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Ehlers-danlos Syndrome: more books (33)

Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome by Brad T. Tinkle, 2008-09-30
Joint Hypermobility Handbook-A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Typeand the Hypermobility Syndrome by Brad T Tinkle, 2010-07-12
The Official Patient's Sourcebook on Ehlers-Danlos Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-08
Ehlers-Danlos Syndrome - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-09-28
Ehlers-Danlos syndrome, classical type: case management.(Disease Management): An article from: Dermatology Nursing by Sara E. Whitelaw, 2004-10-01
2009 Conquering Ehlers-Danlos Syndrome (Cutis Elastica) - The Empowered Patient's Complete Reference - Diagnosis, Treatment Options, Prognosis (Two CD-ROM Set) by PM Medical Health News, 2009-04-10
Ehlers-Danlos syndrome
21st Century Ultimate Medical Guide to Ehlers-Danlos Syndrome (Cutis Elastica) - Authoritative, Practical Clinical Information for Physicians and Patients, Treatment Options (Two CD-ROM Set) by PM Medical Health News, 2009-04-10
Ehlers-Danlos Syndrome (Cutis Elastica) Toolkit - Comprehensive Medical Encyclopedia with Treatment Options, Clinical Data, and Practical Information (Two CD-ROM Set) by U.S. Government, 2009-04-10
Name that syndrome: JHS or EDS-HM?(LETTERS)(joint hypermobility syndrome)(Ehlers-Danlos syndrome-hypermobility type)(Letter to the editor): An article from: Internal Medicine News by Gale Reference Team, 2006-08-01
Contortion: Ehlers-Danlos Syndrome, Hypermobility, Whiplash, Joint Dislocation, Frontbend
21st Century Complete Medical Guide to Ehlers-Danlos Syndrome (EDS), Hypermobility, Authoritative Federal Government Clinical Data and Practical Information for Patients and Physicians by PM Medical Health News, 2004-04
Ehlers-Danlos syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Children's Health: Infancy through Adolescence</i> by Judith Sims, Java, M.S. Solis, 2006
Ehlers-Danlos Syndrome - A Medical Dictionary, Bibliographynd Annotated Research Guide to Internet References, 2004 publication by various, 2004-01-01

lists with details

Ehlers Danlos National Foundation
July 15 18 With over 30 speakers, 20 of which are physicians with experience of working with ehlers-danlos syndrome (EDS), this year s conference promises to
http://www.ednf.org/
Ehlers-danlos
This site offers extensive information for patients and doctors, plus links.
http://www.ehlers-danlos.org

Extractions: Ehlers-Danlos Support Group Support for the New Millennium EDS Search Page Welcome to the Ehlers-Danlos Syndrome UK Support Group You are Visitor No. Ehlers-Danlos Syndrome (EDS) is the name given to a group of heritable connective tissue disorders. EDS can affect the skin, ligaments, and internal organs. Message Board View our message board MEDICAL ADVISORY PANEL
Ehlers-Danlos Syndrome - About Ehlers-Danlos Syndrome
A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA.
http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

Extractions: Last updated August 31, 2001 About Ehlers-Danlos syndrome Ehlers-Danlos syndrome (EDS) is a group of hereditary disorders that affects mainly the skin and joints, but other organs as well. EDS results in weakness and/or excessive flexibility of the connective tissues of the body. People with EDS are born without the ability to make certain components of the normal connective tissue of the body. EDS is a relatively rare disorder, occurring in fewer than 1 in 20,000 people. The various forms of EDS are characterized by abnormalities in the chemical structure of the body's connective tissues (for example, skin, muscles, tendons and ligaments). As a result, skin may become fragile and joints unstable.
Ehlers-Danlos Syndrome
a CHORUS notecard document about ehlersdanlos syndrome Disclaimer. Feedback. Search. ehlers-danlos syndrome. autosomal dominant. connective-tissue disorder
http://chorus.rad.mcw.edu/doc/00134.html
Ehlers Danlos Syndrome
Ehlers Danlos Syndrome. ehlersdanlos syndrome Information. Survey for Connective Tissue Disorders. Ehlers-Danlos National Foundation. Ehler Danlos Syndrome MEDSTUDENTS-METABOLIC
http://www.bdid.com/ehlers.htm

