61. United States Scleroderma Support Groups Worldwide support group listings and online support resources. http://www.sclero.org/support/swa/listings/support-united-states.html

ISN's Voices of Scleroderma Vol. 1 book is available through Booksurge (GU Books)! About the ISN Languages Medical Experts Newsroom Message Board Support Personal Stories SWA Sites to Surf! Support Groups Email ISN Corporate Donors Hope on the Horizon ISN Cafe Shops ... ISN Online Cafe Shop Help raise awareness with our scleroderma calendar, t-shirts, mugs, tote bags, cozy sweatshirts, and dozens of other gift items! We subscribe to the HONcode principles of the Health on the Net Foundation. Verify here. The International Scleroderma Network is a nonprofit agency. We welcome members and supporters from all countries! We will help you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email the ISN for information or support. Warm Hugs, Shelley Ensz ISN President This site is updated daily.

62. Scleroderma What is scleroderma? The word scleroderma means hard skin. scleroderma is a condition where the skin gets thick and hard. How common is scleroderma? http://www.arthritis.ca/types of arthritis/scleroderma/default.asp?s=1

63. Bay Area Scleroderma Support Group Includes information about meetings and events. http://www.bayareasclero.org/

Welcome to the website for the Bay Area Scleroderma Support Group! The Bay Area Scleroderma Support Group is a group of Scleroderma patients and caregivers that meets monthly at Kaiser Hospital, Niles West Building, 39400 Paseo Padre Parkway, Fremont, CA. (See Calendar of Events for specific dates and times.) Our meetings are typically attended by 20-30 individuals with a diversity of experiences and symptoms of the disease. We have both male and female patients including children and teenagers. Our meetings usually include times of fellowship and sharing, comparing of common experiences, and presentations on specific topics of common interest to the group. Whether you are newly diagnosed, have experienced the disease for some period of time, or are a concerned caregiver; you are encouraged and welcomed to attend and participate in our meeting. Click here to go to the main menu

64. Scleroderma scleroderma scleroderma The scleroderma Book A Guide for Patients and Families Maureen D. Mayes MD Oxford University Press, New York NY Book 1999 You can buy http://www.arthritis.ca/programs and resources/book store/scleroderma/default.as

65. Scleroderma World Email list dedicated to scleroderma and other auto-immune problems. http://www.sdworld.org/

SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. We also offer a section of links for scleroderma medical, support, health or fun information. Email List SD World is an email list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. Click to subscribe SD Round the World SD Round the World These pages Links, Links, Links Links, Links, Links . Are you interested in more information? The internet is a really wonderful source. Here are some links to a few excellent medical and/or informational sites.

66. Arthritis Research Campaign | Scleroderma The word scleroderma means hard skin . However back to last page. What is scleroderma? The word scleroderma means hard skin . However http://www.arc.org.uk/about_arth/booklets/6036/6036.htm

scotland + n. ireland north wales + midlands east + southeast ... south + southwest What is scleroderma? The word 'scleroderma' means 'hard skin'. However, many people with scleroderma have problems not only with their skin but with other parts of their bodies as well. This is the reason why it has a second name, 'systemic sclerosis'. Scleroderma is an uncommon, chronic (persistent) disease. It affects the connective tissues which surround the joints, blood vessels and internal organs beneath the affected area of skin. Women are affected three to four times more often than men. The disease usually starts between the ages of 25 and 50. It only occasionally begins in children or in the elderly. Although there is no cure, proper treatment and care can make it possible for people with scleroderma to lead full, productive lives. There may however be some limitation on your activity. This booklet gives some basic facts about scleroderma. It discusses possible causes, the tests that are undertaken to see if you have the condition, and the range of treatments that are available, and gives addresses of organisations that may be helpful. The better informed you are, the more able you will be to take an active part with your doctor and other health workers in keeping the illness under control.

67. Arthritis Research Campaign | Scleroderma Grants scleroderma (or systemic sclerosis) is a rare chronic inflammatory disease causing hardening of connective tissue and may involve many organs including the skin http://www.arc.org.uk/research/sc.asp

scotland + n. ireland north wales + midlands east + southeast ... south + southwest Scleroderma Scleroderma (or systemic sclerosis) is a rare chronic inflammatory disease causing hardening of connective tissue and may involve many organs including the skin, muscles, heart and lungs. Display Records Study Title Town Amount The importance of the chemokine MCP-1 in scleroderma LONDON A clinical trial of the prevention of vascular damage in scleroderma with ACE (angiotensin-converting anzyme) inhibitors BANGOR The role of connective tissue growth factors in the formation and maintenance of connective tissue LONDON Pathogenesis of systemic sclerosis LONDON The role of reactive nitrogen in the disease process in scleroderma LONDON Characterisation of a new collagen expressed in cartilage MANCHESTER A clinical trial of treatment for lung disease in scleroderma fibrosing alveolitis in scleroderma (FAST study) LONDON Activation of developmental control mechanisms in scleroderma LONDON The role of connective tissue growth factor in systemic sclerosis factor in systemic sclerosis LONDON Role of auto-antibodies to endothelium in scleroderma LONDON related pages annual report committees financial reports feedback

