21. James R. Clark Sickle Cell Foundation Web Page Foundation working to optimize the social, psychological and physiological well being of residents with sickle cell disease through the provision of services to individuals, families, and communities. http://www.midnet.sc.edu/jrcsc

The James R. Clark Memorial Sickle Cell Foundation 1420 Gregg Street Columbia, South Carolina 29201 Executive Director Lena Stevenson Phone: 803-765-9916 Free: 800-506-1273 Fax: 803-799-6471 Email: jrcsc@bellsouth.net HISTORY The James R. Clark Memorial Sickle Cell Foundation, Inc. was chartered in 1972 in Columbia, South Carolina as a comprehensive community-based health organization to serve the needs of patients with sickle cell disease. The foundation is named after James R. Clark, MD, who was a founder and advocate for patients with the sickle cell disease. MISSION The mission of the James R. Clark Memorial Sickle Cell Foundation is to optimize the social, psychological and physiological well being of residents with sickle cell disease with in the fifteen county area of the State that we serve. This mission shall be accomplished through the provision of comprehensive services to individuals, families, and communities and shall be further enhanced by collaboration with appropriate federal, state, and local resources and through the involvement of volunteers and contributors. SERVICES A staff of thirty-one (31) full-time, part-time and paid staff members assure accessible services for our clients.

22. Alumni Medical Library: Page Not Found sickle cell disease. Blood Diseases and Sickle Cell Anemia Hemoglobin SC Disease, Sickle Cell Trait, sickle cell disease information from CliniWeb International. sickle cell disease http://med-libwww.bu.edu/library/sickle.html

Alumni Medical Library 80 East Concord St. Boston, MA 02118 Page Not Found The page you requested was either not found or has moved. Please visit our homepage at http://medlib.bu.edu/ If you cannot find the information you are looking for please email refquest@medlib.bu.edu , or call the reference desk at (617) 638-4228. Contact a librarian Boston University Medical Center Boston University

23. Sickle Cell Disease Management, NHLBI The Management of sickle cell disease. (Final VersionJuly 12, 2002). Picture of cover linked to PDF file. The fourth edition of The http://www.nhlbi.nih.gov/health/prof/blood/sickle/

HOME SITE INDEX CONTACT US TIPS ... Publications The Management of Sickle Cell Disease (Final VersionJuly 12, 2002) The fourth edition of The Management of Sickle Cell Disease developed by physicians, nurses, psychologists, and social workers who specialize in the care of children and adults with sickle cell diseasedescribes the current approach to counseling and also to management of many of the medical complications of sickle cell disease. It is organized into four parts: Diagnosis and Counseling, Health Maintenance, Treatment of Acute and Chronic Complications, and Special Topics. Multiple new therapies are now available for children and adults with sickle cell disease, and often the options to be chosen present a dilemma for both patients and physicians. This book does not provide answers to many of these newer questions but rather explains the choices available. It is to serve as an adjunct to recent textbooks that delve more deeply into all aspects of the disorder. NIH Publication No. 02-2117. 188 pages. You may obtain the document in the following ways: View online (in formats below) [PDF document, 768 K

24. Passive Tobacco Smoke Increases Complications In Children With Sickle Cell Disea Research finds hat children with sickle cell disease who are exposed to tobacco smoke in the home have more complications from the disease than those who live in a smokefree environment. http://www.eurekalert.org/pub_releases/2003-12/uocd-pts121603.php

Public release date: 16-Dec-2003 Contact: Jennifer Conradi jennifer.conradi@ucdmc.ucdavis.edu University of California, Davis - Medical Center Passive tobacco smoke increases complications in children with sickle cell disease (SACRAMENTO, Calif.) Physicians and researchers at the UC Davis School of Medicine and Medical Center found that children with sickle cell disease who are exposed to tobacco smoke in the home have more complications from the disease than those who live in a smoke-free environment. The study was published in the December issue of the Archives of Pediatrics and Adolescent Medicine. "Exposure to environmental or passive tobacco smoke increased the risk of sickle cell crisis by 90 percent, and was not influenced by other factors known to increase complications, such as age of the patient or type of sickle cell disease," said Daniel C. West, associate professor of pediatrics at UC Davis and lead author of the study. "Exposure to tobacco smoke has a tremendous impact on children with sickle cell disease. In fact, the study suggests that removing passive tobacco smoke from the home might not only reduce the suffering of children with sickle cell disease, but also reduce the cost of medical care." Sickle cell disease is a hereditary disease that affects hemoglobin, the protein in red blood cells that carries and delivers oxygen to tissues. The presence of sickle hemoglobin can lead to damaged and misshapen red blood cells that do not flow normally through blood vessels and deliver less than the normal amount of oxygen to peripheral tissues. These abnormalities can cause episodes of severe pain, known as sickle cell crises, and life-threatening damage to vital organs, such as the lungs and the brain.

