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Hemophilia:     more books (100)

Textbook of Hemophilia Survivor: One Man's Battle with HIV, Hemophilia, and Hepatitis C by Vaughn Ripley, 2010-09-30 Blood Saga: Hemophilia, AIDS, and the Survival of a Community, Updated Edition With a New Preface by Susan Resnik, 1999-08-25 Hemophilia (Genes and Disease) by Michelle Raabe, 2008-10-30 Comprehensive Management of Hemophilia by Donna C. Boone, 1976-09 Blood Brothers: Ryan, Chris, and Hemophilia by Nancy Shaw, 1990-03 Genetic Disorders Sourcebook: Basic Information About Heritable Diseases and Disorders Such As Down Synd Rome, Pku, Hemophilia, Von Willebrand Disease, ... Tay-Sachs d (Health Reference Series) Hemophilia (Diseases and People) by Edward Willett, 2001-07 Handbook of hemophilia Genetic Disorders Sourcebook: Basic Consumer Health Information About Hereditary Diseases and Disorders, Including Cystic Fibrosis, Down Syndrome, Hemophilia, ... Disease (Health Reference Series) Hemophilia by Jeri Freedman, 2006-07-01 Hemophilia in the Child and Adult by Margaret W. Hilgartner, 1989-06 The Child With a Chronic Medical Problem-Cardiac Disorders, Diabetes, Hemophilia (National Children's Bureau Bibliographies, 3) by Rosemary Dinnage, 1986-12 Diseases and Disorders - Hemophilia by Beverly Britton, 2003-02-07

lists with details

1. Hemophilia Of The Sunshine State
   Are You Newly Diagnosed? Adult Child. hemophilia of the Sunshine State is a hemophilia Service Organization designed to accept the challenge of today's hemophilia community.  
   http://www.hemophilia.com/
   
   Extractions: Adult Child Hemophilia of the Sunshine State is a Hemophilia Service Organization designed to accept the challenge of today's hemophilia community. Our mission is to understand and meet the needs of persons affected by hemophilia, their families, clinicians, and comprehensive treatment centers. Our goal is to offer the hemophilia community the most cost effective and comprehensive range of products and services possible.

2. Hemophilia
   hemophilia. Objectives. By the end of the course the student will be familiar with A. Medical advancements and prospect for the future. B. Management of hemophilia and treatments for the disease. C .  
   http://www.medceu.com/tests/hemophilia.htm
   
   Extractions: C. Safety products for Hemophiliacs Hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease). Low levels or complete absence of a blood protein essential for clotting causes both. Patients with hemophilia A lack the blood clotting protein, factor VIII, and those with hemophilia B lack factor IX. There are about 20,000 hemophilia patients in the United States. Each year, about 400 babies are born with this disorder. Approximately 85% have hemophilia A and the remainder has hemophilia B. The severity of hemophilia is related to the amount of the clotting factor in the blood. About 70% of hemophilia patients have less than one percent of the normal amount and, thus, have severe hemophilia. A small increase in the blood level of the clotting factor, up to five percent of normal, results in mild hemophilia with rare bleeding except after injuries or surgery. Enormous strides made in assuring the safety of the blood supply and in the genetic aspects of hemophilia research allow us now to focus on issues, which will improve the quality of life of the hemophilia patient and, ultimately, develop a cure.

3. National Hemophilia Foundation
   Broadway The Golden Age to benefit hemophilia and Bleeding Disorders. Walk the red carpet at the starstudded premiere of a major  
   http://www.hemophilia.org/
   
   Extractions: Walk the red carpet at the star-studded premiere of a major new motion picture on June 7th in New York to benefit NHF! NHF's Fourth Annual Gala NHF's Fourth Annual Gala, to be held in New York City on June 12, 2004, will honor seven NHF chapters for their impressive history of fifty or more years of service to the bleeding disorders community.

4. World Federation Of Hemophilia
   The World Federation of hemophilias comprehensive web site offers a wealth of information for the global hemophilia community. It includes publications on hemophilia and other clotting World Federation of hemophilia. 1425 René Lévesque Blvd 2004 The April issue of the World Federation of hemophilia's Safety and Supply News features the following updates and  
   http://www.wfh.org/
   
