41. Usher Syndrome In The School Setting usher syndrome in the School Setting. Ilene Miner, CSW Joe Cioffi, M. Ed. Published by Helen Keller National Center Technical Assistance http://www.tr.wou.edu/dblink/usher-index.htm

Text only please DB-LINK Home Selected Topics Introduction ... Resources Usher Syndrome in the School Setting Ilene Miner, CSW Published by Helen Keller National Center Technical Assistance Center Sands Point, NY 11050 The development and dissemination of this monograph was supported by cooperative agreement #H025E50001 from the U.S. Department of Education . The opinions expressed in this monograph are solely those of the authors. No official endorsement by the U.S. Department of Education is intended or should be inferred. About the Authors Ilene Miner, CSW, ACSW, is a certified social worker who has worked with deaf and deaf-blind youth for 20 years. She is fluent in American Sign Language. She is currently Director of Mental Health Services at The League for the Hard of Hearing in New York City. For five years she was consulting clinical social worker at Helen Keller National Center in Sands Point, New York where she provided individual counseling, psychosocial assessments, and co-facilitated the Usher Support Group. She has published several articles on the psycho-social aspects of Usher syndrome, has just completed a book chapter on psychotherapy with deaf-blind people, and presents at workshops related to Usher syndrome around the country and abroad. Joe Cioffi M.Ed. is a deaf-blind education specialist and a certified Orientation and Mobility specialist. He is fluent in ASL and has worked with deaf-blind adults and children for 20 years. Currently, he is working as a free-lance consultant for a variety of schools and state agencies which provide services to deaf-blind adults and children. He has published articles previously on the subject of Orientation and Mobility and deaf-blindness, and has traveled extensively in the USA and abroad providing training to professionals in Usher syndrome and Orientation and Mobility.

42. Bbc.co.uk - Health - Illnesses And Conditions - Usher Syndrome An inherited condition. usher syndrome is a genetic condition which is inherited in an autosomal recessive fashion. At least three types of usher syndrome. http://www.bbc.co.uk/health/conditions/usher_syndrome.shtml

@import url('/includes/tbenh.css') ; Home TV Radio Talk ... A-Z Index THURSDAY 3rd June 2004 Text only BBC Homepage Health Home Lifestyle Home ... Conditions QUICK GUIDE A-Z Children's Ailments IN-DEPTH Addictions Allergies Arthritis Asthma ... Help Like this page? Send it to a friend! A-Z Illnesses and Conditions Usher Syndrome By Dr Trisha Macnair An inherited condition At least three types of Usher Syndrome Early recognition means better treatment It's rare for a child to have problems with both their hearing and their vision but when this happens the most common cause is Usher syndrome. Between 3 and 6% of all children with hearing difficulties have this syndrome. It affects about 1 in every 25,000 babies born in developed countries. The visual problems are due to a condition called Retinitis Pigmentosa, in which the retina slowly degenerates and gradually loses its ability to send images to the brain, resulting in a progressive loss in vision. An inherited condition Usher syndrome is a genetic condition which is inherited in an autosomal recessive fashion. This means that a child will only develop the condition if they inherit two genes for Usher syndrome, one from each parent. In most cases each parent only carries one Usher syndrome gene, so they don't have the condition themselves and are often unaware that they are a carrier. For a diagram explaining inheritance see: www.nei.nih.gov/health/ushers/

43. Usher Syndrome,Hereditary Deafness-Retinitis Pigmentosa,Retinitis Pigmentosa And usher syndrome,Hereditary DeafnessRetinitis Pigmentosa,Retinitis Pigmentosa and Congenital Deafness,Usher Type I,Usher Type II,Usher Type III,Usher Type IV http://www.icomm.ca/geneinfo/usher.htm

Usher Syndrome,Hereditary Deafness-Retinitis Pigmentosa,Retinitis Pigmentosa and Congenital Deafness,Usher Type I,Usher Type II,Usher Type III,Usher Type IV,Usher Syndrome,Hereditary Deafness-Retinitis Pigmentosa,Retinitis Pigmentosa and Congenital Deafness,Usher Type I,Usher Type II,Usher Type III,Usher Type IV For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Usher's Syndrome also known as: Hereditary Deafness-Retinitis Pigmentosa Retinitis Pigmentosa and Congenital Deafness Disorder Subdivisions Usher Type I Usher Type II Usher Type III Usher Type IV (as defined by the National Organization for Rare Disorders Usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa, a disorder that causes progressive loss of vision. Researchers have identified three types of Usher syndrome and debated the existence of a fourth type.

