21. Healthfinder® — Treacher Collins Foundation - TCF Collins Foundation is a nonprofit organization founded in 1988 to serve the needs of families/individuals affected by treacher collins syndrome, a rare facial http://www.healthfinder.gov/orgs/HR2394.htm

health library just for you health care organizations search: help Treacher Collins Foundation - TCF organization URL(s) www.treachercollinsfnd.org other contact information P.O. Box 683 Norwich, VT 05055-0683 802-649-3050 (Voice) description The Treacher Collins Foundation is a non-profit organization founded in 1988 to serve the needs of families/individuals affected by Treacher Collins Syndrome, a rare facial deformity involving underdevelopment of the bone and soft tissue of the face and head. The central mission of TCF is to link together people and families affected by Treacher Collins syndrome, for mutual support. Information and referrals are offered for the areas of psychosocial implications, genetics, feeding and breathing issues, hearing aids, speech and language development, IEP development, reconstructive surgeries and insurance coverage. There are no charges for services. online resources Treacher Collins Syndrome: An Overview http://www.treachercollinsfnd.org/e_reich.htm

22. Treacher Collins Syndrome Facial Differences Conditions And Diseases Support Gro Support Groups. Most comprehensive resource on Support Groups Conditions And Diseases Facial Differences treacher collins syndrome. http://support-groups.health.designerz.com/support-groups-conditions-and-disease

Map.Designerz.com Health.Designerz.com Support Groups News Support Groups Chat ... Mailing List document.write(' '); Health Support Groups Conditions and Diseases Facial Differences Treacher Collins Syndrome ... Support Groups Chat Channels Visited Clear Featured Links Web Hosting Domain Names Designerz Portals Store Sign up for our mailing list ... Support Groups A comprehensive resource on Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome Show Health support groups (Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome) content on your web site Reach Health support groups (Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome) Audience Save on Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome books, magazines and software See which Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome domain names are available Search Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome on other search engines Press Releases, Stories and Articles on Support Groups Conditions And Diseases Facial Differences Treacher Collins Syndrome View all press releases Submit your press release View all articles Submit your article Featured Results (opens in a new window) Treacher Collins Connection Building a community of people with Treacher Collins syndrome and their families in an environment that transforms people through face to face sharing of experiences, heartaches, and love.

23. Treacher Collins Syndrome treacher collins syndrome Important It is possible that the main title of the report treacher collins syndrome is not the name you expected. http://my.webmd.com/hw/health_guide_atoz/nord647.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... For a Complete Report Treacher Collins Syndrome Important It is possible that the main title of the report Treacher Collins Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Treacher Collins-Franceschetti Syndrome 1 Mandibulofacial Dysostosis Franceschetti-Zwalen-Klein Syndrome TCS Disorder Subdivisions None General Discussion Treacher Collins Syndrome is a rare inherited disorder characterized by distinctive abnormalities of the head and facial (craniofacial) area due to underdevelopment (hypoplasia) of certain portions of the skull (e.g., supraorbital rims and zygomatic arches). Although the symptoms and physical characteristics associated with Treacher Collins Syndrome can vary greatly in severity from patient to patient, craniofacial abnormalities tend to involve the cheekbones, jaws, mouth, ears, and/or eyes. Resources Treacher Collins Foundation P.O. Box 683

24. Treacher Collins Syndrome Treacher Collins Foundation. treacher collins syndrome Treacher Collins Foundation National network. Founded 1988 Support for families http://my.webmd.com/hw/health_guide_atoz/shc29tre.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... Treacher Collins Foundation Treacher Collins Syndrome Treacher Collins Foundation National network. Founded 1988 Support for families, individuals and professionals re: Treacher Collins syndrome and related disorders. Provides networking, educational materials, newsletter, information and referrals, phone support, resource list, bibliography and central library, videos and booklets. Online resources and newsletter. WRITE: Treacher Collins Fdn. P.O. Box 683 Norwich, VT 05055 CALL: 802-649-3050 WEBSITE: http://treachercollinsfnd.org/ VERIFIED: 3/31/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

25. Treacher Collins' Syndrome Treacher collins syndrome,. Print this article, (Edward Treacher Collins, 18621932, British surgeon), autosomal dominant malformation with variable expression. http://www.amershamhealth.com/medcyclopaedia/medical/Volume VI 2/TREACHER COLLIN

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Treacher collins' syndrome, (Edward Treacher Collins, 18621932, British surgeon), autosomal dominant malformation with variable expression. The features of the syndrome are symmetrical. Hypoplasia of the malar bones and the mandible causes a hypoplastic face with sunken cheek bones. Eye abnormalities include a congenital notch in the lower eyelid margin (eyelid coloboma), and antimongoloid slanting of the palpebral fissure. The auricle is usually malformed and the external auditory meatus may be stenotic or atretic. The middle ear appears hypoplastic; the mastoid is unpneumatized. The tegmen tympani shows variable descent. Ossicular malformations are often present. The facial nerve very often follows an aberrant route through the temporal bone. The inner ear usually appears normal, although the lateral semicircular canal may be shortened and dilated. Apart from the head and neck manifestations, patients may have other abnormalities.

