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Ectodermal Dysplasia:     more books (15)

Freire-Maia Ectodermal Dysplasias- A Clinical an D Genetic Study by N FREIRE-MAIA, 1985-02-06 Ectrodactyly-ectodermal dysplasia-cleft syndrome Ectrodactyly-ectodermal dysplasia-clefting syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Kathleen, MS, CGC Fergus, 2005 Children with ectodermal dysplasias.: An article from: Journal of School Health by Virginia L. Maturen, 1998-05-01 Hypohidrotic Ectodermal Dysplasia - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers by Philip M. Parker, 2007-07-17 ECTRODACTYLY-ECTODERMAL DYSPLASIA-CLEFTING SYNDROME IN AN INFANT WITH A VENTRICULAR SEPTAL DEFECT.: An article from: Georgia Journal of Science by Byron A. Brown, Joshua E. Lane, et all 2000-09-22 Ectodermal dysplasia: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Jennifer, MS, CGC Roggenbuck, 2005 Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome (EEC) Medical Guide by Qontro Medical Guides, 2008-07-09 Oligodontia and ectodermal dysplasia - on signs, syptoms, genetics, and outcomes of dental treatment by Birgitta Bergendal, 2010-05 Recent advances in ectodermal dysplasias (Birth defects, original article series) Recent Advances in Ectodermal Dysplasias (Birth Defects Original Article Series) by Carlos F. Salinas, John M. Opitz, 1988-09 Charley's story by Mary Kaye Richter, 2000 Adams-Oliver syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Amy, MS, CGC Vance, 2005 Goltz syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Paul Johnson, 2005

lists with details

1. Welcome
   The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes. Request Information  
   http://www.nfed.org/

2. Ectodermal Dysplasia Society Home Page
   ectodermal dysplasia Society. Welcome to our website. ectodermal dysplasia Society Frames Version. ectodermal dysplasia Society - Text Only Version.  
   http://www.ectodermaldysplasia.org/
   
   Extractions: Ectodermal Dysplasia Society Welcome to our website This website has been developed by the Ectodermal Dysplasia Society (formerly known as the British Ectodermal Dysplasia Support Group) to help people with Ectodermal Dysplasia (ED). ED is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair (tends to be very thin and sparse), teeth (absent, pointed or conical), nails, sweat glands (little or no sweating), cranial-facial structure, the eyes, digits and other parts of the body. Each combination of features represents another type of ED Syndrome and has a specific name. You may have found our site because you have some of these symptoms; if so, enter our site below to find out more. Please click on one of the two links below to enter our site. To aid navigation and to view graphics, we recommend using the frames version. However, if you are using technology such as synthesised speech or Braille output software please use the text only version. You may also need to use the text only version if your browser does not support cascading style sheets. Ectodermal Dysplasia Society - Frames Version Ectodermal Dysplasia Society - Text Only Version

3. The Ectodermal Dysplasia Mailing List
   Includes instructions on joining the list, FAQs and links to further resources.  
   http://hometown.aol.com/charliein/ed/home.html
   
   Extractions: Mailing List Web Page Welcome to the homepage of the ED Mailing List Web Page . Here we'll provide a source of information that has been posted on the ED Mailing List as well as a list of useful links to other resources. It is independently operated and supported by people with ED (or related conditions), or friends/family of those who know people with it. What we offer: Please keep this in mind: The ED Mailing List and this web site are contributed to and maintained by individuals who have been touched by ED. Many of the postings deal with the ways these individuals have handled their ED. You are welcome to contribute to the discussion and take whatever information you find useful. Please remember : this List and web site are not affiliated with any medical group, hospital or physician. Any advice or suggestions you gain from these postiings are to be used at your own risk.

