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Cystic Fibrosis: more books (100)

With Every Breath: stories by and about people living with cystic fibrosis by Katherine Russell and Margot Russell, 2006-10-25
Living on Borrowed Time: Life with Cystic Fibrosis by Jimmy Pitts, 2007-01-19
Coughing the Distance - from Paris to Istanbul with Cystic Fibrosis by J.J.Walter van Praag, 2009-10-01
A Way of Life: Cystic Fibrosis Nutrition Handbook and Cookbook (3rd Edition) by MS, RD, Lisa Davis, MS, RD, Erin Tarter, MS, RD, Toni Law, MS, RD Mary Marcus, 2008-01-01
Abc Transporters: Atp-Binding Cassette Transporter, Cystic Fibrosis Transmembrane Conductance Regulator, P-Glycoprotein, Abca4, Abcd3, Abcd1
Living With Cystic Fibrosis - A Cystic Fibrosis Guide! by John Picard, 2010-08-12
21st Century Ultimate Medical Guide to Cystic Fibrosis - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-04-10
Cystic Fibrosis in the 20th Century: People, Events, and Progress
Gale Encyclopedia of Nursing and Allied Health: Cystic fibrosis by Jr., M.D, Dr.P.H. L. Fleming Fallon, 2002-01-01
Cystic Fibrosis: Medical Care by David Michael Orenstein, Robert C. Stern, et all 2000-04-30
David's Promise: A Young Man's Struggle with Cystic Fibrosis by Kathy Sykes, 2006-04-06
Research on Pathogenesis of Cystic Fibrosis of the Pancreas (Mucoviscidosis)
Recipes for the Specific Carbohydrate Diet: The Grain-Free, Lactose-Free, Sugar-Free Solution to IBD, Celiac Disease, Autism, Cystic Fibrosis, and Oth [RECIPES FOR THE SPECIF]
Meropenem combo better for CF exacerbations: but advantages are short term.(Infectious Diseases)(cystic fibrosis): An article from: Pediatric News by Bruce Jancin, 2003-12-01

lists with details

Richard Collyers End To End Page
A sponsored cycle ride, by three Norfolk police officers from Lands End to John o'Groats, in June 2000 to raise money for the cystic fibrosis Trust.
http://www.collyer.clara.net/
Cystic Fibrosis Foundation ... Adding Tomorrows Every Day
Works to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Site includes local events, volunteer opportunities, contact information, and links to the national foundation.
http://www.cff.org/alabama.htm

Extractions: The Cystic Fibrosis Foundation is always looking for sponsors! It is through the generosity of our sponsors and volunteers that we are able to wage our battle against cystic fibrosis. For each day we work, and for every dollor we raise, we are adding tomorrows every day for people with cystic fibrosis.
Department Of Paediatrics Cystic Fibrosis
cystic fibrosis. Table of Contents. Introduction. cystic fibrosis occurs in about 1 in 2,500 births in Victoria. All patients are seen
http://www.med.monash.edu.au/paediatrics/resources/cf.html

Extractions: Monash M N H S Paediatrics Resources DEPARTMENT OF PAEDIATRICS Home About Us Programs Resources ... 5th Year Course Material Table of Contents Cystic fibrosis occurs in about 1 in 2,500 births in Victoria. All patients are seen at the Royal Children's Hospital at the time of diagnosis, which is usually in the first year of life. Some patients living in the south-east of the city or eastern Victoria are cared for jointly by the department of Thoracic Medicine at the RCH and the Department of Paediatric Respiratory Medicine, MMC. The prognosis has improved very considerably over the last 20 years and most patients now reach adulthood. In the ward the resident medical staff will see patients who have acute flare-ups of chest infection and those with severe lung disease. The 50% of patients who have little chest trouble are rarely admitted to the ward, so staff are likely to have a biased view of the condition. The development of a very positive attitude by the parents from the time of diagnosis seems to be very important in the prognosis. The handling of the family at the time of diagnosis is carefully planned. If they are given a gloomy outlook, this can be hard to change.
Cystic Fibrosis International Medical A-Z Directory
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
http://www.cellscience.com/CFmain.html

