1. Sarcoidosis Center The only web site written by a physician and dedicated to sarcoidosis. The purpose body background=. sarcoidosis Center. Brief Overview. http://www.sarcoidcenter.com/

Sarcoidosis Center Brief Overview The Sarcoidosis Center is a non-profit corporation (501 (c)(3)) designed to provide information for patients and physicians regarding sarcoidosis. It is hoped that widespread exchange of information and international exposure will foster cooperation among similar groups. Through improved communication, closer ties can be established and a directory of physicians who care for sarcoidosis patients may also be developed and shared among groups. Assistance with establishing support groups in a structured fashion and information on how to deal with the crises as they occur can be disseminated. Although the majority of patients with sarcoidosis do quite well, those that do not may have devastating changes in lifestyle. It is the hope of the author of this web site that the information provided can help patients and their physicians deal more effectively with these problems. This page is continuously under development and therefore a number of sections are incomplete. Please excuse this inconvenience but we wish to provide information as soon as possible. We welcome comments which can be addressed to Norman T. Soskel, M.D. at the e-mail address sarcoid@sarcoidcenter.com

2. Sarcoidosis Information for patients, their families and others. who have questions about sarcoidosis. Copyright © 19992004. Gary R. Epler, M.D. All rights reserved. This material may not be published, broadcasted, rewritten or http://www.epler.com/wsarc.html

Information for patients, their families and others who have questions about Sarcoidosis This material may not be published, broadcasted, rewritten or redistributed in any form without written permission.

3. NSRC-GLOBAL National sarcoidosis Resource Center, the Global place for sarcoidosis news and information. Sandra Conroy, who has sarcoidosis , knows firsthand the frustrations and obstacles that are often When she was diagnosed in 1984, information on sarcoidosis was extremely limited http://www.nsrc-global.net/

4. Facts About Sarcoidosis, NHLBI Facts About sarcoidosis. Picture of Cover. sarcoidosis is a disease that causes inflammation of the body s tissues. Inflammation http://www.nhlbi.nih.gov/health/public/lung/other/sarcoidosis/

HOME SITE INDEX CONTACT US TIPS ... Publications Facts About Sarcoidosis Sarcoidosis is a disease that causes inflammation of the body's tissues. Inflammation is a basic response of the body to injury and usually causes reddened skin, warmth, swelling, and pain. Inflammation from sarcoidosis is different. In sarcoidosis, the inflammation produces small lumps (also called nodules or granulomas) in the tissues. This fact sheet gives an overview of sarcoidosis. It tells who gets sarcoidosis, the disease's symptoms, diagnosis, and treatment, and reviews some of the studies underway to learn more about the illness. In addidtion, it provides references to articles and support groups to contact for more information. The fact sheet also has special sections on diagnostic tests, the disease's effects on various organs, and commonly asked questions. The fact sheet closes with a glossary. 16 pages. NIH Publication No. 02-5060 You may obtain the document in following ways: View online (in formats below) [PDF document, 216 K

5. Welcome To The Sarcoidosis Online Sites Homepage Explanation of the disease and its treatments, professional directory of physicians and support groups, forums, live chat, newsletters and links. http://www.sarcoidosisonlinesites.com

Welcome to Sarcoidosis Online Sites! A LIFELINE OF HOPE, HEALTH AND RESEARCH Doctor Database Internet Resources Support Group Database Patient To Patient Forum ... Contact A Lifeline of Hope, Health and Research Please select your destination from the seven (7) websites listed below. Sarcoidosis Resources Doctor Database Sarcoidosis Newsletter Message Forum ... Golden Lifesaver Award The goal of our websites remain "simple": educate those afflicted with sarcoidosis help search for better medications, treatments and care provide support through public forum and local listings increase public awareness about sarcoidosis worldwide ultimately aid in finding a cause and cure for sarcoidosis Doctor Database Internet Resources Support Group Database Patient To Patient Forum ... Contact Website designed and hosted by LogoPending.com Like what you see? Check out our services You may send email to the webpage author at webmaster@sarcoidosisonlinesites.com