26. Treacher Collins Syndrome treacher collins syndrome,. Print this article, (Edward Treacher Collins, 18621932, English surgeon), syndrome caused by malformation http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/TREACHER COLLINS

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Treacher collins syndrome, (Edward Treacher Collins, 18621932, English surgeon), syndrome caused by malformation of the structures derived from the first and second pharyngeal pouches, resulting in hypoplasia of the face with sunken cheeks, malformed ears, conductive nerve deafness and malocclusion of the teeth. Most cases are sporadic. Radiologically, there is hypoplasia of the malar bones, underdevelopment of the mandible, hypoplasia of the paranasal sinuses and congenital ear anomalies, which include absence of the external auditory canal and abnormalities of the ossicles. HC The Encyclopaedia of Medical Imaging Volume VII Contacts GE Healthcare Making Waves

27. Treacher Collins Syndrome treacher collins syndrome Mandibulofacial Dysostosis. Special Resources SOS Ask experts or consultants for information treacher collins syndrome. http://ibis-birthdefects.org/start/tcsfact.htm

Tips for printing Treacher Collins Syndrome Mandibulofacial Dysostosis About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Deafness Cleft Palate Support Groups Professional Associations ... Key Information Sources Contents include Titles above and Acrofacial Dysostosis 1 Collins Treacher Franceschetti Dysostosis, Mandibulofacial Dysostosis, Nager Acrofacial Francheschetti Klein Francheschetti, Treacher Collins Klein Francheschetti Mandibulofacial Dysostosis Mandibulofacial Dysostosis with Limb Anomalies Nager Acrofacial Dysostosis TCS Treacher Collins Franceschetti "Treacle" Gene Special Resources Treacher Collins Syndrome A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Dutch] [French] [German] [Spanish] [Swedish] [Ukrainian] [*] [P] Treacher Collins Franceschetti Syndrome 1 from OMIM Gene Map Locus: 5q32-q33.1 [*] [P] Acrofacial Dysostosis 1, Nager Type

28. Treacher Collins Syndrome,Treacher Collins-Franceschetti Syndrome 1,Mandibulofac treacher collins syndrome,Treacher CollinsFranceschetti Syndrome 1,Mandibulofacial Dysostosis,MFD1,TCOF1,Franceschetti-Zwalen-Klein Syndrome,TCS,Treacher http://www.icomm.ca/geneinfo/treacher.htm

Treacher Collins Syndrome,Treacher Collins-Franceschetti Syndrome 1,Mandibulofacial Dysostosis,MFD1,TCOF1,Franceschetti-Zwalen-Klein Syndrome,TCS,Treacher Collins Syndrome,Treacher Collins-Franceschetti Syndrome 1,Mandibulofacial Dysostosis,MFD1,TCOF1,Franceschetti-Zwalen-Klein Syndrome,TCS For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Treacher-Collins Syndrome also known as: Mandibulofacial Dysostosis Treacher Collins-Franceschetti Syndrome 1 Franceschetti-Zwalen-Klein Syndrome (as defined by the National Organization for Rare Disorders Treacher Collins Syndrome is a rare inherited disorder characterized by distinctive abnormalities of the head and facial (craniofacial) area due to underdevelopment (hypoplasia) of certain portions of the skull (e.g., supraorbital rims and zygomatic arches). Although the symptoms and physical characteristics associated with Treacher Collins Syndrome can vary greatly in severity from patient to patient, craniofacial abnormalities tend to involve the cheekbones, jaws, mouth, ears, and/or eyes. Craniofacial malformations associated with Treacher Collins Syndrome include underdeveloped (hypoplastic) or absent cheek (malar) bones; an incompletely developed, abnormally small lower jaw (mandibular hypoplasia and micrognathia); an unusually large mouth (macrostomia); malformations of the roof of the mouth (palate); and/or dental abnormalities such as misaligned teeth (malocclusion).