Extractions: rating for web sites is intended to serve only as an indication of the design quality, clarity, presentation and style of the URL, and is in no way intended as a judgement of the quality of services or information provided. To have a site listed is itself an indication that the site is of general interest - (Guide: NR Not rated, strong, good, excellent)
Advances In Cystic Fibrosis
Advances in cystic fibrosis. cystic fibrosis is caused by many different mutations of the CF gene; to date, more than 600 unique mutations have been described.
http://www.childsdoc.org/fall97/cf/cf.asp

Extractions: Northwestern University Medical School The Cystic Fibrosis Foundation's home page is a great jumping off point for many topics related to CF. For readers interested in more information on the CF's genetic mutations, see the Cystic Fibrosis Mutation Data Base , which is a site belonging to the Department of Genetics, The Hospital for Sick Children in Toronto, Ontario, Canada. Contact us Advances in Cystic Fibrosis STEVEN R. BOAS, MD SUSANNA A. MCCOLLEY, MD THE DISCOVERY OF the gene responsible for cystic fibrosis (CF) in 1989 has led to an explosion of scientific information related to the disease and has transformed our understanding of it. For the first time, investigators are focusing on the development of treatments based on the underlying cellular defect. In this article, we review advances in genetics and molecular biology, as well as in clinical care, during the past decade. We also discuss the significance of the inflammatory response in CF lung disease and new and experimental CF therapies. The molecular basis of CF In 1989, investigators discovered the CF gene using novel approaches. The gene product, called the cystic fibrosis transmembrane conductance regulator (CFTR), is a membrane-based protein with an active transport function. This is consistent with previous findings that the primary defect in CF cells is faulty transport of ions, especially of chloride. Conclusive information regarding the role of CFTR in the basic CF defect came with the demonstration that defective cAMP-dependent chloride conductance in CF cells was restored when CFTR cDNA was transfected and expressed in those cells.
Proteome Systems - Proteomics Technology And Discovery - Home
Specializes in the development of new technology for proteomics and its application to discovery programs in the areas of cystic fibrosis, cancer, infectious disease and aging. US and Japanese offices with headquarters in Sydney, Australia.
http://www.proteomesystems.com/

Extractions: Home Contact Us var hcenter=(((window.screen.availWidth-640)/2)-23); var vcenter=(window.screen.availHeight-490)/2; Log On Online Catalogue Search: Advanced Search var baseHREF = "http://www.proteomesystems.com/inc/106/Menu/"; CORPORATE TECHNOLOGY DISCOVERY DIAGNOSTICS ... INVESTORS Special Feature 19 April 2004 - Proteome Systems and the High Q Foundation today announced an agreement to collaborate on a proteomic program for Huntingtons Disease (HD), comprising biomarker identification and molecular characterization of the Huntingtin protein. Proteome Systems will characterize changes in protein expression and modification that result from malfunction of the Huntingtin protein in order to identify biomarkers of HD. more >
Cystic Fibrosis
cystic fibrosis. cystic fibrosis (CF) is one of the most common autosomal recessive diseases in the Caucasian population, occurring
http://www.phd.msu.edu/DNA/cf_fact.html

