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Arthrogryposis:     more books (21)

Freeman-Sheldon syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Lisa Fratt, 2005 Series of casts straightens ligaments: correcting clubfoot without surgery.(Clinical Rounds)(Ponseti method): An article from: Pediatric News by Anne Scheck, 2004-05-01 Amyoplasia: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Mary, MS, CGC Freivogel, 2005 Just a Krooked Kid by Goodwin Hale, 1994-12-15 Some Crawl and Never Walk by Celestine Tate, 1995-06 Brittany: Child of Joy by Anne Adams, 1987-02

lists with details

21. Arthrogryposis - DrGreene.com - Caring For The Next Generation
    Although arthrogryposis is not a familiar term to most people, arthrogryposis multiplex congenita (AMC) affects about 3 out of 1000 people, or about 750 000 people in the United States alone. The  
    http://www.drgreene.com/961009.html

22. Arthrogryposis Multiplex Congenita / Family Village Library
    Library A B. arthrogryposis Multiplex Congenita. Canadian arthrogryposis Support Team CAST 365 Fiddlers Green Rd. S. Ancaster  
    http://www.familyvillage.wisc.edu/lib_arto.htm
    
    Extractions: E-mail: avenues@sonnet.com Avenues is a national support group that provides education and networking for parents and medical professionals concerned with Arthrogryposis. They have local chapters, with a directory available, and will provide parent-to-parent matching. Avenues publishes a bi-annual newsletter, Avenues , and a brochure, "What is Arthrogryposis?" This is offered in English and Spanish. Additionally, they have a new parent packet, that includes the newsletter, and brochure. Avenues has a bibliography of abstracts that are available to members and audio Cassettes for distribution. They collect information on physicians and researchers who treat/study the condition and disseminate this information to its membership. They also offer a resource packet that includes interested doctors, therapists, families, pen pals, support groups and clinics. Canadian Arthrogryposis Support Team [C.A.S.T.]

23. Jamie-Lee's Arthrogryposis Multiplex Congenita Page
    Includes information, photographs and useful links.  
    http://www.geocities.com/SouthBeach/Surf/7325/jamielee.html
    
    Extractions: Hello fellow cyber users! Im Jamie-Lee. This is a picture of me advertising for the Crippled Children's Association in South Australia. It's a few years old now, but a favourite. I am 11 years old, and I am new to the internet. I was born with Arthrogryposis Multiplex Congenita. Basically, this mean that my joints (i.e. elbows, knees....etc) are fixed. They don't bend....and I can't walk. Last year, I came to live with my Dad (Scott) and his wife Karen. Karen left her job so she could take the best possible care of me and my brothers and sister. Karen has made this page for me to try and locate anyone else in the world with the same condition as me. If there is anyone out there who has this condition, or knows of someone else who has, please, please email us below and tell us how it has affected you. In particular, if you are a doctor or physiotherapist who has treated anyone with this disability, also, please contact us. You may recognise me from the commercials for the "Down Every Street Appeal".

24. Kassandra's Arthrogryposis Page
    Kassandra s arthrogryposis Page. Hello My Name is Kassandra Ahuero. The doctor said I think she has a rare condition called arthrogryposis Multiplex Congentia.  
    http://hometown.aol.com/arthrogryposisc/
    
    Extractions: Hello My Name is Kassandra Ahuero. I am fifteen years old I am A Nineth Grader at Lowry High School In Winnemucca Nevada. I am going to tell you a little about me. For those that do not know me and about my disabilaty I will tell you my story. I was Born on December 25th 1984 In Austin,Texas. I was 5lbs 2oz. My mom said I came fast,It only took 18 miniutes for me to be deliverd. When I came out the Doctors looked at me and rushed me out of the delivery room. My mom told me that she Got rely scared. It was about two hours later before my mom was allowed to see me. The doctor told her that when I cam out I was all Twisted up , My hands were curled under And my feet were turned in. At that tme my mom was very upset. She asked the doctor what was wrong with me. The doctor said" I think she has a rare condition called Arthrogryposis Multiplex Congentia. It came to be that it was my initial diagnosis. I also had an intestinal blockage as well. I have the condition named above. This condition is Multible joint contracures that are present at birth. Wich causes

25. Victoria's Story With Arthrogryposis
    Living with arthrogryposis.  
    http://members.aol.com/_ht_a/crazyus5/myhomepage/family.html
    
