101. MY EXPERIENCENCES WITH TOURETTE SYNDROME AND ITS ASSOCIATED DISORDERS Internet links to sites about tourette syndrome, ADHD, Obsessive Compulsive Disorder, and Oppositional Defiant Disorder (provided by a fellow Mom and Child/Family Advocate) http://www.geocities.com/Heartland/Estates/7713/ts.htm

Bobbie Vanover's Home Page Use this menu for quick and easy access to other links and home pages about Tourette Syndrome. Enjoy your journey... Menu Tourette Syndrome Association United States - Chapter Websites International - Chapter Websites Newsletters About Tourette Syndrome ... Associated Disorders Tourette Syndrome Association: List of Chapters in the United States - T.S.A. List of International Chapters - T.S.A. Catalog of Publications and Films Newsletters About Tourette Syndrome: Tourette Syndrome Foundation of Canada - The Green Leaflet Tourette Syndrome Association of New Jersey Tourette Syndrome Association Northern New York Chapter Washington State Chapter of the T.S.A. - Connections Online Resources for Information about TS: Ask Noah About: Tourette Syndrome Association for Comprehensive NeuroTherapy - Latitudes Craig Whitley's Tourette Syndrome On-line El síndrome de Gilles de la Tourette ... Yale University School of Medicine: Child Study Center Articles about TS: A Family Guide to Tourette Syndrome A Mother's Quest for Answers Adults With Tourette Syndrome Brain secrets of Tourette's syndrome revealed ... It's Not Just the Tics: Behavior and Learning Issues...

102. Tourette Syndrome Giles de la tourette syndrome. page. This page has been visited times since 12/16/97. What is tourette syndrome? tourette syndrome http://www.tourette-syndrome.net/

Giles de la Tourette Syndrome Home FAQS Genetics Medications ... Chat HELP! If you have any questions on Tourette Syndrome or any comments or suggestions for this page, or just want to talk to someone about Tourette Syndrome, please SEND ME EMAIL Go to my home page Formerly "Bruce Shapiro's UCLA Tourette Syndrome Page" Click here to get a PDF File Summary of this web page. This page has been visited times since 12/16/97. What is Tourette Syndrome? Tourette Syndrome is an inherited, neurological disorder characterized by repeated and involuntary body movements (tics) and uncontrollable vocal sounds. In a minority of cases, the vocalizations can include socially inappropriate words and phrases called coprolalia. These outbursts are neither intentional nor purposeful. Involuntary symptoms can included eye blinking, repeated throat clearing or sniffing, arm thrusting, kicking movements, shoulder shrugging or jumping. These and other symptoms typically appear before the age of 18 and the condition occurs in all ethnic groups with males affected 3 to 4 times more often than females. Although the symptoms of TS vary from person to person and range from very mild to severe, the majority of cases fall into the mild category. Associated conditions can include obsessivity, attentional problems and impulsiveness. Most people with TS lead productive lives and participate in all professions. Increased public understanding and tolerance of TS symptoms are of paramount importance to people with Tourette Syndrome.

103. Home Page Personal experiences with tourette syndrome. http://www.angelfire.com/mi2/tourette/

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" LEONARD W. MISNER TOURETTE SYNDROME HOME PAGE A funny thing happened on my way through life.. About Me Message to Parents LINKS Newly Diagnosed Welcome. Come in, kick off your shoes and relax. Your among friends. My name is Leonard Misner and on June 21, 1999, at 31 years old, I was diagnosed with Tourette Syndrome ( TS ), A.D.H.D. and OCD. Going forward, upon completion, this site will be dedicated to the education and help to those affected with T.S. Thanks to modern medical technology, the doctors have pinpointed the exact date I contracted T.S. 10-23-1967. the day I was born. It is hereditary passed on through generations affecting some and skipping others. Some people inherit the family fortune, I got T.S. Actually I am relieved, I can now put a name to the problems I've had all my life. About 4 or 5 out of every 10,000 people in the world have T.S.There are two types of tics. Motor and vocal. Most people with TS suffer from both to some extent. Most of my tics are in my arms, neck and head. Motor tics are involuntary movements of the body, and vocal tics can be a wide range of vocal sounds, from barking to swearing, whistling, screaming, saying the same word or phrase repeatedly. None of us want this, but we have it, and we have to live with it. There are many medications for this. some with severe side affects. I have tried a couple of medication with little help. I have decided not to continue medications. Although medication didn't help me, others are having great success with the medications.

