101. Book Written by Louisa, born with spina bifida, offering inspiration for others with the condition. http://www.geocities.com/louisajulianne/Book

Welcome to My World Email. Welcome To My World My School Days My Times in Hospital Miracle of Life Entertainers I Have Met The Day I Moved Out Of Home My Experiences with Anorexia Achievements The Journey Continues I hope after you have purchased and read my book that you will find the Inspiration to go on with your lives no matter what Challenge you are faced with. Hobbies

102. Spinabifida.pagina.nl Deze pagina bevat een ruim aantal links over spina bifida, hydrocephalus en andere aanverwante onderwerpen. in samenwerking met www.startpagina.nl. http://spinabifida.pagina.nl/

in samenwerking met www.startpagina.nl spinabifida.pagina.nl helpdesk opmerkingen of suggesties? Inhoud: Jan-Willem van de Waterlaat

103. Kranny's World Information about a student with spina bifida. Includes links to other disabilityrelated sites. http://members.tripod.com/~Karin_77/index.html

104. Pain Issues For Persons With Spina Bifida Devoted to individuals with spina bifida who experience pain on a regular basis regardless of how mild or severe. Persons of all http://groups.msn.com/PainIssuesForPersonsWithSpinaBifida/

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Language ... Help Pain Issues For Persons With Spina Bifida PainIssuesForPersonsWithSpinaBifida@groups.msn.com What's New Join Now Home Page Message Board ... Tools Hi Everyone and Welcome!!! This community is for all ages: kids, teens and adults with spina bifida, parents or other relatives of a child born with spina bifida and even friends. Since there is very little information or support groups on the issue of pain in those of us affected by spina bifida, i decided to form this group. So come in, enjoy the fellowship and join in on what i hope will be some very insightful conversations and support for one another when the problems of pain gets you down. Terry (manager) Personal World Clock http://hit-counter.udub.com/ Notice: Microsoft has no responsibility for the content featured in this group. Click here for more info. Try MSN Internet Software for FREE! MSN Home My MSN ... GetNetWise

105. Little Ana's Page Provides a personal look at spina bifida, fetal surgery, and growing up with the disease. http://www.geocities.com/auroracall/

Baby Sister Grace is here! New Family Pictures 5/20/2003 - Going for a walk! - Two Sisters! Click here for Baby Gracie's Page - The Lyons Family's Newest Addition! Click here for info about our new home - We are building a new home! Click here to view construction progress - Watching our new home go up, brick by brick! Welcome to Ana's Page From Our Family to Yours! Ana's story has been featured on the Discovery Health Channel (January 2001), MSNBC Weekend Magazine (March 1999) and Dateline NBC (January 1999). Our special little girl, Mary Anastasia, or "Ana" for short, was born at St. Joseph's Women's Hospital in Tampa, Florida, on Wednesday, 9/23/98, at 10:12a. She was delivered in her 31 st gestational week. She weighed 3lbs and 4.6 oz. (Click here to see her early pictures)! Ana had been diagnosed with Spina Bifida and Hydrocephalus in June during a routine ultrasound in her 17 th week of gestation. On 8/19/98, She was the 11 th baby to undergo maternal fetal (in-utero) surgery to close the SB lesion at Vanderbilt University Hospital, in an innovative procedure developed by Dr. Joseph Bruner and Dr. Noel Tulipan. (Click here for Vandy's official fetal surgery site).

106. Spina Bifida Association Of WA spina bifida Association of WA (Inc.). Established in 1970, it s main aim is to provide support for individuals with spina bifida and their families. http://www.sbawa.asn.au/

The Spina Bifida Association of WA Inc. ) was established in 1970. The main aim of the Association is to provide support for individuals with spina bifida and their families. Please use the links found at the left of the page to learn more about spina bifida and the services that we are able to provide. Sponsers: F or further information, please contact: The Spina Bifida Association of WA Inc. Centre for Neurological Support - The Niche Suite B, 11 Aberdare Road Nedlands WESTERN AUSTRALIA 6009 Tel : (08) 9346 7520 or +61 8 9346 7520 (international) Fax: (08) 9346 7519 or +61 8 9346 7519 (international) E-mail: info@sbawa.asn.au

107. Spina Bifida spina bifida. spina bifida is a birth disorder that is characterized by a defect in the closure of the spinal cord. Many infants http://www.dbpeds.org/conditions/conditions.cfm?Abbrev=spina

108. Kent Association For Spina Bifida And Hydrocephalus Information and support in Gravesend. Location, information sheets, staff profiles, services offered, aims and newsletters. http://www.kasbah.org.uk/

Welcome to the Kent Association for Spina Bifida and Hydrocephalus web site Our... Aims Work Location Newsletters ... Contact Us We hope you will find the site useful, and if there is anything you would like to talk to us about, please do contact us

