1. Sagittal Synostosis Homepage sagittal synostosis is a condition in infants where the sagittal suture (the softspot or fontanelle on top of the head between the left and right sides of the http://www.geocities.com/HotSprings/6751/

There are over 100 links "buried" in our site. We've put the top ones all in 1 place for your convenience. Click Here! Dig deep and learn more about this condition, surgical options, and the future. Recent genetics research estimates that sagittal synostosis appears in 1 in 4000 to 1 in 8500 live births, with a 2 - 6% chance of being hereditary. In other words, there is only a 1 in 133,333 to 1 in 850,000 chance of having two children with this rare condition. Well, our two children each have it. Our daughter, Shauna, was born in July, 1997. Although the doctors and literature available in 1994 advised us that sagittal synostosis is not genetic, we now believe otherwise. At one week of age, Shauna was also diagnosed with sagittal synostosis. She ended up having the surgery in November, 1997, when she was 15 weeks old. In June, 2002, we had a third child, Melanie. She is almost 2 years old and has shown no signs whatsoever of sagittal synostosis. She has a perfectly round head and has passed all her developmental milestones. It has been almost 10 years since our first child was diagnosed with sagittal sysnostosis and 7 years since our daughter had the surgery. Our 3 children are all happy and healthy. The issue never seems to come up because all our children "look normal". We are truly grateful to to doctors and staff at the Toronto Hospital for Sick Children, who performed the surgery on our children and have enabled them to lead happy, healthy, and normal lives.

2. Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphoceph HOME. sagittal synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly,Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis). http://www.bdid.com/sagittal.htm

HOME Sagittal Synostosis (Craniostenosis, Craniosynostosis, Dolicocephaly, Scaphocephaly, Sagittal Craniostenosis, Sagittal Craniosynostosis) scaphocephaly CRANIOSTENOSIS - PROTRUDING EYES (Includes Image) CRANIOSTENOSIS - MALE PROFILE (Includes Image) Craniofacial Surgery...David Herz, M.D. Sagittal Synostosis Homepage craniofacial diseases CRANIOSYNOSTOSIS ... Craniosynostosis (Includes Photos and a Diagram) Brynne and craniosynostosis CRANIOSYNOSTOSIS CRANIOSYNOSTOSIS, TYPE 1; CRS1 Craniosynostosis ... Isolated Craniosynostosis (Includes Photos) HOME

3. Support Groups - Sagittal Synostosis Top Links Other Useful Web Links. Related Healthcare Subjects. Addictions, Alternative, Animal, Beauty, Child Health, Conditions and Diseases, Dentistry. sagittal synostosis Web Site Links. sagittal synostosis http://www.support-group-directory.com/Top_Health_Support_Groups_Conditions_and_

Sub Categories Related Healthcare Subjects Addictions Alternative Animal Beauty ... Dentistry Sagittal Synostosis Web Site Links Sagittal Synostosis Homepage Information (including details of genetic research) and support for people affected by this condition. Craniosynostosis Definition, description, diagnosis, treatment and support. Pictures included. Questions and Answers - Craniosyntosis Frequently asked questions about craniosyntosis, patient and physician resources, and news. Other Useful Health Web Links National Institutes of Health (NIH) US Government department in charge of medical research. AHRQ: Clinical Information Clinical information on evidence-based practice, clinical guidelines, medical effectiveness, pharmaceutical therapy, new technology, screening and preventive services, outcomes research, and the National Guideline Clearinghouse. The UK Health Technology Assessment Programme Site contains details of program's many projects and publications; an NHS national research and development initiative. U.S. Preventive Services Task Force (USPSTF)

4. EMedicine - Craniosynostosis : Article Excerpt By: Majid A Khan, MD synostosis, synostosis, suture synostosis, sagittal synostosis, coronal synostosis, metopic synostosis, lambdoid synostosis, combined synostosis sagittal synostosis is seen mos http://www.emedicine.com/radio/byname/craniosynostosis.htm

(advertisement) Excerpt from Craniosynostosis Synonyms, Key Words, and Related Terms: Please click here to view the full topic text: Craniosynostosis Background: Craniosynostosis is the premature fusion of the cranial sutures. Craniosynostosis can occur as an isolated defect or as part of a syndrome. Craniosynostosis is called simple when only 1 suture is involved and compound when 2 or more sutures are involved. Pathophysiology: In the recent literature, mutations in genes coding for fibroblast growth factor receptors (FGFRs) in affected families have been reported. The receptors mediate the effects of the fibroblast growth factors that modulate cellular processes, such as growth, differentiation, migration, and survival. mutations, located on chromosome 7, have been recognized in Crouzon disease and Apert, Jackson-Weiss, and Pfeiffer syndromes. Some cases of Pfeiffer syndrome and Crouzon disease involve mutations in both the and genes. These mutations account for a small fraction of cases of craniosynostosis, because most cases have an unclear etiology. With the use of immunocytochemistry techniques, abnormal osteoblastic activity has been observed within the synostotic bone, along with decreased growth rate and alkaline phosphatase production. Histopathologic examinations of resected sutures demonstrate new bone formation at various stages. These stages range from trabecular interdigitation across the fibrous tissue to complete bony fusion.