104. Home of struggles with undiagnosed TS, and how that shaped this man's personality. Message board provided for people with TS and their family and friends....... http://www.geocities.com/amohs/Home.html

Allen Mohs' Tourette Syndrome Support Page Enter

105. BUBL LINK / 5:15 Internet Resources: Tourette Syndrome Covers a wide range of conditions from alcohol and drug abuse and Alzheimer s disease, to tourette syndrome and Tuberous Sclerosis. http://bubl.ac.uk/link/t/tourettesyndrome.htm

BUBL LINK / 5:15 Catalogue of Internet Resources Home Search Subject Menus A-Z ... About Tourette syndrome A-Z Index Titles Descriptions Brain Connections Online Facts About Tourette Syndrome FAQs About Tourette Syndrome Human Neurological Diseases ... Tourette Syndrome Page last updated: 17 March 2003 Comments: bubl@bubl.ac.uk Brain Connections Online Pointers to organisations that provide information on brain disorders. Covers a wide range of conditions from alcohol and drug abuse and Alzheimer's disease, to Tourette Syndrome and Tuberous Sclerosis. Author: John Lester Subjects: addiction, alcohol, alzheimer's disease, brain, dementia, multiple sclerosis, neurology, tourette syndrome DeweyClass: ResourceType: index Location: usa Last checked: Facts About Tourette Syndrome Resources about Tourette Syndrome: a neurological disorder characterized by tics - involuntary, rapid, sudden movements or vocalizations that occur repeatedly in the same way. Author: Raenna Peiss Subjects: tourette syndrome DeweyClass: ResourceType: documents Location: usa Last checked: FAQs About Tourette Syndrome Document compiled from an open newsgroup answering questions from sufferers, family and friends about Tourette Syndrome. Topics dealt with include tics, such as echolalia, echopraxia, palilalia and coprolalia, emotional and behavioural problems, cause and treatment, and positive aspects of the disorder. A section entitled 'Where do I go from here' provides details of support groups and medical experts around the world.

106. The Tourette Syndrome Phenomenon Mark Kozlowski provides basic information about TS and its characteristics, symptoms, medications, genetics, and parenting of TS children. http://members.tripod.com/~Mark_Kozlowski/

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" At present, nations = 24 The Tourette Syndrome Phenomenon Author and Editor: Mark E. Kozlowski E-MAIL ADDRESS: kozzy69@home.com "Established since March of 1996" What is Tourette Syndrome? A basic definition. The Characteristics of Tourette Syndrome What is Tourette Syndrome? An in-depth, extensive symptomatology. Gts gene mutation complex of Tourette Syndrome Profile of Mark E. Kozlowski The Biblical Research of Mark E. Kozlowski Tourette Syndrome and Human Behavior Search for the Tourette Syndrome and Human Behavior Genes Reader Feedback See what the world is saying about Gts Worldwide. Mark E. Kozlowski, editor and composer of the Tourette Syndrome Phenomenon hits since September, 2001 Over 52,000 hits since March 16, 1996 Keyword Title Author WWW RIOT: Take the web into your hands! This web site is an information service only and does not make any claim to be a clinical or medical service. All material and/or correspondences should always be taken to a qualified physician or specialist for consultation. The author of this web site does not take responsibility for the misuse of any information provided whether on the Web Browser or through e-mail.

107. Tourette Spectrum Disorder Association, Inc. The Tourette Spectrum Disorder Association is a nonprofit organization dedicated to providing up-to-date, accurate information about tourette syndrome. http://www.tourettesyndrome.org/

Welcome to our Web site! The Tourette Spectrum Disorder Association is a non-profit organization dedicated to providing up-to-date, accurate information about Tourette syndrome. Combined with the information accessible by following our links, we think you will find helpful, comprehensive information on this often puzzling disorder. Our Mission The Tourette Spectrum Disorder Association's (TSDA) mission is to promote awareness, greater understanding and to increase education about TS and it's spectrum of manifestations among professionals, the general public, and individuals with TS in order to facilitate the early accurate diagnosis of TS and its associated disorders to promote sympathetic, appropriate treatment for those with this disorder. Services of TSDA: Advocacy School in-service presentations Presentations to physicians Social events Continuing education for nurses and teachers Support groups Distribution of literature Distribution of videos Education and training Networking with other groups Maintain crisis telephone lines Maintain M.D. referral list

108. HealthlinkUSA Tourette Syndrome Links FindWhat. You can find tourette syndrome right now at Info.com. Click here for page 1 of tourette syndrome information from the HealthlinkUSA directory. http://www.healthlinkusa.com/Tourette_Syndrome.html

