81. Sturge Weber Syndrome Sturge Weber syndrome Menu. This is a webforum to discuss and comment on Sturge Weber syndrome. Click here to Enter a new Neurology WebForum article Click Here to Read our Forum Disclaimer and Statement of Purpose http://neuro-www.mgh.harvard.edu/forum/SturgeWeberSyndromeMenu.html

Sturge Weber Syndrome Menu This is a webforum to discuss and comment on Sturge Weber Syndrome. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! New MGH Neurology Webforums! (12/30/99) 7:39 PM forum working OK now (12/27/99) 1:15 PM sturge weber and migraines (12/21/99) 2:04 AM ... test (10/15/97) 2:16 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

82. STURGE WEBER SYNDROME AND PORT WINE STAINS PORT WINE STAINS AND STURGE WEBER syndrome. A port wine stain on the face of a new born child is symptomatic of Sturge weber syndrome http://www.sturgeweber.org.uk/pwstains.htm

PORT WINE STAINS AND STURGE WEBER SYNDROME A port wine stain on the face of a new born child is symptomatic of Sturge - weber syndrome, a condition involving the vascular and central nervous system. Three out of one thousand children are born with a port wine stain but only 8 % of these will have Sturge - Weber syndrome. WHAT IS A PORT WINE STAIN A port wine stain is a flat, pink, red, or purplish lesion (area of tissue with impaired function as a result of physical damage by disease or wounding) in this instance caused by blood vessel abnormality, capillary malformation of the skin. The stains associated with Sturge - Weber syndrome are found mainly on the face and follow the trigeminal nerve, the fifth and largest cranial nerve, which splits into three divisions :- OPTHALMIC area - upper eyelid and forehead. MAXILLARY area - cheek and upper eyelid. MANDIBULARY area - lower cheek, lower lip and chin. It is thought that when the OPTHALMIC area is involved the infant is at a greater risk of having Sturge - Weber syndrome. SUPPORT The psychological problems associated with such a birth mark are well documented and can include poor self image, lack of confidence and problems with social interaction.

83. STURGE WEBER Foundation UK/index To promote medical research into the causes and treatment of this syndrome. E mail support@sturgeweber.org.uk. Sturge Weber Support Groups in Europe. http://www.sturgeweber.org.uk/

STURGE WEBER Foundation UK Registered Charity Number 1016688 The Syndrome Sturge Weber syndrome is a rare neurological disorder of unknown incidence and origin. It is NOT thought to be hereditary. Sturge Weber is usually indicated by a birthmark(port wine stain) somewhere on the face, usually involving the eye and forehead, also similar blood vessels on the brain, called an angioma. Those who suffer from SW often suffer from epilepsy, hemiplegia (a weakness or stiffness affecting one side of the body, similar in appearance to that of a stroke), glaucoma and learning difficulties. Symptoms usually occur in the child`s first year of life. GO TO OTHER PAGES HOME About Us Glaucoma Epilepsy ... Christmas Cards The Charity The Sturge Weber Foundation (UK) was launched in 1990 by Contact a Family and is an independent voluntary support group for families and adults who suffer from this syndrome. Membership Membership is entirely free to professionals, sufferers and their families. Aims To provide support and information on differents aspects of the syndrome and to raise both public and professional awareness of the condition. To promote medical research into the causes and treatment of this syndrome.

84. Sturge Weber Syndrome: Jordan's Story Hello and welcome. My husband and I have a 3.5 yearold son, Jordan, who was diagnosed with Sturge Weber syndrome at six months of age. http://www.geocities.com/HotSprings/Spa/6754/

Hello and welcome. My husband and I have a 3.5 year-old son, Jordan, who was diagnosed with Sturge Weber Syndrome at six months of age. I wanted to share his story because it is optimistic and one of hope. When Jordan was first diagnosed, we were so eager to hear about someone with a good story . On July 15, 1996, we received the best gift that God has ever given us: Jordan Ray. From a visual and developmental standpoint, all was perfect. About six months later, Jordan started having mild seizures. We believe he had three or four in a 24-hour period. Basically, his type of seizure has three signs: eyes deviate and pulsate to the left, his left arm jerks toward his body, and he just lays still. We went to our local emergency room, did a CT scan, and were told that he may have a birth defect known as Sturge Weber Syndrome. We spent the night and he was given a startup dosage of Phenobarbital. The next morning he had another more severe seizure, so we were taken by ambulance to Shands Hospital in Gainesville, Florida. The next 24 hours were so frightening. Jordan had an EEG, another CT scan, an MRI, and an MRE. We have never felt so helpless and dependent on strangers in our lives; we cried and prayed. The minute we arrived at Shands, my husband went to the medical library to research SWS. It seemed like a good idea, but it was not. Everything he found on SWS was terribly grim, mainly because most of the literature discussed the worst-case scenarios, which scared us all the more. That is the main reason why I wanted to share Jordan’s story.