5. Sagittal Synostosis sagittal synostosis. This article submitted by Jim Butler on 8/1/96 I have a 14 month old son diagnosed with sagittal synostosis. There are no http://neuro-www.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/SagittalSy

Sagittal Synostosis This article submitted by Jim Butler on 8/1/96. Author's Email: JBBBUTLER@aol.com I have a 14 month old son diagnosed with sagittal synostosis. There are no problems apart from a long, narrow head shape, i.e., head is symmetrical, no facial deformities, etc. Condition was not apparent until he was 9 months old. Drs. also assure us there is no present health threat we've had CT scans, opthamological exams, etc. However, surgery (major cranial reconstruction) is recommended to restore a "normal" head shape and avoid teasing and problems with self-esteem in later childhood. Surgery is scheduled for September 5. But the trauma and risks associated with surgery are giving us second thoughts. Primary question is: how serious is the problem the surgery will prevent? I'm hoping to hear from parents or Drs. familiar with children with similar condition at a later age. What was the impact? Was surgery subsequently done to prevent social problems? Also interested in hearing about recovery from surgery in an older (> 1 yr) child. Son is extremely active, and we don't know how we're going to keep him quiet for the

6. Sagittal Synostosis Homepage Home About Sagittal Our Story Common Questions. Contact Us Genetics Site Map. MostUseful Links Home About Sagittal Our Story Common Questions . http://www.geocities.com/HotSprings/6751/top10.htm

Most Useful Links: Common Questions Stored Searches Useful Links Case Studies ... What to Expect After the Surgery [ Home ] About Sagittal Our Story Common Questions sagittal@geocities.com

7. Devin's Craniosynostosis Page Devin was born with a condition called Craniosynostosis (sagittal synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html

Devin's Craniosynostosis Page CRANIOSYNOSTOSIS Craniosynosotosis is the premature closing of one or more of the sutures in the skull. More specifically Devin was diagnosed with Sagittal Synostosis, which is the premature closing of the Sagittal Suture (the suture that runs front to back). Because it had fused prematurely his skull would not be able to grow properly. As the brain was developing his skull would only be able to grow where the sutures were open (the front and the back). Hence Devin's skull was growing in a boat shape - very long and narrow with a bossing forehead and back on the head. Sagittal Synostosis is the most common form and occurs in approx. 1 out of every 2000 births. There is debate as to the cause and the effects that it may have (is there pressure on the brain?), no one really knows for sure but what they do know is that it can have profound psychological effects on the individual (looking abnormal, teasing etc). And that's when we knew we had to do something, something to give Devin the best possible childhood and the best possible chance for a healthy and happy future. To us that meant proceeding with the surgery. Although we were given the choice, to us it hardly seemed like a choice, how could we opt not to have the surgery. I hope as Devin grows up he realizes that everything we did and all the choices we made for him are because we love him so much. When deciding we asked ourselves - At 10, 15 or 20 years old would Devin be happy with the choices we made for him? and the only answer we could come to was YES

8. Sagittal Synostosis sagittal synostosis. This article submitted by Jim Butler on 7/30/96 I have a 14 month old son diagnosed with sagittal synostosis. It is apparently a "mild" case, as http://neuro-www.mgh.harvard.edu/neurowebforum/GeneralFeedbackArticles/SagittalS

Sagittal Synostosis This article submitted by Jim Butler on 7/30/96. Author's Email: JBBBUTLER@aol.com I have a 14 month old son diagnosed with sagittal synostosis. It is apparently a "mild" case, as it was not noticeable to pediatrician until 10 months. Head is symmetrical, no facial deformities, but head is long and narrow. Drs assure us there is no present health threat we've had CT scans, opthamological exams, etc. Reason for surgery is to prevent teasing and self-esteem problems in later childhood. Surgery is scheduled for September 5. Trauma and risks associated with surgery are very discomforting. Question is: How serious is the problem the surgery will prevent? I'm hoping to hear from parents or Drs. associated with children with similar condition at a later age. Perhaps surgery done on older child to correct the problems that early surgery is designed to prevent. Also interested in hearing about recovery from cranial reconstruction on 16-month old. Son is extremely active; don't know how we're going to keep him quiet for the several months apparently necessary to prevent injury to healing skull.