4. ECTODERMAL DYSPLASIA: Contact A Family - For Families With Disabled Children: In
   Information about the ectodermal dysplasia disorders, the inheritance patterns and prenatal diagnosing.  
   http://www.cafamily.org.uk/Direct/e14.html
   
   Extractions: helpful? yes no Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. Before a developing fetus is large enough to be seen, a layer of cells covers the outside of the body. This surface layer of cells is called the ectoderm, and from it develop the skin, hair, nails, teeth, nerve cells, sweat glands, parts of the eye and ear, and parts of some other organs. Each of the listed parts of the body, then, is called an ectodermal structure. There are many disorders that involve one of these structures only and are not properly called ED. Any combination of defects involving more than one of these structures, however, should be called an Ectodermal Dysplasia syndrome; the list of such combinations is extensive. For example, one person may have missing teeth and defective nails, while another may have missing teeth, inability to sweat and sparse hair. Still another may have sparse hair and a hearing loss. Each combination of features represents another type of ED syndrome and has a specific name.

5. FAQs / General Description
   About the ectodermal dysplasia Syndromes. Frequently Asked Questions.  
   http://www.nfed.org/FAQ.htm
   
   Extractions: The ectodermal dysplasia (ED) syndromes are a group of about 150 heritable disorders that affect the ectoderm, the outer layer of tissue in a developing baby. ED syndromes affect both males and females of all races and ethnic groups. The ectoderm contributes to the formation of many parts of the body, including the skin, sweat glands, hair, teeth, and nails. During embryonic development, these and/or other parts of the baby’s body, including the lens of the eye, parts of the inner ear, the fingers and toes, or nerves, among others, may fail to develop normally. When a child has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the child is identified as being affected by an ED “syndrome.”

6. Experimental Ophthalmology Unit, University Of Liverpool, UK
   Research and teaching centre for the control and treatment of eye disorders and our interests include ARMD, corneal scarring, diabetes, ectodermal dysplasia, genetics, glaucoma, melanoma and PVR.  
   http://www.liv.ac.uk/ophthalmology/
   
   Extractions: Experimental Ophthalmology Unit * Home Page Feedback: ophthalmology@liv.ac.uk Unit Leader - Professor Ian Grierson Recent Publications Contact Us/Personnel List Welcome to the Experimental Ophthalmology Unit, a clinical, research and teaching centre for the control and treatment of eye disorders. Our interests include AMD/ARMD, corneal scarring, diabetes, ectodermal dysplasia, genetics, glaucoma, melanoma and PVR. Our Unit is comprised of both the Academic Unit of Ophthalmology and the clinical St Paul's Eye Unit. The Academic Unit is located in the Department of Medicine which is part of the Faculty of Medicine at the University of Liverpool RLBUHT ). Our Unit performs basic science and clinical research into the control of eye disease and ocular tissue repair and regeneration. We are also the focus of a wide variety of teaching activities at levels ranging from undergraduate to postgraduate, medical and non-medical. The Academic Unit currently employs over 20 research scientists committed to the development of novel techniques that will improve the understanding and treatment of ocular disorders. Ongoing projects within the Experimental Ophthalmology Unit include analysis of the:

7. EDS: What Is Ectodermal Dysplasia (whatised.htm)
   What is ectodermal dysplasia (ED)? ectodermal dysplasia (ED) is not a single disorder, but a group of closely related conditions.  
   http://www.ectodermaldysplasia.org/whatised.htm
   
   Extractions: Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are many disorders that involve one of these structures only and are not properly called ED. Any combination of defects involving more than one of these structures, however, should be called an Ectodermal Dysplasia Syndrome; the list of such combinations is extensive. For example, one person may have missing teeth and defective nails, while another may have missing teeth, inability to sweat, and sparse hair. Still another may have sparse hair and a hearing loss. Each combination of features represents another type of ED Syndrome and has a specific name. Picture of child with ED

8. MedlinePlus Medical Encyclopedia: Ectodermal Dysplasia
   ectodermal dysplasia. Alternative names Return to top. Anhidrotic ectodermal dysplasia Definition Return to top. ectodermal dysplasia  
   http://www.nlm.nih.gov/medlineplus/ency/article/001469.htm
   
