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Cystic Fibrosis:     more books (100)

Genetic Disorders Sourcebook: Basic Consumer Health Information About Hereditary Diseases and Disorders, Including Cystic Fibrosis, Down Syndrome, Hemophilia, ... Disease (Health Reference Series) Derm diagnosis.(Clinical Rounds)(rash caused by malnutrition in an infant with cystic fibrosis): An article from: Family Practice News by Timothy F. Kirn, 2003-09-01 Cystic Fibrosis: Nutri-tional and Intestinal Disorders by Ross W. Shepherd, Geoffrey J. Cleghorn, 1989-09-30 Cystic Fibrosis Fluid and Electrolyte Abnormalities in Exocrine Glands in Cystic Fibrosis Everything You Need to Know About Cystic Fibrosis (Need to Know Library) by Justin Lee, 2001-10 Cystic Fibrosis: Horizons (A Wiley Medical publication) by David Lawson, 1984-05-23 Cystic Fibrosis by Alvin; Silverstein, Robert; Silverstein, Virginia Silverstein, 1993 Cystic Fibrosis (Genetic Diseases) by Maxine Rosaler, 2006-08-31 Cystic Fibrosis (Molecular Medicine) Cystic Fibrosis (Perspectives on Disease and Illness) by Retold by:, 2001-09-01 Treatment of the Hospitalized Cystic Fibrosis Patient (Lung Biology in Health and Disease, vol. 109) Progress In Cystic Fibrosis Research Psychosocial Aspects of Cystic Fibrosis; A Model for Chronic Lung Disease. by Paul R. Patterson, 1973-06

lists with details

41. Welcome To SciClone Pharmaceuticals
    Acquires, develops and markets biopharmaceutical products targeted for treatment of chronic and lifethreatening diseases such as cancer, hepatitis b and c, immune system disorders and cystic fibrosis. (Nasdaq SCLN).  
    http://www.sciclone.com/
    
    Extractions: SciClone is currently evaluating its lead product in several late stage clinical trials, including two phase 3 hepatitis C clinical trials in the U.S , a completed phase 3 hepatitis B clinical trial in Japan phase 2 cancer trials in Europe and the U.S , and a hepatitis C triple therapy pilot clinical study in Mexico ZADAXIN has been approved for sale by the ministries of health in over 30 countries and is marketed in China and selected other countries outside the U.S. ZADAXIN is sold through SciClone Pharmaceuticals International Ltd There are 2.7 million people chronically infected with the hepatitis C virus in the U.S. and nearly half of all hepatitis C patients fail to respond to current therapy. SciClone is working to improve the lives of all hepatitis C patients by conducting two phase 3 hepatitis C clinical trials in the U.S.

42. Cystic Fibrosis
    cystic fibrosis affects the lungs and makes it hard to breathe and easy to cough. Learn more about this written especially for kids!  
    http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html
    
    Extractions: Every day when she wakes up, Lisa's parents thump her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. At school, Lisa coughs a lot. She keeps a box of tissues on her desk - just in case - that she uses to cough up mucus. In gym class, she participates in sports but often gets tired easily. At lunchtime, Lisa takes pills to help her digest her food and get all the vitamins she needs. It's especially important that she keep up her strength so she can deal with a condition she's known all her life - cystic fibrosis (say: sis -tick fi- bro -ses). What Is CF? Cystic fibrosis (CF) is an illness that affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. Cystic fibrosis affects the lungs , plugging them with mucus that often makes breathing difficult. If the mucus isn't cleared out of the lungs, it will trap bacteria and other germs , sometimes leading to serious infections.

43. Norma Kennedy Plourde's Home Page
    cystic fibrosis, Genealogy, Kennedy in particular, and other family lines, Rheumatoid Arthritis, and Lac Baker, New Brunswick. English/Fran§ais.  
    http://personal.nbnet.nb.ca/normap/
    
    Extractions: Norma Kennedy Plourde's Home P age Search my site: ASNO Club de Motoneige/Snowmobile Club Odds and Ends: things that I find handy (Updated Apr. 2 Fibrose Kystique (Mise à jour le 13 avr., 2004 Genealogy Programmes (Updated Feb. 2, 2004) Holiday Stuff Computer and Internet Hints and Tips Trucs d'ordinateur et d'internet (Updated May 17, 2002) Rheumatoid Arthritis (Updated Sept. 5, 2003) Fun Stuff (Updated July 7, 2003) Choses Drôles ChangeDetection.com Use this to be notified when one of my pages changes (Updated July 18, 2002) Games (Updated Aug. 30, 2002) Web pages of people I know Jennifer Plourde, my daughter She made a page of drink recipes. (Added Feb. 8, 2002) Keven Plourde, my nephew He is into cars. (Added July 16, 2001) Tina Plourde, ma belle-soeur She has uploaded lots of family pictures. (Added Sept. 7, 2001)

