121. Gingerblue.com Information about a 27 year old woman with spina bifida. Includes photos, information about depression, and detailed personal experiences. http://gingerblue.com/koyaanisqatsi

: evolution : ...Two weeks after birth I underwent the first of many operations that were to come- a ground breaking procedure in which the neurosurgeons opened my back up by a horizontal incision on the small of my back from one side to the other, unraveled a "tumor" full of knotted nerves at the base of my spine and "plugged" each nerve back into my spine... : scar tissue : ...I stood in front of the many mirrors in my bathroom, naked, and studied all of my scars. I looked at them, touched them, saw them. I never do this because it makes things too real, because I can recall every scar, when it was made. If I don't look at the scars, then I can escape from everything and pretend that that is another girl. That's another person, another life, another set of emotions : images : Various images and x-rays. : depression : ... I think understanding comes only when you realize that depression is its own living and breathing thing, and that it has its own free will, and there is very little you can do to intercept it or prevent it. The scariest part of it is when you come to terms with those facts. It's so hard when you realize you have nothing in your current life to "blame" it on. Nothing you can fix to make it all better. It's just there, lurking...

122. Spina Bifida spina bifida. spina bifida also known as myelomeningocele means cleft spine, which is an incomplete closure in the spinal column. spina bifida from NOAH. http://www.genomelink.org/spina/

Spina bifida Spina bifida also known as myelomeningocele means cleft spine, which is an incomplete closure in the spinal column. It is a congenital disorder that occurs when one or more vertebrae do not develop properly from the neural tube. Spina bifida is usually an isolated birth defect. Most scientists believe that genetic and environmental factors work together to cause this defect and other Neural Tube Defects. The defect usually occurs within the first month of pregnancy. It affects 0.5 to 1 out of 1,000 infants born in the United States. Acne Allergy Antibiotics Antioxidants ... Wedding Research Articles, Informational Links, Associations - NINDS Spina Bifida Information Page - spina bifida information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Spina Bifida: Managing Bowel Dysfunction in the School-Aged Child - by Brenda Benner, Health Center Supervisor, TSBVI. Spina Bifida Genetic Research Project - by Northwestern University and Children's Memorial in Chicago. Spina Bifida Facts - from Asba.

123. Kristin Carroll.Com - Site Index Site in memory of a woman with spina bifida. http://www.kristin-carroll.com/site_index.html

Site Index Kristin's Birthday Celebration Kristin's Birthday Celebration Pictures Donation List Dr. Levey's Letter ... Site Index Site Design AKA Systems WebWorkx and

124. AllRefer Health - Myelomeningocele (Children) (Spina Bifida) Myelomeningocele (Children) (spina bifida) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests http://health.allrefer.com/health/myelomeningocele-children-info.html

AllRefer Channels :: Yellow Pages Reference Health Home ... Contact Us Quick Jump ADD/ADHD Allergies Alzheimer's Disease Arthritis Asthma Back Pain Breast Cancer Cancer Colon Cancer Depression Diabetes Gallbladder Disease Heart Attack Hepatitis High Cholesterol HIV/AIDS Hypertension Lung Cancer Menopause Migraines/Headaches Osteoporosis Pneumonia Prostate Cancer SARS Stroke Urinary Tract Infection 1600+ More Conditions Alternative Medicine Health News Symptoms Guide Special Topics ... Medical Encyclopedia You are here : AllRefer.com Health Myelomeningocele (Children) Myelomeningocele (Children) Definition Prevention Treatment Expectations or Prognosis ... Go To Main Page Alternate Names : Spina Bifida Definition Myelomeningocele is a congenital disorder (birth defect) where the backbone and spinal canal do not close before birth. This can result in the spinal cord and its covering membranes to protrude out of the infant's back. Spina Bifida Spina Bifida (Degrees of Severity) Myelomeningocele is one of the most common birth defects of the central nervous system . It is a neural tube defect in which the bones of the spine do not completely form, and the spinal canal is incomplete. This allows the spinal cord and meninges (the membranes covering the spinal cord) to protrude out of the child's back. Spina bifida includes any congenital defect involving insufficient closure of the spine. Myelomeningocele accounts for about 75% of all cases of spina bifida and may affect as many as 1 out of every 800 infants. The rest of the cases are most commonly spina bifida occulta (where the bones of the spine do not close, the spinal cord and meninges remain in place, and skin usually covers the defect) and meningoceles (where the meninges protrude through the vertebral defect but the spinal cord remains in place).