Extractions: HOME Arthrochalasia Type (Type VII/VIIA/VIIB) Autosomal Recessive Autosomal Dominant Autosomal Recessive Classic Type (Mitis Type, Type II) Dermatosparaxis Type (Type VIIC) Dysfibronectinemic Type (Type X) Ecchymotic Type (Type IV, Autosomal Dominant, Arterial Type, Ecchymotic Type, Sack-Barabas Type, Vascular Type)
NORD - National Organization For Rare Disorders, Inc.
EDS disease information from the National Organization for Rare Disorders.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers Danlos
Ehlers-Danlos Syndrome
Ehlers Danlos information, national and international support groups, clinics with genetic counselors and geneticists ehlersdanlos syndrome. Ehlers-Danlos National Foundation (EDNF New Zealand ehlers-danlos syndrome Support Group. Maraetuna Farm
http://www.kumc.edu/gec/support/ehlers.html
Ehlers-Danlos Syndrome
ehlersdanlos syndrome. DESCRIPTION A group of inherited disorders of the connective tissue occurring in many types based on clinical, genetic and biochemical evidence, varying in severity from mild
http://www.5mcc.com/Assets/SUMMARY/TP0293.html

Extractions: DESCRIPTION: A group of inherited disorders of the connective tissue occurring in many types based on clinical, genetic and biochemical evidence, varying in severity from mild to lethal. Transmitted as autosomal recessive, autosomal dominant, or X-linked recessive traits. The major manifestations include hyperextensibility of skin and joints, easy bruising, friability of tissues with bleeding and poor wound healing, calcified subcutaneous spheroids and pseudotumors, and cardiovascular, gastrointestinal, orthopedic, and ocular defects. Usual course: chronic; progressive.
Ehlers Danlos National Foundation
Member Login, Username, Password, Find Your Local Group. State =. Visitor 288235 since June 26 2002. What is ehlersdanlos syndrome?
http://www.ednf.org/whatiseds.html

Extractions: Individuals with EDS have a defect in their connective tissue, the tissue which provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Ehlers–Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular(joint) hypermobility, skin extensibility and tissue fragility.There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms.Each type of EDS is a distinct disorder that "runs true"in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS. Clinical manifestations of EDS are most often joint and skin related and may include: Joints : joint hypermobility; loose/unstable joints which are prone to frequent dislocations and/or subluxations; joint pain; hyperextensible joints (they move beyond the joint's normal range); early onset of osteoarthritis.
Booklets2000
Please help us by taking these surveys and explain your experiences with Connective Tissue Disorders like ehlersdanlos syndrome, Marfan's Syndrome, Stickler Involved Syndrome, and Fibromyalgia.
http://www.angelfire.com/il2/booklets2000/index.html

Extractions: var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" WHO HAS IT? Connective Tissue Disorders do not appear to favor one set of genes over another. People from every age, gender, race, religion, and hemisphere are candidates. DOES IT EFFECT YOUR LIFE? Can people with C.T.D. still contribute? You bet they can!
Info - EDS Syndrome
ehlersdanlos syndrome. INTRODUCTION. ehlers-danlos syndrome (EDS) is a heterogeneous group of heritable disorders of connective tissue
http://www.ehlers-danlos.org/Info Sheets/infoEDS.htm

