Alstrom Syndrome International Mutual support and networking for families affected by Alstrom s syndrome. SupportsTitle alstrom syndrome International. http://www.medhelp.org/amshc/amshc244.htm
Extractions: Title: Alstrom Syndrome International Description: Mutual support and networking for families affected by Alstrom's syndrome. Supports medical research intiatives to more fully understand the syndrome's complexities and develop better therapies. Provides information resources to families and physicians. Scope: International network Number Groups: 2 affiliated groups Founded: Address: 14 Whitney Farm Rd. United States Telephone: 1-800-371-3628 or (207)288-6385 Email: jdm@jax.org Web Address: http://www.jax.org/alstrom This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International . Please send corrections/updates to admin@selfhelpgroups.org
Alstrom's Syndrome Founded 1995. Provides supports and networking for families affected by alstrom syndrome. Alstrom s Syndrome. alstrom syndrome International. http://www.bchealthguide.org/kbase/shc/shc29als.htm
Extractions: document.write(''); var hwPrint=1; var hwDocHWID="shc29als"; var hwDocTitle="Alstrom's Syndrome"; var hwRank="1"; var hwSectionHWID="shc29als"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="SHC"; International Network. 2 affiliated groups (Canada and UK). Founded 1995. Provides supports and networking for families affected by Alstrom syndrome. Supports medical research initiatives to more fully understand the complexities of Alstrom syndrome and develop better therapies for Alstrom patients. Publishes a quarterly newsletter. Provides information resources to families and physicians. The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org
Laurence Moon Syndrome alstrom syndrome is a rare inherited disorder characterized by progressive loss of vision (retinitis pigmentosa) and childhood obesity. http://www.bchealthguide.org/kbase/nord/nord104.htm
Extractions: It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Information on the following diseases can be found in the Related Disorders section of this report: Laurence-Moon Syndrome is a rare inherited disorder characterized by diminished hormone production by the testes or ovaries (hypogonadism), progressive loss of vision (retinitis pigmentosa), mental retardation, and paralysis of the legs and lower part of the body accompanied by involuntary muscle contractions (spastic paraplegia). Confusion exists in the medical literature regarding the difference between Laurence-Moon Syndrome and Bardet-Biedl Syndrome. Some researchers believe that Bardet-Biedl Syndrome is a subdivision of Laurence-Moon Syndrome which they term "Laurence-Moon-Biedl Syndrome."
► Alstrom Syndrome Home Medical Reference Encyclopedia (English) Toggle English / Spanish alstrom syndrome. AlstromHallgren syndrome; Alstroem s retino-otodiabetic syndrome. http://www.umm.edu/ency/article/001665.htm
Disease Directory : Rare Disorders : Alstrom Syndrome Diseases Rare Disorders alstrom syndrome. AllRefer Health alstrom syndrome Support Groups - alstrom syndrome. alstrom syndrome Support Groups. http://www.diseasedirectory.net/Rare_Disorders/Alstrom_Syndrome/default.aspx
Extractions: Alstrom Syndrome ... Rare Disorders : Alstrom Syndrome Aicardi Syndrome Foundation - Information about the disease, a medical survey, where to get help, publications and a chat room for support. AllRefer Health - Alstrom Syndrome Support Groups - Alstrom Syndrome. Alstrom Syndrome Support Groups. Alstrm Syndrome International 14 Whitney Farm Road Mount Desert, Maine 04660. Main Page of Alstrom Syndrome. Alstrom Syndrome - More Alstrom Syndrome Categories: » Submit Your Site to the Alstrom Syndrome category. Submit Your Site to the Alstrom Syndrome category. Featured Partner. Alstrom syndrome - Alstrom syndrome. Definition: Alternative Names: Alstrom-Hallgren syndrome; Alstroem's retino-otodiabetic syndrome. Causes, incidence, and risk factors: Alstrom Syndrome - Clinical features, literature and research. Includes guidelines for health care professionals. Alstrom Syndrome - last update: 27/03/2003. Disease Names/Indications, Locus/Gene(s), OMIM(s), Contact. ALSTROM SYNDROME ALMS. 2p13 ALMS1. 203800. 606844. Kim Flintoff. Brief Description. Alstrom Syndrome - 10/11/2003: Delivery of a genetic diagnosis service for Alstrom syndrome Alstrom Syndrome articles, support groups, and resources
Disease Directory : Alstrom Syndrome Diseases Rare Disorders alstrom syndrome alstrom syndrome. Directory Listing. Submit Your Site to the alstrom syndrome category. Featured Partner. http://www.diseasedirectory.net/detailed/27413.aspx
Alstrom Syndrome UK Support Group - Newsletter 6 Information centre and discussion forum for anyone with an interest in alstrom syndrome. Return to Top ^. Report 1st alstrom syndrome Clinic (1 Nov 1999). http://www.btinternet.com/~eyeconditions/alstrom/news6.htm
Extractions: In this edition: Editorial Carl-Henry Alstrom Biog Alstrom Clinic Alstrom Conference ... Fundraising Editorial So I thought I would begin this New Year edition with the biography of Carl-Henry Alstrom, this first appeared in the SASF International newsletter so some of you may already have read it. Return to Top ^ BIOGRAPHY: CARL-HENRY ALSTROM Carl-Henry Alstrom was born in Vasteras, Sweden on 3 May 1907. He studied in Stockholm and received his doctorate in psychiatry in 1935 at the Karolinska Institute of Medicine. He began his career as a research scientist in 1938 when he published his landmark observations on the connection between schizophrenia and tuberculosis. From 1940-42 he was Deputy Director of the Institute for Human Genetics at Uppsala, where he conducted genetic research. In 1945 he was made 2n d Assistant Physician at the Neurological Clinic in the famous Serafimerlasarettet Hospital Stockholm. He was Director of the Experimental Psychiatry Clinical Laboratory from 1948-1960, with an interest in the clinical,social and genetic aspects of epilepsy. A study published by Alstrom in1950 is still considered a landmark on the subject of epileptics in society. He subsequently became Head of the Department of Psychiatry, Karolinska Institute at St Gorans Hospital, Stockholm and served with distinction from 1961 until his retirement in 1973. The new syndrome was known for a short time as the Alstrom-Hallgren syndrome, but later was designated simply Alstrom Syndrome. Although they searched throughout Sweden, Alstrom and his colleagues found no other cases of Alstrom Syndrome. There are several Alstrom Syndrome patients now living in Sweden, but as yet scientists have not been able to determine if they are related to the first patients of Carl-Henry Alstrom.