   Extractions: @import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Contents of this page: Skin layers Alternative names Return to top Anhidrotic ectodermal dysplasia Definition Return to top Ectodermal dysplasia is a hereditary condition characterized by abnormal development of the skin and associated structures (hair, nails and teeth, and sweat glands). Causes, incidence, and risk factors Return to top There are many different types of ectodermal dysplasia of which X-linked anhidrotic ectodermal dysplasia is the most common. Because the disease is X-linked, males are affected, although females in some cases may also display a range of symptoms. An autosomal dominant form exists in which females and males are equally affected and is symptomatically almost identical to the X-linked form of the disease. Multiple genes have been discovered to cause ectodermal dysplasias.

9. Medical Encyclopedia: Ectodermal Dysplasia (Print Version)
   Medical Encyclopedia ectodermal dysplasia. URL of this page http//www.nlm.nih.gov/medlineplus/ency/article/001469.htm. Anhidrotic ectodermal dysplasia  
   http://www.nlm.nih.gov/medlineplus/print/ency/article/001469.htm
   
   Extractions: To close this window, click on the "x" in the upper right hand corner of the window. URL of this page: http://www.nlm.nih.gov/medlineplus/ency/article/001469.htm Alternative names Anhidrotic ectodermal dysplasia Definition Ectodermal dysplasia is a hereditary condition characterized by abnormal development of the skin and associated structures (hair, nails and teeth, and sweat glands). Causes, incidence, and risk factors There are many different types of ectodermal dysplasia of which X-linked anhidrotic ectodermal dysplasia is the most common. Because the disease is X-linked, males are affected, although females in some cases may also display a range of symptoms. An autosomal dominant form exists in which females and males are equally affected and is symptomatically almost identical to the X-linked form of the disease. Multiple genes have been discovered to cause ectodermal dysplasias. Ectodermal dysplasia may affect, to varying degrees, all of the structures associated with the development of the skin. Absent or decreased sweating in people with anhidrotic ectodermal dysplasia is caused by absence of sweat glands. Affected children have difficulty controlling fevers and mild illness may produce extremely high fevers, because of absent temperature regulation by sweating. Affected adults are unable to tolerate a warm environment and require special measures to maintain a normal body temperature.

10. THE ANDY FUND
    Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.  
    http://www.andy.org.mx
    
    Extractions: T h e A N D Y F u n d a t C h i l d r e n ' s H o s p i t a l T r u s t SEARCH The Web andy.org.mx Versión en Español. English Version. "Investigadores aprendieron del DNA de Andy en Octubre 2000 que la mutación en el gen NEMO ocasiona deficiencia inmunológica primaria y displasia ectodérmica, dijo el Dr. Jordan Orange"

11. Anhydrotic Ectodermal Dysplasia
    Anhydrotic ectodermal dysplasia Oligodontia with conical teeth. the National Foundation for ectodermal dysplasia. Return to Image Index page.  
    http://tray.dermatology.uiowa.edu/AnEcDy01.htm

12. Ectodermal Dysplasia
    Image that s a link to Genetics Education Center Support Page ectodermal dysplasia. National dysplasia? ectodermal dysplasia maililng list.  
    http://www.kumc.edu/gec/support/ectoderm.html

13. Dermatlas: Online Dermatology Image Library Dermatology Image,ectodermal Dysplas
    Dermatlas Dermatology Images trichothiodystrophy,ectodermal dysplasia,dermatology image,Tay syndrome images. Match ALL words Match ANY word. Dermatology Images,  
    http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=-1792936279

14. Dermatlas: Online Dermatology Image Library Dermatology Image,ectodermal Dysplas
    dystrophy,keratoderma,ectodermal dysplasia,ectodermal dysplasia,ectodermal dysplasia,ectodermal dysplasia,ectodermal dysplasia,ectodermal dysplasia,dermatology  
    http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=527679626

15. Ectodermal Dysplasia - Information / Diagnosis / Treatment / Prevention
    home genetic disorders ectodermal dysplasia ectodermal dysplasia. NORD ectodermal dysplasias Offers synonyms, a general discussion and resources.  
    http://www.healthcyclopedia.com/genetic-disorders/ectodermal-dysplasia.html
    
    Extractions: Web Directory: Ectodermal Dysplasia Society Information about the organization as well as the ED condition. Includes links, news articles and contact details. National Foundation for Ectodermal Dysplasia ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.

