1. NINDS Syringomyelia Information Page syringomyelia information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). What is syringomyelia? Is there any treatment What is syringomyelia? syringomyelia (searIN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord http://www.ninds.nih.gov/health_and_medical/disorders/syringomyelia_short.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Syringomyelia Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Syringomyelia Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Syringomyelia? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Syringomyelia? Is there any treatment? Surgery is usually recommended for syringomyelia patients. Recurrence of syringomyelia after surgery may make additional operations necessary; these may not be completely successful over the long term. In some patients it may be necessary to drain the syrinx, which can be accomplished using a catheter, drainage tubes, and valves. In the absence of symptoms, syringomyelia is usually not treated. In addition, a physician may recommend not treating the condition in patients of advanced age or in cases where there is no progression of symptoms. Whether treated or not, many patients will be told to avoid activities that involve straining.

2. Syringomyelia Fact Sheet Fact sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/pubs/syringomyelia.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Syringomyelia Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is syringomyelia? What causes syringomyelia? What are the different forms of syringomyelia? How is syringomyelia diagnosed? ... Where can I go for more information? What is syringomyelia? Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Each patient experiences a different combination of symptoms. Other, more common disorders share the early symptoms of syringomyelia. In the past, this has made diagnosis difficult. The advent of one outpatient test, however, called magnetic resonance imaging (MRI), has significantly increased the number of syringomyelia cases diagnosed in the beginning stages of the disorder.

3. Syringomyelia Facts You may have syringomyelia (SM). You are visitor number to this site since Jan. 1, 1997. What is syringomyelia? (searIN-go-my-ELL-ya). http://www.syringo.org/

Do you have any of these symptoms? Back pain; headaches; stiffness, weakness or pain in the back, shoulders, arms or legs; loss of the ability to feel extremes of hot or cold, especially in the hands? You may have Syringomyelia (SM) You are visitor number to this site since Jan. 1, 1997. What is syringomyelia? (sear-IN-go-my-ELL-ya) Syringomyelia (SM) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx , expands and elongates over time, destroying the center of the cord. Since the spinal cord connects the brain to the nerves in the extremities, this damage may result in pain, weakness, and stiffness in the back, shoulders, arms or legs. Other symptoms may include headaches and loss of the ability to feel extremes of hot or cold, especially in the hands and disruption in body temperature. SM may also adversely affect sweating, sexual function and bladder and bowel control. What causes Syringomyelia? Trauma to the spinal cord or congenital developmental problems of the brain and/or spinal cord may result in SM. Spinal cord trauma such as a car accident or serious fall may manifest years later as SM.

4. Welcome To The American Syringomyelia Alliance Project Helping Our Mission To improve the lives of persons affected by syringomyelia, Chiari Malformation and related disorders while we find a cure. http://www.asap4sm.com/

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5. Chiari/Syringomyelia Index, Wake Forest University School Of Medicine Internet Links on Arnold Chiari Malformation and syringomyelia from the Department of Neurosurgery, Wake Forest University School of Medicine, Wake Forest University, WinstonSalem, North Carolina. http://www.bgsm.edu/bgsm/surg-sci/ns/chiarisyrinx.html

Arnold Chiari / Syringomyelia Index Department of Neurosurgery Wake Forest University School of Medicine Links to information about Arnold-Chiari malformation, Dandy-Walker malformation, and syringomyelia (spinal syrinx). Syringomyelia/Syrinx and Arnold-Chiari Malformation Links World Arnold Chiari Malformation (ACM) Association Homepage Arnold Chiari Malformation/Syringomyelia FAQ Syringomyelia Facts (from dataprompt.com) Information on Syringomyelia from the (US) National Institutes of Neurological Disorders and Stroke Workshop Summary: Syringomyelia June 20-21, 1994 from the (US) National Institutes of Neurological Disorders and Stroke Chiari Malformation from the (US) National Institutes of Neurological Disorders and Stroke Dandy-Walker Syndrome from the (US) National Institutes of Neurological Disorders and Stroke Canadian Syringomyelia Network Information from Columbia University College of Physicians and Surgeons Chiari Malformation Chiari Surgery Syringohydromyelia Beth Israel Hospital (New York City) Pediatric Neurosurgery Arnold Chiari Malformation Syringomyelia / Hydromyelia General Pediatric Neurosurgery Links Related Indexes from Wake Forest University School of Medicine Neurosurgery The WFUSM Spina Bifida Index The WFUSM Chiari/Syrinx Index The General Disability Links The WFUSM Brain Tumor Index WFUSM Pediatric/Developmental Neurosurgery Homepage with general peditric neurosurgery links Click on the Medical Center logo at right to go to the Medical School Homepage or the Neurosurgery logo at left to return to the Wake Forest University School of Medicine Neurosurgery Homepage.