44. Usher Syndrome usher syndrome Important It is possible that the main title of the report usher syndrome is not the name you expected. Please check http://my.webmd.com/hw/raising_a_family/nord529.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Usher Syndrome Important It is possible that the main title of the report Usher Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Hereditary Deafness-Retinitis Pigmentosa Retinitis Pigmentosa and Congenital Deafness Disorder Subdivisions Usher Type I Usher Type II Usher Type III Usher Type IV General Discussion Usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa, a disorder that causes progressive loss of vision. Researchers have identified three types of Usher syndrome and debated the existence of a fourth type. The age at which the disorder appears along with the severity of symptoms distinguishes the different types of Usher syndrome. Usher syndrome is inherited as an autosomal recessive genetic trait. The possible fourth type of Usher syndrome may be inherited as an X-linked genetic trait. Resources National Association for Visually Handicapped 22 West 21st Street

45. Usher Syndrome - Otolaryngology Health Guide Definition, types, diagnosing and treatment for usher syndrome, a common hearing disorder. Otolaryngology. usher syndrome. What is usher syndrome? http://www.umm.edu/ent/usher.htm

Otolaryngology Health Guide Ear, Nose, and Throat Disorders... Balance Disorders... Hearing Disorders... ... Index Related Resources Within UMM Otolaryngology Otolaryngology Usher Syndrome What is Usher syndrome? Usher syndrome is an inherited disorder that involves both a hearing impairment and a vision impairment called retinitis pigmentosa. Some people also have varying problems with balance. Usher syndrome is passed from parents to their child(ren) genetically. What are the different types of Usher syndrome? There are three types of Usher syndrome: US type 1 (US1) - characteristics include: profoundly deaf from birth do not usually benefit from hearing aids severe balance problems vision problems begin by age 10 blindness eventually occurs US type 2 (US2) - characteristics include: moderate to severe hearing problems usually benefit from hearing aids use speech to communicate normal balance retinitis pigmentosa begins in teenage years US type 3 (US3) - characteristics include: born with normal hearing hearing problems develop in teenage years near normal balance deafness by late adulthood retinitis pigmentosa begins around puberty blindness by mid-adulthood How is Usher syndrome diagnosed?

46. Usher Syndrome - Medical Dictionary Definitions Of Popular Medical Terms MedicineNet Home MedTerms medical dictionary AZ List usher syndrome. Advanced Search. Some people with usher syndrome also have balance problems. http://www.medterms.com/script/main/art.asp?articlekey=16123

47. Syndrome, Usher - Medical Dictionary Definitions Of Popular Medical Terms time. Some people with usher syndrome also have balance problems. vision. More than half of all deafblind people have usher syndrome. http://www.medterms.com/script/main/art.asp?articlekey=16132

48. Health Library - usher syndrome. Synonyms Researchers have identified three types of usher syndrome and debated the existence of a fourth type. The http://yalenewhavenhealth.org/library/healthguide/IllnessConditions/topic.asp?hw

49. Otolaryngology - Usher Syndrome usher syndrome What is usher syndrome? usher syndrome is passed from parents to their children genetically. What are the different types of usher syndrome? http://www.stjohnsmercy.org/healthinfo/adult/ent/usher.asp

Search Health Information Adult Health Otolaryngology Printable Version Usher Syndrome What is Usher syndrome? Usher syndrome is an inherited disorder that involves both a hearing impairment and a vision impairment called retinitis pigmentosa. Some people also have varying problems with balance. Usher syndrome is passed from parents to their children genetically. What are the different types of Usher syndrome? There are three types of Usher syndrome: US type 1 (US1) - characteristics include: profoundly deaf from birth do not usually benefit from hearing aids severe balance problems vision problems begin by age 10 blindness eventually occurs US type 2 (US2) - characteristics include: moderate to severe hearing problems usually benefit from hearing aids use speech to communicate normal balance retinitis pigmentosa begins in teenage years US type 3 (US3) - characteristics include: born with normal hearing hearing problems develop in teenage years near normal balance deafness by late adulthood retinitis pigmentosa begins around puberty blindness by mid-adulthood How is Usher syndrome diagnosed?

