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Hemophilia: more books (100)

Let Harold (A Boy with hemophilia) Do it by Nan Frelander, 0001-01-01
People With Hemophilia: Ryan White, Jason Robertson, Alexei Nikolaevich, Tsarevich of Russia, Prince Leopold, Duke of Albany, Alfonso
Beloved Warrior: Hemophilia and Other Battles
Hemophilia, SCID: Early Gene Therapy Trials Look Promising.(Brief Article): An article from: Family Practice News by Sherry Boschert, 2001-02-15
Hemophilia: A manual of outpatient management
Prothrombin in enzymology, thrombosis, and hemophilia, (American lecture series, publication no. 681. A monograph in the Bannerstone divi-sion of American lectures in hematology) by Walter H Seegers, 1967
Activated Prothrombin Complex Concentrates: Managing Hemophilia with Factor VIII Inhibitor
Recent Advances in Hemophilia by Louis M. Aledort, 1975
Hemophilia,: Clinical and genetic aspects, (Illinois medical and dental monographs) by Carroll L Birch, 1937
Living with hemophilia.(Neighborhood Heart Watch)(Brief Article): An article from: Medical Update by Douglas Zipes, 2003-08-01
Hemophilia and other Hemorrhagic States by Kenneth M. - editor Brinkhous, 1959
Raising a Child with Hemophilia: A Practical Guide for Parents by Laureen A. Kelley, 1993
Challenges for social work in hemophilia care.(Practice Forum): An article from: Health and Social Work by Gregory Taylor, 2004-05-01
Hemophilia and Hemostasis by Doris, Douglas MacN. Surgenor, Harlan D. Anderson, editors. Menache, 1981

lists with details

Ask NOAH About: Hemophilia
Ask NOAH About hemophilia and Bleeding Disorders. What are hemophilia and Bleeding Disorders? Care and Treatment, Information Resources. What Is hemophilia?
http://www.noah-health.org/english/illness/genetic_diseases/hemophilia.html

Extractions: Go to the ASK NOAH ABOUT Genetic Diseases Page What Is Hemophilia? Basic Descriptions Bleeding Disorders - Merck Manual, Home Edition Children and Teens Page - Canadian Hemophilia Society (also in French The Clotting Problem in Hemophilia - Canadian Hemophilia Society (also in French Frequently Asked Questions - World Hemophilia Foundation (also in Spanish and French Haemophilia: Facts for Families - World Federation of Hemophilia Hemophilia - NHBLI Hemophilia - Methodist Healthcare System, Houston TX (also in Spanish Haemophilia - New South Wales Genetics Program, Australia Hemophilia - KidsHealth Hemophilia - KidsHealth ... Hemophilia - Your Genes, Your Health (Interactive Flash Presentation) Hereditary Coagulation Disorders - The Merck Manual History of Bleeding Disorders - National Hemophilia Foundation How to Deal with Hemophilia - KidsHealth ... Platelet Function Disorders - Canadian Hemophilia Society (also in French Types of Platelet Function Disorders - Canadian Hemophilia Society (also in French What is a Bleeding Disorder? - National Hemophilia Foundation
Northern Alberta Comprehensive Hemophilia Clinic
Northern Alberta Comprehensive hemophilia Clinic. Welcome to our Home Page. Members of the Northern Alberta Comprehensive hemophilia Clinic.
http://www.ualberta.ca/~britchie/achcn.html

Extractions: Last update 29 June 1999 The Northern Alberta Comprehensive Hemophilia Clinic has been in existence since 1978. It was formed by the Province of Alberta, under the leadership of the Minister of Health, the Alberta Chapter of the Canadian Hemophilia Society, and their medical consultant, Dr. Garner King. It was charged with the task of providing high quality comprehensive care for people with hemophilia, providing education to families and treaters of hemophilia, and performing research. The clinic has been successful in moving treatment of hemophilia to an outpatient setting, placing control of treatment in the hands of the patients, and providing comprehensive care to people with this disorder. This has resulted in dramatic improvement in efficiencies of care, improved management of hemophilia, improvements in the lifestyle of people with hemophilia, and better relationships between treaters and patients. Comprehensive Clinics are held once a month on the first Monday afternoon of the month in the General Clinics, on the first floor of the Walter McKenzie Center. Comprehensive Clinics are attended by the nurse coordinator, a physiotherapist, a social worker, a representative of the dental clinic, an orthopedic surgeon , and a hematologist. Surveillance clinics are held on intervening Mondays. Wilma McClure RN , Nurse Coordinator Dr. John Akabutu
Friends Of The Iranian Hemophilia Society
Friends of Iranian hemophilia / haemophilia Society. UK charity hemophilia is an inherited, lifelong bleeding disorder. Without appropriate
http://www.fihs.co.uk/
Hemophilia Association Of The Captial Area
The hemophilia Association of the Capital Area (HACA) is a taxexempt, non- profit organization established in 1961 to serve persons with bleeding disorders
http://www.hacacares.org/