109. TS101 Provides personal views and experiences with tourette syndrome, types of tics, and lesser known symptoms. Attempts to explain the genetics and chemistry of TS in layman's terms, and refutes prior medical research into its cause and probability. http://au.geocities.com/jones_kacm/

For those who wish to know more than the basics, but who don't have a degree in Biology! Last Updated at 21:50, 16 Feb 2004 Go to table of contents How to reference this site Questions? This site is a member of WebRing. To browse visit Here Other associated Tourette syndrome sites: http://www.mrindianajones.com http://www.tourettes-disorder.com http://www.tourette-syndrome.org

110. Charley's Tourette Syndrome Support Adult TS support, chat room, forum and mailing list http://www.marys-attic.com/personal/index.html

Hi! My name is Charley aka Mary (I go by either). I was diagnosed with Tourette Syndrome, ADD, OCD and PTSD when I was 32, which was approximately 11 years ago. One of the harder things about TS is dealing with it by yourself. This page is dedicated to those with Tourette Syndrome who wish to communicate with someone else, an adult, who has the disease. To e-mail me, fill out the form below and I will get back to you as soon as possible E-mail Messages Regarding TS Your First Name: Your Web Site URL: Your e-mail message: TS Adult Mailing List Join the Mailing List Enter your name and email address below: Name: Email: Subscribe Unsubscribe Free TS Forum TS Adult Chat Room ERROR - Chat Room Requires JAVASCRIPT! TS Links This site is a member of WebRing. To browse visit here Accept Me

111. TOURETTE SYNDROME : Contact A Family - For Families With Disabled Children: Info printer friendly, tourette syndrome, tourette syndrome (UK) ASSOCIATION. tourette syndrome (UK) Association PO Box 26149 Dunfermline http://www.cafamily.org.uk/Direct/t24.html

printer friendly TOURETTE SYNDROME home more about us in your area conditions information ... how you can help search this site Did you find this page helpful? yes no Tourette syndrome: Gilles de la Tourette syndrome This is a condition characterised by multiple tics. Tics are involuntary twitch-like movements involving groups of muscles. In this syndrome, tics characteristically involve the facial area (e.g. blinking, grimacing, nodding) as well as phonic (vocal) tics, although any area can be involved. The tics range from very simple to more complex, purposeful movements. Vocal tics can be as simple as throat clearing or coughing. Tics can be suppressed for a short time and so, for example, the condition may appear different at school compared to home. The onset of the symptoms is usually between the ages of 5-11 with a maximum starting age of 21. There is a very wide range of severity so that many people with the condition may never need to seek medical attention whilst others have a socially disabling condition. Common associations of the syndrome are Obsessive Compulsive Disorder or Behaviour (OCD/OCB) and Attention Deficit Hyperactivity Disorder (ADHD) (see entry.) In some cases echolalia (the repetition of phrases, or mimicking of gestures) may be present. A relatively rare feature in more severe cases is coprolalia (the involuntary use of obscene or offensive words) or copropraxia (the involuntary making of obscene gestures.)

112. In2Eternity Offering information on tourette syndrome, home schooling special needs children and web site design. http://www.in2eternity.com/tourettes.html

My Experience In September of 1996 my son was diagnosed with Tourette Syndrome. At that time, he was six years old. For a little over two years he had been doing things that I didn't understand. He would yell and scream while moving his neck in a shaking type of movement. He would have fits where he was just totally uncontrollable, I mean extremely upset. He couldn't sit still in chairs, he had to bounce up and down. He really couldn't sit still at all. He would spit constantly. He would repeat things over and over again. And if he became sick, these things were 100 times worse. I finally made the decision to take him to a Pediatric Neurologist. That day was a day I will never forget. The doctor told me that my son had Tourette Syndrome. I was in shock. I couldn't believe that my child had something, that at that time, I knew absolutely nothing about. Something I had no control over whatsoever. It took probably two months before I finally realized that Tourettes was not caused by me and the only person whose feelings really mattered was my sons. When I came to grip with that fact I began to research Tourettes. I found a lot of interesting information and sat down and shared it with my son.

