Healthwise Health Information, Topic Floating Harbor syndrome, Back to previouspage. Synonyms Disorder Subdivisions General Discussion Resources http://www.suttercoast.org/health/healthinfo/index.cfm?section=healthinfo&page=a
Health Library Floating Harbor syndrome. Floating Harbor syndrome Support GroupFloatingHarbor syndrome. FOD Family Support Group-Fatty Oxidation Disorder. http://library.ecommunity.com/library/healthguide/selfhelp/_SearchResults.asp?le
The Diagnosis Trail visit, he suggested that we see a geneticist and on the 17 th November Mitchellwas diagnosed with a very rare disorder called Floating Harbor syndrome. http://www.autismtas.org.au/mitchell.htm
Extractions: Hi my name is Lyn Leedham and I live in Tasmania. I am married to Brian and we have Nicholas who is 16 and in his first year of college and is a typical teenager, then we had Michael who was still born and if he was alive he would be 11 years. Then we have Mitchell who has turned 9 of June this year. Mitchell was a hard baby and I knew that something was not right with this child as beautiful as he is, I just knew. I was for ever at the doctor's and as usual nothing wrong, or he might have a virus. This went on for 41/2 years until a new doctor came to our clinic. It just all went into place. He suggested that we see a paediatrician and that Mitchell could have a congenital abnormality. Gee, was we scared. After the paediatrician's visit, he suggested that we see a geneticist and on the 17 th November Mitchell was diagnosed with a very rare disorder called Floating Harbor Syndrome. Our lives would never be the same, but we went on living until Mitchells prep teacher asked if a child can have 2 syndromes. I asked what she meant and she thought that Mitchell might have Asperger's and it would be a good idea to have him assessed for it. I left the classroom to go and see the principal and well he suggested the same thing, so I got on the phone and so our journey began. I rang the Guidance officer and gee, what a shock. She said that she couldnt assess him and with her own admission she knew nothing about Autism. She suggested this other person which I contacted and she performed a CARS on Mitchell and he scored 34 but she wouldnt give him a proper diagnosis because he had Floating Harbor Syndrome.
Health Library - groups. Floating Harbor syndrome. This information Floating Harbor syndromeSupport Group. National network. Founded 1999. Provides mutual support http://myhealth.barnesjewish.org/library/healthguide/selfhelp/topic.asp?hwid=shc
Yonsei Medical Journal Yonsei Med J 2004 April 45(2)334336. Title, First Turkish Patient with FloatingHarbor syndrome with Additional Findings Cryptorchidim and Microcephaly. http://www.eymj.org/abstracts/viewArticle.asp?year=2004&month=4 &page=334
Metropolitan Society For Crippled Children & Adults Floating Harbor syndrome Support Group 160 Guild NE Grand Rapids, MI 49505 Phone(616) 4479175 Fax (616) 447-9175 Website http//www.hometown.aol.com http://www.wheeler.org/pages/national_directory/natl_dir_f.html
Extractions: The federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. The federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
Extractions: FREEPOST NWW6775, BLACKPOOL. FY4 3GA. FABRYS DISEASE FABRYS DISEASE SUPPORT GROUP Suzanne Hill, 10 Broadmeadow Rd, Wyke Regis, Weymouth, DT4 9BS. Tel 01305 774 443. Information/Contact. FACIAL DISFIGUREMENT see under Disfigurement FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic Diseases FAMILIAL HAEMORRHAGIC TELANG-IECTASIA contact Telangiectasia Group FAMILIAL HYPERCHOLESTEROLAE-MIA contact Family Heart Association under Heart FAMILIAL HYPERLIPIDAEMIA contact Family Heart Association under Heart FAMILIAL SPASTIC PARAPLEGIA also known as Strumpell-Lorrain FSP SELF HELP GROUP Mrs Sally Langton, 116 Queens Road, Leicester, LE2 3FL. Tel 0116 270 0450. Collecting details on how the disease affects different families, ie age of onset, degree of disability and passes this information to research organisations.
MUMS List Of Disorders - F - G syndrome) (5)*; Flavoprotein Dehydrogenase Deficiency (subcategory of MADD)(1); Floating Harbor syndrome (3)*; Focal Segmential Glomerulosclerosis http://www.netnet.net/mums/mum_f-g.htm
Extractions: indicates there is a support group which covers that diagnosis. FG Syndrome (17) * FG Syndrome Home Page Fabry Disease (3) * Facial Cleft (4) Facio-Auriculo-Vertebral Spectrum (Goldenhar Syndrome) (43) ** Facio-Scapulo-Humeral Dystrophy, Infantile (FSH) (3) * Facioscapuloperoneal Dystrophy, Infantile (1) Factor IV Deficiency (1) Factor V Deficiency (2) Factor XI Deficiency (1) Factor XIII Deficiency (1) Fahr's Disease (1) Failure To Thrive (212) Fainting Spells, Undiagnosed (3) Familial Adenomatous Polyposis (Gardner Syndrome) (3) Familial Dysautonomia (Riley-Day Syndrome) (8)** www.fdvillage.org/ Familial Erythrophagocytic Lymphohistiocytosis (1) * Familial Exuderitive Vitrio (1) Familial Mediteranean Fever (3) Familial Spastic Diplegia (Paraparesis or Paraplegia) (7) Fecal Retention Syndrome (following imperforate anus surgery) (3) Feet not growing (1) Feingold Syndrome (Oculo-Digit-Esophageal-Duodenum (ODED) (1) Femoral Antiversion (1) Femoral Focal Deficiency, Proximal (PFFD) (10)*
TMJ Popa, D. Metea, M. Puiu, D. Stoicanescu, C. Gug, E. Lazar). THE FLOATINGHARBORSYNDROME WITH HYPOTHYROIDISM AND A DELETION OF 8q24. http://www.tmj.ro/dump_rezumat.html?id_numar=1&id_articol=15