6. Syringomyelia syringomyelia Menu. This is a webforum to discuss and comment on syringomyelia. Click here to Enter a new Neurology WebForum article Click Here to Read our Forum Disclaimer and Statement of Purpose. This Web Forum is not moderated in any sense. http://neuro-www.mgh.harvard.edu/forum/SyringomyeliaMenu.html

Syringomyelia Menu This is a webforum to discuss and comment on Syringomyelia. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 8, 1998 to Present Useful Websites can be found and posted here! SM Specialist Question (1/14/00) 8:39 PM Our daughter's challenge (1/8/00) 3:57 AM Our daughter's challenge (1/8/00) 2:48 AM ... One Description of cystic myelopathies (10/8/98) 9:34 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

7. Syringomyelia syringomyelia is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Generally, there http://healthlink.mcw.edu/article/923779378.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Neurology By keywords: Receive Health Link via email! Subscribe now >> Syringomyelia Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Each patient experiences a different combination of symptoms. Other, more common disorders share the early symptoms of syringomyelia. In the past, this has made diagnosis difficult. The advent of one outpatient test, however, called magnetic resonance imaging (MRI), has significantly increased the number of syringomyelia cases diagnosed in the beginning stages of the disorder. About 21,000 American men and women have syringomyelia, with symptoms usually beginning in young adulthood. Signs of the disorder tend to develop slowly, although sudden onset may occur with coughing or straining. If not treated surgically, syringomyelia often leads to progressive weakness in the arms and legs, loss of hand sensation, and chronic, severe pain.

8. Chiari Malformation Syringomyelia News An online publication bringing the latest news, information, and research updates to the Chiari and syringomyelia community. http://www.chiari-syringo-news.com

Delivering the latest news, information, and research updates to patients, families, and the medical community Background Information: Newly Diagnosed? A quick overview for patients, families and friends Highlighted Articles: How People Cope With Chronic Pain New Surgical Technique Minimizes Trauma For Children Read P ast Articles Submit An Article: What's your Perspective? Can you make us laugh? Do you have a good news story? Do you have an idea for an article? ... Home May 2004 (Volume 2, Number 5): Message From the Editor: A New Beginning, A Better Newsletter Research Updates: Large Study Reveals Wide Range Of Chiari Symptoms Survey Shows How Doctors Worldwide Treat Chiari The High Cost Of N europathic Pain In The News: NIH Says Animal Studies Show Promise In Treating Chronic Pain First Annual National Neurosurgery Awareness Week Magnetic Treatment May Help People With Spinal Cord Injuries Survey Shows Strong Voter Support For Expanding Stem Cell Research ... New Drug Shows Promise In Treating Neuropathic Pain Perspectives: See A Specialist If You Can...By Melissa Kienow

9. American Syringomyelia Alliance Project Information about ASAP and its goals, news, chiari manifestation, doctors corner and additional resources. http://www.asap4sm.org

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10. Syringomyelia Q & A Last Updated 5/01/04. syringomyelia Q A. Below you will find his answers to some common questions. What are the known symptoms of syringomyelia? http://www.asap4sm.com/Article Syringomyelia Q&A.cfm

Last Updated 5/01/04 By Bernard Williams, M.D. Mr. Bernard Williams, M.D., CHM, FRCS was the director of the Syringomyelia Clinic at Midland Centre for Neurosurgery and Neurology in England until his death in 1995. His extensive research and the contributions he made toward the understanding of Syringomyelia are still unrivaled today. Below you will find his answers to some common questions. What are the known symptoms of Syringomyelia? Almost any part of the nervous system below the level of vision can be affected. Because the eye movements are affected, then often the patients complain that the vision is not normal which means that almost any symptom arising from the nervous system (with the exception of disturbance of the sense of smell) may be associated with syringomyelia. I would not like to encourage the more introspective reader of a lay publication but since you ask me I would have to say that the commonest symptoms are approximately the following in diminishing order of frequency: pain in the head, neck, trunk, upper limbs or lower limbs

11. Karine's Chiari Page For Teens A website for teens who have Chiari Malformation and syringomyelia. http://www.angelfire.com/hi3/teenchiaripage/index.html