113. CQ Vol. 31, #2: Tourette Syndrome Special Series tourette syndrome. tourette syndrome An Inside Perspective. By Susan A. Conners. The subject of that episode was tourette syndrome. http://www.nasponline.org/publications/cq312tsconnors.html

October 2002 Special Series: Tourette Syndrome Tourette Syndrome: An Inside Perspective By Susan A. Conners The Mystique of TS Diagnostic Criteria Tourette Syndrome is a neurological disorder resulting from a chemical imbalance in the brain. There is currently no medical test that will clinically diagnose TS.  It is therefore diagnosed by the presence of four very observable diagnostic criteria which I will list and expand upon in this article.  These diagnostic criteria are as follows: Multiple motor tics Vocal tics Waxing and waning of symptoms Childhood onset of symptoms Motor tics: A vocal tic can be defined as the repeated uttering of a sound, word or phrase.  Vocal tics can be as simple as a constant sniffing or throat clearing.  It could be a squeak, a snort, a howl, a bark or a word or phrase that is repeated over and over.  A boy diagnosed with TS whom I currently teach makes a series of snorts and animal sounds.  He also repeats phrases such as “chickens are fuzzy, chickens are fuzzy” and “I have a chicken in my pants.”  Unfortunately, anyone who knows anything about TS knows of the vocal tic that takes the form of inappropriate language.  This is known as coprolalia.  It does exist and can certainly be a part of Tourette, but is not necessary for a diagnosis.  It actually occurs very infrequently with people with TS.  It usually takes the form of curse words, but could be anything inappropriate such as ethnic slurs or comments on a person’s appearance, such as “you’re bald, you’re fat.”  My student’s “I have a chicken in my pants” could be classified as coprolalia.  In my classroom where we all understand Tourette, it is simply ignored.  In the real world, this certainly would not be the case.

114. Index A family of profoundly gifted children with tourette syndrome Spectrum Disorders. Visit the message board, resources for parents, and resources for kids. http://www.geocities.com/bjslterry/index.html

Dana with her little face squished against the glass was a good opportunity to get a good shot of those big blue eyes. She looks a little strange with her nose and mouth squished flat... but, check out those baby blues. Dana, Sean, and Leah were a little jazzed on Sean's birthday cake. Sean enjoying the Florida sunset, May 2003. More Photos...

115. Tourette Syndrome Association Of Victoria TSA Victoria s book published December 2002 click for more info. A book about tourette syndrome written by our young TS sufferers click for more info. http://www.tsavic.org.au/

About Us What is TS? Latest News Links ... Contact us The Nerve Centre 54 Railway Rd, Blackburn, Victoria, Australia 3130 Ph Fax tourettes@mssociety.com.au Dr Gilles de la Tourette click for more info TSA Victoria's book published December 2002 click for more info A book about Tourette Syndrome written by our young TS sufferers click for more info TSA Victoria's new Interactive CD Rom "No Way, Which Way?" launched October 2003 click for more info Site Design by Devolution The information on this webpage (and any site links, direct or otherwise) is intended to provide basic information about TS and is not intended to nor does it constitute medical advice. Do not change treatment for TS based on this information without first consulting your physician.

116. Tourette Syndrome -- A Mother's Coping Guide Offers some positive aspects of tourette syndrome to encourage children and parents, and help their relationships. http://www.concentric.net/~Mvdoran/tourette.html

Tourette Syndrome A Mother's Coping Guide Created by Margaret V. Doran Parents of any child with a learning disability may find this information helpful. OK, you're the mother of a TS child and you're full of questions. So was I when my daughter was first diagnosed. You've probably heard all of the bad news already, but let me tell you some of the good news. Maybe it will help you. Maybe it will help your relationship with your child. Maybe it will help your child. If you need to be reminded of some of the Bad News , check the Background page first. But I promised you Good News and here it is! Your child is probably above average intelligence! Your child can benefit from your help with education! Your child probably does not need drugs! Your child does not "do these things" because he is rebellious! Your child is probably a terrific friend! Your child's unusual sense of "just right" can be an asset! A few final Tips Go back to The Story Page Intelligence and Your TS Child You can advance to the next selection , go back to the beginning of this page, go directly to the final

117. Tourette Syndrome tourette syndrome. Tics only part of the picture. What is it? tourette syndrome (TS) is a neurobehavioral disorder that first shows up in childhood. http://rarediseases.about.com/cs/tourettesyndrome/a/060800.htm