44. Cystic Fibrosis
    cystic fibrosis (CF) is a lifeshortening inherited disease of young people, currently affecting more than 30000 American children and young adults.  
    http://kidshealth.org/parent/medical/lungs/cf.html
    
    Extractions: Cystic fibrosis (CF) is the number-one life-shortening inherited disease of young people, currently affecting more than 30,000 American children and young adults. It is a genetic disorder that particularly affects the lungs and digestive system, and it makes a child more vulnerable to repeated lung infections. Now, thanks to high-tech medical advances in drug therapy and genetics, children born with CF can look forward to longer and more comfortable lives. In the last 10 years, research into all aspects of CF has helped us to understand the illness better and to develop new therapies. In the future, ongoing research may help us find a cure. Cystic fibrosis makes children sick by disrupting the normal function of epithelial cells - cells that make up the sweat glands in the skin and that also line passageways inside the lungs, liver, pancreas, and digestive and reproductive systems. In CF, the inherited CF gene directs the body's epithelial cells to produce a defective form of a protein called CFTR. When the CFTR protein is defective, epithelial cells can't regulate the way chloride (part of the salt called "sodium chloride") passes across cell membranes. This disrupts the essential balance of salt and water that is needed to maintain a normal thin coating of fluid and mucus inside the lungs, pancreas, and passageways in other organs. The mucus becomes thick, sticky, and hard to move.

45. Sarah Yourman - Big Air
    A young girl with cystic fibrosis and Diabetes that loves competitive skiing, mogul runs, and gymnastics.  
    http://www.sarahyourman.com/

46. Userdir Rule Failure
    The CysticFibrosis Index of OnLine Resources is intended to be an exhaustive guide toAll on-line  
    http://vmsb.csd.mu.edu/~5418lukasr/cystic.html

47. Stichting FOK
    De stichting Fibrose Kinderen Op Kamp is een uit particulier initiatief voortgekomen stichting, met als doelstelling vakantiekampen te organiseren voor kinderen en jongeren met cystic fibrosis (CF).  
    http://www.stichtingfok.nl/

48. Cystic Fibrosis Australia - Education And Research Organisation - CFA - National
    cystic fibrosis Australia CFA is a national body comprising member State Associations. cystic fibrosis Australia. 51 Wicks Road North Ryde NSW 2113.  
    http://www.cysticfibrosisaustralia.org.au/

49. Cystic Fibrosis Information And Resources For Patients, Relatives And Medical Pr
    cystic fibrosis Medicine contains a large collection of articles on cystic fibrosis as well as cf related links, two forums, a chat room and a drug database.  
    http://www.cysticfibrosismedicine.com/

50. Boogerwoods
    Benefits cystic fibrosis.  
    http://www.boogerwoods.com
    
    Extractions: THE ORIGINAL ONE AND ONLY !! ................................THE ORIGINAL ONE AND ONLY !! ................................THE ORIGINAL ONE AND ONLY !! ................................THE ORIGINAL ONE AND ONLY !! ................................ Boogerwoods was a BIG hit in the Palestine and Kannapolis Christ mas Parades this year. The Internet's Premiere Halloween Publication PARKING WILL BE LIMITED PLEASE CARPOOL 4 Nights Only .....Dates Oct. 2004 ..... 22 23 29 30 PHANIELS CHURCH RD , ROCKWELL / CHINA GROVE NC " ALL PROCEEDS TO CYSTIC FIBROSIS " Tickets Are Sold On Location Each Day At 2PM For That Night Only. No Tickets Sold Online. " WHO YOU GONNA CALL " BOOGERBUSTERS " TAKE A SPIN IN BOOGER VORTEX AND 6 NEW SCENES!!

51. Cystic Fibrosis Worldwide Is An Organization Representing The CF Community With
    This site contains information relating to cystic fibrosis with a worldwide mandate.  
    http://www.cfww.org/

52. Greg Unger - In Loving Memory
    A family shares the memory of a loved one through stories, video archive, photo gallery, and information on cystic fibrosis disease. 1980 2000.  
    http://www.gregunger.com/

53. Wel Eens Aan Een Longtransplantatie Gedacht?
    Een persoonlijke site van een cystic fibrosis pati«nt over longtransplantatie.  
    http://www.longtransplantatie.nl/
    
    Extractions: getransplanteerd getransplanteerd getransplanteerd op wachtlijst Robert Stoelenga Patrick Ellen Stoelenga Sandy Roorda Deze website staat in het teken van 'eigen' ervaringen van patiënten met longtransplantatie. Door hierboven op de foto's te klikken kunt u de verschillende ervaringsverhalen lezen. Laatste nieuws: Oproep aan mensen die een longtransplantatie hebben ondergaan! Wel eens aan een longtransplantatie gedacht? Bovenstaande vraag van de longarts op 27 augustus 2001 gaf aanleiding voor Paul van den Elsaker om op 4 september 2001 deze website te beginnen. Vanaf 17 juni 2002 worden ook ervaringen van anderen opgenomen. Wat Paul nastreeft is een site waarin open over de ervaringen geschreven kan worden en waarbij aanvullingen van derden (medepatiënten, zorgverleners, familie e.d.) worden gestimuleerd. Daarnaast beoogt deze website een ingang te worden naar relevante informatie over longtransplantatie. Iedereen die wil reageren wordt daartoe van harte uitgenodigd. Gebruik hiervoor