16. AllRefer Health - Ectodermal Dysplasia (Anhidrotic Ectodermal Dysplasia)
    ectodermal dysplasia (Anhidrotic ectodermal dysplasia) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors  
    http://health.allrefer.com/health/ectodermal-dysplasia-info.html
    
    Extractions: AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia Skin Layers There are many different types of ectodermal dysplasia of which X-linked anhidrotic ectodermal dysplasia is the most common. Because the disease is X-linked, males are affected, although females in some cases may also display a range of symptoms. An autosomal dominant form exists in which females and males are equally affected and is symptomatically almost identical to the X-linked form of the disease. Multiple genes have been discovered to cause ectodermal dysplasias.

17. AllRefer Health - Ectodermal Dysplasia Prevention (Anhidrotic Ectodermal Dysplas
    ectodermal dysplasia (Anhidrotic ectodermal dysplasia) information center covers Prevention. ectodermal dysplasia. ectodermal dysplasia.  
    http://health.allrefer.com/health/ectodermal-dysplasia-prevention.html
    
    Extractions: AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia

18. Ectodermal Dysplasia
    What is ectodermal dysplasia? Each combination is considered a distinct type of ectodermal dysplasia. How is ectodermal dysplasia treated?  
    http://dentistry.ucsf.edu/cranio/ectodermal.htm
    
    Extractions: What is ectodermal dysplasia? How is ectodermal dysplasia treated? Because there are so many presentations of this disorder, several times a year a special ectodermal dysplasia clinic is arranged at the Center for Craniofacial Anomalies at UCSF. This clinic includes our regular team of specialists plus a dermatologist and a prosthodontist. The special needs of the patient are taken into consideration as a treatment plan is developed which may include recommendations for dentures or implants, special treatment for hair, nails and skin, or recommendations for lifestyle adjustments to maximize comfort and health. A child with ectodermal dysplasia may encounter social and emotional challenges unique to this condition. Support organizations and resources are available for children and their families (see

19. Hypohidrotic Ectodermal Dysplasia / Family Village Library
    Hypohidrotic ectodermal dysplasia. Hypohidrotic ectodermal dysplasia with Hypothyroidism and Ciliary Dyskinesia From Online Mendelian Inheritance of Man (OMIM).  
    http://www.familyvillage.wisc.edu/lib_hypoh.htm
    
    Extractions: Website: http://www.hedfoundation.org/ The mission of the Sarah Moody Foundation is to improve the quality of life for children suffering from Sarah Moody Foundation and related disorders that affect the body's ability to cool itself. One of the most important ways in which the Sarah Moody Foundation enhances the quality of life is through the distribution of personal cooling systems, most commonly the KoolVest ®. Ectodermaldysplasia

20. Ectodermal Dysplasia
    Library E F. ectodermal dysplasia. ectodermal dysplasia Support for people and families affected by the various forms of ectodermal dysplasia.  
    http://www.familyvillage.wisc.edu/lib_ecto.htm
    
    Extractions: Web: http://www.nfed.org/ The National Foundation for Ectodermal Dysplasias (NFED) provides support and information to those affected by ED, assists the medical and dental profession with useful information on early diagnosis and treatment options, identifies medical facilities with multi-disciplinary treatment teams for ED, maintains a data base of health care professionals with expertise on this condition and conducts educational meetings for families and health care providers. NFED will also provide financial assistance to qualified families for medically necessary care, such as dental care, wigs and air conditioning. NFED has local chapters and prints a directory of members each year which identifies age, type of Ectodermal Dysplasia, and geographical location. The Foundation publishes a newsletter

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