Extractions: Ehlers-Danlos Support Group Support for the New Millennium EDS Search Page EHLERS-DANLOS SYNDROME Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable disorders of connective tissue, characterised by skin extensibility, joint hypermobility and tissue fragility. There are different types of EDS and these were reclassified in 1997 into six major types, they are classified according to their symptoms and signs with each type running true in a family thus an individual with one type will not have a child with a different type. EDS is caused by a defect in the collagen (connective tissue), which is the main building block in the body. Collagen provides strength for the different parts of the body. Some types are firm to give support, others are elastic to allow movement and strength, and still others resemble glue binding protein together. Consequently, if it is defective, it can produce many problems. EDS is known to affect both males and females of all races and ethnic backgrounds. DIAGNOSIS.
MedlinePlus: Ehlers-Danlos Syndrome
ehlersdanlos syndrome. Printer-friendly version, E-mail this page to a friend. Search MEDLINE for recent research articles on ehlers-danlos syndrome.
http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html

Extractions: From the National Institutes of Health Questions and Answers about Heritable Disorders of Connective Tissue (National Institute of Arthritis and Musculoskeletal and Skin Diseases) General/Overviews Ehlers-Danlos Syndrome (EDS) (Arthritis Foundation) What Is Ehlers-Danlos Syndrome? (Ehlers-Danlos National Foundation) Diagnosis/Symptoms Ehlers-Danlos Syndrome: Symptoms and Diagnosis (University of Washington, Dept. of Orthopaedics and Sports Medicine) Disease Management Coping with EDS (University of Washington, Dept. of Orthopaedics and Sports Medicine) Treatment Ehlers-Danlos Syndrome: Management and Treatment (University of Washington, Dept. of Orthopaedics and Sports Medicine)
Michiana Branch Of The Ehlers Danlos National Foundation
Support group for individuals and families from Michigan and Indiana who have ehlersdanlos syndrome (EDS), a genetic connective-tissue disorder. Meetings are held in South Bend, Indiana.
http://michianaednf.org
Ehlers-Danlos Syndrome - Learn More From MedlinePlus
Find the latest news stories, overviews, research and more on ehlersdanlos syndrome from MedlinePlus, the National Library of Medicine's consumer health site. Medicine's consumer health site. ehlers-danlos syndrome, Hypermobility Syndrome, Abnormalities, Genetic Diseases, Inborn
http://rdre1.inktomi.com/click?u=http://www.nlm.nih.gov/medlineplus/ehlersdanlos
MedlinePlus Medical Encyclopedia: Ehlers-Danlos Syndrome
ehlersdanlos syndrome. There is no specific cure for ehlers-danlos syndrome, so individual problems and symptoms must be evaluated and cared for appropriately.
http://www.nlm.nih.gov/medlineplus/ency/article/001468.htm

Extractions: @import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Contents of this page: Definition Ehlers-Danos syndrome is a group of inherited disorders characterized by excessive looseness (laxity) of the joints, hyperelastic skin that is fragile and bruises easily, and/or easily damaged blood vessels. The syndrome sometimes involves rupture of internal organs. Causes, incidence, and risk factors Ehlers-Danlos syndrome (EDS) can occur in different forms involving vessels, skin, and/or joints with a variety of different genetic defects as their cause. Different forms of EDS have different modes of inheritance. Family history is a risk factor in some cases. Symptoms Signs and tests Examination by the health care provider may show: Excess joint laxity and joint hypermobility Soft, thin, or hyperextensible skin
Ehlers-Danlos Syndrome - Arthritis: Health And Medical Information About Arthrit
MedicineNet Home Diseases Conditions AZ List Arthritis Home ehlersdanlos syndrome. Advanced Search. ehlers-danlos syndrome.
http://www.medicinenet.com/Ehlers-Danlos_Syndrome/article.htm