Rare Disorders, Alstrom Syndrome Submit Your Site to the alstrom syndrome category. Sponsored alstrom syndrome Sites. Submit Your Site to the alstrom syndrome category. Health Spotlight. http://www.iseekhealth.com/alstrom_syndrome-2194.php
University Of Miami School Of Medicine - Glossary - Alstrom Syndrome Medical Dictionary. alstrom syndrome. The visual defect involves conerod retinal dystrophy. alstrom syndrome is an autosomal recessive condition. http://www.med.miami.edu/patients/glossary/art.asp?articlekey=20241
Alstrom Syndrome UK (Specific Eye Conditions Web Site) alstrom syndrome UK. alstrom syndrome UK, 49 Southfield Avenue, Paignton, Devon, TQ3 1LH. Tel +44 (0)1803 524238 EMail info@alstrom.org.uk. http://www.eyeconditions.org.uk/alstrom.htm
Extractions: Alstrom Syndrome UK, 49 Southfield Avenue, Paignton, Devon, TQ3 1LH Tel: +44 (0)1803 524238 E-Mail: info@alstrom.org.uk Website: www.alstrom.org.uk What is Alström Syndrome? Alström Syndrome is a very rare, hereditary genetic disorder comprised of many component conditions, first described by C.H. Alström in Sweden in 1959. The symptoms of the components of the condition arise at different stages making diagnosis difficult. The features of this very complex disorder are childhood blindness, early hearing loss, diabetes, kidney failure and cardiomyopathy, a heart condition which if left untreated can lead to heart failure. Cardiomyopathy may be the first symptom to present with Alström Syndrome, in many of the children with Alström Syndrome cardiomyopathy has presented during the first 6 months of life.
Rare Disorders: Alstrom Syndrome Rare Disorders alstrom syndrome. alstrom syndrome. Clinical features, literature and research. Includes alstrom syndrome of Canada. Includes http://www.puredirectory.com/Health/Conditions-and-Diseases/Rare-Disorders/Alstr
Health, Conditions And Diseases, Rare Disorders: Alstrom Syndrome alstrom syndrome UK Support Group Information centre and discussion forum for anyone with an interest in this disorder. Alstrom http://www.combose.com/Health/Conditions_and_Diseases/Rare_Disorders/Alstrom_Syn
Extractions: Related links of interest: A rare disorder inherited as an autosomal recessive genetic trait. Characteristic features of this disorder include progressive loss of vision and hearing beginning in early childhood, diabetes mellitus, and obesity. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The combose.com directory is based on the Open Directory and has been modified and enhanced using our own technology.
:: Ez2Find :: Alstrom Syndrome Guide alstrom syndrome, Global Metasearch Any Language Guides, alstrom syndrome. ez2Find Home Directory Health http://ez2find.com/cgi-bin/directory/meta/search.pl/Health/Conditions_and_Diseas
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Alstrom Syndrome Home Health Conditions and Diseases Rare Disorders alstrom syndrome (6) NORD alstrom syndrome - A general discussion with resources for further reading. http://www.thenewhealthfind.com/Health/ConditionsandDiseases/RareDisorders/Alstr
Alstrom Syndrome : Meddie Health Search alstrom syndrome Contains information about this syndrome, medical references, International Society for alstrom syndrome Families (SASF), and other resources. http://www.meddie.com/Conditions_and_Diseases/Rare_Disorders/Alstrom_Syndrome/
Health Library - Alstrom s Syndrome. Self Help Clearinghouse. alstrom syndrome International. International Network. 2 affiliated groups (Canada and UK). http://12.42.224.152/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29als
Fund-raiser To Assist Youngster Afflicted With Extremely Rare Fundraiser to assist youngster afflicted with extremely rare alstrom syndrome. (Doctors) recently discovered the gene for alstrom syndrome, said Bates. http://www.westernwheel.com/010711/news-alstrom.html