68. RI Scleroderma Support Group For patients and their families in New England and elsewhere. Support, information, events, links, and research fundraisers. http://www.angelfire.com/ri/scleroderma

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" The Rhode Island Scleroderma Support Group Serving Scleroderma Patients, Family, and Friends in Southern New England RISSG WEB SITE HAS MOVED If you are not automatically brought to the new site in a few seconds, just click on the link below. http://members.cox.net/scleroderma-ri

69. Scleroderma: Online Reference For Health Concerns scleroderma (Systemic Sclerosis) definitions, symptoms, chronic inflammation and treatment information. scleroderma (Systemic Sclerosis) Updated 06/12/2003. http://www.lef.org/protocols/prtcl-127.shtml

var WebSiteBaseURL = "http://www.lef.org/protocols/prtcl-127.shtml" translation by SYSTRAN MEMBERSHIP PRODUCTS MAGAZINE ... CHECKOUT Health Concerns Selector Select Health Concern Acetaminophen (tylenol) Poi... Acne Adrenal Disease Age-associated Mental Impai... Alcohol Induced Hangover: P... Allergies Alzheimer's Disease Amnesia Amyotrophic Lateral Scleros... Anemia-thrombocytopenia-leu... Anesthesia And Surgical Pre... Anxiety And Stress Arrhythmia (cardiac) Arthritis Asthma Atherosclerosis Attention Deficit Disorder ... Autism Autoimmune Diseases Avoiding Vitamin - A Toxicity Bacterial Infections Balding Bell's Palsy Bladder Conditions Breast Cancer Bursitis Cancer - Overview Cancer Adjuvant Treatment Cancer Chemotherapy Cancer Clinics Cancer Gene Therapy Cancer Prevention Cancer Radiation Therapy Cancer Supplements Cancer Surgery Cancer Treatment: The Criti... Cancer Vaccines Candida (fungal, Yeast) Inf... Cardiovascular Disease: Co... Cardiovascular Disease: Ove... Carpal Tunnel Syndrome Catabolic Wasting Cataract Cerebral Vascular Disease Cervical Dysplasia Cholesterol Reduction Chronic Fatigue Syndrome (cfs) Cirrhosis Colitis (ulcerative) Colorectal Cancer Common Cold Congestive Heart Failure An...

70. Vanessa's Story Vanessa, a twelve year old shares her story about having morphea and discoid lupus. http://www.expage.com/vanessasjsd

anessa's Story GET INTO THE LOOP. The loop represents the "Circle of Knowledge." Help increase awareness of Lupus by wearing THE LOOP. Hello my name is Vanessa. I am twelve years old. I have Morphea and Lupus. When I was eight years old my mom noticed that I had two little bumps on my cheeks. My mom thought they were just mosquito bites. Only one went away and the other one on my right cheek did not go away. My mom took me to see the doctor. The doctor gave me some ointment to put on my face, but it still didn't go away. My mom took me back about two months later to my doctor. My doctor then sent me to a Dermatologist. The Dermatologist decided to do a biopsy on my cheek. About a month later the Dermatologist diagnosed me with Discoid Lupus at the age of nine years old. The Dermatologist told me that I could not really be in the sun. I could but I would have to wear a lot of sunscreen, a hat and sunglasses. I'm not sure why my Dermatologist sent me to see a Pediatric Rheumatologist at Children's Hospital in Los Angeles. My Pediatric Rheumatologist seen a mark on my left thigh that looked like a bruise. But this bruise wouldn't go away and it didn't hurt. After the Pediatric Rheumatologist looked at my thigh he told my mom I had Morphea.

