1. Spina Bifida Association Of America - Facts About Spina Bifida Facts About spina bifida. What are Neural Tube Defects? There are 3 types of NTDs anencephaly, encephalocele, and spina bifida. http://www.sbaa.org/html/sbaa_facts.html

SBAAWeb Resources Home Donate Online Parent's Tributes Facts About Spina Bifida ... Search SBAAWeb Facts About Spina Bifida What are Neural Tube Defects? Neural tube defects (NTDs) are serious birth defects that involve incomplete development of the brain, spinal cord and/or protective coverings for these organs. There are 3 types of NTDs: anencephaly, encephalocele, and spina bifida. Babies born with anencephaly have underdeveloped brains and incomplete skulls. Most infants born with anencephaly do not survive more than a few hours after birth. Encephalocele results in a hole in the skull through which brain tissue protrudes. Although most babies with encephalocele do not live or are severely retarded, early surgery has been able to save a few children. What is Spina Bifida? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. Spina bifida, the most common NTD, is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.

2. ASBAH - Association For Spina Bifida And Hydrocephalus the ASBAH logo linking to the home page. Association for spina bifida and Hydrocephalus. Hydrocephalus Action Working in Partnership with Codman. Find out more. http://www.asbah.org/

Association for Spina Bifida and Hydrocephalus Hydrocephalus Action: Working in Partnership with Codman. Find out more PEOPLE - Proud of David Link magazine gave David Proud a video camera, this is his story of living with spina bifida. Find out more RESEARCH - Current thinking ASBAH funds specialised medical and educational research aimed at either improving the treatment of people with spina bifida and/or hydrocephalus or enhancing their quality of life. Find out more Danny Mills Golf Classic Danny Mills Golf Classic - took place on Sunday, 16th May 2004 with special celebrity guests Find out more IFHSB Conference The fifteenth international conference on Spina Bifida and Hydrocephalus will be held in Oslo, Norway 2nd-4th September 2004. Find out more Reg charity no 249338 About ASBAH Spina Bifida Hydrocephalus Fundraising Local Associations Library Information Sheets Link Magazine Useful Links ASBAH promotes services throughout England, Wales and Northern Ireland. We hope you find the information contained on this site of value to you. If you would like to make a donation ( click here Contact Us Site Map Site Search Site search Quick links Normal Pressure Hydrocephalus Independent Living Pack Education Health ... Transition Contact Details Association for Spina Bifida and Hydrocephalus 42 Park Road Peterborough England Tel: 01733 555988 9.00 am to 5.00 pm

3. NINDS Spina Bifida Information Page spina bifida information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). More about spina bifida, Studies with patients, http://www.ninds.nih.gov/health_and_medical/disorders/spina_bifida.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Spina Bifida Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Spina Bifida Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Spina Bifida? Is there any treatment? What is the prognosis? What research is being done? ... Additional resources from MEDLINEplus What is Spina Bifida? Is there any treatment? There is no cure for SB because the nerve tissue cannot be replaced or repaired. Treatment for the variety of effects of SB may include surgery, medication, and physiotherapy. Many individuals with SB will need assistive devices such as braces, crutches, or wheelchairs. Ongoing therapy, medical care, and/or surgical treatments may be necessary to prevent and manage complications throughout the individual's life. Surgery to close the newborn's spinal opening is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. What is the prognosis?

4. Information On Spina Bifida links on spina bifida. What is spina bifida ? spina bifida is the most frequently occurring More children have spina bifida than have muscular dystrophy, multiple sclerosis, and http://www.fortunecity.com/millenium/plumpton/268/sb.htm

web hosting domain names email addresses Information On Spina Bifida I also have some great links on Spina Bifida What is Spina Bifida ? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children have spina bifida than have muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina bifida, the most common neural tube defect (NTD), is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Because of the paralysis resulting from the damage to the spinal cord, people born with spina bifida may need surgeries and other extensive medical care. The condition can also cause bowel and bladder complications. A large percentage of children born with spina bifida also have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today's sophisticated medical techniques.