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') About Rare / Orphan Diseases Home Essentials ... Rare cancers zau(256,152,145,'gob','http://z.about.com/5/ad/go.htm?gs='+gs,''); Is it a Rare Disease? Rare Diseases A - B Rare Diseases C - D Rare Diseases E - H ... Help zau(256,138,125,'el','http://z.about.com/0/ip/417/0.htm','');w(xb+xb); Stay Current Subscribe to the About Rare / Orphan Diseases newsletter. zau(256,152,100,'hs','http://z.about.com/5/ad/hs.htm?zIhsid=00',''); Search Rare / Orphan Diseases Email to a friend Print this page Stay Current Subscribe to the About Rare / Orphan Diseases newsletter. Suggested Reading Internet links on Tourette syndrome Bugs, PANDAS, and Tics About Sleep Disorders: Tourette syndrome links Elsewhere on the Web Tourette Syndrome Association FamilyDoctor.org: Tics and Tourette's Syndrome in Children Most Popular ALD and Lorenzo's Oil The Elephant Man's Bones Reveal Mystery Prune Belly (Eagle-Barrett) Syndrome Progeria Syndromes ... Mad Cow Disease and Humans What's Hot Autoimmune Kidney Disease Tourette Syndrome Christmas Disease Bugs, PANDAS, and Tics ... Dystonia and Botox Injections Tourette Syndrome From Mary Kugler Your Guide to Rare / Orphan Diseases Sign up for my Newsletter Tics only part of the picture What is it?

118. The CoffeeChronicles Musings on living with tourette syndrome through a different perspective. Also covers OCD, ADHD, ADD. Offers a book exchange, guest writers, home of the NOFF award, and a school section. http://thecoffeechronicles.tripod.com/

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119. Tics_Neuropathology Neuropathology of Tourette s Syndrome. If you really want The history of tourette syndrome research is quite predictable. As is the case http://www.macalester.edu/~psych/whathap/UBNRP/tourettes/tics/neuropathology.htm

Neuropathology of Tourette's Syndrome If you really want to know the neuropathology of Tourette Syndrome, chances are, you will not be satisfied with the available literature. All they can really tell you is that it remains a mystery, and that most research done to this point in time can only reveal correlational and not causal particularities. The history of Tourette Syndrome research is quite predictable. As is the case with many socially disruptive neural disorders, the first studies concentrated on psychological factors, as in hysterias or choreas. Psychoanalytic analyses of character and obsessive compulsive neurosis followed, and only when a neurotransmitter blocking drug- haliperidol- was found to affect tics, did the attention shift to neurophysiology. In recent years, the data has consistently implicated the basal ganglia, both in neurochemical dysfunction and in morphological abnormalities. Other regions that could play a role are the corpus collosum and anterior cingulate cortex. Dopaminergic systems are suspected as well. Following is a summary of available research data. Possible Roles of the Basal Ganglia The basal ganglia is a dense region of five nuclei located beneath the cortex. Postmortem studies of the basal ganglia of individuals with Parkinson's and Huntington's revealed its role in the control of movement, and it also has ties to regions of cognitive function (Kandel et al, 1991). Decreased utilization of glucose and decreased regional blood flow has been observed in the basal ganglia of patients with Tourette's Syndrome (Chappell et al, 1992). One postulates that the decreased function of the basal ganglia may reflect decreased inhibitory activity on behavior. The basal ganglia is part of the corticostriatothalamocortical (CSTC) pathway, which begins in the cortex (

120. Tourette Syndrome Bust a myth about tourette syndrome http://www.geocities.com/Heartland/Flats/6295/page3.html

TOURETTE SYNDROME The Face of TS Hi! My name is Nick. I am 8, and I have T.S. I was diagnosed at age 6. I have vocal and motor tics. I am NOT crazy, I don't shout cuss words, and I do not have a learning disability. Unless I am actively ticcing, you would never guess I have TS. I can do anything that I want to do, that is, if my Mom and Dad will let me! Please take a look around this page, and help me BUST-A-MYTH about T.S. You can read my story by clicking my picture above! Click On The Icon To Bust-A-Myth, and STOP Ignorance of TS!! Click Here For Symptoms of TS Click Here For Nick's Mom's Story! ***IMPORTANT UPDATE!!*** Please read! On May 26, our home burned, and we lost all of our possessions, including our computer. Our home was a total loss. We are now in a new home, and the access I have to the net is through webtv right now, thanks to my sister who kindly purchased this unit for us! This means a new email address! Right now, Nick is doing a new tic, he swings his arm like he is winding up to throw a baseball. He is in the third grade at school, and the work is getting harder for him. He is beginning to have trouble finishing the work, so I am looking into setting up an education plan for him this year. If you would like to reach me, or Nick, for any reason, the new email address follows. I sincerely hope that Nick's page is informative and interesting for everyone who visits.

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