BPES Family Network The BPEI (BPES) Family Network encourages people to get in touch with each other, share information and ask questions. Explanation of this rare eye disorder. http://freespace.virgin.net/andy.bowles/
Tourette Syndrome Plus - Home Page Information and resources on TS, OCD, ADD, and other neurobehavioral disorders. Special sections on advocacy and parent education, conferences, glossaries, medications, camps, and media coverage of TS. http://www.tourettesyndrome.net/
Extractions: Site Search Conditions Education Site Map ... Advocacy WELCOME TO TOURETTE SYNDROME "PLUS" Tourette's Syndrome (also known as Tourette Syndrome or Tourette's Disorder) is a fairly common childhood-onset condition that may be associated with features of many other conditions. On this site, patients, their families, teachers, and clinicians can learn about Tourette's Syndrome, Attention Deficit Hyperactivity Disorder, Obsessive-Compulsive Disorder, Executive Dysfunction, juvenile Bipolar Disorder, autism spectrum disorders, 'rage attacks,' and much more. Major sections on behavioral issues and classroom tips for parents and teachers are just part of what you'll find here! INFORMATION SECTIONS Conditions Articles, resources, and poetry pertaining to Tourette's Syndrome, plus Obsessive-Compulsive Disorder, Attention Deficit Hyperactivity Disorder, Executive Dysfunction, Asperger's Disorder, depression, Bipolar Disorder, sleep disorders, "rage attacks" or "storms," infection-triggered OCD or tics ("PANDAS"), sensory integration, and more.
Centers For Disease Control Severe Acute Respiratory Syndrome Centers for Disease Control Severe Acute Respiratory syndrome Visitors to this Web site from the Centers for Disease Control (CDC) will find a current and reliable source of information about http://rdre1.inktomi.com/click?u=http://www.cdc.gov/ncidod/sars/&y=02343834F
CFS-Information International | Index News and information on chronic fatigue syndrome and fibromyalgia. Information about research, treatment, causes, exercise, ampligen and psychiatry as well as many other topics. http://www.cfids-cab.org/cfs-inform/
Extractions: Related links of interest: Health:Reproductive Health:Infertility Health:Women's Health:Support Groups DES Action USA - Non-profit organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. Publishes on various aspects of DES exposure and provide a link between DES-exposed people, researchers, and the medical community. DES Cancer Network - Organization that addresses the special needs of women who have clear cell adenocarcinoma of the vagina and/or cervix, a rare cancer linked to exposure to diethylstilbestrol before birth. DES Daughters Mailing List and Online Support Group - Email online support group for daughters exposed to diethylstilbestrol (DES), which can result in infertility, reproductive abnormalities and other problems. Password-protected bulletin board, live chat and virtual seminars. DES Stories - DES Stories is the first book of photos and stories of DES daughters, mothers, and sons with DES history, research, and resources. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what its like to be DES-exposed. Health.nsw.gov - DES
Extractions: This a salute to my Youngest Son who is a gift to me!! Paul Was born on 15 Dec 1974 at Charleston Naval Hospital In Charleston S.C. It was our Daughters 3rd Birthday.His birth was uneventful and was pretty quick. I thought I heard him cry as I went back to the fathers waiting room. Fathers were not allow in delivery room those days. With in a few weeks Paul's Dad was back at sea aboard a submarine and his mother was at home with three small children. The patrols were long for both of us so I decided that I was not going to put us through that anymore. I went to shore duty without any intention of re enlisting even though I had over 12 years of service. During this time Paul's progress was slow everything he did was behind what his brother and sister had done. The Navy doctors just said that he was slow even though he couldn't hold his head up at four months. We left the Navy and moved to Richmond Virginia where Paul was taken to The Medical College of Virginia to see a Doctor name David. It was only a few minutes in his office and he made the diagnosis of Cereberal Palsy. That is really where his long journey began. Early Child Hood He started at the Cereberal Palsy Center in February of 1977 and could say simple words like dog and ball. He could also crawl and walk around furniture. He was able to walk to his class room in the morning with a walker.