54. HealingWell.com - What Is Cystic Fibrosis?
    What is cystic fibrosis. Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. Symptoms of cystic fibrosis.  
    http://www.healingwell.com/library/cysticfibrosis/info1.asp
    
    Extractions: Search Site: Search Web: HealingWell Conditions Cystic Fibrosis Library Article What is Cystic Fibrosis Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Symptoms of Cystic Fibrosis CF affects tissues that produce mucus secretions, such as the airway, the gastrointestinal tract, the ducts of the pancreas, the bile ducts of the liver and the male urogenital tract. Normal mucus forms a gel-like barrier that plays an important role in protecting the cells lining the inside surfaces of these tissues. In the lung, mucus also transports dust and other particles out of the airway and helps to prevent infection. CF alters the chemical properties of mucus; instead of protecting tissues from harm, the abnormal mucus obstructs the ducts and airways, causing tissue damage.

55. Pennsylvania Cystic Fibrosis Inc.
    Dedicated to education and information for those interested in CF.  
    http://www.pacfi.org/

56. EUROPEAN CYSTIC FIBROSIS SOCIETY
    EUROPEAN cystic fibrosis SOCIETY (ECFS) (formerly known as the European Working Group for cystic fibrosis) Date of last modification of site 20th May 2004.  
    http://www.ecfsoc.org/
    
    Extractions: Other WWW sites of Interest Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care.

57. Charity Cycle From Lands End To John O'Groats
    A charity event to raise money in Aid of cystic fibrosis Holiday Fund For Children. A 1000mile trek on a Trident across the UK.  
    http://www.3onabike.org.uk/
    
    Extractions: In Aid of Cystic Fibrosis Holiday Fund For Children Sponsor us by clicking here here...... NEWS FLASH********* Day 9 - They've Done It !!!!! The brave hearts arrive in John O'Groats at 18:15 today 27th July 2001 !!!! Well done lads !!! more news to follow.... Fastest and Youngest Ever - To be Ratified in 6 Weeks !!!!!!!!! Welcome to the charity cycle of the year.... From the sunny Southwest of England to the North-Eastern tip of Stormy Scotland, three friends will be riding one bike all the way. In ten days they aim to ride their triplet*Trident through headwinds, exhaustion and fantastic countryside, in aid of the Cystic Fibrosis Holiday Fund for Children. This is a real Gap-year challenge; few have ever completed the distance on this most unusual of machines. Who knows.... whether you live in Cornwall or the Cairngorms, you may even see them come flying (or panting) past your doorstep this July as they roll up the country................ Free Java applets provided by

58. Living With Cystic Fibrosis
    I have cystic fibrosis. I was diagnosed when I was born (1978). Get your free cystic fibrosis email address for life! First Name Last Name  
    http://frontpage.velocity.net/yanc/
    
    Extractions: Hi, My name is Yancee Mathews. I have Cystic Fibrosis. I was diagnosed when I was born (1978). I created this web page for everyone to come and view my thoughts on living with CF. If you can't find what your looking for here, feel free to E-mail me Click below for a live chat with me. Live chat by Bold chat You are visitor since February 28, 1998. Login to CysticFibrosis mail User Name: Password: Technical Support Help Password Reminder Sign Up with CysticFibrosis Mail Get your free cystic fibrosis e-mail address for life! First Name: Last Name: Thanks for visiting! Come back again.

59. Washington University Physicians Department Of Pediatrics
    Information on this group of specialists for cystic fibrosis, NICU, growth disorders and other conditions.  
    http://www.wuphysicians.com/pediatrics.shtml

60. Official Site For CFF Jack Buck Book Event
    Charity fund raiser sponsored by the announcer. Includes welcome, book of stories and poems for sale, details about the Gateway cystic fibrosis Foundation and CF, and a biography.  
    http://www.jackbuckbook.com/
    
    Extractions: 7:00A.M.. to 11:30P.M. Click here for additional memorial information from KMOX Radio. It clinched the 1985 National League Championship Series for the Red Birds. In July 2002, he will be honored at the 33 rd Annual Jack Buck Golf Classic. His tournament attracts more than 300 golfers every year, and has raised $7 million for Cystic Fibrosis research. This year he has stepped up to the plate again. with 100% of the proceeds going directly to Cystic Fibrosis Foundation. For his own enjoyment, Jack has been composing poetry most of his life. Few people outside of his own family have had the opportunity to see his poems. They cover far more subjects than baseball and other sports. Jack has donated eighteen of his poems to the Cystic Fibrosis Foundation to be published and used in the effort to generate donations through this site and other means of distribution.

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