50. Usher Syndrome usher syndrome. What is usher syndrome? usher syndrome (US) is the most common condition that involves both hearing and vision problems. http://www.clevelandclinic.org/health/health-info/docs/1000/1007.asp?index=5843

51. The Foundation Fighting Blindness - Canada usher syndrome, Printer Friendly. What is usher syndrome? usher syndrome is the name given to a group of inherited disorders that cause hearing and vision loss. http://www.ffb.ca/disease_usher.php?hc=1

52. Early Diagnosis Of Usher Syndrome Type 1 Made Possible By New Early Diagnosis Of usher syndrome Type 1 Made Possible By New Findings Can Help Ashkenazi Jewish Children Who are Born Deaf and Have Progressive Loss of Sight http://www.pslgroup.com/dg/230ffa.htm

53. Emory Healthcare: Usher Syndrome usher syndrome. by Laurie Rosenblum, MPH. Definition. usher syndrome is a rare inherited disorder that involves loss of both hearing and sight. http://www.emoryhealthcare.org/HealthGate/22833.html

Making People Healthy Home Find a Physician Departments Facilities ... Ways to Give Search: Patient/Visitor Guide About Us For Physicians News/Media ... Ways to Give "U.S." News Ranks Emory University Hospital Among Nation's Best Hospitals In Seven Specialties Click Here for More.... Audiology Usher Syndrome by Laurie Rosenblum, MPH Definition Usher syndrome is a rare inherited disorder that involves loss of both hearing and sight. Hearing loss is usually present at birth or soon thereafter. It is due to an impaired ability of the auditory nerves to transmit sensory input to the brain. It is called sensorineural hearing loss. The vision loss, called retinitis pigmentosa (RP), begins later in childhood, usually after age ten. It slowly gets worse over time. During the teen years, loss of vision is characterized by night blindness and loss of peripheral vision. RP is a deterioration of the retina. The retina is a layer of light-sensitive tissue that lines the back of the eye. It converts visual images into nerve impulses in the brain that allow us to see. Three types of Usher syndrome have been identified: types I, II, and III. The age of onset and severity of symptoms distinguish the different types.

54. NIDCD Health Information . Usher Syndrome usher syndrome. What is usher syndrome? usher syndrome (US) is the most common condition that involves both hearing and vision problems. http://www.medhelp.org/NIHlib/GF-389.html

Health Information Hearing and Balance Smell and Taste Voice, Speech, and Language Spanish Publications ... Healthy People 2010 Search this site Usher Syndrome What is Usher syndrome? Who is affected by Usher syndrome? What causes Usher syndrome? What are the types of Usher syndrome? ... Where can I get additional information? What is Usher syndrome? Usher syndrome (US) is the most common condition that involves both hearing and vision problems. A syndrome is a disease or disorder that has more than one feature or symptom. The major symptoms of US are hearing impairment and an eye disorder called retinitis pigmentosa, in which vision worsens over time. Some people with US also have balance problems. There are three different types of US. Although it was first described by Albrecht Von Graefe in 1858, US was named for Charles Usher, a British eye doctor, who believed that this condition was inherited or passed from parents to their children. Who is affected by Usher syndrome? More than half of the estimated 16,000 deaf-blind people in the United States are believed to have US. What causes Usher syndrome?