Extractions: Printer-Friendly Format Add to Favorites Email to a Friend ... Next page What is Ehlers-Danlos syndrome? Ehlers-Danlos syndromes is a group of disorders which share common features including easy bruising, joint hypermobility (loose joints), skin that stretches easily (skin hyperelasticity or laxity), and weakness of tissues. The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin and loose joints is often a result of abnormal genes that produce abnormal proteins that form an inherited frailty of collagen (the normal protein "glue" of our tissues). In 2001, researchers discovered a new form of Ehlers-Danlos syndrome that is caused by an inherited abnormality in a protein other than collagen that also normally plays a role in binding together the cells of our tissues (including the skin, tendons, muscle, and blood vessels). Abnormalities in this protein, called tenascin, also lead to a form of Ehlers-Danlos syndrome. Researchers suspect that tenascin could play a role in regulating the normal distribution of collagen in the connective tissues of the body. The diagnosis of Ehlers-Danlos syndromes is based upon the clinical findings of the patient and the family history. For some types of Ehlers-Danlos syndrome a skin biopsy to determine the chemical makeup of the connective tissue can help to suggest the diagnosis.
Hypermobility & Fibromyalgia Support Site
Information about joint hypermobility (ehlersdanlos syndrome), fibromyalgia and chronic fatigue syndrome.
http://anaiis.tripod.com/hmedfm/index.html

Extractions: This site is dedicated to providing information and support for people with both joint hypermobility (including Ehlers-Danlos and Benign Joint Hypermobility Syndromes, or any form of Hypermobility Syndrome) and Fibromyalgia or Chronic Fatigue Syndrome (aka Chronic Fatigue Immune Dysfunction Syndrome, or Myalgic Encephalopathy in the U.K. and Australia). It is the first of its kind and provides information on these conditions, and also links to many sites with much more detailed information. It's important to note that this is an amateur site, not an official local, national or international support or information group. Hopefully, however, small individual endeavours like this will pave the way for such official groups to emerge. In addition, the Hypermobility & Fibromyalgia Group (hm-ed-fm) is the only discussion/support group online for people with both of these conditions. All are welcome! Click on the "Support: Talk to Others" link in the navigation bar on the left to learn more about the mailing list, as well as the vibrant Webforum and Chat Room. Join The List!
EMedicine - Ehlers-Danlos Syndrome : Article By G Bradley Schaefer, MD
ehlersdanlos syndrome. Last Updated March 13, 2002, Table 1. Clinical Forms of ehlers-danlos syndrome. Type, Form. Distinguishing Features.
http://www.emedicine.com/ped/topic654.htm

Extractions: (advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Pediatrics Genetics And Metabolic Disease Last Updated: March 13, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, connective tissue disorders, joint laxity, articular hypermobility, skin laxity, hyperextensible skin, abnormal wound healing, hypermobility syndrome, collagen abnormalities, lysyl hydroxylase deficiency, periodontitis, fibronectin, platelet aggregation defect, acrogeria, tissue fragility, vascular rupture, colonic perforation, excessive bruising, easy bruising, prominent venous plexus, petechiae, retinal detachment, dystrophic scarring AUTHOR INFORMATION Section 1 of 10 Author Information Introduction Clinical Differentials ... Bibliography
Arlenebrandeis.com
An expression of the loss of family members to genetic anomalies including ehlersdanlos syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each.
http://www.arlenebrandeis.com
EMedicine - Ehlers-Danlos Syndrome : Article By Enrico Ceccolini, MD
ehlersdanlos syndrome. Last Updated April 9, 2002, Caption Picture 1. Patient with ehlers-danlos syndrome. Note the abnormal ability to elevate the right toe.
http://www.emedicine.com/derm/topic696.htm

Extractions: (advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Dermatology Pediatric Diseases Last Updated: April 9, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: EDS, tenascin-X deficiency syndrome, lysyl hydroxylase deficiency syndrome, inherited connective tissue disorders AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Enrico Ceccolini, MD , Consulting Staff, Department of Dermatology, University of Bologna, Italy Coauthor(s): Robert A Schwartz, MD, MPH , Professor and Head, Dermatology, Professor of Pathology, Pediatrics, Medicine, and Preventive Medicine and Community Health, UMDNJ-New Jersey Medical School Enrico Ceccolini, MD, is a member of the following medical societies: American Academy of Dermatology Editor(s): Takuo Tsuji, MD , Chairman, Professor, Department of Dermatology, Nagoya City University, Japan; David F Butler, MD

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