6. The Image Of Sarcoidosis THE IMAGE OF sarcoidosis. Terrence C. Demos, MD Department of Radiology. Maywood, Il. This is the most common presentation of sarcoidosis. http://www.meddean.luc.edu/lumen/MedEd/Radio/sarc/sarc.htm

THE IMAGE OF SARCOIDOSIS Terrence C. Demos, MD Department of Radiology Maywood, Il Enlarged bilateral hilar, right paratracheal (arrow), and aortopulmonary window (arrowhead) nodes. This is the most common presentation of sarcoidosis. Sarcoidosis is a multisystem granulomatous disease of unknown etiology. This is a worldwide disease with the lowest prevalence in the far east and the highest in Sweden. The prevalence in the United States is 20-50/100,000 population. Sarcoidosis has a higher frequency in people of color and in women, but the disease is also common in whites and men in the U.S. and throughout the world. Sarcoidosis does occur in children and elderly, but most patients present between ages 20-40 years. The most common presenting findings are thoracic lymphadenopathy, lung parenchymal abnormality, and lesions of the skin and eye. DIAGNOSIS PATHOLOGY CLINICAL IMAGING ... REFERENCES OTHER SARCOIDOSIS WEB SITES SARCOIDOSIS ONLINE SITES CANADIAN SARCOIDOSIS SOCIETY Terrence C. Demos, M.D. Last Updated: May 26, 1999 Created: March 1, 1996

7. SARCOIDOSIS An extensive list of links from disease information to medical articles. Includes case studies and may be of particular assistance to physicians or those seeking more clinical information. http://www.edae.gr/sarcoidosis.html

HELLENIC ASSOCIATION DERMATOLOGY - VENEREOLOGY SARCOIDOSIS 99 m Tc-DTPA clearance measured by a dual head gamma camera in healthy subjects and patients with sarcoidosis: studies of reproducibility and relation to bronchoalveolar lavage findings A Case Control Etiologic Study of Sarcoidosis (ACCESS) ``This study was initiated by the National Heart, Lung, and Blood Institute in 1995. It is a five year study that will support the ollection of information from 720 sarcoidosis patients (cases) and 720 unaffected individuals (controls) in order to identify the cause(s) of sarcoidosis. University of Pennsylvania - RESEARCH COORDINATOR Dawn Dow A Case Control Epidemiologic Study of Sarcoidosis ABOUT SARCOIDOSIS. Sarcoidosis is a rare multi-system, auto immune disease that is known for its long remissions and wide variety of symptoms. Sarcoidosis symptoms vary from person to person - no two are exactly alike. It is a granulomatous disease in which inflammation may occur in lymph nodes, lungs, liver, eyes, skin, joints, kidneys, liver and spleen, and other tissues.......... W.S.S. About Sarcoidosis: American Lung Association Advice on Neuro-Sarcoidosis by Shelley Fracalossi Ahuja TS;Mattana J;Valderrama E;Sankaran R;Singhal PC;Wagner JD

8. Home The Medical University of South Carolina (USA) sarcoidosis Centre evaluates and provides treatment plans to patients who are referred by physicians throughout the state. Site also has disease description, appointment information, breaking news, physician directory, clinical trials, and other relevant information. http://www.musc.edu/sarcoidosis/

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9. Sarcoidosis: A Primary Care Review - December 1998 - American Academy Of Family Information on the illness including images of lupus pernio, erythema nodosum, and chest imaging. Article by Mark H. Belfer, and R. Wayne Stevens of St. Elizabeth Health Center Family Practice Residency, Youngstown, Ohio. Also has list of references and a printable fact sheet. http://www.aafp.org/afp/981200ap/belfer.html

