibromatosis information on the Web! My name is Carol, and my life partner, Gene, has neurofibromatosis, Type One  
   http://neurosurgery.mgh.harvard.edu/NFR
   
   Extractions: before accessing this web site. Welcome! My name is Carol, and my life partner, Gene, has Neurofibromatosis, Type One. We've collected links to some of the finest sources of information about NF on the Internet. There is a great deal of information out there! Unfortunately, a lot of it was not written with regular people in mind. On these pages, you will find carefully selected sites - only the best. We hope that this information will help answer your questions and that you'll find it helpful.

3. NINDS Neurofibromatosis Information Page
   neurofibromatosis information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is neurofibromatosis? Is there any treatment What is neurofibromatosis? The neurofibromatoses are genetic disorders of the nervous system that primarily affect the  
   http://www.ninds.nih.gov/health_and_medical/disorders/neurofibro.htm
   
   Extractions: In most cases, symptoms of NF1 are mild, and patients live normal and productive lives. In some cases, however, NF1 can be severely debilitating. In some cases of NF2, the damage to nearby vital structures, such as other cranial nerves and the brainstem, can be life-threatening. What research is being done?

4. Neurofibromatosis European Associations
   Poems Poèmes. Livres. Page d accueil. EUROPEAN neurofibromatosis LAY GROUPS. ASBL Neurofibromatose, Belgium. Bulgarian neurofibromatosis Association (NFA). Bulgaria.  
   http://www.neurofibromatosis-network.org/eur-ass.htm
   
   Extractions: Person of contact: Alena Petrakova, Tel. +0042 24 255 8433 Czech Republick Dansk Forening for Neurofibromatosis Recklinghausen Denmark Suomen Neurofibromatoosiyhdistys r.y. Finland Association Neurofibromatoses et Recklinghausen France Ligue Française contre les Neurofibromatoses France Neurofibromatose - Arbeitskreis Berlin/Brandenburg Germany Neurofibromatose Selbsthilfegruppen Germany Ireland's Web Centre Neurofibromatosis Ireland Associazione Neuro f ibromatosi Italy Lottiamo Insieme per la NeuroFibromatosi Associazione Italy Vereniging Ziekte von Recklinghausen of de Nederlandse neurofibormatose patiëntenvereniging Netherlands Norsk Forening for Nevrofibromatose Norway Association in Portugal

5. The National Neurofibromatosis Foundation - NF
   More ». », Comprehensive Genetic Testing for NF1 Available Now. More ». © 2004 The National neurofibromatosis Foundation, Inc. All rights reserved. Disclaimer.  
   http://www.nf.org/

6. MedlinePlus: Neurofibromatosis
   neurofibromatosis National Institutes of Health. neurofibromatosis ( National Institute of Neurological Disorders available in Spanish. neurofibromatosis ( National Institute of Neurological  
   http://www.nlm.nih.gov/medlineplus/neurofibromatosis.html
   
   Extractions: Also available in: Spanish Clinical Trials ClinicalTrials.gov: Neurofibromatoses (National Institutes of Health) ClinicalTrials.gov: Neurofibromatosis 1 (National Institutes of Health) Neurofibromatosis Clinical Trials (National Neurofibromatosis Foundation) Diagnosis/Symptoms Diagnosing NF1 (National Neurofibromatosis Foundation) Diagnosing NF2 (National Neurofibromatosis Foundation) Disease Management Managing NF1 (National Neurofibromatosis Foundation) Managing NF2 (National Neurofibromatosis Foundation) Research First Successful Use of Penetrating Microelectrodes in Human Brainstem Restores Some Hearing to Deaf Patient (House Ear Institute) Researchers Identify Potential Treatment for Learning Disability in Neurofibromatosis (National Institute of Neurological Disorders and Stroke)

7. Las Neurofibromatosis
   Información sobre neurofibromatosis del Instituto nacional de desórdenes y del movimiento neurológicos/Spanishlanguage fact sheet on neurofibromatosis compiled by the National Institute of son  
   http://www.ninds.nih.gov/health_and_medical/pubs/las_neurofibromatosis.htm
   
