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Leukodystrophy: more books (21)

Krabbe disease: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Amie, MS Stanley, 2005
Lipidoses: An entry from Thomson Gale's <i>Gale Encyclopedia of Children's Health: Infancy through Adolescence</i> by Tish, A.M. Davidson, Altha Edgren, 2006
Without a Word: How a Boy's Unspoken Love Changed Everything by Jill Kelly, 2010-09-09
Krabbe's Disease: A Medical Dictionary, Bibliography, And Annotated Research Guide To Internet References by Icon Health Publications, 2004-10-08
The Neurology of Angels by Krista Tibbs, 2009-02-13
ALD/AMN diet cookbook by Janet Borel, 1990

lists with details

NORD - National Organization For Rare Disorders, Inc.
leukodystrophy. To purchase fulltext report ($7.50) View Cart/Checkout. Copyright 1989, 1995, 1998 Synonyms of leukodystrophy
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Leukodystroph
MLD Foundation - Support For Families With Metachromatic Leukodystrophy (MLD)
Information, support, education and online networking for families throughout the world dealing with Metachromatic leukodystrophy (MLD).
http://www.mldfoundation.org

Extractions: Is this your first time here? We're glad that you have found us and while many times your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD, we want you to know that you can count on us for support, information and to help you get connected with others that are also on the MLD journey. We welcome you and are here to offer you a Listening Ear and a Caring Heart.
The DRM WebWatcher: Leukodystrophy
A Disability Resources Monthly guide to the best online resources about leukodystrophy.
http://www.disabilityresources.org/LEUKO.html

Extractions: Home WebWatcher Regional Librarians ... Contact Us The DRM WebWatcher Leukodystrophy Updated 3/30/2004 A B C D ... About/Hint/Link Leukodystrophy refers to a group of genetic disorders that are characterized by the imperfect growth or development of the myelin sheath that covers nerve fibers in the brain. Most leukodystrophies are characterized by a gradual changes in an infant or child who previously appeared well. There are various forms of leukodystrophy, including Specific leukodystrophies include metachromatic leukodystrophy, Krabbe leukodystrophy, adrenoleukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. For additional information, check these sites. NINDS Leukodystrophy Information Page A fact sheet from the National Institute of Neurological Disorders and Stroke. United Leukodystrophy Foundation (ULF) ULF is a nonprofit "dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies." Its website focuses on information about the organization and its services. Related Subjects Krabbes Disease Neurological Disorders Rare Disorders Resources in your state (c) 1997-2000 Disability Resources, inc.
Leukodystrophy - Information / Diagnosis / Treatment / Prevention
home neurological disorders demyelinating diseases leukodystrophy leukodystrophy. Information Diagnosis Treatment Prevention.
http://www.healthcyclopedia.com/neurological-disorders/demyelinating-diseases/le
The Stennis Foundation
Raising public awareness regarding Metachromatic leukodystrophy, and raising funds for MLD research.
http://www.stennisfoundation.org

Extractions: The Stennis Foundation for MLD Online PO Box 30065 Amarillo, TX 79120 Welcome Contact Info E-Mail Upcoming Events ... Photos The Stennis Foundation is recognized by the IRS as a tax-exempt charitable organization under section 501(c)3. We need your gifts, large or small, to help us forcefully advance toward a cure for MLD. Donate online by clicking on the "Make a Donation" button or send your gifts to The Stennis Foundation P O Box 30065 Amarillo, TX 79120. Your support is appreciated! The Stennis Foundation is now accepting proposals for MLD Research Funding. Submit proposals by mail to: PO Box 30065, Amarillo, TX 79120 or email in Microsoft Word format to: stennisfoundation@stennisfoundation.org Thank you for your interest in MLD Research! postCount('Got a Comment?'); postCountTB('Got a Comment?'); The Stennis Foundation: Raising public awareness regarding MLD
Metachromatic Leukodystrophy - Information / Diagnosis / Treatment / Prevention
home neurological disorders demyelinating diseases leukodystrophy metachromatic leukodystrophy Metachromatic leukodystrophy.
http://www.healthcyclopedia.com/neurological-disorders/demyelinating-diseases/le