    Extractions: Victoria was born full term weighing 5 IBs 2.5 ounces, on April 1st 1997, born with Arthrogryposis. For those of you who may not know, arthrogryposis is the precense multiple joint contractures. Victoria had them, and at every joint ex. her ankles, knees, hips, shoulders, elbows, wrists, and fingers all ten... Arthrogryposis is corrected by therapies, braces, splinting and surgery as a last resort. Victoria was transferred to Miami Childrens Hospital when she wa only 3 hours old was Victoria's 1st surgery was when she was 7 months old she had a ten hour surgery with 2 surgeons. An orthopedic and a plastic/hand specialist. They both worked together in the O.R. She had a bilateral club foot release and a right thumb release with skin graphs from her groin area. Pins were placed in her hand at 2 places and her legs. She wore casts for 6 weeks. See more family home pages

26. Frequently Asked Arthrogryposis Program Questions
    Frequently Asked arthrogryposis Program Questions. Q What causes arthrogryposis? Q Is there a cure for arthrogryposis multiplex congenita (AMC)?  
    http://kidshealth.org/faq/arthrogryposis.html
    
    Extractions: Frequently Asked Arthrogryposis Program Questions Q: What causes arthrogryposis? A: There are many possible causes for arthrogryposis multiplex congenita (AMC), but no specific known cause. Generally, problems with joint growth and development, decreased fetal movement, and spinal development during the first 3 months of pregnancy may lead to the development of AMC. AMC is not an inherited disorder, so a person with AMC will not pass it on to his children. Distal arthrogryposis, which is rarer than AMC, is inherited, and can be passed from parent to child. Q: Is there a cure for arthrogryposis multiplex congenita (AMC)? A: Currently, there is not a cure for arthrogryposis, but there are several treatments that can help children who have arthrogryposis live fuller lives. Splinting and bracing can help improve range of motion. Surgical intervention can improve joint position. Parents often ask about muscle transplants; however, these are not currently a valid treatment option. Muscle transfers may be used to provide power to a flexible joint, such as creating elbow flexion by the transfer of triceps to create "biceps" in one arm. Each individual must be evaluated for total body function before these transfers are considered.

27. Sophies Arthrogryposis Site
    This is a site about Sophie who has had to endure life with a condition called arthrogryposis.  
    http://mysite.freeserve.com/sophiesarthrosite

28. Geno's Page!
    This page is all about my son Geno and arthrogryposis.  
    http://www.geocities.com/deb40965ky/Geno.html

29. Arthrogryposis - DrGreene.com - Caring For The Next Generation
    Although arthrogryposis is not a familiar term to most people, arthrogryposis multiplex congenita (AMC) affects about 3 out of 1000 people, or about 750000  
    http://www.drgreene.com/21_107.html
    
    Extractions: QUICK SEARCH A - Z Guide Allergies Allergy Care Guide Asthma Care Guide Bedwetting Breastfeeding Childhood Obesity Diabetes Care Guide Ear Infections Genetics Immunizations Infectious Diseases Parenting Potty Training Rashes Safety Sleep About DrGreene.com Archives About Us Context Reviews Awards Readers Comments Press Room Partners and Supporters Topic Centers Contact Us Pediatric Information A-Z Guide Allergy Care Guide Asthma Care Guide Diabetes Care Guide Discussion Boards DrGreene´s Chats DrGreene´s Event Schedule FAQ Fast Facts Feature Articles Guidelines Pediatric Updates Special Feature Top Tips Community Activty Guide Advanced Search Community Central Chat Chat Schedule Cute Faces Discussion Boards Family Friendly Recipes Parent-to-Parent Resources The DrGreene Team Newsletter Prenatal Newborn Infants Toddlers Pre-Schoolers School Age Teens / Adolescents Multimedia Library Fertility Children's Health My daughter has been diagnosed as having "Arthrogryposis". None of her doctors have told me anything about this muscular/joint disease. I would like to know if you have ever heard of it, and if you can give me any info on it. She was supposed to have ear tubes put in, because of chronic

30. JDnD
    Dylan has a condition called arthrogryposis.  
    http://communities.msn.com/JDnD
    
    Extractions: var nEditorialCatId = 334; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Language ... Help JDnD JDnD@groups.msn.com What's New Join Now Welcome Pictures of Me!!! ... Tools Dylan's Web Page! Hi, my name is Dylan Brown and I am 5-years-old. I was born with a condition called Arthrogryposis, which makes my joints stiff and makes it hard for me to move. But I don't let that get in my way. I am an in Kindergarten and getting smarter everyday. I love to play with my action figures, and stay busy driving around in my power chair. I ty to stay on the go all the time. I've come a very long way since I was born and plan to go even further. I am really into Disney right now and as you can Green and Yellow are my favorite colors. There are tons of pictures of me on these pages if you want to take a look. I have a little brother named Casey who is 2-years-old. We play really well together and soon will be able to plot against mom and dad. If you would like to see pictures of him check out Casey's page If you would like to learn more about Arthrogryposis please visit the websites Mom and Dad posted.