The Fetal Treatment Program Home Page Offers fetal surgery and other treatment for twinto-twin transfusion syndrome, gastroschisis, omphalocele, and other fetal defects, at Women and Infants' Hospital in Providence, Rhode Island. A joint venture of several regional medical centers. Includes information and links about conditions treated. http://www.fetal-treatment.org/
Triplo-X Syndrome : Information and support for parents with daughters having 47,XXX, triple X or Trisomy X syndrome. Site contains scientific literature and contacts. http://www.triplo-x.org/
Extractions: For more info Please visit: http://www.genetic.org/ks/support/04_conf_sched.htm WELCOME Parenthood represents one of the most amazing changes that occurs in our lives. Having a child with triplo-X or 47, XXX does not detract from this monumental change. This site is a place where you and other parents can learn about what triplo-X means for your child and you. It is my hope that this site will encourage you to forge a strong relationship with your child and to help her grow up happy and healthy. For those of you faced with the possibility of having a child with triplo-X, this site can help you make a more informed choice. ANNOUNCEMENTS:
HHUGS Home Page Support resources for children and families dealing with this rare endocrine tumor. Information about the function of the hypothalamus; this syndrome and its symptoms, including gelastic seizures; treatments; and personal stories. Includes MRI images. http://www.geocities.com/hhugs2001/
PCOSupport The Polycystic Ovarian syndrome Association http://www.pcosupport.org/
Extractions: Rye Brook, NY 10573 CONFERENCE KICK- OFF CONTESTS This year PCOSA truly wants to make you a part of our conference. To do so, we are offering one full conference pass to two individuals. Please note passes are for conference sessions and gala dinner only, individuals will be responsible for all personal travel expenses and incidentals incurred.
Dr Staub - Orthopaedic Surgery Covers disorders of Tendinitis, Rotator Cuff Tear, Impingement syndrome, dislocation and shoulder separation. http://www.cory.com/drstaub/shoulder.htm
Shaken Baby Syndrome Offering information on the tragic act of responding to frustration and anger on a small child or infant. http://www.montcopa.org/mcocy/shaken baby.htm
Extractions: SHAKEN BABY SYNDROME Why would someone shake a child? Frustration and stress are the reasons some one shakes a child. A crying child is reported to be the number one reason why people have shaken a child. What is it? Shaken Baby Syndrome is the term used to describe the injuries babies and very young children sustain from being violently shaken. Children who sustain life threatening injuries from this syndrome are held by the arms and shaken back and forth in a quick, jerking motion. Effects of Shaken Baby Syndrome Children can suffer the following injuries: Symptoms of Shaken Baby Syndrome Back or Home
RSRF - Rett Syndrome Research Foundation Promotes biomedical research for the treatment of Rett syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett syndrome gene MECP2 recently discovered. http://www.rsrf.org
Extractions: The Rett Syndrome Research Foundation (RSRF) was created in the fall of 1999 by six parents of children with Rett Syndrome. Our mandate is clear: to find treatments and a cure for Rett Syndrome, a devastating neurological disorder that strikes primarily little girls, depriving them of communication and motor skills and rendering them completely dependent on others for every basic need. The recent discovery that mutations in the gene create Rett Syndrome's tragic cascade of symptoms has galvanized research in this field. Functioning as an epigenetic gene, is thought to silence other genes through the process of DNA methylation. The failure of this mechanism to turn genes off appropriately may have implications for a wide range of disorders. Researchers from fields as disparate as cancer and schizophrenia have become interested in the exploration of Historically Rett Syndrome (RTT) has been considered rare. However, as RTT research yields more information about the role of in neuronal maintenance and synaptic organization and plasticity, the incidence of related disorders may significantly redefine the frequency and scope of these mutations.
Extractions: page to do a search on that word. Used with permission from the Fathers' Rights Newsline Ira Daniel Turket, PhD With the increasing commonality of divorce involving children, a pattern of abnormal behavior has emerged that has received little attention. The present paper defines the Divorce Related Malicious Mother Syndrome. Specific nosologic criteria are provided with abundant clinical examples. Given the lack of scientific data available on the disorder, issues of classification, etiology, treatment, and prevention appear ripe for investigation. INTRODUCTION A divorced man gains custody of his children and his ex-wife burns down his home. A woman in a custody battle buys a cat for her offspring because her divorcing husband is highly allergic to cats. A mother forces her children to sleep in a car to "prove" their father has bankrupted them. The actions illustrate a pattern of abnormal behavior that has emerged as the divorce rate involving children has grown. Today, half of all marriages will end in divorce (Beal and Hochman, 1991). The number of children involved in divorce has grown dramatically (e.g., Hetherington and Arastah, 1988) as well. While the majority of such cases are "settled" from a legal perspective, outside the courtroom the battle continues.
Extractions: Liens Pour mettre en relation les parents d'enfants présentant le syndrome de Pierre Robin. Parce qu'il nous a paru important de construire un lieu d'échanges de nos expériences. la page internationale The international page la página ... nternacional Le 21 mars 2004 à Tatinghem , la troupe de théâtre TALC a donné une nouvelle fois une représentation au profit de l'association Tremplin. " Le saut du lit ", une pièce pleine de bonne humeur ... pour la bonne cause !