Extractions: Web Directory: Bethanys Hope Foundation - For MLD Research A Canadian foundation funding research and serving families dealing with Metachromatic Leukodystrophy disease (MLD) and other leukodystrophies. MLD Foundation - Support for Families With Metachromatic Leukodystrophy Information, support, education and on-line networking for families throughout the world dealing with Metachromatic Leukodystrophy (MLD).
Bethanys Hope Foundation - For MLD Research
A Canadian foundation funding research and serving families dealing with Metachromatic leukodystrophy disease (MLD) and other leukodystrophies.
http://www.bethanyshope.com
MedlinePlus Medical Encyclopedia: Metachromatic Leukodystrophy
Metachromatic leukodystrophy. Treatment Return to top. At present, there is no treatment for metachromatic leukodystrophy itself.
http://www.nlm.nih.gov/medlineplus/ency/article/001205.htm

Extractions: @import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Contents of this page: Alternative names MLD; Arylsulfatase A deficiency Definition Return to top Metachromatic leukodystrophy is an inherited disease characterized by the absence of the enzyme arylsulfatase A, which causes a material called cerebroside sulfate to accumulate in cells. This is toxic to the cell, especially neurons (the cells of the nervous system) and causes the problems of the disease. MLD is a member of a class of diseases called lysosomal storage disorders. In these diseases, patients lack a protein needed to metabolize the food we eat. Causes, incidence, and risk factors Return to top Metachromatic leukodystrophy (MLD) is transmitted as an autosomal recessive trait, which means that a person must inherit the defective gene from both parents to be affected. MLD has a wide range of symptoms. As with many other storage diseases, there are forms of early and delayed onset (late infant, juvenile, and adult types).
Virtual Hospital Adrenal Leukodystrophy (ALD)
Radiology resident case with references and images.
http://www.vh.org/Providers/TeachingFiles/RCW/012696/012696.html
HealthlinkUSA Leukodystrophy Links
Kanoodle.com. You can find leukodystrophy right now at Info.com. Click here for page 1 of leukodystrophy information from the HealthlinkUSA directory.
http://www.healthlinkusa.com/185ent.htm
Hunter's Hope Foundation
Formed in honor of infant son, Hunter, who was diagnosed with Krabbe disease (GloboidCell leukodystrophy). Supports research on this and other leukodystrophies. Includes disease information, family registry, and other resources.
http://www.huntershope.org/

Extractions: Established in 1997 by Pro Football Hall of Fame member and former Buffalo Bills Quarterback, Jim Kelly, and his wife, Jill, after their infant son, Hunter, was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kellys life long commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts to identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies.
HealthlinkUSA Leukodystrophy Links
Kanoodle.com. Try searching for leukodystrophy at ExactSeek.com. Click here for page 1 of leukodystrophy information from the HealthlinkUSA directory.
http://www.healthlinkusa.com/185.asp
Central Nervous System Diseases
Anatomy of the Brain AANS. leukodystrophy (not on MeSH). leukodystrophy - NINDS. What is Metachromatic leukodystrophy - Bethany s Hope.
http://www.mic.ki.se/Diseases/C10.228.html

Extractions: Diseases and Disorders Links pertaining to Central Nervous System Diseases Alert! Patients and laypersons looking for guidance among the target sources of this collection of links are strongly advised to review the information retrieved with their professional health care provider. Start Page Contents: Adrenoleukodystrophy Alzheimer Disease Arachnoiditis Brain Abscess ... Zellweger Syndrome Central Nervous System Diseases Nerve Cells [Lodish et al.] - Molecular Cell Biol., Chap 21, via NLM (US) Pathol. Images of the Central Nervous System - Univ of Utah (US) The Human Brain [JD MacArthur] The Global Brainstem '97 , the Cerebellum '97 , the Thalamus '97 , the Spinal Cord '97 - Univ. of Wisconsin (US) Mental Disorders Links
Mississippi River Challenge For Rett Syndrome & Leukodystrophy, Beginning May 10
The Mississippi River Challenge for Rett Syndrome leukodystrophy May 10, 2003 6 AM to May 28, 1051 AM 2003- A 2,348 Mile Marathon to Support a Marathon of
http://www.mississippichallenge.org/leukodystrophy.html