5. New URL - Children With Spina Bifida The Children with spina bifida Web Page has been moved to. http//www.waisman.wisc.edu/~rowley/sb kids/. Please update your links and bookmarks. - http://www.waisman.wisc.edu/~rowley/sb_kids.htmlx

The Children with Spina Bifida Web Page has been moved to http://www.waisman.wisc.edu/~rowley/sb-kids/ Please update your links and bookmarks.

6. Sbh Queensland SBH Queensland. Welcome to the site of SBH Queensland, the main provider of services to the spina bifida and hydrocephalus communities in Queensland, Australia. Where is Queensland? site looking http://www.spinabifida.org/

SBH Queensland Welcome to the site of SBH Queensland, the main provider of services to the spina bifida and hydrocephalus communities in Queensland, Australia. Where is Queensland? If you are returning to this site looking for information on spina bifida, hydrocephalus or any similar conditions and their treatment, you will notice that all of the information has gone. It has been updated, added to and generally improved and moved to the Australian site - The Australian Spina Bifida and Hydrocephalus Association (ASBHA) If you want to know more about spina bifida and hydrocephalus please take the time to have a good look around this site. You will probably learn a lot from it. In future the information on the ASBHA site and the URL, spinabifida.org will be taken over by the International Federation for Hydrocephalus and Spina Bifida and used as part of their planned Knowledge Centre. This site is maintained by Bill Shead, the Information Officer for SBH Queensland. To ask a question (after visiting the ASBHA site first, please), make a comment or let me know about problems with this website please email me . This is only a temporary site and I hope to do a lot more with it early in 2004.

7. Spina Bifida Association Of America - Welcome spina bifida Association of America. Thank you for your continued support of the spina bifida Association of America. Make a donation now! http://www.sbaa.org/

SBAAWeb Resources Meet The Veenstras! Advocacy Alert UPDATED 2/13/2004 Write Your Representative Today! Donate Online ... SBAA Advocacy Work in Progress, please visit often! Join the SBAA Emailing List! Name: E-Mail: Add/Update List Delete from List Search SBAAWeb Internet consulting and development By SocialNet Web InterActive Spina Bifida Association of America 4590 MacArthur Blvd., NW, Suite 250 Washington, DC 20007-4226 Voice: Fax: Email: sbaa@sbaa.org 2003 Back-to-School Guide 2002 Back-to-School Guide The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year. SBAA provides services such as: Toll Free 800 Information and Referral Service Bi-monthly Newsletter, Insights Legislative Updates Publications Agent Orange Class Assistance Program Professional Advisory Council Nursing Council Conferences and Educational Symposiums Adult Network Scholarship Fund Public Awareness Campaigns Real Stories Chapter and Member Services National Public Service Announcements Individual and Systems Advocacy Research Fund The SBAA is a 501(c)(3) nonprofit organization.

8. Disability Info: Spina Bifida Fact Sheet (FS12) spina bifida. Table of Contents. Definition. Incidence. Characteristics. Educational Implications. Resources. Organizations. Fact Sheet 12 (FS12) January 2004. Approx. 4 pages when printed. PDF version. Definition. Incidence. Characteristics spina bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are http://www.nichcy.org/pubs/factshe/fs12txt.htm

NICHCY Our Publications Disability Info A publication of the National Dissemination Center for Children with Disabilities Spina Bifida Table of Contents Definition Incidence Characteristics Educational Implications ... Organizations Fact Sheet 12 (FS12) January 2004 Approx. 4 pages when printed. PDF version Definition Spina Bifida means cleft spine, which is an incomplete closure in the spinal column. In general, the three types of spina bifida (from mild to severe) are: Spina Bifida Occulta: There is an opening in one or more of the vertebrae (bones) of the spinal column without apparent damage to the spinal cord. Meningocele: The meninges, or protective covering around the spinal cord, has pushed out through the opening in the vertebrae in a sac called the "meningocele." However, the spinal cord remains intact. This form can be repaired with little or no damage to the nerve pathways. Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin; in others, tissue and nerves are exposed. Generally, people use the terms "spina bifida" and "myelomeningocele" interchangeably. Back to top Incidence Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptoms, very few of them ever know that they have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximately one out of every thousand births. Of these infants born with "spina bifida manifesta," about 4% have the meningocele form, while about 96% have myelomeningocele form.