25. Blood Diseases And Resources Information For Patients And The General Public, NH Contains health information related to blood diseases and disorders for the general public; topics include sickle cell disease, Raynaud s phenomenon, hemophilia http://www.nhlbi.nih.gov/health/public/blood/

HOME SITE INDEX CONTACT US TIPS ... Information for Patients and the Public Blood Diseases and Resources Information Topics from the Diseases and Conditions A-Z Index (DCI) are also listed below and identified by this image: Sickle Cell Disease Publications / Fact Sheets: Sickle Cell Anemia Datos Sobre La Anemia Falciforme (Facts About Sickle Cell Anemia) Fact Sheet: Hydroxyurea in Pediatric Patients with Sickle Cell Disease Facts About Sickle Cell Anemia ... Patient Fact Sheet: The Multicenter Study of Hydroxyurea in Sickle Cell Anemia (MSH) Blood Donation Publications / Fact Sheets: Everyone can Give the Gift of Life Donando con Regularidad Como Parte de tu Vida-el Proceso es Simple Y Seguro Back to Top Other Blood Diseases Publications / Fact Sheets: Deep Vein Thrombosis Idiopathic Thrombocytopenic Purpura Thalassemia von Willebrand Disease ... Facts About Raynaud's Phenomenon See Also: Patient Recruitment for Studies Conducted by the NHLBI at the NIH in Bethesda, Maryland Back to Top Health topics on this page: Sickle Cell Disease Blood Donation Other Blood See also: Blood Information for Health Care Professionals List of Publications Information Center National Cancer Institute (for cancers of the blood) ... CONTACT US Department of Health and Human Services National Institutes of Health National Heart, Lung, and Blood Institute

26. USA Medical Center Home Teaching hospital for the University of South Alabama offering care for trauma, burns, cancer, cardiovascular disease, strokes, organ transplant and sickle cell disease. http://www.southalabama.edu/usamc/

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27. Sickle Cell Anemia Disease Profile treatment. Blood test More than 40 states now perform a simple, inexpensive blood test for sickle cell disease on all newborn infants. http://www.ornl.gov/sci/techresources/Human_Genome/posters/chromosome/sca.shtml

28. MayoClinic.com - Sickle Cell Anemia Sickle cell anemia is one form of sickle cell disease — a category of blood disorders caused by defective hemoglobin. Hemoglobin http://www.mayoclinic.com/invoke.cfm?id=DS00324

29. Uhs.bsd.uchicago.edu/uhs/topics/sickle.cell.html sickle cell disease Information for School Personnelsickle cell disease Information For School Personnel New Jersey Department of Health Senior Services Division of Family Services http://uhs.bsd.uchicago.edu/uhs/topics/sickle.cell.html

30. CNN - Another First: Healthy Twins Born To Carriers Of Sickle Cell Disease - May CNN http://www.cnn.com/HEALTH/9905/11/sickle.cell.success/index.html

[an error occurred while processing this directive] MAIN PAGE WORLD U.S. LOCAL ... daily almanac MULTIMEDIA: video video archive audio multimedia showcase ... more services E-MAIL: Subscribe to one of our news e-mail lists. Enter your address: document.write(' '); Or: Get a free e-mail account E-MAIL DISCUSSION: message boards chat feedback CNN WEB SITES: AsiaNow Svenska Norge Danmark ... Italian FASTER ACCESS: europe japan TIME INC. SITES: Go To ... Time.com People Money Fortune EW CNN NETWORKS: more networks transcripts SITE INFO: help contents search ad info ... jobs WEB SERVICES: health > story page Another first: Healthy twins born to carriers of sickle cell disease Technique tests embryos before they are implanted RELATED VIDEO CNN's Rhonda Rowland reports on pre-implantation genetic diagnosis Windows Media May 12, 1999 Web posted at: 11:33 a.m. EDT (1533 GMT) NEW YORK (CNN) A New York-area couple who are both carriers of sickle cell disease have twin babies who are completely free of the sickle cell gene, thanks to a technique called pre-implantation genetic diagnosis (PGD), in which fertilized embryos are tested for the disorder before implantation in the woman's uterus. This first successful use of PGD to eliminate sickle cell disease was reported in Tuesday's Journal of the American Medical Association.