   Extractions: Solicite por correo un folleto gratuito ¿Qué son las neurofibromatosis? ¿Qué es la Neurofibromatosis Tipo 1 (NF1)? ¿Cuáles son los signos y síntomas de la Neurofibromatosis Tipo 1 (NF1)? ¿Cuándo aparecen los síntomas? ... ¿Dónde puedo obtener más información? Las neurofibromatosis son trastornos genéticos del sistema nervioso que afectan principalmente al desarrollo y crecimiento de los tejidos de las células neurales (nerviosas). Estos trastornos ocasionan tumores que crecen en los nervios y producen otras anormalidades tales como cambios en la piel y deformidades en los huesos. Las neurofibromatosis ocurren en ambos sexos y en todas las razas y grupos étnicos. Los científicos han clasificado los trastornos como neurofibromatosis tipo 1 (NF1) y neurofibromatosis tipo 2 (NF2). Existen otros tipos o variantes de neurofibromatosis, pero éstos no han sido definidos aún. ¿Qué es la Neurofibromatosis Tipo 1 (NF1)?

8. Index1
   THE neurofibromatosis ASSOCIATION. Welcome to the former website of the UK neurofibromatosis Association. If you are not redirected  
   http://www.users.zetnet.co.uk/neurofibromatosis/

9. Neurofibromatosis Recklinghausen
   Om foreningen, kalender, sygdommen, butikken, kontakter og presseklip.  
   http://www.nfrecklinghausen.dk/

10. Neurofibromatosis Clinics Association
    A nonprofit organization for people with NF and their families.  
    http://trfn.clpgh.org/nfca

11. Neurofibromatosis(Von Recklinghausen's Disease) MEDSTUDENTS-NEUROLOGY
    neurofibromatosis(Von Recklinhausen disease) A review of the most important aspects on physical examination, classification and treatment. neurofibromatosis.  
    http://www.medstudents.com.br/neuro/neuro7.htm
    
    Extractions: NF is divided in two Types: Neurofibromatosis 1(NF1) is characterized by spots of increased skin pigmentation(café au lait spots), combined with peripheral nerve tumors and a variety of others dysplastic abnormalities of the skin, nervous system, bones, endocrine organs and blood vessels. Etiology The reponsible gene is located on the long arm of chromosome 17 Epidemiology Its incidence is 1 per 3.000 births and present in about 30 persons per 10.000 population. It is inherited as an autosomal dominant trait, but about 50 percent of cases arise as mutations. Pathology The peripheral nerve tumors of two types, schwannomas and neurofibromas. Both types of tumor occasionally become malignant. Clinical Manifestations The pigmented spots are irregular in shape with relatively even borders, vary in size, and are of brownish coffe color(café au lait). They are most proeminent over the trunk, in the axilla(axillary freckles), and about the pelve.

12. ::: Asociación Argentina De Neurofibromatosis
    Asociaci³n cuyo prop³sito es el estudio y la difusi³n de la enfermedad neurofibromatosis . NF1, NF2.  
    http://www.aanf.org.ar

13. Neurofibromatosis/ Family Village Library
    neurofibromatosis. Related Conditions NF1, von Recklinghausen disease. Who to Contact. Where to Go to Chat with Others. Learn More About It. Web Sites. Search Google for "neurofibromatosis" Who to  
    http://www.familyvillage.wisc.edu/lib_neuf.htm
    
    Extractions: Web: http://www.nfinc.org/ Neurofibromatosis, Inc. is dedicated to individuals and their families who are affected by the neurofibromatoses. They services the needs through coordinated educational, support, clinical and research programs, and promotes national, state and local community involvement. They have local chapters and provide a directory of these in their newsletter and their NF flyer. They will provide materials and assistance to persons wishing to start a support group in their locality and it provides informal parent-to-parent matching. The National Neurofibromatosis Foundation

14. Neurofibromatosis Clinics Association - Volunteer Opportunities
    Details of many ways to volunteer to help the neurofibromatosis Clinics Association.  
    http://trfn.clpgh.org/nfca/volunteer.html