9. Fetal Surgery For Spina Bifida Features various information regarding fetal surgery for spina bifida. http://www.fetal-surgery.com

Welcome Welcome to the newly redesigned Fetal-Surgery.Com web site! This will still house the information that you have come to rely upon regarding maternal fetal surgery for Spina Bifida (MFS4SB). Along with being a resource for people wanted to learn more about MFS4SB, we intend to raise the awarness level of the public about Spina Bifida and Fetal Surgery. Please Explore the site for amazing personal stories, incredible photos and the current state of the union. This site is dedicated to Zane and his family who were one of the first families to undergo this amaizing surgery. Home News Articles Research Pictures Links ... Books Overview - What is Fetal Surgery for Spina Bifida Benefits Fetal surgery for spina bifida is intended to decrease the handicaps associated with spina bifida by protecting the fetuses previously exposed spinal tissue from additional damage by the amniotic fluid and intrauterine movement. Doctors say this procedure can not restore neurological function which has already been lost, but it may prevent additional loss from occurring due to the intrauterine environment. As an added and unexpected benefit, it was discovered that the procedure apparently affects the way the brain develops in utero, allowing certain malformations of the brain, typically associated with spina bifida, to correct themselves. "It's extraordinary that the malformation goes away," Dr. Scott Adzick told the Philadelphia Inquirer. Because of the malformation, traditionally more then 90% of children with spina bifida required a shunt to drain fluid off the brain. "Shunts are bad news." Adzick said. "The average kid needs three or more in a lifetime." Research appears to indicate that children whom have had fetal surgery for spina bifida, are less likely to require a shunt. Perhaps a 33% to 50% reduction in the need for shunts.

10. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Verband der Behindertenselbsthilfe für Betreuung, Beratung, Information, Erfahrungsaustausch, Kontakte, http://www.asbh.de/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

11. Redirection Vers Spina Bifida (Suisse) Site personnel, cr©© par les parents d'un enfant atteint de ce handicap. Suisse. http://www.perso.ch/dupuism/

12. International Federation For Hydrocephalus And Spina Bifida Its mission is to improve the quality of life of people with Hydrocephalus and spina bifida throughout the world. To decrease the prevalence of Hydrocephalus and/or spina bifida by primary prevention. http://www.ifglobal.org/

13. Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH) Informationen ¼ber den Verein und seine Aktivit¤ten. Neben der Beschreibung der Krankheitsbilder finden sich wissenschaftliche Beitr¤ge, Antworten auf Sozialrechtsfragen, Hinweise auf die regionalen Selbsthilfegruppen und die M¶glichkeit zum Austausch im Forum und im Chat. http://www.paritaet.org/asbh/

Arbeitsgemeinschaft Spina bifida und Hydrocephalus e.V. (ASbH) Start Impressum Termine Selbsthilfe ... Diskussion

14. Spina Bifida - Keep Kids Healthy Information about the most common symptoms and treatment for children with spina bifida, or myelomeningocele. http://www.keepkidshealthy.com/welcome/conditions/spinabifida.html

Bookstore Site Map Contact Us Help ... What's New? Search this site: Advanced Search Free Newsletters Main Menu Useful Tools Index of Topics Pediatric Problems New! Parenting Tips Symptom Guide Nutrition Immunizations ... Web Links Online Resources What's New Reviews New! Growth Charts Online Forums Vaccine Schedule Baby Names Guide ... Height Calculator Newsletters: Subscribe to get free news, tips and updates. Recommend Us tell a friend about us or email this page to a friend spina bifida Main Diseases and Conditions Spina Bifida Spina bifida is a type of congenital malformation of the central nervous system. In its mildest form, spina bifida occulta , there is a malformation of the vertebral arches of the spinal cord without other problems. This occurs in 5% of the population and does not cause any symptoms or problems and no treatment is required. Some children with this disorder also have a patch of hair or skin discoloration on the skin of the lower back with the defect occurs. Children with spina bifida , or myelomeningocele also have a malformation of the vertebral arches of the spinal cord and they have abnormalities of the spinal cord, in which the spinal cord and nerve roots protrude out. The malformation is most commonly found in the lumbosacral area of the lower back, but it can occur anywhere along the spinal cord.