31. Sickle Cell Disease: Family Guide sickle cell disease Family Guide New groups Children with sickle cell disease and their families for their constructive comments;; Drs. http://www.state.nj.us/health/fhs/sicklecell/familyguide/

How to Use This Guide Introduction Emergency Telephone Numbers Warning Signs ... Directory of Genetic Counseling Centers in New Jersey Sickle Cell Disease: Family Guide Division of Family Services Special Child, Adult and Early Intervention Services Acknowledgements: This second edition was published by Newark Beth Israel Medical Center through funding provided by: New Jersey Department of Health and Senior Services Division of Family Health Services Special Child, Adult and Early Intervention Services P.O. Box 364 Trenton, New Jersey 08625-0364 We would like to extend special thanks to the following persons and groups: Children with sickle cell disease and their families for their constructive comments; Drs. Richard Sills and Dorothy Moore, Chairpersons, and members of the Sickle Cell Advisory Committee of New Jersey for their leadership; and the following members of the Patient Education Subcommittee for their expertise: Naomi Bartnoff Human Genetics Association of New Jersey Richard A. Drachtman, MD UMDNJ/RWJ Medical School Carina DeLeon, RN

32. Sickle Cell Disease Complication CNN http://www.cnn.com/2000/HEALTH/mayo/06/26/sickle.cell/index.html

33. HuGE Review - Sickle Hemoglobin (Hb S) Allele And Sickle Cell Disease Sickle Hemoglobin (Hb S) Allele and sickle cell disease print version. Most individuals with sickle cell disease have African and Mediterranean ancestry. http://www.cdc.gov/genomics/hugenet/reviews/sickle.htm

Your browser does not support script HuGE Review Home About HuGE What's New? Pub Lit Database ... CDC Genomics This HuGE Review was published in the American Journal of Epidemiology 2000 May 1;151(9):839-845. PMID: 10791557; UI: 20250196. Sickle Hemoglobin ( Hb S ) Allele and Sickle Cell Disease print version by Allison Ashley-Koch , Quanhe Yang , and Richard S. Olney Centers for Disease Control and Prevention, National Center for Environmental Health, Atlanta, Office of Genomics and Disease Prevention, GA Centers for Disease Control and Prevention, National Center for Environmental Health, Division of Birth Defects and Developmental Disabilities, Birth Defects and Genetic Diseases Branch, Atlanta, GA. July 1, 1998 (updated August 5, 1998) HuGE Review At-A-Glance Gene Gene variants Diseases ... Medical Literature Search At-A-Glance Beta globin is a major component of adult hemoglobin. The gene for beta globin is located on chromosome 11 and there are over 475 allelic variants. One of these variants, sickle hemoglobin ( Hb S ), is responsible for sickle cell disease, one of the most prevalent genetic diseases, affecting over 50,000 Americans. Most individuals with sickle cell disease have African and Mediterranean ancestry. It is believed that the high frequency of the (

34. CNN.com - Health - Devastation Of Sickle Cell Disease Chronicled - February 22, CNN http://cnn.com/2001/HEALTH/conditions/02/22/sickle.cell.anemia/index.html

MAIN PAGE WORLD U.S. WEATHER ... ABOUT US CNN TV what's on show transcripts CNN Headline News CNN International ... askCNN EDITIONS CNN.com Asia CNN.com Europe set your edition Languages Spanish Portuguese German Italian Danish Japanese Korean Arabic Time, Inc. Time.com People Fortune EW Devastation of sickle cell disease chronicled Film documentary scheduled February 28 February 22, 2001 Web posted at: 10:11 a.m. EST (1511 GMT) In this story: Asking questions Treatments studied RELATED STORIES, SITES By Michele Dula Baum CNN.com Health Writer ATLANTA, Georgia (CNN) - Although research continues, sickle cell anemia remains an "orphan disease" attracting little notice despite its harvest of pain and early death. But a new film documentary may help to educate viewers about the disease, which affects about 80,000 people in the United States and millions worldwide. Called "Sickle Cell: The Forgotten Disease," the film will air at 10 p.m. EST on the Discovery Health Channel. It is being co-produced by the Dr. Spock Company. "It's hard to get funding or people interested in trials," said Dr. James Eckman, director of the Georgia Comprehensive Sickle Cell Center at Grady Health System. "But because this is a lifelong, chronic problem, it has a greater impact." CONDITION CLINIC Sickle Cell disease A genetic disorder, sickle cell disease attacks red blood cells, making them rigid and distorting their normally round shape into crescents and points. These misshapen cells can easily clog tiny blood vessels and deprive organs and tissues of vital oxygen, causing intractable pain crises. In addition, children with sickle cell are more prone to stroke, pneumonia, infection and other long-term complications.