9. Sagittal Synostsis Chapter 3 sagittal synostosis. The particular infants with sagittal synostosischaracteristically have normal intelligence. In sagittal http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_2.htm

Chapter 3 Sagittal Synostosis Craniosynostosis Sagittal Synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis Posterior Plagiocephaly ... Crouzon Syndrome CHAPTERS Introduction Clefts of the Lip and Palate Ear Reconstruction Craniosynostosis Orbital Reconstruction Treacher Collins Syndrome Nasal Reconstruction Orthognathic Surgery ... Summary Premature closure of the sagittal suture, the longitudinal suture on the top of the head, stops growth laterally producing a narrow head. There is a compensatory growth in the anteroposterior direction with elongation of the skull and a bulging of the front and back of the head. This particular deformity is called scaphocephaly due to the skull's boat shaped appearance. Synostosis of the sagittal suture is the most frequent type of single suture craniosynostosis. It makes up 50-60% of all patients within North America with craniosynostosis. The particular infants with sagittal synostosis characteristically have normal intelligence. Scaphocephaly Preoperative Postoperative Preoperative Postoperative The Tennessee Craniofacial Center, part of the Erlanger Health System, is located in

10. Omniseek: /Health /Consumer Support Groups /Facial Differences /Sagittal Synosto sagittal synostosis. sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal the sagittal suture (the http://www.omniseek.com/srch/{26969}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives About AltaVista Ask Jeeves Euroseek Excite Google Goto HotBot Infoseek LookSmart Lycos Omniseek Snap Webcrawler Yahoo Don't forget to come back to this page and click the check mark to vote for a site! Health /Consumer Support Groups /Facial Differences /Sagittal Synostosis / Sagittal Synostosis Homepage Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head between the left and right sides (http://www.geocities.com/HotSprings/6751/) Open Directory - Health: Consumer Suppor . . . Facial Differences: Sagittal Synostosis Sagittal Synostosis Homepage - Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head b (dmoz.org/Health/Consumer_Support_Groups/Facial_Differences/Sagittal_Synostosis/)

11. Introduction approximately 1323% of patients. Preoperative, Postoperative. 3-D scanof sagittal synostosis. The surgical treatment of craniosynostosis http://www.erlanger.org/craniofacial/book/craniosynostosis/cranio_1.htm

Chapter 3 Craniosynostosis Craniosynostosis Sagittal Synostosis Metopic Synostosis Unilateral Coronal Synostosis Bicoronal Synostosis ... Crouzon Syndrome CHAPTERS Introduction Clefts of the Lip and Palate Ear Reconstruction Craniosynostosis Orbital Reconstruction Treacher Collins Syndrome Nasal Reconstruction Orthognathic Surgery ... Summary Preoperative Postoperative 3-D scan of Sagittal Synostosis. The surgical treatment of craniosynostosis has been transformed by the development and applications of craniofacial techniques to reshape the skull and upper face in the infant. Functionally, the goal in treatment is to release the fused sutures to prevent any problems associated with increased intracranial pressure as well as creating the potential for normal growth. Cosmetically, the goal is to obtain normal shape of the skull and face, thus minimizing psychosocial problems. Etiology: While the pattern of embryonic craniofacial development has been well defined through extensive research, very little is known about the etiology of many craniofacial anomalies. There is strong evidence for a genetic role in the occurrence of some craniosynostosis. An inherited tendency or family history has been reported in many cases in the literature, however, most cases of isolated craniosynostosis are usually sporadic in occurrence with no known etiology.

12. Sagittal Synostosis Homepage sagittal synostosis is a condition in infants where the sagittal suture (the soft spot or fontanelle on top of the head between the left and right sides of the skull) closes early and inhibits sagittal synostosis Homepage! sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal http://www.geocities.com/sagittal.geo

There are over 100 links "buried" in our site. We've put the top ones all in 1 place for your convenience. Click Here! Dig deep and learn more about this condition, surgical options, and the future. Recent genetics research estimates that sagittal synostosis appears in 1 in 4000 to 1 in 8500 live births, with a 2 - 6% chance of being hereditary. In other words, there is only a 1 in 133,333 to 1 in 850,000 chance of having two children with this rare condition. Well, our two children each have it. Our daughter, Shauna, was born in July, 1997. Although the doctors and literature available in 1994 advised us that sagittal synostosis is not genetic, we now believe otherwise. At one week of age, Shauna was also diagnosed with sagittal synostosis. She ended up having the surgery in November, 1997, when she was 15 weeks old. In June, 2002, we had a third child, Melanie. She is almost 2 years old and has shown no signs whatsoever of sagittal synostosis. She has a perfectly round head and has passed all her developmental milestones. It has been almost 10 years since our first child was diagnosed with sagittal sysnostosis and 7 years since our daughter had the surgery. Our 3 children are all happy and healthy. The issue never seems to come up because all our children "look normal". We are truly grateful to to doctors and staff at the Toronto Hospital for Sick Children, who performed the surgery on our children and have enabled them to lead happy, healthy, and normal lives.

