41. Discovering Spina Bifida Web Ring This web ring is dedicated to sharing our testimonies about spina bifida. Discovering spina bifida Webring. The Purpose of this Web Ring. http://www.geocities.com/Heartland/Fields/6980/webring.html

Discovering Spina Bifida Webring The Purpose of this Web Ring The DISCOVERING SPINA BIFIDA WEB RING is dedicated to sharing our testimonies about Spina Bifida. It contains web pages of parents of children with Spina Bifida, families with a loved one with Spina Bifida, individuals with Spina Bifida and anyone who is friends with someone who has Spina Bifida. Also, it can contain pages about related conditions such as hydrocephalus, latex precautions/allergies, tethered cord, Arnold Chiari malformation, lipomyelomeningocele, spina bifida occulta, anencephaly, ambulatory needs, etc. The purpose of the DISCOVERING SPINA BIFIDA WEB RING is to provide support to those who have or those who have a loved one with Spina Bifida, to promote awareness about the disABILITY and to discover the wonderful opportunities we share. Guidelines for Joining Your web site must contain information regarding Spina Bifida or a related condition. All sites should be "G" rated. No profanity, adult content nor any links to such sites. Fill out and submit the application form.

42. Conosciamocimeglio.it Propone siti di ricercaincontro per conoscere meglio lo stato di salute e la qualit  di vita delle persone affette dalle sindromi di Down e di Noonan, da spina bifida e da febbri periodiche. Informazioni, bibliografia e Faq. http://www.down.conosciamocimeglio.it/

HOME AREA NARRATIVA AREA EPIDEMIOLOGICA AREA INFORMATIVA Sorelle e Fratelli www.casaloro.it U.O. Pediatria e TIN Centro per la Salute del Bambino Clinica Pediatrica 1 Clinica Pediatrica Monza capirsidown.it Conosciamoci meglio Sindrome di Down Chi siamo La parola alle famiglie Percorsi integrati e progetti di vita Narrative based medicine ... Archivio completo Ultimo aggiornamento 22/05/2004 In collaborazione con ForumPA Noi aderiamo ai principi HONcode. Verificare qui Ringraziamo ForumPA e Studio Lacab che hanno reso possibile la realizzazione di questo sito Webmaster

43. Sjbaumli 's Home Page Stories about the Baumli's children, one of whom has spina bifida and one who has Down Syndrome. http://www.geocities.com/HotSprings/Falls/9103

Home of the Baumli's               Rebecca                                            George                                    Allison click on his  click on her                                                                                             picture for a                                         picture for a                                                                                           story about him                                   story about her Click on our picture to see more pictures Hello and welcome to our little corner of the web. This is Becca,she is almost 3 years old.She is our monster of the family.Becca is the sharp one,She's a quick learner of everything. George is 7 years old whom was born with Spina-Bifida leaving him paralyzed from the waist down and a shunt in his head to his stomach.George has a great personality and not many people has seen him without a smile. Allison is almost 5 years born with Down-Syndrome.She has been survive congestional heart failure 4 times and open heart surgery , also Sissy has been through a traumatic time once when she was burned severely on the legs. They are all three the most loving kids you could ever have.

44. Edwards And Ciricillo Medical Corporation Specializing in pediatric and adult complex neurosurgery, including brain tumors, vascular malformations, hydrocephalus, spina bifida, and craniofacial disorders. http://www.ecmc.neurohub.net

45. Overview An overview of the spina bifida Health Care program, its benefits, and links to the policy manual and benefits manual. http://www.va.gov/hac/spina/spina.html

46. Richard Malone Interests are fishing, golf and the spina bifida Association. http://www.ezy.net/~malone

Richard's Playroom This is Richard Malone 's home page. Interests: My Kids ! Bass Fishing my picture album Golf Computers Electronics Ham Radio (N3FIF) National Organizations: B.A.S.S. The March of Dimes Local Organizations: Spina Bifida Association of the Eastern Shore Eastern Shore Chapter of the March of Dimes Y.E.S. Inc., Youth Exercise Services The Wicomico Bass Club The Delaware B.A.S.S. Federation Comments: I'll be the first to admit I'm in the RACE ! The RACE being that race where the one with the most toys wins ! Look around and if the urge strikes you, drop a line to malone@ezy.net Here's a few other links: B.A.S.S. The Wicomico Bass Club Home Page Bass Fishing Home Page Intellicast Weather Radar ... The Delaware Bass Federation Local Organizations Making a Difference! The Spina Bifida Association of the Eastern Shore The March of Dimes Youth Exercise Inc. (Y.E.S.) Please email comments and corrections to malone@ezy.net Please sign my guestbook ! Number Visited Last updated September 11, 2000