109. Spina Bifida spina bifida General Information. This information was provided by the Houston Shriners Hospital 6977 Main St. New Day, New Hope for Children with spina bifida. http://www.shrinershq.org/patientedu/spinabifida.html

Home Shrine Shriners Hospitals Hospital Directory ... Next Spina Bifida: General Information This information was provided by the Houston Shriners Hospital 6977 Main St. Houston, TX 77030-3701 Telephone 713-797-1616 Fax 713-797-1029 By Cathy Moniaci, R.N., M.S. Director of Patient Care Contents Introduction Terminology New day, new hope for children with spina bifida Common problems in spina bifida ... A chance for a better life Introduction Each year in this country, 4,000 children, or an average of 11 children a day, are born with neural tube defects (NTDs) that occur when the spinal column fails to develop and close properly during the first month of pregnancy. The neural tube in a developing fetus later becomes the spinal cord, the backbone that protects the spinal cord, and all the nerves in the body, and any defect in the neural tube can lead to serious health consequences. Spina bifida accounts for half of all neural tube defects, and occurs when part of the spinal cord protrudes through the backbone and fails to develop normally. Thanks to improved medical and surgical care, most children born with spina bifida survive, although they may experience varying degrees of paralysis, loss of sensation in the lower limbs, difficulties with bowel and bladder management, hydrocephalus, learning disabilities, and latex allergies. Anencephaly, which accounts for the remaining 50 percent of neural tube defects, results from the failure of the neural tube to close properly at the upper end, causing a fatal condition in which most of the brain is absent. Infants born with anencephaly usually die at birth or within the first days after birth.

110. Main Information about a young man with spina bifida and some of his experiences. http://www.homestead.com/planetzachary/main.html

Visit the Picture Page Links On this planet you will learn a little about our son and Spina Bifida. We are Tom, Kim and Zachary. Zachary was born via c-section due to his whopping size 9lbs 10oz, on Mother's Day in 1986. We found out at that time that he had Spina Bifida. He was taken immediately to a Childrens Hospital 125 miles away. Zachary came home when he was 6 weeks old, and he had 6 surgeries in that time, and to date he has had 22. Zachary has a vp shunt, rods in his back to help keep his spine straight. He has an appendico vesicostomy, this lets me cath him in the belly button. Zachary wheels on his planet. Zachary also has nvld, hydro, add, capd, autism, nephrogenic adenoma and latex allergy. Zachary loves Pooh, windchimes, windsocks, more about Spina Bifida follow my links. You can join SBMoms-N-Dads (SB internet support list) from the link below. Links ~ Our Children are the of What We Do ~ Visit the Picture Page To join SBMoms-N-Dads click This page was last updated on: August 19, 2003

111. Spina Bifida - Wikipedia, The Free Encyclopedia Special Child Disorder Zone Archives spina bifida spina bifida. Armette Damon. Introduction. spina bifida (SB) is a neural tube defect that is the most frequently occurring, permanently disabling birth defect. http://en.wikipedia.org/wiki/Spina_bifida

Spina bifida From Wikipedia, the free encyclopedia. Spina bifida describes birth defects caused by closure of one or more vertebral arches of the spine , resulting in malformations of the spinal cord . The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called a cleft). These malformations range from spinal bifida occulta spina bifida cystica (myelomeningocele) and meningocele The most common location of the malformations are in the lumbar and sacral areas. The lumbar nerves control the muscles in the hip leg knee and foot , and help to keep the body erect. The sacral nerves control some of the muscles in the feet bowel and bladder and the ability to have an erection . Some degree of impairment can be expected in these areas. Spina bifida is a Latin term meaning "split spine." Occulta means "hidden." Table of contents 1 Spinal bifida occulta 2 Spina bifida cystica (myelomeningocele) 3 Meningocele 4 Causes ... edit Spinal bifida occulta This is a mild form of spina bifida. There is no opening on the back, but the outer part of some of the vertebrae are not completely closed. The split in the vertebrae is so small that the spinal cord does not protrude. The

112. This Page Has Moved Provides comprehensive healthcare for children and adults with developmental disabilities, specializing in cerebral palsy, spina bifida, muscular dystrophy, and LeschNyhan disease. News, staff directories, publications list, bulletin, and online continuing research survey. http://www.matheny.org/institute/

The Institute's Web Page has changed! It is now http://www.matheny.org/about_matheny_research.htm Please update your bookmarks. You will be brought there in 5 seconds.... Thank You!