55. Usher Syndrome - Special Needs - Raising Deaf Kids usher syndrome. Read this page if your child has a hearing loss and also has a vision or seeing problem. That could mean he has usher syndrome. http://www.raisingdeafkids.org/special/usher/

Search RaisingDeafKids.org Hearing Hearing Loss Growing Up With Hearing Loss Learning ... Print this page with Adobe Acrobat Usher Syndrome Read this page if your child has a hearing loss and also has a vision or seeing problem. That could mean he has Usher Syndrome. What is Usher Syndrome? Usher Syndrome (UH-shur SIN-drum) is a disease that makes people lose some of their hearing and some of their vision. The vision loss is caused by a disease called Retinitis Pigmentosa . Doctors call this disease RP for short. People with Usher Syndrome are usually born with some hearing loss. The amount of hearing loss is different for different people: It can be mild, moderate, severe, or profound. It can get worse over time. This is called progressive hearing loss . Or the hearing loss can stay the same. People with Usher Syndrome usually lose their sight later in life. People with Usher Syndrome lose their night vision first. That means they have trouble seeing in the dark. It usually starts to happen when the person is a teenager. But it can also happen earlier, during childhood. Not everyone loses the same amount of seeing and hearing People with Usher Syndrome usually don't lose all of their hearing and sight. But they usually have lost a lot of their sight by the age of 30 or 40. This kind of sight loss is called being

56. Usher Syndrome - Special Needs - Raising Deaf Kids Signs of usher syndrome. Get your child tested for usher syndrome if he starts having trouble seeing things. There s no cure for usher syndrome. http://www.raisingdeafkids.org/special/usher/signs.jsp

57. Retinal Degenerative Diseases - Usher Syndrome usher syndrome. A Condition which affects Hearing and Sight. by Mary Guest, Head of Usher Services at Sense. What is it ? Transmission of usher syndrome,. http://www.retina-international.org/usher.htm

Retina International Seeking a cure for Retinitis Pigmentosa (RP), Macular Degeneration, Usher Syndrome and allied retinal distrophies Usher Syndrome A Condition which affects Hearing and Sight. by Mary Guest, Head of Usher Services at Sense. What is it ? Usher syndrome is an inherited condition which results in hearing loss and a progressive loss of vision from Retinitis pigmentosa (RP). The hearing loss is thought to be congenital, and ranges from moderate to profound. RP can occur without hearing loss. The condition is named after a British ophthalmologist, C.H. Usher, who in a paper in 1914 described several cases in which the link between congenital deafness and RP was stressed. However, as far back as 1860 workers such as von Graef and Liebreich in Berlin were aware of the link between congenital deafness and RP, especially in consanguinous marriages. Retinitis Pigmentosa, This term describes not one disease but a group of hereditary diseases of the retina. The retina is the light sensitive tissue inside the eye in which the first stages of 'seeing' take place. With RP the retina slowly degenerates and loses its ability to transmit pictures to the brain. In advanced stages characteristic clumps of pigment appear on the retina and can be seen through an ophthalmoscope. Symptoms

58. Usher Syndrome usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to http://www.bchealthguide.org/kbase/nord/nord529.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord529"; var hwDocTitle="Usher Syndrome"; var hwRank="1"; var hwSectionHWID="nord529"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Usher Syndrome Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Hereditary Deafness-Retinitis Pigmentosa Retinitis Pigmentosa and Congenital Deafness Disorder Subdivisions Usher Type I Usher Type II Usher Type III Usher Type IV Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Retinitis Pigmentosa Hallgren Syndrome Alstrom Syndrome Rubella General Discussion Usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa, a disorder that causes progressive loss of vision. Researchers have identified three types of Usher syndrome and debated the existence of a fourth type. The age at which the disorder appears along with the severity of symptoms distinguishes the different types of Usher syndrome. Usher syndrome is inherited as an autosomal recessive genetic trait. The possible fourth type of Usher syndrome may be inherited as an X-linked genetic trait.

59. Annual Reviews - Error Abstract usher syndrome (USH) is defined by the association of sensorineural deafness and visual impairment due to retinitis pigmentosa. http://arjournals.annualreviews.org/doi/full/10.1146/annurev.genom.2.1.271

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60. Usher Syndrome - Lincolnshire County Council usher syndrome. About Usher usher syndrome is a major also that it occurred in certain families. usher syndrome is a genetic condition. http://www.lincolnshire.gov.uk/section.asp?catId=2616

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