Extractions: Leukodystrophy refers to a group of genetic disorders that are characterized by the imperfect development or maintenance of the white matter (myelin sheath covering nerve fibers in the brain). The myelin sheath is an extremely complex fatty substance made of many components. Each of the leukodystrophies affects one of these components. The most common signs seen in most leukodystrophies include gradual changes in an infant or child who previously appeared well. Changes may appear in body tone, movements, gait, speech, ability to eat, vision, hearing, behavior, memory, or thought processes. The symptoms, which vary according to the specific type of leukodystrophy, may be difficult to recognize in the early stages of the disease.
WHAT IS LEUKODYSTROPHY?
What is leukodystrophy? PelizaeusMerzbacher Disease leukodystrophy (PMD) is a generally nonprogressive, X-linked disorder of the central nervous system (CNS).
http://www.the-morgan-project.org/WHAT IS LEUKODYSTROPHY.htm

Extractions: thank you for helping to make the life of a disabled child a little bit better! jump to turtles! HOME WELCOME ABOUT US ... HOW YOU CAN HELP What is Leukodystrophy? WHAT IS LEUKODYSTROPHY? Leukodystrophy is the name given to a group of inherited, progressive genetic disorders. The name comes from the Greek 'leuko', meaning "white" and 'dystrophy' meaning "imperfect growth or development". The nerves in the human body are composed of two parts; the innermost section is called the axon, and is directly responsible for conveying nerve impulses from the brain. Surrounding the axon, rather like insulation around an electrical cord, is the myelin sheath, or 'white matter'. The sheath is made up of a variety of chemicals, and its protective covering is vital to the health and function of the nerve axon within. In Leukodystrophy, a mutation in one of the patient's genes affects the development of one of the multiple chemicals (there are at least 10) that make up the myelin sheath, preventing or inhibiting its development. Without this natural protection the nerve axons are unable to function correctly. Each form of Leukodystrophy affects a different element of the myelin sheath, causing a range of symptoms and affecting different parts of the nervous system, such as the spinal cord and the brain.
Leukodystrophy
Founded 1982. Provides information and resources for leukodystrophy patients and their families. leukodystrophy. United leukodystrophy Foundation, Inc.
http://www.bchealthguide.org/kbase/shc/shc29leu.htm

Extractions: The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org
Leukodystrophy, Krabbe's
Krabbe s leukodystrophy is a rare inherited lipid storage disorder caused by a deficiency of the enzyme galactocerebrosidase (GALC), which is necessary for the
http://www.bchealthguide.org/kbase/nord/nord379.htm

Extractions: It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Information on the following diseases can be found in the Related Disorders section of this report: Onset of Krabbe's Leukodystrophy in the predominant infantile form (90% of cases) occurs between one and seven months of age. A late-onset form of the disorder occurs at 18 months or a later age, including adolescence and adulthood.
Introduction: Metachromatic Leukodystrophy - WrongDiagnosis.com
Introduction to Metachromatic leukodystrophy as a medical condition including symptoms, diagnosis, misdiagnosis, treatment, prevention, and prognosis.
http://www.wrongdiagnosis.com/m/metachromatic_leukodystrophy/intro.htm

Extractions: Metachromatic Leukodystrophy: Metachromatic leukodystrophy (MLD) is a genetic disorder caused by a deficiency of the enzyme arylsulfatase A. It is one of a group of genetic disorders called the leukodystrophies that affect growth of the myelin sheath, the fatty covering -which acts as an insulator - on nerve fibers in the brain.
BirdFoundation - In Gondola Per Pietro Ghezzo
Foundation BIRD Europe onlus. Metachromatic leukodystrophy (LDM). The Association Rare Diseases pioneer in the individuation of a
http://www.birdfoundation.org/leucodistrofia_eng.asp

Extractions: Clamorous news Yesterday on Nature Medicine, March 2001 Vol. 7 No. 3 Pag. 310-316, appeared the scientific paper on gene theraphy of Metachromatic Leukodystrophy using lentiviral vectors, which were able to transport the healthy ASA enzyme in the brain of mice with this disease, dissolving the noxious fats in both the brain hemispheres, and inducing the regression of the disease in these animals. The disease Metachromatic Leukodystrophy is a severe neurological disorder affecting the Central and the peripherical nervous system. In its more severe form the disease leads to infirmity and, soon after the beginning of the symptoms, to death. The disorder is due to a defect in the gene coding for the Arilsulfatase A enzyme, which avoid the excessive storage of sphyngolipids (noxious fats) in the neurons.
AshleysAngels.org What Is Leukodystrophy?
What is leukodystrophy? Answer leukodystrophy, also referred to How does leukodystrophy occur? Answer Generally speaking, in leukodystrophy
http://www.ashleysangels.org/whatis.htm

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