21. Children With Spina Bifida A Resource Page For Parents Children with spina bifida A Resource Page for Parents quot;This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. quot; http://rdre1.inktomi.com/click?u=http://www.waisman.wisc.edu/~rowley/sb-kids/ind

22. Children With Spina Bifida: A Resource Page For Parents & Professionals Features web resources and links for parents of children with spina bifida and health professionals. http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 271,013 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 2/11/2004 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

23. Children With Spina Bifida: A Resource Page For Parents & Professionals spina bifida Survey Results! The spina bifida Survey! The Children with spina bifida Web Site has been visited 268,656 times since March 6, 1996. Disclaimer http://www.waisman.wisc.edu/~rowley/sb-kids/

Spina Bifida Organizations Spina Bifida Online Discussion Groups Hydrocephalus Resources Chiari Malformation ... Prenatal Diagnosis ~ Genetics ~ Fetal Surgery Folic Acid Information Hot Lines Yellow Ribbon for Spina Bifida Awareness ... The Spina Bifida Survey! The Children with Spina Bifida Web Site has been visited 271,014 times since March 6, 1996. This page is a compilation of information and resources intended to be a service to parents of children who have spina bifida. Inclusion of any resource or web site does not imply endorsement. Any medical or health care reference is intended for informational purposes only. If you have any questions relating to your child's condition please consult your child's doctor. Last updated 2/11/2004 by Linda Rowley . E-mail: rowley@waisman.wisc.edu Document Source: http://www.waisman.wisc.edu/~rowley/sb-kids/

24. Samuel's Spina Bifida Surgery In Utero Miraculous photograph of a twentyone week old fetus reaching out of his mother's womb to grasp the hand of his surgeon. http://www.michaelclancy.com

A Moment ... From a Child (Click picture to enlarge) During a spina bifida corrective procedure at twenty-one weeks in utero, Samuel thrusts his tiny hand out of the surgical opening of his mother's uterus. As the doctor lifts his hand, Samuel reacts to the touch and squeezes the doctor's finger. As if testing for strength, the doctor shakes the tiny fist. Samuel held firm. At that moment, I took this "Fetal Hand Grasp" photo. As a photojournalist, my job is to tell stories through pictures. The experience of taking this photograph has had a profound effect on me, and I'm proud to share this moment with you. Michael Clancy Order a Print E-mail Michael Clancy http://www.michaelclancy.com

25. Index Of /littleaicha Site personnel, cr©© par les parents d'un enfant atteint de spina bifida. S©n©gal. http://membres.lycos.fr/littleaicha/

Index of /littleaicha Parent Directory

26. Spina Bifida, Stoma's, Sociale Zekerheid In Belgie En Nederland In de volksmond wordt het meestal open rug genoemd. http://www.spinabifidainfo.nl/

Gratis teller Spina Bifidainfo.nl Kies uw taal - Choisissez votre langue Nederlands Français Donald Willemsen

27. Spina Bifida And Hydrocephalus Association Of Canada -= Welcome! =- Since its inception in 1981, the spina bifida and Hydrocephalus Association of Canada (SBHAC) has been working on behalf of people with spina bifida and/or http://www.sbhac.ca/index.php?page=main

28. Centro Spina Bifida Università Cattolica Sacro Cuore Roma Presso l'Istituto di clinica pediatrica dell'universit  cattolica del Sacro Cuore ¨ attivo il Centro per lo studio e l'assistenza al bambino affetto da questa patologia. Le attivit  di cura, di prevenzione, d'orientamento e di informazione. http://www.centrospinabifida.it/

ENTRA realizzato da Artisticom ENTRA realizzato da Artisticom

29. Spina Bifida And Hydrocephalus Association Of Canada -= Welcome! =- Déclic ici pour visualiser ce site en français. Since its inception in 1981, the spina bifida and Hydrocephalus Association of Canada (SBHAC) has been working on behalf of people with spina bifida and/or hydrocephalus and their families. http://www.sbhac.ca/

Déclic ici pour visualiser ce site en français Since its inception in 1981, the Spina Bifida and Hydrocephalus Association of Canada (SBHAC) has been working on behalf of people with spina bifida and/or hydrocephalus and their families. The Association's purpose is simple - to make life better for those born with spina bifida and/or hydrocephalus and for those not yet born. Mission Statement "To improve the quality of life of all individuals with spina bifida and/or hydrocephalus and their families, through awareness, education, research and advocacy, and to reduce the incidence of neural tube defects". Vision Statement The Spina Bifida and Hydrocephalus Association of Canada strives to be the leading national voluntary health organization, setting the standard for education, public awareness and research of spina bifida and hydrocephalus. We aspire to reduce the incidence of spina bifida and hydrocephalus and to promote independence of people living with spina bifida and hydrocephalus. Statement of Purpose: To foster and promote the human rights and well-being of those with spina bifida and/or hydrocephalus To promote research into cause, improved treatment and prevention of these conditions