Advanced Search Articles Departments Patient Information Sarcoidosis: A Primary Care Review MARK H. BELFER, D.O., and R. WAYNE STEVENS, M.D. St. Elizabeth Health Center Family Practice Residency, Youngstown, Ohio A patient information handout on sarcoidosis, written by the authors of this article , is provided on page 2055. Sarcoidosis is a multisystemic disorder of unknown etiology that most commonly affects adults between 20 and 40 years of age. Patients with sarcoidosis frequently present with bilateral hilar lymphadenopathy and pulmonary infiltration, and often with ocular and skin lesions. The diagnosis is established when clinical and radiographic findings are supported by histologic evidence of non-caseating epithelioid cell granulomas found on tissue biopsy. Diagnosis of sarcoidosis requires exclusion of other causes of granuloma formation. Sarcoidosis is also characterized by distinctive laboratory abnormalities, including hyperglobulinemia, an elevated serum angiotensin converting enzyme level, evidence of depressed cellular immunity manifested by cutaneous anergy and, occasionally, hypercalcemia and hypercalciuria. Glucocorticoids remain the mainstay of therapy when treatment is required, although other anti-inflammatory agents are being used increasingly often. S arcoidosis is a multisystemic disease of unknown etiology that may affect any organ or system in the body. It most commonly affects adults of both sexes between the ages of 20 and 40, but it may occur at any age. Two thirds of patients with sarcoidosis are less than 40 years old at the time of diagnosis. The prevalence of sarcoidosis is slightly higher in females than in males, but these rates vary widely in different countries and populations. Sarcoidosis was formerly thought to be 10 times more common in blacks than in whites, but more recent data indicates a 3.2:1 ratio.

10. MedlinePlus: Sarcoidosis sarcoidosis. Printerfriendly version, E-mail this page to a friend. Search MEDLINE for recent research articles on • sarcoidosis. http://www.nlm.nih.gov/medlineplus/sarcoidosis.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Sarcoidosis Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Treatment ... Organizations Search MEDLINE for recent research articles on Sarcoidosis You may also be interested in these MedlinePlus related pages: Blood/Lymphatic System Lungs and Breathing From the National Institutes of Health Sarcoidosis (National Heart, Lung, and Blood Institute) General/Overviews Sarcoidosis (Arthritis Foundation) Sarcoidosis (Patient Education Institute) - - requires Flash plug-in Also available in: Spanish Clinical Trials ClinicalTrials.gov: Sarcoidosis (National Institutes of Health) Diagnosis/Symptoms Bronchoscopy: Pulmonary Branch Protocols (National Institutes of Health, Clinical Center) - Links to PDF File Calcium Test (American Association for Clinical Chemistry) Gallium Scan (National Institutes of Health, Clinical Center) - Links to PDF File Also available in: Spanish Radiography Chest (Chest X-ray) (American College of Radiology, Radiological Society of North America)

11. Sarcoidoisis, A Medical Mystery Information on the disease, statistics, tests and medications, with a personal touch from the author on how it affected her life. Site also has support group and links to other resources. http://noairtogo.tripod.com/sarcoid.htm

Sarcoidosis, A Medical Mystery by Becky Mitchell (click for full pic) What It Is Who Gets It ... Links What It Is, What It Isn't Sarcoidosis is a relatively rare autoimmune disease that can affect the skin, lungs, heart, brain and nervous system, eyes, and other organs. Although the disease was first recognized about 100 years ago, little is known about what causes it and there is no cure. As an autoimmune disease, sarcoidosis is similar to diseases like rheumatoid arthritis and lupus in how it behaves and how it is treated. Depending on the severity, treatment may be needed to control what sarcoidosis does. Sarcoidosis can go dormant on its own or with treatment, and its symptoms often do not recur after the initial onset. In a small percentage of cases, sarcoidosis is chronic, requiring on-going treatment, with possible occurrence in other organ systems. Chronic sarcoidosis is apparently cyclic in its activity level, with flares of symptoms and more dormant periods lasting weeks or months. No markers have been identified as indicating how sarcoidosis is going to behave in any individual or how an individual with sarcoidosis is going to respond to treatment, although a physician experienced with sarcoidosis may be able to make a "good guess" based on his or her experience. Whether he or she is willing to voice that guess is another story entirely! Despite a century of research, little is known about sarcoidosis. Research has discovered what it is not. Among other things, it is not a cancer or tuberculosis or AIDS-related. It is not caused by pine pollen or other identifiable agents like pollution, airborne or otherwise. It is not progressive or contagious. You did not get it from someone else and you cannot give it to another person. As far as we know, nothing you did specifically caused your sarcoidosis.