29. Treacher Collins Family Support Group treacher collins syndrome, Hearing Aids, Genetics and treacher collins syndrome, The Treacher Collins Family Support Group, http://www.treachercollins.net/

30. Treacher Collins Syndrome treacher collins syndrome is a rare inherited disorder characterized by distinctive abnormalities of the head and facial (craniofacial) area due to http://www.bchealthguide.org/kbase/nord/nord647.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord647"; var hwDocTitle="Treacher Collins Syndrome"; var hwRank="1"; var hwSectionHWID="nord647"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Treacher Collins Syndrome Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Treacher Collins-Franceschetti Syndrome 1 Mandibulofacial Dysostosis Franceschetti-Zwalen-Klein Syndrome TCS Disorder Subdivisions None Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Mandibulofacial Dysostosis, Treacher Collins Type, Autosomal Recessive Nager Syndrome (Acrofacial Dysostosis, Treacher Collins Type, with Limb Anomalies) Miller Syndrome Hemifacial Microsomia Goldenhar Syndrome Oculoauriculovertebral (OAV) Spectrum Maxillofacial Dysostosis NORD wishes to thank John Mulliken, M.D., of Harvard Medical School and The Children's Hospital in Boston, for assistance in updating this report during the fall of 1999.

31. Treacher Collins Syndrome Founded 1988 Support for families, individuals and professionals re treacher collins syndrome and related disorders. treacher collins syndrome. http://www.bchealthguide.org/kbase/shc/shc29tre.htm

document.write(''); var hwPrint=1; var hwDocHWID="shc29tre"; var hwDocTitle="Treacher Collins Syndrome"; var hwRank="1"; var hwSectionHWID="shc29tre"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="SHC"; Self Help Clearinghouse Treacher Collins Syndrome Treacher Collins Foundation National network. Founded 1988 Support for families, individuals and professionals re: Treacher Collins syndrome and related disorders. Provides networking, educational materials, newsletter, information and referrals, phone support, resource list, bibliography and central library, videos and booklets. Online resources and newsletter. WRITE: Treacher Collins Fdn. P.O. Box 683 Norwich, VT 05055 CALL: 802-649-3050 WEBSITE: http://treachercollinsfnd.org/ VERIFIED: 3/31/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

32. The DRM WebWatcher: Treacher Collins This section of The DRM WebWatcher describes online resources about treacher collins syndrome. http://www.disabilityresources.org/TREACHER.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Treacher Collins Syndrome Updated 2/10/2001 A B C D ... About/Hint/Link Treacher Collins (mandibulofacial dysostosis) is a condition that causes abnormalities of the craniofacial area. Although we have not identified any comprehensive resources online, the following are some useful fact sheets and home pages. You may also wish to visit the related topics for more information. Treacher Collins Family Support Group This British support group provides basic informations about Treacher Collins, genetic information, bone conduction and bone anchored hearing aids, and related sites. Treacher Collins Foundation The website of "an organization of families, individuals, and professionals who are interested in developing and sharing knowledge and experience about Treacher Collins syndrome and related conditions." Includes information about the syndrome, a newsletter, bibliography, and other resources. Treacher Collins Network This personal home page by the parents of a child with Treacher Collins offers links to informational and personal home pages, and a bulletin board.

33. Treacher Collins Syndrome treacher collins syndrome. Synonyms. Treacher CollinsFranceschetti Syndrome 1; Mandibulofacial Dysostosis; MFD1; TCOF1; Franceschetti-Zwalen-Klein Syndrome; TCS. http://www.meritcare.com/hwdb/showTopic.asp?pd_hwid=nord647

34. Treacher Collins Syndrome treacher collins syndrome. Founded 1988Support for families, individuals and professionals re treacher collins syndrome and related disorders. http://www.meritcare.com/hwdb/showTopic.asp?pd_hwid=shc29tre

35. International Craniofacial Institute - Cleft Lip And Palate Treatment Center Fetal Alcohol Frontonasal Dysplasia Goldenhar Syndrome Hypertelorism Pfeiffer Syndrome Pierre Robin Syndrome treacher collins syndrome http://www.craniofacial.net/before_after/craniofacial_before_after/treacher_coll

Contact Us Maps and Driving Directions Your Privacy Doctor's Area ... Before and After Pictures Craniofacial Syndromes and Deformities CRANIOFACIAL SYNDROME AND DEFORMITIES BEFORE AND AFTER PICTURES All Aperts Syndrome Crouzons Syndrome Down Syndrome ... Treacher Collins with External Distraction Device Treacher Collins Preoperative frontal view of 16-year-old patient with Treacher Collins Syndrome. No previous correction had been performed. Postoperative lateral view 1 year after orthognathic surgery. Pre and postoperative lateral views of same patient. Every patient's case is unique. Please contact us for a consultation. Contact Us Your Privacy Legal Notices Web Design by Christopher Media

36. Health Library - treacher collins syndrome. Synonyms. Treacher CollinsFranceschetti Syndrome 1; Mandibulofacial Dysostosis; MFD1; TCOF1; Franceschetti-Zwalen-Klein Syndrome; TCS. http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=