Extractions: TEST INFORMATION FOR: Cystic Fibrosis Hereditary Hemochromatosis Apolipoprotein E Genotyping Fragile X Syndrome Methylenetetrahydrofolate reductase Cystic Fibrosis Cystic fibrosis (CF) is one of the most common autosomal recessive diseases in the Caucasian population, occurring in 1 out of every 2,500 - 3,300 newborns. CF can occur in other ethnic groups, but is most common in Caucasians. CF results from mutations in the CFTR gene, which is important for maintaining chloride balance in the cell. Carrier Risks Vary by Ethnic Group: Ethnic Group Carrier Rate Caucasian (non-Hispanic/non-Ashkenazi Jewish) 1 in 25 Ashkenazi Jewish 1 in 25 Hispanic 1 in 46 African American 1 in 65 Asian 1 in 90 Reasons for CF Testing: Confirmation of diagnosis in affected individuals Carrier identification in persons with a family history Carrier identification in persons currently pregnant or considering pregnancy Screening of sperm and egg donors Abnormal fetal ultrasound (i.e. echogenic bowel)
Cystic Fibrosis Message Board
Topics. cystic fibrosis Message Board. BOARDS; FRIEND WITH cystic fibrosis Alexis 210604 12/22/00 (0) DOES ANYONE HAVE ANY NEW ..
http://www.healthboards.com/cystic-fibrosis/

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Cystic Fibrosis - Lungs: Pulmonary And Respiratory Health And Medical Informatio
cystic fibrosis. cystic fibrosis At A Glance. cystic fibrosis (CF) is one of the most common serious genetic (inherited) diseases.
http://www.medicinenet.com/Cystic_Fibrosis/article.htm
New Scientist
Curry spice could alleviate cystic fibrosis. 1900 22 April 04. A spice used in curry could help alleviate cystic fibrosis, new research suggests.
http://www.newscientist.com/news/news.jsp?id=ns99994912
The Ortho-McNeil CF Care Website
Provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education and information.
http://www.cfcare.com
THE MERCK MANUAL, Sec. 19, Ch. 267, Cystic Fibrosis
Chapter 267. cystic fibrosis. Topics. General. It encodes a membraneassociated protein called the cystic fibrosis transmembrane regulator (CFTR).
http://www.merck.com/mrkshared/mmanual/section19/chapter267/267a.jsp
University Of Colorado Health Sciences Center - Duncan Lab
Current projects, protocols and facilities combining mass spectrometry, 2D gels and databases, for mapping disease states such as cystic fibrosis, cancer and allergy. Includes terms of use, user login, and meetings in Denver.
http://proteomics.uchsc.edu/
THE MERCK MANUALSECOND HOME EDITION, Ch. 53, Cystic Fibrosis
Section 4. Lung and Airway Disorders. Chapter 53. cystic fibrosis. Topic cystic fibrosis. cystic fibrosis. cystic fibrosis
http://www.merck.com/mrkshared/mmanual_home2/sec04/ch053/ch053a.jsp
Cyber Campus
A computer course aiming to empower and educate people with cystic fibrosis. From the cystic fibrosis Association of Ireland (CFAI).
http://www.internet-ireland.ie/horizon/
Cystic Fibrosis - Wikipedia, The Free Encyclopedia
cystic fibrosis. cystic fibrosis also causes a defect in the vas deferens causing sterility in approximately 98% of males with the disease.
http://en.wikipedia.org/wiki/Cystic_fibrosis

Extractions: Cystic fibrosis (abbreviated CF), also called mucoviscidosis , is an autosomal recessive hereditary disease that affects the lungs, sweat glands and the digestive system. The disease can be diagnosed by a high salt concentration in a baby's sweat. The symptoms usually develop during early childhood. Both lungs and pancreas produce abnormally viscous mucus . The mucus in the lungs can become a growth medium for bacteria, resulting in chronic respiratory infections and eventual permanent damage to the lung tissue. As lung function deteriorates, CF patients develop pulmonary hypertension and eventually cor pulmonale . Death usually occurs from severe infection or heart failure. In addition to frequent pulmonary infections, most persons with CF also have problems with digestion , particularly the digestion of fats. This leads to malabsorption and difficulty gaining and maintaining weight, which in turn affects overall health. This is due to the abnormally sticky mucus that blocks the release of digestive enzymes from the pancreas . Pancreatic insufficiency is treated with supplemental enzymes. Usually water-miscible forms of the fat-soluble vitamins A, D, E, and K are required as the decreased fat absorption can lead to deficiencies of these vitamins.
We'll Find A Cure // This Time Around
Supports fans with cystic fibrosis. Lyrics, fun, links and campaigns.
http://www.fallenstars.com/hmh/
BUBL LINK / 5:15 Internet Resources: Cystic Fibrosis
system, hepatitis DeweyClass 616.3 ResourceType index Location uk Last checked 19990508 CFWeb Online Information about cystic fibrosis Answers to
http://bubl.ac.uk/link/c/cysticfibrosis.htm