13. Support Groups Sagittal Synostosis Support Groups sagittal synostosis. sagittal synostosis Homepage sagittal synostosis (also known as scaphocephaly, dolicocephaly http://www.ability.org.uk/support_groups_sagittal_synostos.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Sagittal Synostosis Sagittal Synostosis Homepage - Sagittal synostosis (also known as scaphocephaly, dolicocephaly, sagittal craniostenosis, or sagittal craniosynostosis), is a condition in infants where the sagittal suture (the ‘soft spot’ or fontanelle on top of the head between the left and right sides of the skull) closes early and restricts growth of the head in the side to side direction. This forces the head to grow in a front to back direction, leading to a narrow elongated head. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

14. Sagittal Synostosis Back Home Next. sagittal synostosis. sagittal synostosis Homepage.Copyright of Ability All Rights Reserved1990 Webmaster . Site http://www.ability.org.uk/Sagittal_Synostosis.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Sagittal Synostosis Sagittal Synostosis Homepage Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

15. Entrez PubMed Preoperative morphology and development in sagittal synostosis. RichtsmeierJT, Cole TM 3rd, Krovitz G, Valeri CJ, Lele S. Department http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed&cmd=Retrieve&list_uids=9

16. Calvarial Vault Remodeling For Sagittal Synostosis .sagittal HighBeam Research, Free Preview 'Calvarial vault remodeling for sagittal synostosis.' Full Membership required for unlimited access. Comprehensive archive of newspapers, magazines, trade Calvarial vault remodeling for sagittal synostosis. The birth of a child is an extremely exciting yet anxious time http://rdre1.inktomi.com/click?u=http://www.highbeam.com/library/doc0.asp?docid=

17. Entrez PubMed Total calvarial reconstruction for sagittal synostosis in older infantsand children. Hudgins RJ, Burstein FD, Boydston WR. Department http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Abstra

18. Craniosynostosis Synostotic Plagiocephaly. sagittal synostosis. sagittal synostosis (Scaphocephaly)Most common craniosynostosis form (1 in 4200 births); http://www.fpnotebook.com/NIC71.htm

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19. Untitled Seven patients had diagnosis of sagittal suture synostosis and one had unilateral lambdoidal synostosis In patients with sagittal synostosis, a 2 cm incision was placed directly http://www.aaps1921.org/members/abstracts/1998/Barone.html

[Back to 1998 Abstracts] Monday p.m. MAY 18, 1998 SCIENTIFIC SESSION Session Moderator : Benjamin E. Cohen, M.D. Session Secretary : John Gregory Ganske, M.D. 2:30 p.m. ENDOSCOPIC CRANIECTOMY FOR EARLY SURGICAL CORRECTION OF CRANIOSYNOSTOSIS Constance M. Barone, M.D. David F. Jimenez, M.D. Columbia, MO Sponsored by: C. Lin Puckett, M.D. PURPOSE : Use of endoscopic strip craniectomies and barrel stave osteotomies for the early treatment of sagittal and lambdoidal suture synostosis. METHODS RESULTS Patient Age Diagnosis Blood transfusion (cc) Wt (kg) EBL (cc) Strip size (cm) 3 months sagittal 9 x 4 2 months sagittal 12.5 x 3 2 months sagittal 8 x 3.5 2 months sagittal 11 x 3 2 weeks sagittal 7 x 2 7 months sagittal 4.5 x 4.5 10 days sagittal 8 x 3 5 months lambdoid 8 x 2 Maximum follow-up is 24 months with a minimum of three months. All patients with sagittal synostosis had normalization of their cephalic indices and all patients achieved normocephally. CONCLUSIONS : Our results indicate that the use of endoscopes to assist in performing strip craniectomies in young children is safe and effective. Notes:

20. Sagittal Synostosis Also known as scaphocephaly or dolicocephaly, the sagittal suture closesearly and restricts groth of the head in the side to side direction. http://cpmcnet.columbia.edu/dept/nsg/PNS/cf/sagittal.html

Also known as scaphocephaly or dolicocephaly , the sagittal suture closes early and restricts groth of the head in the side to side direction. This forces the head to grow in a front to back direction which leads to a narrow elongated head. Usually there is an associated fullness or "bossing" to the forehead.

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