47. Medical References: Spina Bifida spina bifida is the most common of a group of birth defects called neural tube defects (NTDs). The neural tube is the embryonic http://www.marchofdimes.com/professionals/681_1224.asp

View All Chapters Find Your Local Chapter June 2, 2004 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Spina Bifida Spina bifida is the most common of a group of birth defects called neural tube defects (NTDs). The neural tube is the embryonic structure that develops into the brain and spinal cord. Often called open spine, spina bifida affects the backbone and, sometimes, the spinal cord. It is among the most common severe birth defects in the United States, affecting 1,500 to 2,000 babies (one in every 2,000 live births) each year. Spina bifida and other NTDs occur more frequently among Hispanics and whites of European extraction and, less commonly, among Ashkenazi Jews, most Asian ethnic groups and African-Americans. How does spina bifida affect a child? In the embryo, there is a tiny ribbon of tissue that folds inward to form a tube. This structure, called the neural tube, forms by the 28th day after conception. When this process goes awry and the neural tube does not close completely, defects in the spinal cord and in the vertebrae (small bones of the spine) can result. There are three forms of spina bifida: Occulta.

48. Methodist Pediatric And Adolescent Rehabilitation Services Facility specializes in the care of children and adolescents with conditions including traumatic or acquired brain injury, spinal cord injury, burns, multiple orthopedic trauma, neuromuscular disorders, spina bifida, and cerebral palsy. http://www.clarian.org/clinical/pediatrics/methodist_ped_rehab.jhtml

49. Spina Bifida spina bifida can occur when there is an opening in the cord. What Is spina bifida? Let s start by taking at look at your spine, or backbone. http://kidshealth.org/kid/health_problems/bone/spina_bifida.html

KidsHealth Kids Kids' Health Problems Andrea is 12 years old and in the 6th grade. She likes to go swimming, play with her dog, and have friends over. She's been in three dance recitals, and she even received a standing ovation once. She's traveled to Canada and many places in the United States, and next summer she hopes to go to Scotland. When she's older, Andrea wants to be a chef. Like you, Andrea is interested in many things and can do a lot of stuff. What might be different from you, though, is the fact that Andrea can't walk. Andrea has spina bifida (say: spy -nuh bih -fuh-duh) and uses a wheelchair to get around. What Is Spina Bifida? Someone born with spina bifida has an opening in the spine. A healthy spine is closed to protect the spinal cord, a bundle of nerves that send messages back and forth between your brain and the rest of your body. The messages tell your muscles to move so you can kick a soccer ball or pick up a pencil. The messages also tell you about sensations on your skin , so you know to pull your hand away from a hot pot.

50. Illinois Spina Bifida Association The Illinois spina bifida Association® (ISBA) is a nonprofit organization dedicated to improving the quality of life of people with spina bifida through http://www.illinoisspinabifidaassociation.com/

The Illinois Spina Bifida Association® (ISBA) is a non-profit organization dedicated to improving the quality of life of people with spina bifida through direct services, information, referral, research, and public awareness Illinois Spina Bifida Association depends upon public donations to continue its work. You can help! Making a donation through our secure server is fast and easy, and when we receive your donation, we will send you an acknowledgement in the mail for tax purposes. Click the button below to make a donation. Thank you for your support! Spina bifida is the failure of the spine to close properly during the first month of pregnancy and results in varying degrees of paralysis, loss of sensation in the lower limbs, difficulty with bowel and bladder management, hydrocephalus, and learning disabilities. It takes a team of parents, doctors, therapists, teachers and others to help a person with spina bifida achieve maximum potential. But with proper attention, that person's potential is unlimited. The cause of spina bifida is unknown, and the scientific community is unable to explain whether the determinants of spina bifida are genetic or environmental. Recent scientific research, however, shows that folic acid, a common B vitamin, may prevent more than half of all spina bifida births. According to the United States Center for Disease Control, if all women of childbearing age in the United States who are capable of becoming pregnant would consume 0.4 mg. of folic acid per day, the incidence of spina bifida could be reduced by over 70%.

