A Little Web Page About Me... Personal information, photos, growing up with hemophilia and favourite links. http://hometown.aol.com/jscott420/JScott420.html
Extractions: Main Other Disabilities htmlAdWH('7002568', '234', '60'); CNN, MSNBC, FOX NEWS Growing up and living with Hemophilia... I am 26 years old, living with severe Hemophilia A. As a kid, dealing with hemophilia and/or other types of bleeding disorders is a little bit more difficult than when you get older. When I was a young kid, I had to learn what my body could handle without causing internal bleeding. I wanted to play football, I wanted to wrestle, I wanted to jump on our trampoline with my older sister and cousins.. :) just had to learn the hard way in some of those cases.. well, this is me.. just chillin gettin ready to head out for a bit.. I'm a very romantic guy, always out to please my lady.. ;) My main interests are camping, rafting, hiking, rock climbing, boating, playing the lastest video games, fixin up my car, checkin out the stars at night when its clear. I am a counselor for a youth camp for kids with bleeding disorders, helping kids have a chance to experience activities that they otherwise would not have the opportunity to fully participate in. E-mail me for additional information about camp.
Care For Life Provides products and therapies designed to treat hemophilia and other bleeding disorders. http://www.careforlife.com/
FACTOR FOUNDATION HOME Locating financial support for those dealing with hemophilia and related bleeding disorders. Membership. http://www.factorfoundation.org/
Extractions: The Hemophilia and Thrombosis Center of Nevada 2020 W. Palomino Lane Suite 110 Las Vegas, Nevada 89106 since June 1 The Hemophilia and Thrombosis Center of Nevada (HTCN) was founded in 1997 as the first treatment center in the state of Nevada dedicated to the diagnosis and treatment of patients with bleeding or clotting disorders. The HTCN is a non profit corporation. We support ourselves with educational grants and research grants. All team members are employed through community organizations who donate their time to the treatment center. We currently care for patients and families throughout Nevada and the neighboring underserved regions. While clinics are held in Las Vegas, we attempt to coordinate care through the primary care physician's office locally. We have an active advisory board composed only of affected and concerned persons. This board promotes the mission of the HTCN and helps to guide the activities of the treatment center staff. If you are interested in volunteering at the HTCN or helping support us, please call the center at the number below. We always need help with our newsletters published three times per year and special events. The HTCN is dedicated to improving the care of patients with bleeding or clotting disorders regardless of the ability to pay.
Hemophilia Update: 1997 hemophilia UPDATE 1997. Background effective. Antibody inhibitors are more likely to occur in individuals with severe hemophilia. http://www.nhlbi.nih.gov/health/public/blood/other/hemo_97.htm
Extractions: Over the last few years, improved procedures have led to high purity plasma-derived factor VIII and factor IX products which appear to be safer when subjected to viral inactivation procedures than were the previous lower potency materials. "First generation" recombinant factor VIII, produced without human plasma, became available in 1992. This added a measure of safety especially from non-enveloped viruses, although the need for human albumen to stabilize the factor left a tiny and currently hypothetical risk of human infectious agent transmission. The first recombinant factor IX preparation is now in clinical trials. It is a "second generation" product which is manufactured and packaged without any human or animal plasma proteins. A similarly produced factor VIII concentrate is under development. The Goal
Welcome To HFA Our Mission. The hemophilia Federation of America is a national nonprofit organization that assists and advocates for the blood clotting disorders community. http://www.hemophiliafed.org/
Extractions: Symposium 2004 News Inside HFA Membership Links Contact Us Our Mission The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the blood clotting disorders community. Our Vision The vision of the Hemophilia Federation of America is that the blood clotting disorders community has removed all barriers to both choice of treatment and quality of life.
Home The hemophilia Foundation of Nevada is a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs http://www.hemophilianevada.org/
Extractions: The Hemophilia Foundation of Nevada is a nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada. "To improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand's Disease , through education, peer support, and advocacyl". Education Peer Support Resources/Referral Maintain listings for specialized hemophilia care and emergency clotting factor acquisition Sponsor youth to Hemophilia Camps.