15. Spina Bifida And Hydrocephalus Association Of Nova Scotia Information about these conditions, and a calendar of events scheduled by the Association. http://www.chebucto.ns.ca/Health/SBANS/

16. Hydrocephalus In approximately 90 percent of people with spina bifida, the flow of cerebrospinal fluid is obstructed. A blockage at the base of http://www.spinabifida.org/hydrocephalus.htm

HYDROCEPHALUS A clear, saltwater-like liquid called cerebrospinal fluid surrounds the brain. This fluid protects and nourishes the brain, carries away wastes from brain cells and contains important chemicals and nutrients. Each day the brain produces about a pint of cerebrospinal fluid (CSF) which flows in a continuous circuit through the brain cavities (ventricles) and over the surface of the brain and spinal cord until it is absorbed by the body. In approximately 90 percent of people with spina bifida, the flow of cerebrospinal fluid is obstructed. A blockage at the base of the brain results in a build up of fluid in the ventricles of the brain, which then expand and push against brain tissue and the bones of the skull. In an infant the plates of the skull are not yet fused together. This enables the plates to shift and accommodate the excess cerebrospinal fluid and thus lessen the amount of damage to the brain. In some babies born with hydrocephalus the condition is arrested if the blocked passage opens or the fluid is channelled elsewhere. If it continues to develop there is continuing pressure on the brain, which if untreated will cause brain damage. Hydrocephalus is usually treated by insertion of a shunt. A shunt is a device which is designed to drain excess cerebrospinal fluid from the brain and carry it to other parts of the body. A one-way valve is used, which usually sits outside the skull, but beneath the skin, somewhere behind the ear. (

17. Spina Bifida Features a chat room, information, pictures, stories, facts, diagrams, and resources for living with http://www.geocities.com/HotSprings/2474/

18. Spina Bifida Association Of Greater New Orleans; Home Page Louisiana's constituency of the national organization. Contact, resource and membership information for individuals with spina bifida and their families. http://www.sbagno.org/

Spina Bifida Association of Greater New Orleans Home Betty Matthews Page Newsletter Definition ... Links Last Updated: July 16, 2003 Webmaster: Brent W. Smith Post Office Box 1346 Kenner, LA 70063 Voice: (504) 737-5181 Fax: (504) 349-7931 E-mail: sbagno@sbagno.org T he Spina Bifida Association of Greater New Orleans , associated with the Spina Bifida Association of America ( http:www.sbaa.org ), is a tax exempt, non-profit organization made up of parents, family members, adults with Spina Bifida, and professionals who work together to assist those persons of the New Orleans area born with Spina Bifida and their families. The group is led by a dedicated Board of Directors who see to the day-to-day activities of the organization, and work diligently to aid its members. The SBAGNO is strictly a volunteer organization with no paid staff. Operating expenses are held to a minimum in order to provide quality services on a regular basis. Some of the services provided by the SBAGNO are as follows: Newsletter Annual Summer Camp for children 24 hour telephone answering service Meetings where knowledge of medical, educational, and social programs are shared

19. Spina Bifida Association Of America spina bifida Association of America quot;The Mission of the spina bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. quot; The http://rdre1.inktomi.com/click?u=http://www.sbaa.org/&y=02201A6D22055711&

20. Spina Bifida Information, causes, and what it is like to have spina bifida. http://www.kidshealth.org/kid/health_problems/bone/spina_bifida.html

KidsHealth Kids Kids' Health Problems Andrea is 12 years old and in the 6th grade. She likes to go swimming, play with her dog, and have friends over. She's been in three dance recitals, and she even received a standing ovation once. She's traveled to Canada and many places in the United States, and next summer she hopes to go to Scotland. When she's older, Andrea wants to be a chef. Like you, Andrea is interested in many things and can do a lot of stuff. What might be different from you, though, is the fact that Andrea can't walk. Andrea has spina bifida (say: spy -nuh bih -fuh-duh) and uses a wheelchair to get around. What Is Spina Bifida? Someone born with spina bifida has an opening in the spine. A healthy spine is closed to protect the spinal cord, a bundle of nerves that send messages back and forth between your brain and the rest of your body. The messages tell your muscles to move so you can kick a soccer ball or pick up a pencil. The messages also tell you about sensations on your skin , so you know to pull your hand away from a hot pot.

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