85. Sturge Weber Syndrome 1. Frontal skull radiograph shows serpiginous calcification on the right consistent with SturgeWeber syndrome. Sturge weber syndrome, Fig. http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/STURGE WEBER SY

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Sturge weber syndrome, (William A. Sturge, 18501919, English physician; Frederick Parkes Weber 18631962, English physician), a neurocutaneous syndrome also known as encephalotrigeminal angiomatosis. Clinical features are the presence of a port wine naevus involving the facial skin, primarily the forehead and cheek, seizures, hemiparesis, mental retardation, glaucoma and hemianopsia. These result from angiomatous vessels of the pia mater in the occipital and occipitoparietal regions. Although it is generally considered to be a non-inherited condition, a few familial cases are reported. Skull radiography may show evidence of serpiginous, unilateral cortical calcification in the occipital region ( Fig.1 ), thickening of the skull vault and enlargement of the paranasal sinuses. It may involve the whole hemisphere or even both hemispheres. Cross-sectional imaging with CT or MRI will demonstrate cortical atrophy on the affected side, particularly in areas with associated calcification ( Fig.2

86. Sturge – Weber Syndrome Sturge – weber syndrome,. Print this article, NW. The Encyclopaedia of Medical Imaging Volume VII. Sturge – weber syndrome, Fig. http://www.amershamhealth.com/medcyclopaedia/Volume VII/STURGE WEBER SYNDROME.a

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Sturge – weber syndrome, (William A. Sturge, 1850–1919, English physician; Frederick Parkes Weber 1863–1962, English physician), a neurocutaneous syndrome also known as encephalotrigeminal angiomatosis. Clinical features are the presence of a port wine naevus involving the facial skin, primarily the forehead and cheek, seizures, hemiparesis, mental retardation, glaucoma and hemianopsia. These result from angiomatous vessels of the pia mater in the occipital and occipitoparietal regions. Although it is generally considered to be a non-inherited condition, a few familial cases are reported. Skull radiography may show evidence of serpiginous, unilateral cortical calcification in the occipital region ( Fig.1 ), thickening of the skull vault and enlargement of the paranasal sinuses. It may involve the whole hemisphere or even both hemispheres. Cross-sectional imaging with CT or MRI will demonstrate cortical atrophy on the affected side, particularly in areas with associated calcification ( Fig.2

87. Sturge Weber Syndrome (SWS); Treatment, Prevention, Cure Sturge Weber syndrome (SWS) Search here for information which may include treatment, diagnosis, prevention, support groups, email lists, messageboards http://www.healthlinkusa.com/content/296.html

Latest Health News Find Drug Information Health Calculators All Words Any Words A B C D ... Z Sunday, January 4, 2004 Alternative therapy struggles to bridge East-West divide Click here to read more Doctors are not following guidelines recommending flu and pneumonia vaccinations for hospitalized adults, leaving millions of elderly patients vulnerable to potentially deadly ailment Click here to read more A helping hand for uninsured; Agencies find ways to provide health care for area children Click here to read more The government has approved the first generic version of the acne drug, Accutane Click here to read more Gates to give India $100m for AIDS; Microsoft CEO begins controversy-laced trip to fight virus Click here to read more Allergies and Asthma Alternative Medicine Arthritis and Your Health ... Women's Health Wednesday June 02, 2004 Spina Bifida: Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

88. HealthlinkUSA Sturge Weber Syndrome (SWS) Links Find Sturge Weber syndrome (SWS) at searchwaves.com. Click here for page 1 of Sturge Weber syndrome (SWS) information from the HealthlinkUSA directory. http://www.healthlinkusa.com/296ent.htm

89. Sturge Weber Syndrome Sturge Weber syndrome Important It is possible that the main title of the report Sturge Weber syndrome is not the name you expected. http://my.webmd.com/hw/raising_a_family/nord306.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Sturge Weber Syndrome Important It is possible that the main title of the report Sturge Weber Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Dimitri Disease Encephalofacial Angiomatosis Encephalotrigeminal Angiomatosis Leptomeningeal Angiomatosis Meningeal Capillary Angiomatosis Sturge-Kalischer-Weber Syndrome Sturge-Weber Phakomatosis SWS Disorder Subdivisions None General Discussion Sturge-Weber Syndrome is composed of three major symptoms. Excessive blood vessel growths (leptomeningeal angiomas) are accompanied by accumulations of calcium inside the brain, and seizures. Facial birth marks (nevus flammeus) appear usually on one side of the face. Angiomas similar to those found in the brain can develop inside the eye, often with secondary glaucoma. Resources The Arc (a national organization on mental retardation) 1010 Wayne Ave Suite 650 Silver Spring, MD 20910

90. BrainTalk Communities - Sturge Weber Syndrome Post New Thread. Threads in Forum Sturge Weber syndrome, Forum Tools, Search this Forum. Views 3,667 Announcement Donations to BrainTalk http://brain.hastypastry.net/forums/forumdisplay.php?f=241