30. Irish Association For Spina Bifida & Hydrocephalus Provides an information resource, news, contact details and links. http://www.iasbah.ie/

Latest News: Upcoming Seminar Report on the "Life choices" Seminar (Word format) IASBAH Gifts to Purchase IASBAH Calendar of Events 2004 ... Summer Project Search the Site: NEC Officers Welcome to our website Thank you for visiting our website, as National Chairperson of IASBAH, I am very much aware of the need for up-to-date information on Spina Bifida and Hydrocephalus. As you will notice through browsing through our website, we have attempted to give as much information as possible on all aspects of life; for our Irish members with Spina Bifida and Hydrocephalus, particularly in the areas of rights based information. If you feel you do not have sufficient information, particularly for students who are preparing projects on people with disabilities and are coming to this website for the first time, please telephone our National Resource Centre at 01 457 2329, where you can obtain further information on various aspects of Spina Bifida and Hydrocephalus. Once again, thank you for visiting our website and hope you find it useful, informative and that you will go away with an understanding of Spina Bifida and Hydrocephalus.

31. Spina Bifida And Hydrocephalus Association Of Canada -= Definitions =- s. spina bifida. What is spina bifida? spina bifida is usually accompanied by one or more other conditions. Types of spina bifida....... Definitions and http://www.sbhac.ca/index.php?page=faq

32. Listing Of Directory: /jimceleste/cond_ed/ Learn about this unique system of teaching and learning for children with motor disorders such as Cerebral Palsy and spina bifida. http://members.aol.com/jimceleste/cond_ed/

Listing of directory: /jimceleste/cond_ed/ FileName Last Modified Size Parent Directory mcce 07-Apr-2001 19:58 face 04-Jan-2002 12:39 08-Jan-1996 01:09 spokane 21-Mar-1998 00:32 cace 24-Feb-1999 00:38 millbroc.html 04-Jan-2002 12:31 bignew.gif 19-Apr-1996 00:20 cenews.html 09-Nov-1996 01:15 count.html 04-Feb-1996 01:12 literature.html 04-Aug-1997 16:23 chicago.html 01-Jun-1998 13:31 peto.html 20-Jan-1996 15:45 marchdimes.html 08-Dec-1998 00:39 twice_logo.jpg 01-Dec-1997 18:39 malta.html 20-Jan-1998 20:31 tsadlogo_sm.jpg 04-Nov-1997 20:00 plinth.jpg 04-Nov-1997 20:00 hornsey_info.html 18-Jul-1998 11:36 index2.html 09-Jan-2002 14:15

33. Spina Bifida Index, Wake Forest Neurosurgery Internet links on spina bifida, myelodysplasia, tethered spinal cord, and spinal lipomas from the Department of Neurosurgery, Wake Forest University, WinstonSalem, North Carolina. spina bifida / http://www.bgsm.edu/bgsm/surg-sci/ns/sb.html

Spina Bifida / Myelodysplasia Index Department of Neurosurgery Wake Forest University School of Medicine Neurosurgeons/Referrals Neurosurgery Home Schedule an Appointment Links to information about spina bifida, myelodysplasia, tethered spinal cord, spinal lipomas, myeloschisis, split cord malformation, and diastematomyelia. Children with Spina Bifida A Resource Guide for Parents (Highly Recommended) SB-Parents e-mail list server primarily for parents To join the list send a e-mail message to: listserv@onelist.com In the body of the message type: Subscribe SB-Parents Yourfirstname Yourlastname To send messages (after joining) send an email message to: SB-Parents@onelist.com BIFIDA-L e-mail list server for anyone interested in spina bifida/myelodysplasia To join , send a message to: listserv@mercury.dsu.edu In the body of the message type: Subscribe BIFIDA-L Yourfirstname Yourlastname To send messages (after joining) send an email message to: BIFIDA-L@mercury.dsu.edu The Spina Bifida Web Forum BBS (Enter and select Spina Bifida) Spina Bifida Live Discussion (Select Spina Bifida Chat Room) The Usenet Newsgroup alt.support.spina-bifida

34. EESSCF Le Trèfle Tournai - Chièvres Etablissement d'Enseignement Secondaire Sp©cialis© de la Communaut© Fran§aise du Hainaut occidental (Belgique). Offre un enseignement secondaire de types occupationnel, professionnel ou de qualification   des adolescent(e)s IMC, spina bifida, myopathes, h©mi, bi- ou t©trapl©giques. http://users.skynet.be/letrefle/

Etablissement d'Enseignement Secondaire Spécialisé de la Communauté Française Le Trèfle Tournai - Chièvres Veuillez cliquer sur le bouton de mode d'affichage correspondant au paramétrage de votre écran pour entrer