12. Home Page Sarcoidosis The official journal of the World Association of sarcoidosis and Other Granulomatous Disorders (WASOG). Includes information on sarcoidosis, the first annual conference, and details of the biyearly journal. http://www.pinali.unipd.it/sarcoid/

S A R C O I D O S I S VASCULITIS AND DIFFUSE LUNG DISEASES OFFICIAL JOURNAL OF WASOG edited by D. GERAINT JAMES GIANPIETRO SEMENZATO Published every four mounths by Mattioli 1885 Casa Editrice (Fidenza, Parma, Italy) WASOG REGISTERED OFFICE: Gianfranco Rizzato Milan, Italy WEB Editor Carlo Agostini Padua, Italy Comments and requests "Statement on sarcoidosis" ( full text Second International WASOG Meeting on Diffuse Lung Diseases, Siena, Italy, November 20-23, 2003 WEB Master Biblioteca Pinali Alessandro Magagnin WASOG News The Journal ... Search

13. Sarcoidosis - General Practice Notebook of the disease with clinicallyoriented information....... http://www.gpnotebook.co.uk/simplepage.cfm?ID=393229

14. The World Sarcoidosis Society Features information on the disease and its manifestations, support facilities, doctors, news, research, mailing list, environmental issues, government issues, personal pages, stories, and links. http://www.worldsarcsociety.com/

15. SARCOIDOSIS FOR THE PATIENT sarcoidosis FOR THE PATIENT. Norman T. Soskel, MD. Modified from DG James. Contents. The term sarcoidosis is derived from the Greek root SARKO meaning flesh. http://www.sarcoidcenter.com/sarjames.htm

SARCOIDOSIS FOR THE PATIENT Norman T. Soskel, M. D. Modified from D.G. James Contents Introduction Lungs Skin Eyes ... Useful Addresses Click Here to Go To Table of Contents INTRODUCTION The term sarcoidosis is derived from the Greek root SARKO meaning flesh. The same source produces the word sarcasm, which means "to cut the flesh" or the word sarcophagus, which is a box to carry flesh. The "OID" comes from the Greek "like" so SARCOID is flesh-like or fleshy. Sarcoidosis is pronounced SAR-COY-DO-SIS. Click Here to Go To Book Contents LUNGS The lungs and the lymph glands inside the chest are the most frequently affected suggesting that the patient is reacting to something that he has inhaled from the air. Most patients do not have any complaints but some experience difficulty in breathing particularly with heavy exercise. A few have a dry cough, muscle weakness, lethargy and listlessness. Whether these symptoms are present or absent the chest x-ray will almost always show evidence of sarcoidosis. There are many causes for this x-ray shadow so the doctor will do blood tests, analyze samples of fluid from the bronchial tubes and carry out lung function breathing tests. The chest x-ray will be repeated at intervals until it has cleared. Click Here to Go To Book Contents SKIN Erythema Nodosum consists of painful red blotches which develop on the skin in women most often in Springtime. Accompanying it are severe joint pans in knees and ankles. Although the red spots may frighten the patient it is harmless and will eventually subside with the help of pain-killing tablets.

16. Life And Breath Through its fundraising and educational activities, this foundation is committed to the research of sarcoidosis in the hope of finding a cure. http://www.lifeandbreath.org/

17. Sarcoidosis - Learn More From MedlinePlus Find the latest news stories, overviews, research and more on sarcoidosis from MedlinePlus, the National Library of Medicine's consumer health site. http://rdre1.inktomi.com/click?u=http://www.nlm.nih.gov/medlineplus/sarcoidosis.