125. T.J.'s Page Information about living with a disability due to spina bifida and Hydrocephalus. Includes a photo album, informative links and personal experiences. http://members.cox.net/johnsonclan1

126. Neuroscience For Kids - In The News - Fetal Surgery For Spina Bifida Fetal Surgery for spina bifida, spina bifida is a relatively common birth defect which occurs in 1 to 2 of every 1,000 babies born in the United States. http://faculty.washington.edu/chudler/spibi.html

Fetal Surgery for Spina Bifida November 18, 1999 Spina bifida is a relatively common birth defect which occurs in 1 to 2 of every 1,000 babies born in the United States. "Spina bifida" literally means "split spine"; it is caused by failure of the spinal cord to develop properly. The nervous system develops from embryonic tissue called the ectoderm. The first sign of the developing nervous system is the neural plate which can be seen at about the 16th day of development. Over the next few days, a "trench" is formed in the neural plate - this creates a neural groove. By the 21st day of development, a neural tube is formed when the edges of the neural groove meet. The rostral (front) part of the neural tubes goes on to develop into the brain and the rest of the neural tube develops into the spinal cord. Spina bifida occurs when the neural tube is not formed properly; the bones of spinal column (the vertebrae) and muscle fail surround the spinal cord properly. No one knows exactly what causes spina bifida, but it is thought that both environmental and genetic factors play a role. Development of the Nervous System Skull and Vertebrae Failure of the neural tube to develop properly may result in three different conditions that lead to spina bifida: spina bifida occulta - the mildest form of spina bifida in which one or more vertebrae are malformed. These vertebrae are covered by a layer of skin.

127. Welcome To The Customer Site A young man's journey through life with spina bifida, and what he's done to overcome his disability. http://users.lvcm.com/soaringeagle

Welcome to our Customer Site. Customer - soaringeagle - does not exist on this server. Please verify the spelling and try again.

128. Spina Bifida national and international spina bifida resources, support groups, genetic clinics with genetic counselors and geneticists. spina bifida. http://www.kumc.edu/gec/support/spinabif.html

Spina Bifida (lipomeningocele, meningocele, myelomeningocele, anencephaly, neural tube defects) Spina Bifida Association of America 4590 MacArthur Blvd., NW, Suite 250, Washington, DC 20007-4226 Phone: 800.621.3141or 202.944.3285 - Fax: 202.944.3295 E-mail: sbaa@sbaa.org SBAA Chapters Real Stories Section Spina Bifida Association of Canada (L'Association de spina-bifida et d'hydrocéphalie du Canada) Association for Spina Bifida and Hydrocephalus ASBAH House, 42 Park Road, Peterborough, PE1 2UQ England Web site: http://www.asbah.org/ Links to world-wide resources and support groups International Federation for Hydrocephalus and Spina Bifida ("if") Cellebroerstraat 16, B-1000 Brussels, Belgium Tel: +32 (0)2 502 0413 - Fax: +32 (0)2 502 1129 E-mail: if@wanadoo.be Queensland Association for People with Spina Bifida or Hydrocephalus 21 Tillot St., Dutton Park, QLD 4102 Australia Spina Bifida Association of Western Australia Arbeitsgemeinschaft Spina bifida und Hydrocephalus (ASbH e.V.) Bundesverband Münsterstr.13, D-44145 Dortmund, Germany

129. Charlies Site - Home Page Containins information and links to information and sites connected with the disabilities of spina bifida and Hydrocephalus and other allied or related conditions. http://myweb.tiscali.co.uk/cpharper

Welcome to my home site. This is where vanity prevails. This is where I can write what I like because I don’t intend registering with too many search engines. So if you have found me then ~ lucky old you ~ Look around, enjoy the site and take no notice of the mistakes. Search This Site The Web for Get a Free Search Engine for Your Web Site var site="s11dasbahx1" The Devon ASBAH Web Services SiteRing This site owned by Devon ASBAH Email me at th@chasharper.co.uk

130. Youth With Special Needs: Spina Bifida spina bifida. Classification. spina bifida Cystica. Characterized by a cystic protrusion of the spinal cord, usually noticeable on the back. Myelomengocele. http://www.urbanext.uiuc.edu/specialneeds/spinebif.html