Extractions: The Hemophilia Association of the Capital Area (HACA) is a tax-exempt, non- profit organization established in 1961 to serve persons with bleeding disorders and their families in northern Virginia, Washington, DC, and Montgomery and Prince Georges Counties in Maryland. It is a local chapter of the National Hemophilia Foundation. HACA's mission is to improve the quality of life for persons with hemophilia and Von Willebrand's disease and their families; to act as an advocate; to educate; to improve services to its members; to promote research and to raise money to fulfill this purpose.
Hemophilia
hemophilia. Definition hemophilia is a hereditary bleeding disorder in which it takes a long time for the blood to clot and abnormal bleeding occurs.
http://www.healthscout.com/ency/article/000537.htm

Extractions: Channels Home Today Women Men ... Drug Checker Advertisement Disease Injury Nutrition Poison ... Prevention Definition: Hemophilia is a hereditary bleeding disorder in which it takes a long time for the blood to clot and abnormal bleeding occurs. This disease affects mostly males. Diseases in this category include:
Hemophilia Association Of San Diego County
Golf Tournament Event Date(s) Thursday, May 13th, 2004 Location Torrey Pines North Golf Course Click here for more details.
http://www.hasdc.org/

Extractions: preloadRollover("images/intro/donors.gif", "donors"); preloadRollover("images/intro/site_development.gif", "site_development"); preloadRollover("images/intro/hemos_presentation.gif", "hemos_presentation"); preloadRollover("images/scrolling/orange/scroll_up.gif", "scroll_up"); preloadRollover("images/scrolling/orange/scroll_down.gif", "scroll_down"); var n=3; A Chapter of the National Hemophilia Foundation Memorial Services for Bryan Sage are as follows:
Hemophilia Association Of New Jersey - Hemophilia, Bleeding Disorders
The hemophilia Association of New Jersey offers assistance to persons with hemophilia and their families from our office located in East Brunswick.
http://www.hanj.org/

Extractions: All information that appears on the Hemophilia Association of New Jersey website, including links to other websites, is for your general information only. The Hemophilia Association of New Jersey makes no endorsements for or against medical treatments and/or therapies. Please consult your physician, or local treatment center before pursuing any course of treatment.
Blood Clotting
Loss of the genes for tissue factor or; factor 7. in knockout mice is lethal. hemophilia A and B. Treating hemophilia A and B. What can be done?
http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/C/Clotting.html

Extractions: Index to this page Blood Clotting When blood vessels are cut or damaged, the loss of blood from the system must be stopped before shock and possible death occur. This is accomplished by solidification of the blood, a process called coagulation or clotting. A blood clot consists of Platelet aggregation and fibrin formation both require the proteolytic enzyme thrombin . Clotting also requires: Damaged cells display a surface protein called tissue factor TF Tissue factor binds to activated Factor The TF-7 heterodimer is a protease with two substrates: Factor and Factor Let's follow Factor first.
The DRM WebWatcher: Hemophilia
This section of The DRM WebWatcher describes the best online resources about hemophilia.
http://www.disabilityresources.org/HEMOPHILIA.html

Extractions: Home Subjects States Librarians ... Contact Us The DRM WebWatcher Hemophilia Updated 7/17/2000 A B C D ... About/Hint/Link Hemophilia is a sex-linked hereditary bleeding disorder where one of the plasma proteins needed to form a clot is missing or reduced. Here are some good places to find out more. Centers for Disease Control and Prevention - Hematologic Diseases Branch (HDB) The HDB is mandated by Congress to reduce the complications of hemophilia and other bleeding and clotting disorders. This site provides information about the branch; the archive includes statistical documents and related material. Hemophilia Home Page This is an extensive personal home page compiled by an individual with hemophilia and AIDS. Topics range from general information to HIV compensation/litigation, research, gene therapy, AIDS-related information, Spanish resources and much more. There's also a chat server and listserv information. National Hemophilia Foundation Information about bleeding disorders, news, research, programs, documents, and much more. Check out the new online education program. World Federation of Hemophilia The federation is an international nonprofit volunteer-based organization "dedicated to introducing, improving and maintaining care for persons with hemophilia and related disorders." Its web site includes an extensive online library, a Treatment Centre Directory, product recalls and info, events, "Ask the Doc," and an extensive, well-organized list of links and mailing lists. Visitors should note that the site is sponsored by several medical companies.
Department Of Medicine - Hemophilia Treatment Center
The hemophilia Treatment Center provides comprehensive services to children, adults and their families with hemophilia, Von Willebrand Disease and related
http://www.lij.edu/lijh/hemophilia.html

Extractions: Jahan Roofeh, MD, Orthopedist About the Hemophilia Treatment Center The Long Island Jewish Hemophilia Treatment Center serves as the Federally designated regional hemophilia program for Long Island. The center provides comprehensive services to children, adults and their families with hemophilia, von Willebrand Disease and related disorders. The Treatment Center is located in the Hematology/Oncology Building in Room 350. Telephone: hemophilia@lij.edu Mission/Purpose "We are committed to providing lifelong, accessible, state of the art, family centered hemophilia treatment. Our mission is to foster a high level of autonomy in the management of hemophilia through continuous family and patient education. We believe this goal is facilitated through community advocacy that promotes optimum treatment for all affected families." The Team Approach The Regional Comprehensive Hemophilia Treatment Center offers the skills of experienced hemophilia specialists and provides the following services:
Center For Cancer And Blood Disorders At Children's Medical Center Dallas
hemophilia The hemophilia condition. Program Highlights Membership on various committees of the National hemophilia Foundation. Nurse
http://www.childrens.com/ccbd/hematology/hemophilia_index.cfm
Hemophilia Foundation Of Oregon | Welcome
Welcome. Welcome to the hemophilia Foundation of Oregon s website! This site is dedicated to providing information to Oregon and
http://www.hfo.info/