Extractions: BUBL LINK / 5:15 Catalogue of Internet Resources Home Search Subject Menus A-Z ... About A-Z Index Titles Descriptions OMNI Subject Listing for Digestive System CF-Web: Online Information about Cystic Fibrosis Cystic Fibrosis Foundation Cystic Fibrosis Trust ... LungNet Page last updated: 17 March 2003 Comments: bubl@bubl.ac.uk OMNI Subject Listing for Digestive System Set of links to selected, evaluated and annotated Internet resources relevant to the digestive system, including gastroenterology, hepatology, hernias, ulcers and diseases of the liver and pancreas.
CF Advantage
The mutation that causes deadly cystic fibrosis has survived for 52,000 years perhaps because it offers protection against diarrhea. By Josie Clausiusz
http://wsrv.clas.virginia.edu/~rjh9u/cysfib.html

Extractions: When humans left the Near East and invaded Europe around 40,000 years ago, they took with them bone and stone tools for hunting and engraving, early art in the form of beads and pendants, and social skills that were probably superior to those of Europe's resident Neanderthals. It now seems they also took with them a mutant gene: the gene for the deadly disease cystic fibrosis. So robust is this gene that it spread all over Europe; cystic fibrosis is now the most common fatal genetic disorder among Caucasians. How could the disease have been passed from generation to generation for so long, when until the advent of modern medicine it generally killed people before they could have children? Recent experiments on mice offer an answer. They suggest that the 5 percent of all Caucasians who carry just one copy of the cystic fibrosis gene - and thus don't suffer from the disease - are protected against another deadly scourge: diarrhea. The gene for cystic fibrosis was discovered in 1989. It codes for a protein that forms channels in cell membranes, especially the cells lining the intestines and airways. Normally these channels funnel chloride ions out of a cell, thus making its surroundings saltier; that in turn draws water out of the cell by osmosis. In the lungs this fluid washes away bacteria and other unwanted debris. In the intestines it does the same and also brings digestive enzymes into contact with food. In sweat glands chloride channels have an additional function; they recycle salt out of the glands and back into the skin before it can be lost to the outside world.
Cystic Fibrosis Disease Profile
Genetic Disease Profile cystic fibrosis. For more about the gene that causes cystic fibrosis, see the CFTR Gene Profile. Other cystic fibrosis Resources.
http://www.ornl.gov/sci/techresources/Human_Genome/posters/chromosome/cf.shtml

Extractions: Genetic Disease Profile: Cystic Fibrosis For more about the gene that causes cystic fibrosis, see the CFTR Gene Profile . The following was taken from NIH Publication No. 95-3650 Cystic Fibrosis Timeline Middle Ages - In medieval folklore, infants with salty skin, a symptom of cystic fibrosis, are considered "bewitched" because they routinely die an early death. - Fanconi refers to the previously nameless condition as "cystic fibrosis with bronchiectasis." - Andersen of Columbia University develops the first comprehensive description of cystic fibrosis symptoms. - Lowe establishes that cystic fibrosis is a recessive genetic disorder. - After observing excessive dehydration of cystic fibrosis patients during a New York City heat wave, di Sant' Agnese of Columbia University formally reports to the American Pediatric Society that CF patients secrete excessive amounts of salt in their sweat. This observation leads to development of the sweat test as a diagnostic standard for cystic fibrosis.

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