   Extractions: Hemophilia 2004 World Congress, Bangkok, Thailand 17-21 October 2004 Planning your trip to Bangkok? Visit the congress section for on-line registration…travel tips…special airfares…official congress hotels…tours… program information… and more! AVIAN FLU (bird flu) Click here to read the WFH's statement on the Avian flu. WFH 2003 Annual Report A message from the President and the CEO April 17th, 2003, was World Hemophilia Day and the 40th anniversary of the founding of WFH. On this day, the WFH officially launched the Global Alliance for progress (GAP) project. Specific GAP programs were initiated in four countries. (read more…) Living with Haemophilia - Special price! In response to demand, more copies of Living with Haemophilia by Dr. Peter Jones are now available through the World Federation of Hemophilia (5th edition, 2002). Living with Haemophilia is the definitive guide to hemophilia and related disorders. (read more…) WFH Safety and Supply News Volume 3, Number 2 April 2004 The April issue of the World Federation of Hemophilia's Safety and Supply News features the following updates and articles: Creutzfeldt-Jakob disease update: Meat and bone meal problems at US processors New research on how prions cross the species barrier ProMetic announces success with prion reduction device West Nile virus update: North American WNV season begins early Preparing for WNV in Canada Regulatory news: ARC gets another adverse determination letter from the FDA Traceability project WFH launches Global Consultation Mechanism FDA approves oral HIV test CSL wraps up Aventis deal

5. Hemophilia Galaxy
   Support information specifically designed for people with hemophilia, their families, and health care professionals.  
   http://www.hemophiliagalaxy.com

6. Canadian Hemophilia Society / Société Canadienne De L'hémophilie
   Translate this page Dedicated to improving the quality of life for persons with hemophilia and other inherited bleeding  
   http://www.hemophilia.ca/

7. Hemophilia Resource Network
   Clinical care pathways and administrative services to hematologists managing hospitalized persons with hemophilia.  
   http://www.hemophilia.net/
   
   Extractions: The Hemophilia Resource Network (HRN) is a consultation service working with hematologists, hospitals, and insurers. To facilitate optimum inpatient management for persons with bleeding disorders, HRN provides: This site includes case presentations, journal summaries, and links to other sites focusing on hemophilia. While this site is primarily directed toward healthcare professionals, please visit the Hemophilia Awareness page for information of more general interest. Home Products and Services Contact Information For Hematologists ... Hemophilia Awareness Please bear with us as this site is still under construction. Questions or problems regarding this web site should be directed to webmaster@hemophilia.net Last Modified January 17, 1998.

8. MedlinePlus: Hemophilia
   hemophilia Frequently Asked Questions hemophilia ( World Federation of hemophilia) Also available in Spanish. hemophilia ( Mayo Foundation for Medical Education  
   http://www.nlm.nih.gov/medlineplus/hemophilia.html
   
   Extractions: Also available in: Spanish Hemophilia: Facts for Families (World Federation of Hemophilia) Clinical Trials ClinicalTrials.gov: Blood Coagulation Disorders (National Institutes of Health) ClinicalTrials.gov: Hemophilia A (National Institutes of Health) Coping Information for Teachers and Childcare Providers (National Hemophilia Foundation) Tips for Travellers (World Federation of Hemophilia) Diagnosis/Symptoms Symptoms and Diagnosis (Mayo Foundation for Medical Education and Research) Specific Conditions/Aspects Bleeding Disorders: Financial and Insurance Issues (National Hemophilia Foundation) Factor I Deficiency (Afibrinogenemia) (National Hemophilia Foundation) Factor II Deficiency (Prothrombin) (National Hemophilia Foundation) Factor V Deficiency (Mayo Foundation for Medical Education and Research) Factor VII Deficiency (Proconvertin or Stable Factor) (National Hemophilia Foundation)

9. Iranian Hemophilia Society
   Resources and news.  
   http://www.hemophilia.org.ir/

10. HEMOPHILIA
    the Public ». Publications. hemophilia. Background hemophilia is the oldest known hereditary bleeding disorder. There are two types of hemophilia, A and B (Christmas Disease). Both  
    http://www.nhlbi.nih.gov/health/public/blood/other/hemophel.htm
    
    Extractions: HOME SITE INDEX CONTACT US TIPS ... Publications Background Challenges : The most important challenges facing the hemophilia patient, health care provider, and research community today are: Safety of products used for treatment; Management of the disease including inhibitor formation, irreversible joint damage, and life-threatening hemorrhage; and Progress toward a cure. Safety of Products Used for Treatment : In the past 10 to 15 years, advances in screening of blood donors, laboratory testing of donated blood, and techniques to inactivate viruses in blood and blood products have remarkably increased the safety of blood products used to treat hemophilia. Although treatment-related infection with the AIDS virus or most of the hepatitis viruses is a thing of the past, these measures do not completely avoid viruses such as hepatitis A and parvo virus. These infections are rare; nevertheless, they can pose a threat. Researchers are working to improve procedures to destroy these viruses. To ensure absolute safety from transfusion-transmitted viruses and other agents, hemophiliacs may now be treated with factor VIII which has been produced through biotechnology. This product, recombinant factor VIII, is manufactured by a process entirely free of blood products. It, thus, contains only the factor VIII necessary to treat the disease and none of the other components of blood or attendant unwanted agents. Although the cost of this product exceeds that of the blood-derived product, it is clearly the treatment of choice for those, such as newborns, who have not yet been exposed to blood products. A factor IX product has also been produced by such a process and is currently in clinical trials. Once this product is shown to be safe and effective, all hemophiliacs will have available a treatment for bleeding which is totally free of any contaminating agents.