Extractions: The Hemophilia Foundation of Oregon (HFO) was founded in Portland in 1963 by a small group of parents of children with hemophilia. Its goal has always been to improve the quality of life of those living with bleeding disorders and related diseases, and those who care for them. It serves individuals, their families and friends living in Oregon and Clark County, Washington. HFO is a volunteer organization dedicated to providing education and support to families affected by hemophilia and other bleeding disorders. Nationally, there are approximately 20,000 individuals with hemophilia; 400 with bleeding disorders in the Foundation's service area alone. Including family, friends and caregivers, many thousands of people are touched by hemophilia.
Hemophilia Of Indiana - Home
HomePage . Welcome! hemophilia of Indiana, Inc. has a 40year history of serving persons with bleeding disorders throughout Indiana
http://www.hemophiliaofindiana.org/
Midwest Hemophilia Association - Home
Improving the quality of life for those affected by hemophilia and other bleeding disorders. The Midwest hemophilia Association
http://www.midwest-hemophilia.org/

Extractions: The Midwest Hemophilia Association is a non-profit organization formed to promote awareness, provide group support, educate, and facilitate communication for the bleeding disorders community of Kansas and Missouri. We provide information on available treatments, insurance and reimbursement issues, and related legislative efforts. We also sponsor educational seminars and conferences, publish a quarterly newsletter, and hold special social events for the benefit of our members. In an effort to ease the adjustment to living wtih a chronic bleeding disorder, MHA's First Steps program provides an avenue of support and education for families of newly diagnosed hemophiliacs. In addition, the MHA collaborates with Children's Mercy Hospital to have a one-week camp every August in Lawson, Missouri specifically for kids with bleeding disorders. This is free of charge to the camper and his family.
HealingWell.com Library - News And Articles
HealthPortal Diseases and Conditions Genetic Congenital hemophilia. Gene Therapy for hemophilia Passes Test Altered cells may correct genetic flaw.
http://healingwellhemonco.subportal.com/health/Diseases_and_Conditions/Genetic_C
NovoSevenÂ® US Patient Information
En Español. Introduction hemophilia and inhibitors. More than 15,000 people in the United States have hemophilia. Of those, as many
http://www.us.novoseven.com/content/us_vers/us_patient_information.asp

Extractions: Home Hemostasis ... Visit novonordisk-us.com Patient information Print What is hemophilia? How do you get hemophilia? What are the signs and symptoms of hemophilia? ... En Espa±ol Introduction: Hemophilia and inhibitors More than 15,000 people in the United States have hemophilia. Of those, as many as 20% can expect to develop inhibitors (antibodies) to their coagulation therapy. The following questions were prepared to explain what inhibitors are, how they affect choice of therapy, and how they can be "outsmarted" so that people with hemophilia are able to receive effective treatments. A glossary is also provided in this web site to help define terms that are related to hemophilia. This information is supplied to help patients and their families gain a better understanding of hemophilia and its treatment so that they can more easily discuss their questions and concerns with healthcare providers. Normally, when bleeding occurs, the blood launches into a 2-phase response to stop it. First, platelets become sticky and clump together at the site of the injury forming a platelet plug. Next, blood coagulation rapidly replaces this unstable platelet plug with a chemically stable fibrin clot. This takes place through a series of chemical reactions in the blood that involve substances called clotting factors. When there is a deficiency or absence of either blood factor VIII (factor 8) or factor IX (factor 9), it short-circuits the coagulation process resulting in uncontrolled bleeding that is called hemophilia. People lacking sufficient factor VIII have hemophilia A and people lacking sufficient factor IX have hemophilia B.
InteliHealth: Hemophilia
surgeries that is listed and crossreferenced in an AZ format. hemophilia. Reviewed by the Faculty of Harvard Medical School hemophilia
http://www.intelihealth.com/IH/ihtIH?t=10115&p=~br,IHW|~st,408|~r,WSIHW000|~b,*
HemophiliaSupport.org : National Hemophilia Foundation, Delaware Valley Chapter
http://www.hemophiliasupport.org/
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http://www.hemophilia.ru/
Haemostasis Forum
This is a web site dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact
http://www.haemophilia-forum.org/

Extractions: This is a web site dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact with worldwide specialists in the field of haematology. Each month the contents of these pages are updated and reviewed by a panel of independent haemophilia specialists. Please click on Faculty Info. This forum is supported by an educational grant from Novo Nordisk A/S. If you would like to access this site, please click on 'Register Now' and submit your details. If you have already registered, please enter your username and password and click on 'accept'. Enter your details here please

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