71. Scleroderma & You A place for people with scleroderma, or their family members, to come and share with others. scleroderma You, sclerodermaYou@groups.msn.com, http://groups.msn.com/SclerodermaYou

var nEditorialCatId = 102; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Language ... Help SclerodermaYou@groups.msn.com What's New Join Now Home Page Message Board ... Tools BY SHARING WE LIGHTEN THE LOAD MANAGERS Aileen Sue Marilyn Sharon WELCOME TO OUR COMMUNITY This site is for Scleroderma people, their families and friends. Also welcome gladly all those battling with chronic fatigue and other associated auto immune diseases. We hope you will browse through our pages and maybe find something helpful to you. We are here to help one another by sharing our bad days and our good days. Once you are a member you can start your own photo album on our site or upload photos to an existing album. Add to our fantasy world, jokes and general message boards. Have a laugh or have a cry, however you feel it's okay by us. Submit your Scleroderma story for others to read. SUBMIT YOUR STORY CHAT WEDNESDAY 9PM EST COME AND JOIN IN. Tallow Beach, Byron Bay, Australia Byron Bay is a "must see" destination for backpackers from all over the world Rural view Rosewood, Queensland. Australia

72. My Life With Diffuse Scleroderma A 16 year old tells her story about her life with this disease as well as Raynaud's. http://expage.com/StephaniesStory

73. Index One person's battle with scleroderma, with information about the disorder. http://www.angelfire.com/fl2/scleroderma

var cm_role = "live" var cm_host = "angelfire.lycos.com" var cm_taxid = "/memberembedded" Click here to tell someone about this site! SCLERODERMA GOD WILL PROTECT ME: Policemen came knocking on a mans door and told him, he must leave the area because the river was going to overflow its banks from rain. He said to policeman,"GOD will protect me". Then a man came by in a boat, told him to get in the boat, the man said "GOD will protect me". Water was now up to roof and a Army Reserves Helicopter came by and put a line down to him; told to climb up the line. He said " GOD will protect me". Well three days later he was in heaven in front of GOD. The man ask GOD, "why didn't you protect me". GOD said "what do you want , I sent a policeman , man in a boat, and helicopter to your house". Scleroderma My battle with Scleroderma Click HERE to vote for this page as a Starting Point Hot Site. Graphical Vote Link HTML code: Click on the graphic to vote for this page as a Starting Point Hot Site.

74. Quantitative Analysis Of Scleroderma Quantitative Analysis of scleroderma. What is scleroderma? Research Paper LAUR 95-2401 Automated Segmentation of scleroderma in High Resolution CT Imagery. http://www.c3.lanl.gov/~rlf/medical/Scleroderma/main.html

Quantitative Analysis of Scleroderma What is Scleroderma? Scleroderma is a disease which affects many body systems, but is primarily characterized by thickening and tightening of the skin. More women are affected than men, and the dominant age group is between 20 to 50. The lungs are affected in 70-90% of cases, and develop either fibrosis or changes in the blood vessels which lead to increased pressure in the pulmonary arteries. The fibrosis usually starts with with an increase in lung fiber density near the posterior (back) regions of the lungs. CT imagery frequently shows the initial effects as an amorphous increase in lung density with an appearance like "ground glass". Later stages of fibrosis are characterized by the emergence of a network of coarse lines. These coarse lines eventually develop into regions containing large numbers of small cysts. This end-stage effect is sometimes referred to as "honeycombing" and is non-reversable. The Goal of our Research The goal of our research is to use High Resolution CT (HRCT) imagery to automatically detect and quantify Scleroderma in its early stages. Scleroderma treatments are most effective when applied during these early stages. Automated detection methods can aid doctors in gauging the effectiveness of new treatments over time. We hope to not only quantify regions of Scleroderma lung tissue, but also qualify them as to their type ("ground glass" density, abnormal lines and "honeycombing").

75. BJ's Story: Growing Up With Juvenile Scleroderma A mom tells her son's story growing up with juvenile scleroderma since the age of 5 years old. http://www.sclerodermasupport.com/bj

BJ's Story Growing up with Juvenile Scleroderma My son, BJ, was not any different from any toddler until one day in pre-school the teacher reported to me that BJ was having difficulty cutting with scissors and with finger painting. I started to notice shortly after that he wasn't as active as other children, and he was not able to use his hands like other children. By this time BJ's right fingers were becoming a bit crooked. His pediatrician suspected it could possibly be arthritis. I thought to myself he really never complained of joint pain. Although, we do have strong family history of arthritis, but not in children. How could this be possible? His pediatrician sent us to see a pediatric rheumatologist. December 1995, the nightmare began for weeks trying to find out what was wrong with BJ. The pediatric rheumatologist ordered a number of blood tests every two weeks. BJ was so terrified of needles it took myself and my mom to hold him down. BJ would try to bite and fight us to get away. It broke my heart to see him this way. After the first blood test came back the pediatric rheumatologist wasn't sure what he had. He mentioned to me that BJ could have Juvenile Rheumatoid Arthritis (JRA), Lupus or Eosinophilic Leukemia. When I heard the word Leukemia I thought my son was going to die. I did not know what Lupus was at the time. And generally, when you think arthritis, you think elderly people get this, and not children. I had to wait a month to find out what my son had because the hospital lab kept losing his blood tests.