31. LittleDeniseandherfamily
    My name is Denise and I was born with arthrogryposis.  
    http://www.geocities.com/denisecsus/LittleDeniseandherfamily.html
    
    Extractions:     At birth my feet were clubbed, my hands were in an abnormal position and I had a cleft pallate, acutally three of them. I have had numerous surgeries and only some of them were successful.  Years of physical and speech therapy proved to be the most helpful intervention for me. Therapy only worked for me because it began at a very early age, I was still an infant.     I can speak with out any type of defect and I am mobile. I discontinued physical therapy as a pre-teen. I have since suffered for that decision. I have lost fleibility and range of motion. I have recently tried to stretch my joints but I am very forgetful and need to motivate or pay the price even further.

32. Desertroses_Page
    I was born with a condition called arthrogryposis multiplex congenita.  
    http://www.geocities.com/desertroze2000/Desertroses_Page.html

33. Kimberly's Autobiography
    This is the life story of a woman with multiple disabilities, including arthrogryposis multiplex congenita.  
    http://communities.msn.com/KimberlyAngelheart

34. ARTHROGRYPOSIS : Contact A Family - For Families With Disabled Children: Informa
    printer friendly, arthrogryposis, upon Tyne, UK. THE arthrogryposis GROUP (TAG). The arthrogryposis Group (TAG) Beak Cottage Dunley  
    http://www.cafamily.org.uk/Direct/a72.html
    
    Extractions: helpful? yes no Arthrogryposis: Amyoplasia Congenita; Arthrogryposis Multiplex Congenita; Otto syndrome Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a baby born with multiple joint contractures and covers a wide range of conditions. The contractures limit the range of movement of the joints. The joints themselves may be fixed in a flexed or extended position. The number of joints affected can range from two or three to almost total involvement, including spine and jaw, resulting in a wide range of disability. AMC is a non-progressive condition with a normal life-span. However, joint contractures are sometimes linked to rare syndromes with limited life expectancy. Although AMC is associated with fetal immobility, the exact causes are not known. Early and specific diagnosis for each case is essential so that appropriate therapy can begin as soon as possible. Such treatment includes physiotherapy (including passive stretching) splinting and surgery. Inheritance patterns These are variable. In Amyoplasia, the most common form of AMC, there is no significant inheritance risk. Distal arthrogryposis, which primarily affects the hands and feet, is autosomal dominant. However, as there are over one hundred types of AMC, precise diagnosis of individual cases is necessary to establish the risk of possible recurrence.

35. Arthrogryposis
    Back Home Next. arthrogryposis. Clay s arthrogryposis Homepage A site dovoted to arthrogryposis, and special needs children. Copyright  
    http://www.ability.org.uk/Arthrogryposis.html

36. Living In Grace - Arthrogryposis
    , Medical Leads For Treatment Online Support Groups arthrogryposis is not actually a disease, but a description of the symptoms that occur about 1  
    http://www.livingingrace.com/Arthrogryposis.htm
    
    Extractions: Arthrogryposis is not actually a disease, but a description of the symptoms that occur about 1 in 10,000 births. The simplest definition would be strong or stiff joints. Through lack of movement while in the womb, the babies muscles do not develop properly and the bones likewise fail to develop, often they are small and brittle. The lack of movement also causes the joints to be very stiff, and the pressure of the womb bearing down on these precious children often causes the limbs to be distorted in appearance- the most common being club feet, dislocated hips, and cupped hands.

37. Arthrogryposis - Information / Diagnosis / Treatment / Prevention
    home musculoskeletal disorders congenital anomalies arthrogryposis arthrogryposis. Subtopics arthrogryposis Personal Pages,  
    http://www.healthcyclopedia.com/musculoskeletal-disorders/congenital-anomalies/a

38. Goodwin Hale
    Born with arthrogryposis and author of his autobiography Just a Krooked Kid.  
    http://www.geocities.com/gjhaleus/krookedkid.html

39. Arthrogryposis - Personal Pages
    home musculoskeletal disorders congenital anomalies arthrogryposis personal pages arthrogryposis Personal Pages. Information  
    http://www.healthcyclopedia.com/musculoskeletal-disorders/congenital-anomalies/a

40. Jackie's Page
    Aging gracefully with arthrogryposis.  
    http://members.aol.com/_ht_a/jfp832/myhomepage/

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