51. Spina Bifida spina bifida, which literally means split or open spine, is the most commonly occurring neural tube defect (NTD), affecting about one out of every 1000 http://kidshealth.org/parent/system/ill/spina_bifida.html

KidsHealth Parents Caring for a Seriously or Chronically Ill Child "It was in a big high school auditorium, full of hundreds of people," Tess Macintyre begins. "Andrea was second to last to perform in the recital, and when the curtain went up, the stirring in the audience was audible. Part of her dance was in her wheelchair, and part of it was on the floor. It was so fluid and graceful. "When she finished, not only was there a standing ovation, but I saw that I wasn't the only one with wet eyes. "I think the audience responded to my daughter's courage because of her disability," she says, remembering the day her 11-year-old daughter brought the house down. "But I think the reason for Andrea's bravery was the same as the other kids' - because she was performing, not because she has spina bifida." What Is Spina Bifida? Spina bifida comes from a Latin term, literally meaning split or open spine. It affects about one out of every 1,000 newborns in the United States and is the most commonly occurring neural tube defect (NTD). Neural tube defects describe any type of birth defect that is caused by incomplete development of the brain, the spinal cord, or the coverings of these organs. The neural tube develops during the first month of pregnancy. The leading theory is that spina bifida occurs when the two sides of the spine fail to join together (at the end of that first month), leaving an open area. In some cases, the spinal cord or other membranes may push through this opening in the embryo's back.

52. Florida Department Of Children & Families Information and links for those with mental retardation, autism, cerebral palsy, spina bifida, and PraderWilli syndrome. http://www5.myflorida.com/cf_web/myflorida2/healthhuman/ddp/

directory contact us newsletters first time user Programs Abuse Hotline Adoption Foster Care Adult Services ... Mental Health Health Agencies Elder Affairs Health Health Care Veterans' Affairs The Developmental Disabilities site has moved ! The new location is : http://www.dcf.state.fl.us/ddp/ Please update your bookmarks to this new location. Thank you. Privacy Statement

53. SFM Home Page Links para p¡ginas com informa§£o sobre spina bifida, Hidrocefalia e assuntos relativos a estes problemas de saºde. http://www.terravista.pt/Bilene/1977/

SFM Home Page ... em construção. http://planeta.terra.com.br/saude/maninho Home Page of Maninho (Como estou fazendo meu filho andar) http://www.asbah.org/ Association for Spina Bifida and Hydrocephalus http://www.halliwick.org International Halliwick Association - swimming, hydro therapy for people with disabilities http://www.norcaldesign.com/page2.htm Reciprocating Gait Orthosis http://www.bethisraelny.org/ Beth Israel Home Page http://www.bethisraelny.org/inn/inn.html Welcome to Institute for Neurology and Neurosurgery http://www.bethisraelny.org/inn/webtour/index.html Beth Israel - WebTour of the Institute for Neurology and Neurosurgery http://www.spinabifida.org/ The Queensland Association for People with Spina Bifida or Hydrocephalus http://www.gnofn.org/~sba Spina Bifida Association of Greater New Orleans http://ourworld.compuserve.com/homepages/ssbahq Scottish Spina Bifida Association http://www.chebucto.ns.ca/Health/SBANS Spina Bifida and Hydrocephalus Association of Nova Scotia http://www.sbaa.org/

54. Page D'accueil FFASB site officiel. http://membres.lycos.fr/FFASB/

Page d'accueil

55. Standing Frames, Standers, Assistive Technology Made By Altimate Medical Standers and mobility aids for persons with cerebral palsy, muscular dystrophy, spina bifida, and multiple sclerosis. http://www.easystand.com

Tell me More The 5000 Youth combines the best features of the EasyStand Magician for kids and the EasyStand 5000 for adults. It allows the child to pump up to standing independently by using the hydraulic pump handle. It also provides the child with access to the desk in both the seated and standing positions, making it ideal for the classroom. Schools love the EasyStand 5000 Youth. Here's Why- the toolfree adjustments, ease of use, and desk feature make it the only stander that makes standing easy for growing teens (as well as their school therapists and paraprofessionals). Learn more here EasyStand 5000 Youth Altimate Medical Inc. receives ISO 13485:2003 certification. Stacey Frank, General Manager headed up the project by serving as the Quality Management Representative. Read more "Standing 101" will be in NC, SC, GA, and FL in August/September Spinal Cord Injury Conference in San Fransisco, Booth #9 Watch EasyStand videos online- Click Here! ... New Funding Code for standers efftective Jan. 1, 2004 - E0637 "The EasyStand 5000 with the Mobile Option promotes independence for non-ambulatory patients in an upright, weight bearing position." Jill Loushine, PT