91. Sturge Weber Syndrome Back Home Next. Sturge Weber syndrome. Limb Anomalies Sturge Weber syndrome, Epidermolysis Bullosa, Nail Patella syndrome, VATER Association. http://www.ability.org.uk/Sturge_Weber_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Sturge Weber Syndrome Limb Anomalies - Sturge Weber Syndrome, Epidermolysis Bullosa, Nail Patella Syndrome, VATER Association. Sturge Weber Syndrome - dedicated to our daughter, Stephanie Linell Yarbrough, and all others that have been affected by Sturge Weber Syndrome. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

92. Congenital, Hereditary, And Neonatal Diseases And Abnormalities Angelman syndrome Information UK Support Group via F van Hof (NL). Angelman syndrome Foundation, USA. The Australian Angelman syndrome Association. http://www.mic.ki.se/Diseases/C16.html

search search staff sitemap ABOUT KAROLINSKA INSTITUTET ... print this page Diseases and Disorders Links pertaining to Congenital, Hereditary, and Neonatal Diseases and Abnormalities Alert! Patients and laypersons looking for guidance among the target sources of this collection of links are strongly advised to review the information retrieved with their professional health care provider. Start Page Contents: Abnormalities Aicardi Syndrome (not on MeSH) Amniotic Band Syndrome Anencephaly ... Wolf-Hirschhorn Syndrome (not on MeSH) Congenital, Hereditary, and Neonatal Diseases and Abnormalities The US National Organization for Rare Disorders , including a Rare Disease Database , and a List of Disease-specific Organizations Search Jablonski's MCA/MR Syndromes Database [Congenital Abnormalities associated with Mental Retardation] - NLM (US) Indice delle malattie [in Italian] - InformaGene (IT) A Short History of Mapping [P Murphy] GENATLAS: Pathology Search [J Frezal] - Univ Rene Descartes, Paris (FR) OrphaNet [rare diseases] - (FR) A Birth Disorder Information Directory - Spamgid.com

93. Search Is Sturge Weber syndrome a chromosome disorder? Isochromosome 5q. IVF Triploidy. Yp deletion. Is Sturge Weber syndrome a chromosome disorder? http://www.chromodisorder.org/sytrix/card_list.php3?dbid=63&id=21

94. Sturge Weber Syndrome Ailment Name Sturge Weber syndrome. Join this Community get help by emailing and chatting to others, and sharing information and experiences, http://www.thirdaid.com/conditions/Sturge_Weber_Syndrome.htm

Home Your Registration Details Ailment Name: Sturge Weber Syndrome Join this Community Registration (Details given below are only for use in the Community and under no circumstances is your information ever provided to other 3rd parties. Required Information How would you like to be known? Birthdate: document.RegistrationForm.birthdate_day.options[birthdate_current_Day].selected=true; January February March April May June July August September October November December document.RegistrationForm.birthdate_month.options[birthdate_current_Month].selected=true; E-mail: (confidential) Please note: If you enter your email address incorrectly you will not be able to access this site. You are a ... Sufferer Carer Doctor For how long? year(s) State/Province/City: Country: Select a Country Afghanistan Albania Algeria American Samoa Andorra Angola Anguilla Antarctica Antigua And Barbuda Argentina Armenia Aruba Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia Bosnia and Herzegovina Botswana Bouvet Island Brazil British Indian Ocean Territory Brunei Bulgaria Burkina Faso Burundi Cambodia Cameroon Canada Cape Verde Cayman Islands Central African Republic Chad Chile China Christmas Island Cocos (Keeling) Islands Columbia Comoros Congo Cook Islands Costa Rica Cote DnullIvoire (Ivory Coast) Croatia (Hrvatska) Cuba Cyprus Czech Republic D.P.R. Korea

95. Patient Centre : Glossary : Sturge Weber Syndrome Induced Secondary Glaucoma Sturge Weber syndrome induced secondary glaucoma. The Sturge Weber syndrome is recognised by the port wine stain type of birthmark http://www.iga.org.uk/servlet/dycon/iga/iga/live/en/uk/AboutGlaucoma_Glossary_S_

Donate Join Us Fundraising Shop ... Z Sturge Weber syndrome induced secondary glaucoma The Sturge Weber syndrome is recognised by the 'port wine stain' type of birthmark which, if on the face or forehead may involve the eye and be associated with obstruction of aqueous fluid drainage and glaucoma. It usually affects the eye in infancy, but occasionally is partial and delayed. If delayed it is sometimes overlooked and all patients with such a birthmark should have their eyes checked using all three glaucoma tests ( ophthalmoscopy (an examination of the optic disc), tonometry , (a measurement of the pressure within the eye) and perimetry (a check of the field of vision)). Treatment usually follows similar lines as that for primary open angle glaucoma. Click here to enlarge text (Keep clicking to enlarge text further) RESET TEXT Back Top UK Registered Charity Number: 274681 - UK Registered Company Number 1293286 Medical information will only be updated when new, verified Medical information is available.

96. INDEX http://www.geocities.com/HotSprings/Spa/1563/

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