Cerebral Palsy Deaf/Hearing Impaired Epilepsy Learning Disability ... Other Health Impairments Spina Bifida Spina (spine) bifida (split or divided) is a "condition resulting when the bones of the spine form abnormally and fail to unite in the midline of the back" (Woodburn, 1975). If this split occurs, the spinal cord and its coverings may bulge out through the opening and cause a lump on the back. This malforming of the spine takes place within the first 28 days of pregnancy and varies in severity from a simple lump on the back to severe malformation of the back and lower limbs. Professor Nicholas Tulp gave spina bifida its name and gave the first formative description of the disability. Although the term and real medical description are somewhat recent, it is estimated that spina bifida occurred almost 12,000 years ago. It is also worth noting that it wasn't until 1761 that a man named Morgagni linked lower-limb deformity and hydrocephalus (an excessive amount of cerebro-spinal fluid within the head) with spina bifida. As a result of this finding, much has been done to find a "cure" for hydrocephalus, one of the major problems associated with spina bifida. One such discovery was in the late 1950s; the Spitz-Holter valve and the ventriculatrial shunt (a bypass or replacement of a major cavity between the brain and spinal cord implanted to control the flow of the cerebro-spinal fluid, so as to prevent pressure on the brain). Because of this find and other developments, an increasing number of children survive the more severe forms of spina bifida. Of these children, about 70 percent have normal intelligence (Menelaus, 1971).

131. Disability Awareness Kit What causes physical disability? spina bifida. Many children with spina bifida attend regular preschool, primary and secondary schools and universities. http://www.openroad.net.au/access/dakit/physical/phhandout4.htm

HOME DISABILITY AWARENESS PRINT ... MAP Physical Disability Core information SECTION HOME What causes physical disability? Spina Bifida Spina Bifida is a developmental defect which occurs within the first six weeks of pregnancy, caused possibly by a combination of genetic and environmental factors. Some of the spinal bones which normally protect and cover the delicate nerves of the spinal cord do not close. Consequently the spinal nerve tissue protrudes through this gap and forms an open swelling on the back. This could occur anywhere from the back of the head to the lowest part of the spine. Even though surgery at birth closes the gap, the damage to the spinal nerve tissues can never be repaired. The degree of paralysis will depend on the extent of damage to the spinal cord and the position of the lesion. Usually there is some paralysis and loss of sensation in the legs and lower trunk. This could result in: a need to use a mobility aid such as callipers, crutches, a walking frame, walking sticks or a wheelchair various degrees of bowel and bladder incontinence. There are several methods available to manage this problem.

132. Annie's Page A life with spina bifida. Poems, pictures, and helpful links. http://www.geocities.com/flnatasha

Annie's Page About My Life My Poems Spina Bifida Information Midis ... Memorial LINKS There came a time when the risk to remain tight in a bud was more painful than the risk it took to blossom. ~Anais Nin The House of Meditation Hydrocephalus Assoc. of America BellaOnline: The Voice of Women One Day ... Utah Trip, May, 2004 Now Playing: Lean On Me In loving memory of Boris (1994-2003)

133. Spina Bifida - Medical Dictionary Definitions Of Popular Medical Terms MedicineNet Home MedTerms medical dictionary AZ List spina bifida. In the US as a whole, spina bifida occurs in about one in every 12,000 births. http://www.medterms.com/script/main/art.asp?articlekey=5526

134. Index28spinabif.html spina bifida. spina bifida Occulta There is an opening in one or two of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. http://www.westworld.com/~barbara/index28spinabif

Spina Bifida from the National Information Center for Children and Youth with Disabilities (NICHCY) Definition Spina Bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are: Spina Bifida Occulta: There is an opening in one or two of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin, in others, tissue and nerves are exposed. Generally, people use the terms "spina Bifida" and "myelomeningocele" interchangeably. Incidence Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptons, very few of them ever know they even have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximtely one out of every thousand births. Of these infants born with "spina Bifida manifesta," about 4% have the meningocele form, while about 96% have the myelomeningocele form.

135. Spina Bifida And Hydrocephalus Association Of Northern Alberta This is the home page of the spina bifida and Hydrocephalus Association of Northern Alberta. Your Browser Does not support Frames. http://www.telusplanet.net/public/sbhana/

Your Browser Does not support Frames To view this site [ Select Link ] Your Browser Does not support Frames To view this site [ Select Link ]

136. John's Spina Bifida Page. John s spina bifida Page. Agent Orange Benefits Act of 1996. VA spina bifida Healthcare Program. spina bifida chat areas and groups. http://www.sapyta.com/jsbp.html