56. Was Ist Spina Bifida? Was Ist Hydrocephalus? Translate this page Was ist ein Hydrocephalus, was ist spina bifida aus medizinischer Sicht? spina bifida bedeutet eine komplexe Fehlbildung des Gehirnes und des Nervensystemes. http://www.paritaet.org/asbh/wasist/wasist.htm

Was ist ein Hydrocephalus, was ist Spina bifida aus medizinischer Sicht? siehe linke Abbildung In den Kammern ( Gehirnventrikel siehe linke Abbildung; Erscheinungsformen der Spina bifida aperta mit Protrusion spinaler Strukturen siehe linke Abbildung Mail Home Tel. (0231) 86 10 50-0 Fax. (0231) 86 10 50-50

57. Spina Bifida Association Of Western PA The spina bifida Association of Western Pennsylvania (SBAWP) is a charitable, nonprofit organization committed to improving the quality of life for people http://www.sbawp.org/

Read the Spring Newsletter and Annual Report Support the SBAWP Today MISSION: ABOUT SPINA BIFIDA: HISTORY: The Spina Bifida Association of Western Pennsylvania (SBAWP) is a charitable, non-profit organization committed to improving the quality of life for people with disabilities, especially those with spina bifida and their families, by providing a continuum of direct service, education and advocacy. Spina bifida is one of the most devastating of all birth defects affecting nearly one out of every 1,000 newborns in the U.S. It results from the failure of the spine to close properly during the first month of pregnancy exposing the nerves to damage or infection. At birth, the most obvious signs of spina bifida are either a cyst or indentation on the baby's spine. Surgery will close any opening, however, damaged nerves cannot be repaired. Individuals with this disability often suffer from loss of sensation in the lower extremities; bowel and bladder incontinence; leg and foot deformities and learning disabilities. Since 1969, the SBAWP has evolved from a parent support group to become a nationally recognized provider of direct services to individuals with spina bifida. The organization serves nearly 1000 children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.

58. Spina Bifida spina bifida Menu. This is a webforum to discuss and comment on spina bifida. spina bifida S1 (12/17/99) 213 PM; Shunt Malfunction? http://neuro-www.mgh.harvard.edu/forum/SpinaBifidaMenu.html

Spina Bifida Menu This is a webforum to discuss and comment on Spina Bifida. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! ARNOLD CHARI (1/9/00) 10:08 PM Scoliosis (1/9/00) 8:59 PM Shunt failure (1/7/00) 10:54 PM ... Spina Bifida in Canada (10/16/97) 2:29 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page. These forums are maintained by the Department of Neurology at Massachusetts General Hospital John Lester - Webspinner

59. Index FFASB. Repr©sentante officielle des spina bifida fran§ais aupr¨s des instances fran§aises, europ©ennes et mondiales. http://ffasb.tripod.com/

var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Dernière mise à jour du site le dimanche 22 février 2004 Vous pouvez désormais discuter directement avec nous (voir les explications en bas de cette page) en cliquant sur la bulle rectangulaire bleu sous le logo FFASB..... A tout de suite! Bienvenue sur le site officiel de de la Fédération Française des Associations du Spina Bifida Translate this page automatically. Appel à la Solidarité !!! Dernières nouveautés sur le site: Un billet d'humeur Une page "Solidarité" Une page sur l'actualité de la recherche médicale pour les maladies orphelines La recommandation officielle du Ministère de la Santé Français en matière de supplémentation en acide folique Mise à jour de l'agenda au 23/02/2004 Cliquez sur l'image pour entrer SVP! Site optimisé pour IE 5 1024*768 plein écran Vous êtes le ième visiteur à venir nous rendre visite !!!!!! MERCI !!!! S'inscrire à FFASB Adresse du service : fr.groups.yahoo.com La liste de discussion est née! Inscrivez-vous vite!

60. Wait Please... Translate this page FEDERAZIONE ASSOCIAZIONI ITALIANE spina bifida E IDROCEFALO Milano c/o Croce Verde APM - Via San Vincenzo 25 - Tel. 02/63604574. http://www.telpress.it/faisbi/

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