37. Treacher Collins Syndrome - Paper By Elizabeth Davis One such rare inherited disorder that has been located and identified is treacher collins syndrome, a birth defect that is characterized by craniofacial http://freespace.virgin.net/tcs.london/info/edavis.htm

Treacher Collins: A Rare Genetic Disorder Affecting Craniofacial Development. By Elizabeth Davis, Mississippi State University. One such rare inherited disorder that has been located and identified is Treacher Collins syndrome, a birth defect that is characterized by craniofacial abnormalities. Treacher Collins syndrome was first described in 1846 and was given its name in 1900 by a British ophthalmologist named Dr. Treacher Collins (What is TCS, 1999). Much attention has been drawn to this rare syndrome, offering many explanations and solutions that will help families cope with a child who has been diagnosed with Treacher Collins. Research has provided professionals and families with answers concerning the prevalence and etiology, characteristics and secondary concerns, and prevention and treatment of Treacher Collins syndrome. Treacher Collins syndrome is a low incidence disorder, affecting approximately 1 in 50,000 births in the general population (NORD, 1999). This genetic disorder is autosomal dominant, meaning the defective gene (received from either of the biological parents) will "dominate" the other normal gene, resulting in the appearance of the disease (NORD, 1999). Only one parent has to carry the dominant, defective gene related to Treacher Collins syndrome. The risk of transmitting the disease from an affected parent to a child is 50 %. This disorder appears to affect both males and females equally; however, research has been contradictory in this area. Currently, at least 400 cases of people diagnosed with Treacher Collins syndrome have been recorded in medical literature (NORD, 1999). Many people, however, have not been diagnosed because they may exhibit only few symptoms and are unaware of their disorder. Also, research findings suggest that a great percentage of those individuals that have been identified are within several large, multi-generational families (NORD, 1999). The defective gene is transmitted to each generation in the family. As the gene passes along through the family's generations, it reinforces the syndrome's hereditary tendencies.

38. Treacher Collins Syndrome - Web Links Has a new message board. treacher collins syndrome A personal web page A Personal site by Amie in Texas who has TCS. Well presented and very readable. http://freespace.virgin.net/tcs.london/link.htm

The Treacher Collins Family Support Group (United Kingdom) Brief explanation of the aims of the support group. Contains information abut the syndrome and the genetics. Also has information on Bone Conduction and Bone Anchored hearing aids. Also a couple of links. Treacher Collins Foundation (United States and Canada) Brief explanation of TCS and information of the foundations services (was known as Treacher Colllins Family Support Network. Serves US and Canada.) This site is part of a much larger site RGDC dedicated to Rare Genetic Diseases in Children. Treacher Collins Network Good list of addresses under "info by mail" link. Other link pages appear to be missing. Has a new message board. Treacher Collins Syndrome - A personal web page A Personal site by Amie in Texas who has TCS. Well presented and very readable. She also has a great quotes page. Includes pictures! Some Common Questions and Answers Concerning Treacher Collins Syndrome Exactly what it says! Very clear and readable, written by Paul who has TCS. One page only. Ce Ce's homepage Another personal site - by CeCe in California who has TCS. Includes pictures, be sure to check out her Butterfly poem!

39. Kent And Medway NHS > Treacher Collins Syndrome Home Disabilities Physical disabilities treacher collins syndrome. Home. Local NHS services. Help. treacher collins syndrome. NATIONAL. http://www.kentandmedway.nhs.uk/disability/physical_disabilities/treacher_collin

Link here to skip site navigation You and Your Health Home Disabilities Physical disabilities Home ... Help Treacher Collins syndrome NATIONAL Contact a Family - Treacher Collins syndrome Information and support for sufferers of Treacher Collins Syndrome (mandibulofacial dysostosis) and their families. Treacher Collins family support group Offers information, support, friendship and advice to individuals and families living with Treacher Collins and similar conditions. Text size help Privacy statement Site produced by Kent and Medway Health Informatics Service access keys

40. Support Groups Treacher Collins Syndrome Support Groups treacher collins syndrome. Microtia Congenital Ear Institute - The Microtia - Congenital Ear Institute is run by http://www.ability.org.uk/support_groups_treacher_collins.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Treacher Collins Syndrome Microtia - Congenital Ear Institute - The Microtia - Congenital Ear Institute is run by J. Arturo Bonilla, M.D. The Institute sees and operates on hundreds of children born with microtia and atresia. The Treacher Collins Network - A condition that affects the craniofacial area with slight to very severe anomalies. The most widely affected area is that of the cheek bones and jawbones, which are underdeveloped. This sometimes leads to breathing and eating complications. Other anomalies include microtia (absence or underdevelopment of the outer ear), hearing loss, abnormal eyelids, downward slanting of the eyes. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

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