35. Sickle Cell Disease Information For Health Professionals Basic facts, symptoms, how to recognise a crisis, diagnosis and management are some of the topics covered. http://www.sicklecellsociety.org/healthpr.htm

36. Howard University Hospital The Howard University Center for sickle cell disease was founded in 1972 by Dr. Roland B. Scott following the passage of the Sickle Cell Anemia Control Act of http://www.huhosp.org/sicklecell/

About the Center Staff FAQ Center Research About Sickle Cell Disease History/Evolution Science Symptoms For Parents ... Glossary The Howard University Center for Sickle Cell Disease was founded in 1972 by Dr. Roland B. Scott following the passage of the Sickle Cell Anemia Control Act of 1971 into U.S. Law. Because of Dr. Scott's efforts, legislation was developed and passed which authorized the implementation of a series of Comprehensive Centers for Sickle Cell Disease under the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH). The Howard University Center was one of the centers to be developed under this concept. The Center provides for patient care, research, education, counseling, screening and community involvement concerning all aspects of sickle cell diseases. All services of the Center are provided free of charge except for those services that involve Howard University Hospital. Screening tests for sickling disorders are done at the Center and are free. The Center is located at 2121 Georgia Avenue, NW, Washington, DC. It can be reached by telephone (voice) at 202-806-7930 or by Fax at 202-806-4517

37. Natural History Of Sickle Cell Disease In India Lists and describes the contribution of Dr. Bimal Chandra Kar. Patient resources, papers and publications. http://bimal_chandra_kar.tripod.com/SicklecellinIndia/

document.isTrellix = 1; var cm_role = "live" var cm_host = "tripod.lycos.com" var cm_taxid = "/memberembedded" Natural History of Sickle Cell Disease in India Our Services Meet your Doctors Directions Patient Resources ... Papers and Publications Welcome to our web site! This web site highlights the research and the contribution of Dr. Bimal Chandra Kar in the field of Sickle Cell Disease. Choosing a healthcare provider is one of the most important decisions you can make. You want someone who is caring, knowledgeable, and accessible. Someone willing to take the time to go over all of your options and treat you as a person, not just a patient. At our clinic, we pride ourselves on our patient service. We offer a knowledgeable staff, safe and proven procedures, and the latest in medical technology. We've created this web site for both new and current patients. It includes specific information on our practice and our doctors along with general wellness information. If you need more information, please don't hesitate to contact us by phone or e-mail. Dr. B. C. kar

38. Sickle Cell Disease In Childhood: Part I. Laboratory Diagnosis, Pathophysiology AFP September 1, 2000. sickle cell disease in Childhood Part I. Laboratory Diagnosis, Pathophysiology and Health Maintenance. Variants of sickle cell disease. http://www.aafp.org/afp/20000901/1013.html

Advanced Search Sickle Cell Disease in Childhood: Part I. Laboratory Diagnosis, Pathophysiology and Health Maintenance DORIS L. WETHERS, M.D., A patient information handout on sickle cell disease, written by Clarissa Kripke, M.D., assistant editor of AFP, is provided on page 1027. S ickle cell disease is the most common single gene disorder in black Americans, affecting approximately one in 375 persons of African ancestry. Sickling conditions are also common in persons from Mediterranean countries, Turkey, the Arabian peninsula and the Indian subcontinent. Many Spanish-speaking persons in the United States, as well as people from the Caribbean and parts of South and Central America, are affected. The first description of sickle cell disease, published in 1910, was followed by six decades of genetic, hematologic, pathologic, clinical and molecular observations. Since the mid-1970s, two longitudinal prospective studies of children with sickle cell disease have produced a large body of clinical data on the evolution of the disease from birth. The U.S. study followed 3,500 patients with sickle cell disease through sickness and health.

39. Sickle Cell Disease Review Promotes and disseminates research into the scientific, clinical and social aspects of this disorder. Literature review, bibliography, and general information on the disease. http://scdreview.tripod.com/

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40. Sickle Cell Disease In Childhood: Part II. Diagnosis And Treatment Of Major Comp AFP September 15, 2000. sickle cell disease in Childhood Part II. 6. TABLE 1 sickle cell disease Primary Care Management and Recommendations on Consultation. http://www.aafp.org/afp/20000915/1309.html

Advanced Search Sickle Cell Disease in Childhood: Part II. Diagnosis and Treatment of Major Complications and Recent Advances in Treatment DORIS L. WETHERS, M.D., Treatment advances over the past 25 years have significantly decreased morbidity and mortality in children with sickle cell disease. Aggressive management of fever, early diagnosis of acute chest syndrome, judicious use of transfusions and proper treatment of pain can improve quality of life and prognosis for these children. Prophylactic hydroxyurea therapy has been shown to reduce the incidence and severity of pain crises in adults with sickle cell disease and has been effective in limited studies conducted in children. Research into stem cell transplantation provides hope that a cure for sickle cell disease may be possible. (Am Fam Physician 2000;62:1309-14.) C omplications of sickle cell disease occur suddenly and can rapidly become severe. Infection, acute splenic sequestration crisis, aplastic crisis, acute chest syndrome, stroke, cholelithiasis, renal disease and pain are the major complications of this disease in children. Some complications lend themselves to simple management, whereas others, including aseptic necrosis of the hip, priapism and leg ulcers, require prompt referral for specialized treatment Table 1 ). A child with sickle cell disease who is acutely ill is usually best managed in a facility that can provide pediatric tertiary care.

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