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Anencephaly:     more books (32)

The infant with anencephaly: moral and legal dilemmas.: An article from: Issues in Law & Medicine by Debra H. Berger, 1989-06-22 Anencephaly: selected medical aspects.: An article from: The Hastings Center Report by D. Alan Shewman, 1988-10-01 Fetology: Diagnosis and Management of the Fetal Patient, Second Edition by Diana Bianchi, Timothy Crombleholme, et all 2010-04-23 Organ prolongation in anencephalic infants: ethical & medical issues. (includes related article on Loma Linda Hospital protocol): An article from: The Hastings Center Report by James W. Walters, Stephen Ashwal, 1988-10-01 Use of supplements containing folic acid among women of childbearing age--United States, 2007.(Table)(Report): An article from: Morbidity and Mortality Weekly Report by J.R. Petrini, H.C. Hamner, et all 2008-01-11 Preventing two of the most common and severe birth defects.: An article from: Humpty Dumpty's Magazine by Cory SerVaas, 2002-01-01 Anencephalic infants as sources of transplantable organs.: An article from: The Hastings Center Report Crane-Heise syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Sonya Kunkle, Stacey Blachford, 2005 Case studies: c-section for organ donation. (includes commentaries): An article from: The Hastings Center Report by Sheldon T. Berkowitz, Louis E. Newman, et all 1990-03-01 Organs from anencephalic infants: an idea whose time has not yet come.: An article from: The Hastings Center Report by Norman Fost, 1988-10-01 The Limits of Principle: Deciding Who Lives and What Dies by Tom Koch, 1998-12-30 Epidemiology of Anencephalus and Spina Bifida (Oxford Medical Publications) by J. Mark Elwood, 1980-04-10 Brain Dead, Brain Absent, Brain Donors: Human Subjects of Human Objects? by Peter McCullagh, 1993-02 Anencephalus in North Carolina: A review of the literature and a description of its occurrence, 1972-1991 (Institute of Statistics mimeo series) by Kathryn J Grover, 1996

lists with details

21. Anencephaly Jessicas Journey
    A parent's personal experience, relating her daughter's story.  
    http://www.geocities.com/hotsprings/spa/4346

22. Anencephaly Information
    anencephaly Information. anencephaly is a congenital birth defect that occurs in approximately one in one thousand pregnancies. FAQs about anencephaly.  
    http://www.anencephalie-info.org/e/
    
    Extractions: Anencephaly Information Anencephaly is a congenital birth defect that occurs in approximately one in one thousand pregnancies. Anencephaly is a neural tube defect, just as is spina bifida. Life expectancy for an anencephalic baby is just a few hours, sometimes a few days at most. As the malformation is usually detected during a pre-natal scan, parents are confronted with a choice between life and death. A choice often made with very little information of what is in store for them. It is with this in mind that we have made the choice to share the stories of the brief, but wonderful lifes of anencephalic babies. We hope that it will be of help to you and impart courage. Stories of the lifes of anencephalic infants: Anouk Anna and Tess (twins) Ira Jerry Eliah Loren Lucas Adam ... Matthew and Emily (twins) Michael Andrew Pictures of anencephalic babies FAQs about anencephaly What is a neural tube defect Prevention of anencephaly Creating memories of your dying baby Advice for taking pictures of deceased or dying babies Providing support to parents expecting an anencephalic baby as a midwife Comfort for grieving parents Links about anencephaly Sitemap e-mail: webmaster@anencephalie-info.org

23. (Angel Austin's Site)
    Poetry, and photos of this child who died May 2, 2002, of anencephaly.  
    http://www.geocities.com/austinspage2002/

24. WebRing: Hub
    Memorial pages to children lost to anencephaly.  
    http://s.webring.com/hub?ring=jessica

25. My Angel Daniel
    Memorial to this baby lost to anencephaly on January 17, 1992. Daniel's story, and poems.  
    http://www.geocities.com/myangeldaniel/index.htm

26. Fr. Benedict Ashley - Anencephaly
    MORAL PRINCIPLES CONCERNING INFANTS WITH anencephaly Observations on the Document. 2. Is the Infant with anencephaly a Person with Rights?  
    http://www.ewtn.com/library/PROLIFE/bcdanen3.htm
    
    Extractions: Observations on the Document Fr Benedict Ashley, O.P. BCD Document Staff Commentary Anencephaly is a distressing condition of infants whose brains have failed to develop during gestation beyond a very rudimentary stage. Although this condition is relatively rare, recent medical advances raise serious questions about the care of such children: Are infants with anencephaly persons? Were they never persons? If once they were, are they now "brain-dead"? Even if they are persons with human rights, may they not be prematurely delivered in order better to insure the rights of their mothers, since at best their lives will be very brief? Since they will soon die, may their organs be removed before death so as to be in their best condition for transplantation to save another's life? Because these urgent questions involve important ethical principles whose erosion in medical practice can have wide consequences, the U.S. National Conference of Catholic Bishops' Committee on Doctrine has issued the concise statement, Moral Principles Concerning Infants with Anencephaly . The present commentary strives to elaborate on the important issues discussed in that statement. 1. Is the Church Interfering Between a Woman and her Physician