11. The Body: Hemophilia And HIV/AIDS
    A collection of resources related to hemophiliacs and HIV, including topics such as the safety of the blood supply and tained blood products, from The Body.  
    http://www.thebody.com/whatis/hemophilia.html

12. Hemophilia Foundation Of Michigan
    Information about the organization, the services offered, education, research, camp programs and events.  
    http://www.hfmich.org/
    
    Extractions: Supporting Camp Bold Eagle The Hemophilia Foundation of Michigan annual charity golf outing and dinner auction, Swinging for Smiles will take place on Monday, June 21st 2004 at the Eagle Crest Resort ( www.eaglecrestresort.com at 1275 South Huron Street Ypsilanti Michigan Golfer spots are filled, but openings are still available for the dinner and auction.

13. Welcome To Hemophilia Ontario
    This website is generously supported in part by Worldwide Online. hemophilia Ontario welcomes your comments on our site.  
    http://www.hemophilia.on.ca/

14. Hemophilia
    hemophilia resources, support groups, clinics with genetic counselors and geneticists hemophilia. National hemophilia Foundation. 110 Greene St, Room 303 Web site www.hemophilia.org. World  
    http://www.kumc.edu/gec/support/hemophil.html

15. HemophiliaVillage.com
    Wyeth. © 2004, Wyeth. Please read our Privacy Policy and our Terms and Conditions. www.wyeth.com.  
    http://www.hemophiliavillage.com/

16. Hemophilia Foundation Of Illinois
    Supports those affected by hemophilia, related bleeding disorders, and complications of these disorders or their treatment. Activities and events, programs and services offered are featured. Offices in Chicago.  
    http://www.hemophiliaillinois.org/
    
    Extractions: The Hemophilia Foundation of Illinois is an organization dedicated to improving the quality of life for persons affected by hemophilia, related bleeding disorders, and complications of these disorders or their treatment. The Hemophilia Foundation of Illinois provides and promotes Advocacy, Consumer Services, Education and Research. We are a not-for-profit 501(c)(3) organization and members of the National Hemophilia Foundation and Community Health Charities. Hemophilia Foundation seeks an Executive Director. Click here for details 332 S. Michigan Avenue, Suite 1135

17. Bayer Hemophilia Village
    血友病の患者家族や学校の教師向けの疾患解説と情報誌を掲載。メーカー提供サイト。  
    http://www.bayer.co.jp/byl/hemophilia/

18. Medical And Hemophilia References
    Medical And hemophilia References. Hope these references are useful if you know any more links that fit in please email me. Hot Links. COTT. hemophilia Page.  
    http://www.geocities.com/HotSprings/3160/medpage.html

19. International Hemophilia Club
    International hemophilia Club, a platform for people suffering from hemophilia to interact and discuss things related to this bleeding disorder like Hematology  
    http://www.geocities.com/hemophiliaclub/

20. National Hemophilia Foundation | Research
    provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von  
    http://www.hemophilia.org/research/research.htm
    
    Extractions: HOME NHF funds a broad range of research. Funds raised under NHF's It's Time for a Cure campaign are used to provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease. Areas of investigation may include, but are not limited to, gene therapy. Studies may be carried out at the subcellular, cellular, animal, or patient level. NHF has also fostered bleeding disorders research by awarding Judith Graham Pool Postdoctoral Fellowships to physicians and scientists embarking on research careers. The 2002-2003 recipients of NHF's Judith Graham Pool Fellowship and the Career Development Award have been awarded. Click here to read more about the recipients and their projects. The National Hemophilia Foundation Clinical Fellowship Program, funded through the generous support of Baxter Healthcare Corporation, is intended to increase the number of skilled clinicians committed to providing comprehensive care for individuals with bleeding and clotting disorders and to prepare candidates for academic careers. The program is designed for licensed physicians who are seeking hands-on training in bleeding and clotting disorders care and research. Training will take place in qualified hemophilia/thrombophilia treatment centers in the United States.

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