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Karine's Chiari Page for Teens Medical News Hi! My name is Karine, and I am 20 years old. I was first diagnosed with Chiari I malformation in 1994 when I was 11. At that time, I was suffering from headaches, nausea, and vomiting. I had an MRI performed, which revealed that I had a Chiari I malformation. Following that diagnosis, I had 6 surgeries. My first surgery, a standard decompression and laminectomy, was in December of 1994. My second surgery, in July 1995, was for the removal of scar tissue and part of the cerebellar tonsils. A dural graft was also placed. My third surgery, in October 1995, was for the insertion of a pressure monitor. My fourth surgery was performed in March 1999 by Dr. Milhorat, who removed a calcified pseudomeningocele. In other words, bone had grown around a pocket of fluid. Dr. Milhorat described it as looking like a chicken egg filled with water. He also performed a larger decompression by removing a 5x4 piece of occipital bone and placing a titanium plate over the opening. (This created more room for my brain.) My fifth surgery was a cardiac ablation. I had this done because I developed an atrial flutter with 2:1 block along with runs of supraventricular tachycardia.

12. Lynzi's Chiari Describes the diagnosis, brain surgery and recovery of this 4 year old girl with Arnold Chiari Malformation and syringomyelia. http://www.hometown.aol.com/stefranv645/page1.html

13. Syringomyelia syringomyelia. Definition cervical rib; ArnoldChiari malformation; Familial syringomyelia; Prior trauma or hematomyelia; Spinal cord gliomas. Return http://www.neuro.wustl.edu/neuromuscular/spinal/syrinx.htm

Front Search Index Links ... Patient Info SYRINGOMYELIA Definition Location Spinal cord: Usually cervical or thoracic Medulla Course: Chronic Clinical syndrome Epidemiology Onset: Most commonly between ages 25 to 40 Clinical features: Variable depending on anatomical involvement Anterior horns Fasciculations Distribution: Usually "suspended" Sparing legs Pain: Occasional; Boring or lancinating Large fiber sensations: Usually preserved Autonomic pathways Horner's syndrome Skin: Trophic changes Neurogenic bladder Corticospinal tracts: Variable involvement Other Scoliosis Tendon reflexes: Reduced or absent in arms Cranial nerve involvement: With syringobulbia Most often unilateral IX - X: Dysphagia; Dysarthria VII: Facial paresis Descending tract of V: "Onion skin" distribution Course: Very slow progression Radiology: A B Associated disorders Spina bifida ? cervical rib Arnold-Chiari malformation Familial syringomyelia Prior trauma or hematomyelia Spinal cord gliomas Return to Spinal disorders

14. SM/ACM Community - Information, stories, and support for people who have either syringomyelia, Arnold Chiari Malformation or both. Includes a support forum. http://sm-acm.com

(Domain made possible by PTC Hosting) Awards Message Board Chatroom Links ... Web Rings Welcome to the SM/ACM Community Wednesday, June 02 2004 @ 11:22 PM EDT Menu Home General Info Stories Support Groups SM/ACM E-mail Check/Sign up for an sm-acm.com E-Mail account! UserID: Password: Don`t have an account? Sign up here! Guestbook Please Sign Our Guestbook View Our Guestbook Site Information Old site counter Page Created 11/28/99 New Site Counter var site="sm3acm" Today's Featured Article UM Researchers Announce Breakthrough In Treatment Of Paralysis MIAMI University of Miami researchers announced a breakthrough in the treatment of paralysis today in Miami. read more (179 words) Post a comment Views: 20 Welcome to the SM/ACM Community This site was created for people who have SM, ACM or BOTH and for those who are interested in these rare disorders, it is in no way attempting to take the place of a physician or his/her advice, this is only a source page. The sources and information on this page has been obtained from my personal experience and the experiences and advice of others who have this/these terrible diseases. I would like to thank Vicki (Pumpkin) and others who played a major role in the idea of getting this page started, without their inspiration it would never have been built.

15. Syringomyelia - Learn More From MedlinePlus Find the latest news stories, overviews, research and more on syringomyelia from MedlinePlus, the National Library of Medicine's consumer health site. http://rdre1.inktomi.com/click?u=http://www.nlm.nih.gov/medlineplus/syringomyeli

16. Canadian Syringomyelia Network http://www.csn.ca/

17. Syringomyelia Hub Links to information and resources. http://www.knowdeep.org/syringomyelia

Syringomyelia hub Syringomyelia is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Signs of the disorder tend to develop slowly, although sudden onset may occur with coughing or straining. If not treated surgically, syringomyelia often leads to progressive weakness in the arms and legs, loss of hand sensation, and chronic, severe pain. Syringomyelia Fact Sheet - by the National Institute of Neurological Disorders and Stroke. Chiari Malformations and Syringomyelia Fact Sheet - prepared by the Center for Human Genetics, Duke University Medical Center, Durham, NC USA. About Syringomyelia or Syrinx - by Diane Mueller, ND, RN, C-FNP., The Chiari Clinic, University of Missouri-Columbia. Syringomyelia from MEDLINEplus Medical Encyclopedia - updated by Galit Kleiner-Fisman MD, FRCP(C), Department of Neurology, University of Toronto, Toronto, Ontario, Canada.