27. CDC - Folic Acid
    bodies before pregnancy, this vitamin can decrease the risk for neural tube defects (NTDs), which are birth defects of the baby s brain (anencephaly) or spine  
    http://www.cdc.gov/node.do/id/0900f3ec80010af9
    
    Extractions: Folic acid, also known as folate, is a B-vitamin that can be found in some enriched foods and vitamin pills. If women have enough of it in their bodies before pregnancy, this vitamin can decrease the risk for neural tube defects (NTDs), which are birth defects of the baby's brain (anencephaly) or spine (spina bifida). For many women, an easy way to be sure you're getting enough folic acid is to take a vitamin with folic acid in it. The U.S. Public Health Service recommends that all women who could possibly become pregnant get 400 micrograms (or 0.4 mg) of folic acid every day. This could prevent up to 70% of some types of serious birth defects. But to do this, women need folic acid before they get pregnant. That's why you should always get enough folic acid every day even if you're not thinking about a baby any time soon. Folic acid has been added to some foods, such as enriched breads, pastas, rice, and cereals. A few cereals have 100 percent of the folic acid you need. No one expects an unplanned pregnancy. But they happen - every day. In fact, about half of all pregnancies are not planned. That's why you should get enough folic acid every day if there's any chance you could get pregnant. Because by the time you know you're pregnant, your baby's brain and spine are already formed.

28. MyAngelAriel
    Memorial to baby Ariel Elisabeth Sainte Claire who lived just four hours due to anencephaly. Also a memorial to her sister Catherine Angelica Sainte Claire who was miscarried at three months. Their stories, and poems.  
    http://myangelariel.homestead.com/

29. Definition Of Anencephaly
    an·en·ceph·a·ly anencephaly is a fatal birth defect that happens when the neural tube does not fully close at the top. As a  
    http://www.cdc.gov/ncbddd/folicacid/excite/Files_in_use/anenc.htm

30. Matthew Bradley
    Memorial to this child lost to anencephaly on April 21, 1992. Matthew's story, photo, and poems.  
    http://www.angelfire.com/ms/inmemoryofmatthew/index.html
    
    Extractions: When I look back on those times and the dreams we left behind, I'll be glad because I was blessed to get to have you in my life. When I look back on those days, I'll look and see your face. In my dreams I'll always see you soar above the sky. In my heart there'll always be a place for you for all my life. I'll keep a part of you with me, and everywhere I am...there you'll be. How softly you tiptoed into our world, almost silently. Only a moment you stayed. But what an imprint your tiny footsteps have left upon our hearts. Matthew Bradley was still born on April 21, 1992 at 7:52am. He was 8lbs and 19 1/2 inches long. He is the precious son of Missy and Steven. At 36 weeks of pregnancy, after undergoing a routine ultrasound, it was discovered that Matthew had a birth defect called anencephaly. The term means without a brain. This birth defect is incompatible with life. We were told Matthew could die before, during, or soon after birth. The weeks that followed the news that my baby would die are a blur.

31. Anencephaly - Medical Dictionary Definitions Of Popular Medical Terms
    anencephaly A neural tube defect (NTD) that occurs when the cephalic (head) end of the neural tube fails to close, usually between the 23rd and 26th days of  
    http://www.medterms.com/script/main/art.asp?articlekey=2245

32. Jessica's Journey With Anencephaly (a Neural Tube Defect Incompatible With Life)
    Lost to anencephaly on December 28, 1998. Jessica's story, and photos.  
    http://www.angelfire.com/mb/jessicasjourney/index.html

33. Anencephaly Hub
    anencephaly is a neural tube defect. NINDS anencephaly Information Page by The National Institute of Neurological Disorders and Stroke.  
    http://www.genomelink.org/anencephaly/
    
    Extractions: Acne Allergy Antibiotics Antioxidants ... NINDS Anencephaly Information Page - by The National Institute of Neurological Disorders and Stroke. Surveillance for Anencephaly and Spina Bifida and the Impact of Prenatal Diagnosis United States, 1985-1994 - by Janet D. Cragan, M.D. Helen E. Roberts, M.D. Larry D. Edmonds, M.S.P.H. Muin J. Khoury, M.D., Ph.D. Division of Birth Defects and Developmental Disabilities National Center for Environmental Health; Russell S. Kirby, Ph.D., M.S. Arkansas Reproductive Health Monitoring System; Gary M. Shaw, Dr.P.H. Ellen M. Velie, M.P.H. California Birth Defects Monitoring Program; Ruth D. Merz, M.S. Mathias B. Forrester, B.S. Hawaii Birth Defects Monitoring Program; Roger A. Williamson, M.D. Diane S. Krishnamurti, M.S. Iowa Birth Defects Registry and the University of Iowa; Roger E. Stevenson, M.D. Jane H. Dean, R.N. Greenwood Genetic Center. Birth Prevalence of Anencephaly and Spina Bifida in Oregon 1971 to 1993 - by Barbara Pizacani, MPH, RN