76. Scleroderma scleroderma. What Is scleroderma? scleroderma is a chronic autoimmune disease that was first described in the 18th century. There are two types of scleroderma. http://www.rheumatology.org/public/factsheets/scler.asp?aud=pat

77. Criselda's Story A personal page from a mom sharing her story about her daughter who has juvenile scleroderma. http://expage.com/CriseldasStory

riselda's Story My Little Girl, Criselda, Has Juvenile Scleroderma WE MUST ALL HANG IN THERE AND GIVE EACH OTHER SUPPORT!! Criselda was diagnosed in May 1999. She started with JSD in the middle of 1998. She had a swollen ankle that would not go away. Some bruising had started developing on the bottom of her foot. I took her to the doctor, and was told she had a stone bruise. She was given a medicine to reduce the pain and swelling. The swelling did come down, but it came back within a few days. So, I took her back to the doctors and once again they told me it was a stone bruise. I was told to keep giving her the medication. The medication wasn't working. By now the scar tissue was showing. Criselda had a little burn where the scar tissue was. The scar tisuue seemed to be getting bigger. I had mentioned to the doctor about this. He said the scar was stretching due to her growth. After taking Criselda to this doctor for four months and nothing was done to find out was wrong with Criseda's foot. I decided to take Criselda to another doctor. We found a new doctor who seemed to care. He didn't know what it was, but he was going to find out. Criselda had x-rays done on her foot. Nothing showed to be wrong. The doctor sent us to another doctor. A total of three doctors had seen Criselda throughout this time, and not one of them could figure out what was wrong. Criselda had started walking with the inside of her foot. She was sent to a bone specialist. They knew right away what she had. It had nothing to do with her bones. She had JSD. I had never heard such a word. I didn't know what to think. The doctor came back into the room to confirm his diagnoses as JSD. I remember just coming to a blank stage. I wanted to cry so bad, and I did everything I could to keep back the tears. I had to make myself strong for Criselda.

78. Hotline - Minocycline Treatment For Scleroderma Return to Hotline Index. Hotline. Minocycline Treatment for scleroderma. Eleven patients with a diagnosis of scleroderma for three years or less were enrolled. http://www.rheumatology.org/publications/hotline/archive/0598scleroderma.asp?aud

79. Jemma's Story A mom from the United Kingdom shares her daughter's story fighting juvenile scleroderma. http://expage.com/JemmasStory

emma's Story y Little Angels Fight With Juvenile Scleroderma ADULTS AREN'T THE ONLY ONE WHO GET SCLERODERMA! Hello, my name is Marina. I live in a little village called Seascale, which is in the United Kingdom. My 10 year old daughter, Jemma, has Juvenile Scleroderma. Jemma's story started when she was only 2 1/2, one morning she woke up very cold and clammy and in a state of almost collapse. We sent for the doctor who immediately sent her to our local hospital. After many tests they could not find anything wrong with her except that her blood was full of anti-bodies. They sent her home saying that children often produce anti-bodies for no apparent reason! If I only knew then what I know now. A few months later we noticed a strange rash on her left shoulder. We took her to the doctor who diagnosed her with excema and gave us some cortisone cream. We decided not to as we felt that it was doing no good. Meanwhile we were attending, as outpatients, at our local hospital for check-ups. Jemma's right collar-bone which had been broken at some time, we have never found out what happened. The doctors said it could have easily happened in a fall she may have had while toddling. Which was more likely the case that it happened while she was being born, apparently that is very common in childbirth. By now almost half her arm was covered in these strange patches, some were white, some were blue and some were red. I told the doctor while he was looking at her collar-bone that I was very worried about Jemma's left arm. He looked at it and referred us on to a skin specialist in another hospital.

80. Dermatlas: Online Dermatology Image Library Dermatology Image,morphea,scleroderm Dermatlas Dermatology Images scleroderma,sclerodactyly,morphea,lipoatrophy,dermatology image images. Childhood onset of progressive scleroderma is rare. http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=131

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