15. Neurofibromatosis
    neurofibromatosis information and links to national and international support groups, clinics with genetic counselors and geneticists neurofibromatosisNF I NF II Regional Groups Genetics  
    http://www.kumc.edu/gec/support/neurofib.html

16. Neurofibromatosis
    a CHORUS notecard document about neurofibromatosis Disclaimer. Feedback. Search. neurofibromatosis. cafeau-lait spots  
    http://chorus.rad.mcw.edu/doc/00722.html

17. M. D. Anderson Cancer Center - Neurofibromatosis (NF) Clinic
    Information about neurofibromatosis and details of the center which provides diagnosis, treatment, patient education, and relevant research.  
    http://www.mdanderson.org/departments/neurofibrom/
    
    Extractions: Care Center Information A to Z Department List Breast Center Cancer Prevention Cardiopulmonary Gastrointestinal Genitourinary Gynecologic Oncology Internal Medicine Plastic Surgery Radiation Treatment Sarcoma Thoracic Alopecia Areata Angiogenesis Inhibitors Aplastic Anemia Basal/Squamous Cell Carcinomas Bladder Blood Stem Cell Transplant Bone Cancer Bone Marrow Failure (pediatric) Bone Marrow Transplants Brain Brain Tumors (pediatric) Breast Cancer Burkitt's Lymphoma Cancer Survivorship Carcinoid Tumors Cardiovascular Diseases Central Nervous System Cervical Chemoprevention Chest Wall and Sternal Tumors Childhood Cancers Colorectal Complementary/Integrative/Alt Med Dermatology - General Endometrial Esophageal Ewing's Sarcoma - pediatric Eye Cancers Eyelid/Orbital Tumors Fallopian Tube Germ Cell Tumors (pediatric) Gestational Trophoblastic Disease Graft Vs. Host Disease (GVHD) Head and Neck Cancers Hematologic Malignancies Hereditary Gynecologic Cancers Hodgkin's Disease Hodgkin's Disease (pediatric) Idiopathic Hypereosinophilic Synd Kidney Larynx Leptomeningeal Disease Leukemia Leukemia (pediatric) Liver Cancer Lung Lymphoblastic Lymphoma Lymphoma Lymphoma - Cutaneous T-Cell Mediastinal Tumors Medulloblastoma (pediatric) Melanoma Melanoma (eye) Melanoma (head and neck area) Mesothelioma Myelodysplastic Syndrome Myeloma - Multiple Nasopharynx Neuroblastoma (pediatric) Neurofibromatosis (pediatric) Non-Hodgkin's Lymph. (pediatric)

18. British Columbia Neurofibromatosis Foundation - Home Page
    British Columbia neurofibromatosis Foundation 2031001 Cloverdale Avenue, Victoria, BC V8X 4C9 Phone (250) 370-7597 or 1-800-385-BCNF (2263).  
    http://www.bcnf.bc.ca/
    
    Extractions: e-mail: bcnf@bcnf.bc.ca Mailing List Welcome to the BCNF Website! Who Are We? BCNF is a non-profit charitable organization serving individuals and families throughout British Columbia and Western Canada. Information on the BC Neurofibromatosis Foundation website (www.bcnf.bc.ca) is intended to be used for general information only and should not replace consultation with qualified healthcare professionals. Consult a qualified healthcare professional before making medical decisions or if you have questions about your individual medical situation.

19. Associació Catalana De Les Neurofibromatosis - Pàgina Principal
    Informaci³ sobre aquesta malaltia i possibilitat de contactar amb grups d'ajuda mºtua. Activitats de l'associaci³, tauler d'anuncis i llocs web d'inter¨s.  
    http://www.acnefi.com/catala/gamhome.htm
    
    Extractions: Les Neurofibromatosis (NF) son un conjunt de desordres genètics causants d'innumerables tumors que creixen al llarg de diversos tipus de nervis i que, també poden afectar al desenvolupament de teixits no nerviosos com ara ossos i pell. Cercar dins la web: Les Neurofibromatosis GAM Contactar Activitats ... Agraïments ACNefi és membre de Eurordis FEDER WebMaster

20. NFAA Inc. - Home Page
    Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.  
    http://www.nfaa.org.au/

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