34. Prenatal Diagnosis
    Here is anencephaly, which is one of the more common congenital CNS abnormalities, seen in 0.5 to 1 in 1000 livebirths. Supplementing  
    http://medlib.med.utah.edu/WebPath/TUTORIAL/PRENATAL/PREN014.html

35. Michaela Hope Bucher
    Lost to anencephaly February 18, 1999. Michaela's story, photos, and poems.  
    http://www.angelfire.com/mn/michaelashope/index.html
    
    Extractions: Anencephaly is a neural tube defect that causes the brain and skull to stop developing, very early, in fetal development. Anencephaly has no treatment, or cure, and is always fatal. Roughly 1 in every 1,000 pregnancies is affected by this or another neural tube defect, such as Spina Bifida. Consequently, many parents face difficult and heart wrenching decisions regarding their baby's life. They must often make these decisions with very little information about anencephaly itself which is why we have chosen to share our story. In September of 1998 a "routine" ultrasound revealed that our baby's brain and skull had not developed. Not wanting to believe that anything could be wrong with OUR baby, we searced for answers and sought second and third opinions. Doctors explained that Michaela was lacking the upper portion of her skull at about the eyebrow level and that at best, she might live for 48 hours. I was about 20 weeks pregnant at that time and our options were as follows: to have a partial birth abortion, to induce labor, or to continue with the pregnancy. We already had two beautiful healthy little boys at home, ages 4 and 19 months and couldn't imagine life without any of our children, including this one. Faced with the reality that our baby would die, Joey and I did a lot of soul searching, and after several weeks, decided to continue with the pregnancy. The decision gave us peace of mind and allowed us to focus on our baby, and the best way to love her, for however long she might be with us. Having made that decision, we contacted Doctors at Mayo Clinic in Rochester, MN and sought consultation. After a lengthly ultrasound, and discussion with both a perinatologist and a neonatologist, we left Rochester confident in our decision to carry our baby girl to term.

36. CNS Pathology
    The absence of the fetal cranial vault in anencephaly is shown here. The rate of anencephaly is now less than 1 in 10,000 live births in some places.  
    http://medlib.med.utah.edu/WebPath/CNSHTML/CNS076.html
    
    Extractions: The absence of the fetal cranial vault in anencephaly is shown here. The incidence of anencephaly, one form of neural tube defect, has been reported to occur as frequently as 1 to 5 in 1000 live births in the past. However, dietary folic acid supplementation by mothers-to-be before and during pregnancy can reduce the incidence of such birth defects. The rate of anencephaly is now less than 1 in 10,000 live births in some places.

37. NORD - National Organization For Rare Disorders, Inc.
    anencephaly. To purchase fulltext report ($7.50) View Cart/Checkout. Copyright 1988, 1989, 1990, 1992, 1999, 2002 Synonyms of anencephaly No synonyms found.  
    http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Anencephaly

38. Calebs Memorial
    Memorial to Caleb who was lost to anencephaly on March 30, 1999.  
    http://www.geocities.com/angel33099/
    
    Extractions: Welcome To Calebs Memorial This Memorial Site is for our baby Caleb, he was diagnosed with Anencephaly when I was 4 months pregnant. On that day we had a very hard decision to make but there was no doubt in my mind that I would try and carry our baby to term. There isn't a decision to me that can be the wrong decision to make, we all love our precious babies very much and will do what we feel is best. This decision is the first hard one we had to make as parents. I have made this site not only in the memory of my little angel, but for other parents who are hurting and need support. I want them to know that they are not alone, we do care. I want them to know that we know and feel their pain, and it's hard. This site is for ALL the Mommy's and Daddy's that have lost a baby to Anencephaly. May God Bless you and give you strength in your time of need. Where would you like to go? SITE MAP Please stay awhile a browse through our pages, I'm sure you'll enjoy your stay. Many thanks to Sassy for this wonderful gift!!! Feel free to place this banner on your website with a link back to this page.

39. Anencephaly
    Provides an article about anencephaly.  
    http://www.healthlink.mcw.edu/article/921383913.html
    
    Extractions: Subscribe now >> Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposednot covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. Although it is believed that the mother’s diet and vitamin intake may play a role, scientists believe that many other factors are also involved.

40. In Loving Memory Of Annalise
    Memorial to this child lost August 14, 1998, to anencephaly and spina bifada.  
    http://www.geocities.com/simonmanz/
    
    Extractions: I live in Tasmania, Australia, and all of the personal stories on the internet are written by other Mothers who, as far as I am aware, live in America. By writing of my journey through the weeks after the  diagnosis till Annalise's eventual death, I hope my story will be of encouragement to other mothers carrying their babies to term with anencephaly or any fatal defect.

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