John's Spina Bifida Page. Agent Orange Benefits Act of 1996 VA Spina Bifida Healthcare Program Spina Bifida chat areas and groups. Yahoo's listings of Spina Bifida groups. Yahoo's Spina Bifida Chat Central. Disabilities-R-Us alt.support.Spina-bifida Spina Bifida mailing lists SB-Parents mailing list subscribe: SB-parents with your E-mail address SB-General mailing list To unsubscribe: Bifida-l-unsubscribe@yahoogroups.com SB-Teen Mailing list Wheelchair Products. Quickie Wheelchairs Rock N' Roll Cycles Colours by Permobil Levo AG ... Roho People of Spina Bifida Carolee Laird David M. Rushton Keith Piskur Jim Connelly ... Mary Dufton Keith Jones Spina Bifida Chapters online. Spina Bifida Association of America. Arizona Spina Bifida Association Spina Bifida Association of Jacksonville FL. Spina Bifida Association of the Tri-State Region ... SBHANS Disability Magazine's Online. New Mobility Magazine Reach Out Magazine Spina Bifida Search Engine Results. AbilityWeb Search Engine Healthlink USA Rehabmall Yahoo search result's on Spina Bifida ... Discovering Spina Bifida Web Ring This site is owned by John Sapyta Want to join the Discovering Spina Bifida Web Ring Skip Prev Prev Next ... E-mail Me Here!

137. Spina Bifida Association Of Texas - San Antonio - SBATX Promoting prevention, educating individuals, and by providing support and encouragement to families affected with spina bifida in Central and South Texas. http://www.sbatx.org

2935 Thousand Oaks, Suite 6-124 San Antonio, TX 78247 contact@sbatx.org WWW www.sbatx.org Make sure that your browser is Java enabled... Our organization is committed to helping every person affected with Spina Bifida reach his or her maximum potential. Our goal is to increase public awareness and understanding of Spina Bifida. Our efforts concentrate on promoting prevention, educating individuals, and by providing support and encouragement to families affected by Spina Bifida. Our goal for the future is to have a Spina Bifida Center for families affected by this sometimes overwhelming condition. Services that would be provided would include tutoring, computer instruction, job training, and community assistance referrals. We would also like to develop fine arts and physical fitness programs for individuals with Spina Bifida. June 12, 2004

138. Spina Bifida DEZE HOMEPAGE GAAT OVER ONZE ZOON KARST,DIE MET spina bifida IS GEBOREN. IN HET KORT PROBEREN WIJ TE VERTELLEN,WAT DIT VOOR HEM http://home.hetnet.nl/~wemky/

MIJN EIGEN HOMEPAGE KANJER KARST SPINA BIFIDA, OPEN RUG Deze homepage gaat over Karst, die met spina bifida geboren is. Beleef hier met ons mee, wat dit voor hem en voor ons betekent. last update 26th april. '01 english language Sign Guestbook View Guestbook

139. Susete's Home Page Mother of Andrew a child with spina bifida. Welcome to A spina bifida Site (Since January 1996) Please reload/refresh page as we update this site often. http://www.the-callahans.com/susete/susete.shtml

THE CURRENT TIME IS: Welcome to A Spina Bifida Site (Since January 1996) Please reload/refresh page as we update this site often We support our troops Intro: We are Patrick and Susete Callahan we have been happily married for 1 yrs. We are proud parents of two beautiful children, Shane Eric , is our youngest and Andrew James , our oldest son was born October 30th 1995 at Brigham's Hospital in Boston Ma with Spina Bifida and Hydrocephalus . We live in a small town in Massachusetts and have a beautiful country home. Patrick works as an Engineer. I am a full time mom, but I work at home as a web designer and love it! I am of Portuguese decent and Patrick is of Irish decent. We are originally from Plymouth Mass and our families are still living there. We visit as often as we can which sometimes is difficult. Let me tell you a bit about why this page was developed. Did you know : that all women capable of becoming pregnant are at risk of having a child born with spina bifida/Neural Tube Defect? We didn't!

140. Essex Association For Spina Bifida And Or Hydrocephalus: Home Page Inmformation on a voluntary charity which aims to help and support individuals and their families. http://beehive.thisisessex.co.uk/EssexSpinaBifida

var strSite = "beehive.thisisessex.co.uk"; Pages Home Page Fact File Charity Aims List of Benefits ... Guestbook Where Now? Beehive Homepage Other sites in the Charities and Fund-raising category Click here to mail the helpdesk if you have a comment to make about the Beehive or this Beehive site Click here to email this page to a friend. Essex Association for Spina Bifida and or Hydrocephalus INFORMATION ABOUT ESSEX ASBAH ESSEX ASBAH IS A VOLUNTARY GROUP run by parents of children and adults with Spina Bifida and/or Hydrocephalus. The aims of this group are to give mutual support and help. MEETINGS are held to exchange information and to socialise at various venues in Essex. ESSEX ASBAH has a mailing list of over 350 families. Members receive a QUARTERLY NEWSLETTER. ASSISTANCE is given to individuals and families for various reasons; special equipment, driving assessments, independence courses, contributions towards hospital visiting and many other ways. Arrangements can be made for a home visit if required. This service is available to anyone with Spina Bifida and/or Hydrocephalus and their families.

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