35. SBHAO - The Spina Bifida Hydrocephalus Association Of Ontario spina bifida Hydrocephalus Association of Ontario. To improve the quality of life of all individuals with spina bifida and/or hydrocephalus, through research http://www.sbhao.on.ca/

Home FAQs Contact Us "To improve the quality of life of all individuals with spina bifida and/or hydrocephalus, through research, awareness, care and advocacy." Home FAQs Contact Us Charitable Registration #10799 9310 RR0001

36. Spina Bifida - About Spina Bifida About if, spina bifida, Hydrocephalus, Pregnancy, Human Rights, Developing Countries, Newsroom, Forum, Links. Introduction. Leaflets for adolescents with spina bifida. http://www.ifglobal.org/spina_bifida/spina_introduction.php

37. Spina Bifida Association Of America - More Latex Information NonLatex Alternative Products List - courtesy of the spina bifida Association http://www.sbaa.org/html/sbaa_mlatex.html

LATEX IN THE HOSPITAL ENVIRONMENT UPDATED Spring 2001 Frequently contain LATEX Examples of LATEX-SAFE alternatives/barriers Adhesives, skin (Smith+Nephew) Anesthesia circuits, bags, oxygen masks Mastisol (Ferndale) Neoprene (Anesthesia Associates, Ohmeda adult), some Vital Signs Bandaids Bulb syringe Active Strip (3M), CURAD flexible Neon, Readi-Bandages Cleen Cuff (Vital Signs), nylon ( some Trimline) selected Davol, Medline, Rusch, Premium,Baxter Catheters, condom Catheters, cardiac, vascular, pulmonary Catheters, straight, coude Catheters, feeding Scotchcast soft,Delta-Lites, recent Clear Advantage (Mentor), ProSys NL (ConvaTec), selected Coloplast, Rochester some Am BioMed, Argyle,Bard,Cook, Dale, Kendall,Lifetech,Mentor, Rochester, some World Medical, Am BioMed, Mentor, RobNel (Sherwood),Coloplast, selected Bard, Rusch catheters Accumark feeding catheter (Sims Portex) most Laerdal products BDF Elastoplast, Action Wrap, Coban (3M) Lyofoam (Acme), Spandage (Medi-tech) Duoderm (Squibb), Reston foam (3M), Opsite, Venigard, Comfeel (Coloplast) (Kendall)

38. Julia's Journey With Spina Bifida Support and information written by a parent of a child with spina bifida and hydrocephalus, for other families who have children with these birth defects. http://www.geocities.com/Heartland/Fields/6980/

to Julia's Journey "The real voyage of discovery consists not in seeking new landscapes, but in having new eyes." M. Proust Throughout you will read stories and information that will hopefully help out and give you some expectations of what's ahead. It will also provide support for new, seasoned parents and loved ones. It will also touch briefly on the scientific aspects of Spina Bifida and Hydrocephalus. However, my main purpose is to share what my family and I felt when we first found out about our daughter and how we continue to feel. I hope you find it comforting, encouraging, informing and strengthing. Additionally and most importantly, I hope this site will make you feel like you're not alone. Remember nothing is written in stone here. Feel WHAT you WANT to feel WHEN you are ready and not a second sooner. If you are just finding out, it's a tough time right now, but in time, your child will show you that gorgeous rainbow of spectacular discoveries. Mine did and she still is. Finally, please

39. Pediatric Neurosurgery - Spina Bifida spina bifida. spina bifida is one of the most common birth defects compatible with life. Children with spina bifida A Resource Page for Parents. http://cpmcnet.columbia.edu/dept/nsg/PNS/SpinaBifida.html

Spina Bifida The diagnosis can of ten be made on the basis of a high resolution ultrasound or elevation of maternal alpha fetal protein levels. Other times it is not recognized until birth. It is widely accepted that most children born with spina bifida should be aggressively treated both medically and surgically. Recommendations are for early closure of the back and spinal cord as well as management of hydrocephalus if indicated. The important thing to realize is that this operation is designed specifically to prevent infection or ongoin g trauma to the exposed spinal cord and not to return function which is not present at birth. This is not an insignificant distinction. Hydrocephalus is usually present in @80-90% of children with spina bifida and should b e treated when determined, usually before discharge from the hospital. As many different parts of the body and nervous system are potentially involved, the child will need to see numerous physicians and therapists for follow up. In addition to physical therapy and early intervention, the child may need treatment for incontinence as well as bracing for the legs or spine. In many areas of the country this follow up is provided through multidisciplinary spina bifida clinics. These clinics are staff ed by the various physicians and therapists whose specialties pertain to the treatment of spina bifida.

40. Loving Paws Assistance Dogs Index the majority of placements are with children with spinal cord injuries, also provides Service and Social Dogs to children with Muscular Dystrophy, Cerebral Palsy, spina bifida, and other disabilities. http://www.lovingpaws.com/

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