18. No Air To Go Provides information concerning Idiopathic Pulmonary Fibrosis and sarcoidosis, including dignosis and treatment. Includes a glossary, links and a chatroom. http://noairtogo.tripod.com/

Home Contact CONDITIONS Pulmonary Fibrosis Sarcoidosis RESOURCES Acronyms / Abbrevs Glossary PFT Quick Ref Links COMMUNITY No Air Cafe (Chat) Unfolding the Rose The Lost City MUSIC MIDI Tunes Christmas Songs AWARDS Read ... Sign Welcome to our little website... where you'll learn about two interstitial lung diseases, IPF (Idiopathic Pulmonary Fibrosis) and Sarcoidosis, from patients sharing their experiences. The Compilation of Pulmonary Definitions Making good on a promise ... a new chatroom has replaced the former one. New features include chat icons and 'browse the web' capability. Best of all, no pop-up ads! Perhaps it's time to get back to scheduled chats? Take our poll and let us know. About the new logo... What better example of no AIR than honeycombed lungs of end stage pulmonary fibrosis, stiff and wood-like in texture, leaving no space to breathe a picture the fund-seeking PF orgs should present for disease awareness purposes. Either that or a monstrous winged and scaly serpent, because PuF's a deadly dragon!

19. Foundation For Sarcoidosis Research Nonprofit organisation dedicated to finding a cure. Site includes information on sarcoidosis, links to specialists internationally, and links. http://www.fightsarcoidosis.org

FSR's annual awareness campaign reaches hundreds of thousands with a combination of education events, print articles, televised health reports and Public Service Announcements. Help FSR Kick In to Stop Sarcoidosis Learn More June 01, 2004 2502 North Clark Street Chicago, IL 60614 773-525-2512 fax var MenuLinkedBy='AllWebMenus [2]', awmBN='514'; awmAltUrl=''; Sarcoidosis (pronounced SAR-COY-DOE-SIS) is a global, potentially fatal inflammatory disease that can appear in almost any organ in the body, but is found most often in the lungs or lymph nodes. Once thought rare, sarcoidosis is now known to be common and affects people worldwide. It is the most common chronic fibrotic lung disorder. The disease can affect men and women of any age or race. However, it is most common among adults under age 40 and in certain ethnic groups. In the United States, sarcoidosis frequently occurs more often and more severely among African Americans than among Caucasians. Learn more disease facts Although sarcoidosis affects 1 in 2500 Americans

20. Image Of Sarcoidosis - Clinical Clinical. As many as onehalf of patients with sarcoidosis are asymptomatic. individually. ORGANS MOST OFTEN INVOLVED BY sarcoidosis. http://www.meddean.luc.edu/lumen/MedEd/Radio/sarc/sarcclin.htm

Clinical As many as one-half of patients with sarcoidosis are asymptomatic. These patients are usually discovered because of an abnormal "routine" chest radiograph. In symptomatic patients, sarcoidosis can involve one or more body systems and present with a wide variety of signs and symptoms which can be constitutional; fatigue, weight loss, fever and malaise; generalized; or focused on a single organ. The onset of the disease is usually insidious but can be acute. Respiratory symptoms are most common and include cough, chest discomfort, and dyspnea. Other symptoms and signs reflect the specific organs involved by the granulomatous disease. After the thorax, the lymph nodes, skin and the eye are most often involved. Other organs much less often produce signs and symptoms despite the fact that there are granulomas on histologic examination in many organs in the majority of patients. Lymph Nodes Peripheral lymphadenopathy is common. The majority of patients have palpable non-tender lymph nodes. There is thoracic lymphadenopathy in the large majority of patients. These enlarged lymph nodes seldom cause symptoms, but rare cases of venous obstruction including the superior vena caval syndrome and bronchial obstruction producing ateletasis have been reported.

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