18. NEJM -- Syringomyelia Images in Clinical Medicine from The New England Journal of Medicine syringomyelia http://www.nejm.org/cgi/content/full/346/1/e1

HOME SEARCH CURRENT ISSUE PAST ISSUES ... HELP Please sign in for full text and personal services Volume 346:e1 January 3, 2002 Number 1 Next Syringomyelia PDF Add to Personal Archive Add to Citation Manager Notify a Friend ... PubMed Citation View larger version [in this window] [in a new window] A 24-year-old man had a three-year history of progressive muscle wasting and sensory loss in his arms, dysphonia, and dysphagia. During the previous five months, he had had several painless burns on his hands. He had no history of cranial or cervical trauma. He had marked atrophy of the right deltoid, biceps, and upper trapezius muscles and of the hypothenar eminence and dorsal interosseous muscles of the right hand. Biceps, triceps, and brachioradialis reflexes were bilaterally abolished. Sensitivity to pain and heat was lost in both arms, over the right side of the face, and over the chest and upper back. Hypalgesia was present in the perioral skin of the left side of the face. The right corneal reflex was decreased. Touch and pressure perception was preserved. No gait abnormality was identified. Sagittal, T -weighted magnetic resonance imaging (MRI) of the cervical spine without gadolinium enhancement showed a pathologic cavitation (syrinx) extending along the entire cervical cord (arrows in Panel A). MRI of the dorsal spine showed syringomyelic disease of the dorsal cord (arrows in Panel B). A cervical syringotomy was performed. Two years later, there had been no change in the degree of sensory loss and amyotrophy, but the dysphonia and dysphagia had decreased, and no further clinical deterioration had occurred.

19. About Syringomyelia Or Syrinx syringomyelia is an abnormal fluid cavity inside the spinal cord, which causes an abnormal cavity within the structure of the spinal cord, causes pressure and http://tribble.missouri.edu/ns/chiari/syrinx.htm

The Chiari Clinic Mission Who We Are Location ... Glossary Syringomyelia Diane Mueller, ND, RN, C-FNP Other terms for syringomyelia (pronounced sir-ing-o-my-eel-ya) often used include syrinx (see-rin-x), hydromyelia (hi-dro-my-eel-ya), syringohydromyelia, The spinal cord is connected to the lower part of the brain, called the brainstem. The spinal cord is a delicate (long, thin, sausage shaped) structure that rests within the spinal canal, and is surrounded by a tough outer covering, called the dura. Normally, the spinal cord ends at about the first or second lumbar vertebra in the adult. The spinal canal is surrounded and protected by the bony structure of the spinal column (or vertebra). Cerebrospinal fluid (CSF) surrounds the spinal cord and travels from the brain, down the spinal canal and back up to the brain. Normally, there is no CSF within the structure of the spinal cord, instead, the fluid surrounds the cord. The function of the CSF is to bathe and nourish the brain and spinal cord. Many nerves originate from the spinal cord, and are responsible for movement and sensation of the arms, legs and areas of the torso. Syringomyelia was first described by Antione Portal, in 1803. He described a patient who experienced numbness and loss of function of the lower extremities. A cavity, called a syrinx, was found on autopsy examination of the spinal cord.

20. Welcome To Erika's Chiari Home Page Her diagnosis and treatment of Chiari Malformation, syringomyelia, and Basilar Invagination. Includes medical information, pictures, and links for further information. http://www.angelfire.com/hi5/figgyminute/

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Welcome to Erika's Home Page When One Door Closes Another Opens but we often look so long and so regretfully upon the closed door that we do not see the one which has opened for us Alexander Graham Bell A Little Bit Of History I had a normal, healthy childhood. Then in September of 1986, I turned 15 years old. My symptoms came on rather suddenly- I was nauseous and vomiting violently, extremely dizzy, unsteady gait, blurred vision, and sweating profusely. I was immediately admitted to my local hospital for a week where they ran tests but couldn't figure out what was wrong. The local doctor decided it was psychological and discharged me feeling worse than I did on the way in. After countless doctors and specialists, I happened to be seen by a Neurosurgeon who recommended an MRI and finally I was properly diagnosed! I was told that I had Arnold Chiari Malformation Basilar Invagination Hydrocephalus , and Syringomyelia . I needed to have brain surgery. I was quite fortunate that I had no residual effects from surgery and I was able to get on with my life. I graduated from high school on time, went to college, graduate school, and started on my career.

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