GeneReviews: Hemophilia A Your browser does not support HTML frames so you must view hemophilia A in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/hemo-a/
GeneReviews: Hemophilia B Your browser does not support HTML frames so you must view hemophilia B in a slightly less readable form. Please follow this link to do so. http://www.geneclinics.org/profiles/hemo-b/
Matt Klimshuk's Home Page Information on von Willebrand's Disease and links to von Willebrand's and hemophilia sites. http://www.mindspring.com/~mattrk/
Extractions: "Information is Power" Providing Information on von Willebrand's Disease Go To Personal Information What Is Von Willebrand's Disease? Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. What Are the Symptoms?
Bayer Hemophilia Awards Program Bayer hemophilia Award Recipients for 2002/2003, who gathered in Birmingham, UK, during the recent ISTH congress. For more than http://www.bayer-hemophilia-awards.com/index.cfm
Extractions: Application Process Deadlines for 03/04 Awards Review Process Research Priorities ... Browser Requirements Attention: Your browser does not support Javascript, or Javascript support has been disabled. This web site utilizes the latest Internet technology, and in order to experience the full functionality of this web site you will need to ensure that Javascript is enabled. Bayer Global Bayer US General Conditions of Use Bayer Hemophilia Award Recipients for 2002/2003, who gathered in Birmingham, UK, during the recent ISTH congress. For more than 30 years, scientists and researchers at Bayer Biological Products have been dedicated to developing and producing novel treatments that extend and enhance the lives of people with hemophilia. Bayer believes the Hemophilia Awards Program can improve the lives of patients with hemophilia by supporting research and education worldwide.
Canadian Hemophila Society: BC Chapter Information about the organization and its mission, news archive, links and contact details. Also an in depth look at the disease itself including management. http://www.hemophiliabc.ca
Extractions: BC Hemophilia Charity Golf Classic We tee off at Swan-E-Set Bay Resort and Country Club with a 12:30 shotgun start. After a round of golf and lunch, the day wraps up in style with a banquet dinner, speeches and charity auction. Come out as an individual golfer or really get into the game and enter your team of four to support the BC Chapter of the Canadian Hemophilia Society.
Royal Hemophilia Pedigree A Pedigree of hemophilia in the Royal Families of Europe. Selected members of the pedigree I1 = King George III; III-1 and III-2 http://www.people.virginia.edu/~rjh9u/roylhema.html
Copernicus Therapeutics, Inc. Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/
Hemophilia Pedigree A Pedigree of hemophilia. Fortunately, the family shows genetic segregation for a RFLP polymorphism which is tightly linked with the hemophilia gene. http://www.people.virginia.edu/~rjh9u/hemaped1.html
Extractions: The sister (II-1) of the boy with hemophilia (II-2) will be getting married soon and wants to know if she is a carrier for the hemophilia allele. Fortunately, the family shows genetic segregation for a RFLP polymorphism which is tightly linked with the hemophilia gene. The unaffected father (I-1) has the 3 kb polymorphism on his X chromosome (F) and must contribute that to each of his daughters. The mother has both the 3 kb (M2) and the 4 kb (M1) polymorphisms, one on each X chromosome. Since the affected son must have received his X chromosome from his mother and he has the 3 kb polymorphism, the hemophilia allele (indicated by a red area on the fragment M2) must be segregating with the 3 kb (M2) polymorphism carried by the mother. So, the ready to be married daughter received the X with the 4 kb polymorphism from her mother and an X with the 3 kb polymorphism from father. Since she didn't receive the 3 kb polymorphism from her mother, she is not a carrier for hemophilia. On the other hand, the other daughter (II-3) is homozygous for the 3 kb polymorphism receiving one copy from her father and the other copy (with the hemophilia allele linked to it) from her mother and she is a carrier for hemophilia.
THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation hemophilia. About 50% of cases of severe hemophilia A result from a major inversion of a section of the tip of the long arm of the X chromosome. http://www.merck.com/mrkshared/mmanual/section11/chapter131/131c.jsp
HemophiliaVillage.com An information resource on the bleeding disorder hemophilia and its causes, treatment and management. Also includes information on hemophiliaVillage. http://www.hemophilia-village.net/