113. Yahoo! GeoCities - Cassie's Site Home Page Information about a little girl with spina bifida, including her diagnosis and experience. http://www.geocities.com/cassies_site/index.html

Picture Index Page Site Map Spina Bifida Links For Mom's of Special Needs Children ... For Father's of Special Needs Children Cassidy's Story Sept. 1999 Sept. 2000 Sept. 2001 Click on the pictures above for Cassidy's yearly update On February 14, 1998 (Valentine's Day!), a home pregnancy test confirmed that we were expecting our third child!! What a fun and unexpected surprise because we didn't think we would be able to have any more children because of infertility problems. At 21 weeks, we had an ultrasound, just for fun to see if we were having a boy or girl. The excitement and anticipation of seeing our child for the first time was abruptly interrupted when the technician got a concerned look on her face and said, "I'm afraid there is a problem........ you're going to need to see a specialist today......there is too much fluid in the baby's brain......this could mean other problems......" The whole world came to a abrupt halt. What had she just said? Was I dreaming? Did she say something was wrong? What could be wrong? Could this really be happening to us? Please tell me what's wrong!!!! Reality hit when I felt my own tears. Little did I know, they wouldn't stop for days. An incredible journey began in that dark, little room. A journey that caught us all by surprise and would take us places we never thought we would go.

114. Freedom Concepts Inc. Mobility devices for individuals with conditions including cerebral palsy, spina bifida. http://www.freedomconcepts.com/

115. CHRYOUR HEALTH spina bifida, spina bifida is a birth defect of the spinal column (neural tube defect). spina bifida occulta is recognizable only by xray. http://www.crha-health.ab.ca/hlthconn/items/spina.htm

Spina Bifida Spina bifida is a birth defect of the spinal column (neural tube defect). It occurs in Canada at a rate of 1 out of every 1,000 births.* The exact cause of spina bifida is not known. What is known is that it results from a failure of the spinal bones (vertebrae) to close over the spinal nerves. This normally takes place in the early weeks of pregnancy. There is now evidence to suggest that good nutrition during pregnancy (especially adequate amounts of folic acid ) may help to reduce the risk of spina bifida. The risk of having a child with spina bifida appears to be increased in relatively young or relatively old mothers or women who already have a child affected with spina bifida. A procedure called amniocentesis can be done during pregnancy to test for spina bifida. A condition which is often associated with spina bifida is hydrocephalus. Hydrocephalus is an accumulation of cerebrospinal fluid in the cavities within the brain (called ventricles). Cerebrospinal fluid normally circulates freely between the brain and spinal column. The accumulation of fluid in the brain can increase the amount of pressure on the brain and this can result in brain damage. When hydrocephalus is treated early and effectively, brain damage can often be prevented. Treatment When a child is born with spina bifida, particularly if there is a myelomeningocele, the opening in the vertebrae and the bulging meninges and nerves are often repaired by surgery shortly after birth. Although the surgery cannot repair existing nerve damage, it can prevent additional damage. It can also help to prevent infection from developing.

116. Stephanie's Story Offers a family's experience with spina bifida. http://www.livingwithsb.com/ourstory.html

117. Www.mattitude.ca (Durham Region, Oshawa, Ontario, Canada) Personal and family site, with resume, information about spina bifida, and favourite links. http://www.mattitude.ca/

Site Design By MJSD Enterprises DNS Hosting Provided By Every DNS Free DNS By Afraid.org

118. SPINALCORD: Spina Bifida spina bifida. Children with spina bifida A web resource page for parents. spina bifida Association of America 4590 MacArthur Blvd. http://www.spinalcord.uab.edu/show.asp?durki=21760&site=1021&return=24203

119. Index.html Features photos and information about a baby with spina bifida. Also provides information about fetal spinal surgery. http://www.homestead.com/angelinemarie/files/index.html

Updated on October, 2003! Check out our new pictures and updates! " Eye has not seen, nor ear heard, nor have entered into the heart of man the things which God has prepared for those who love Him. " 1 Cor 2:9 (NKJV ) Angeline Marie is a very special girl for a lot of reasons. If you want to learn more, please click on the picture or click here  Please, keep us in your thoughts and prayers and we will keep you in ours. Feel free to contact either of us at: EmilyEGA@aol.com or Manny@nova.edu For more information about Spina Bifida please visit the Spina Bifida Association of America website.

120. ..:::willkommen Bei Der Cerebral Stifung:::.. Ziel ist die Fr¼herfassung, F¶rderung, Ausbildung, Pflege und soziale Betreuung von Menschen mit cerebralen Bewegungsst¶rungen, spina bifida oder Muskeldystrophie mit Wohnsitz in der Schweiz. 3001 Bern http://www.cerebral.ch/

Fondazione svizzera per il bambino affetto da paralisi cerebrale Erlachstrasse 14, Postfach 8262, 3001 Bern Tel. 031 308 15 15, Fax 031 301 36 85, PC 80-48-4

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