81. Parry Romberg Survey Scotland. For the last 2 years I have been carrying out the largestever survey of Parry Romberg syndrome using this website. Thank http://www.martis.freeserve.co.uk/Parry/home.htm

Parry Romberg - Clinical Survey Site Click on the buttons on the left to navigate around the site Calton Hill in Edinburgh My name is Dr Jon Stone I am a research fellow in Neurology in Edinburgh Scotland For the last 2 years I have been carrying out the largest ever survey of Parry Romberg Syndrome using this website Thank you to all the people who took the trouble to take part in the survey - your effort in taking part is hugely appreciated II have now stopped the survey but the results will hopefully be published soon in a medical journal. I will contact everyone who took part again at that point. I cannot publish the results sooner because it may prejudice their publication You can access a copy of the questions that were asked here Hopefully the results will be of some help to people with Parry Romberg just in terms of finding out how common various symptoms are and what sort of experience people have had with different treatment In the meantime I have put some information on this website as well as some links A much better website is Rombergs Connection . If you haven't visited it then I can thoroughly recommend it Wishing you all the best from Scotland Jon Stone Dept Clinical Neurosciences, Western General Hospital, Crewe Road, Edinburgh EH4 2XU jstone@skull.dcn.ed.ac.uk

82. Romberg Syndrome - HealthBoards Bulletin Board Author, Topic Romberg syndrome Page views 55. degreesofsanity Thisopted me to check the net and came up with Romberg syndrome. From http://www.healthboards.com/ubb/Forum103/HTML/000393.html

Click Here to Visit our Sponsor FREE HealthBoards.com info from vendors! Select: Signup Health - new products and services Aging Alternative Medicine Back Care Beauty Free Stuff Health Products Herbal Products Natural Healing Nutrition Pain Mgmt Quit Smoking Sexuality Skin Care Stress Mgmt Viagra Vitamins Weight Loss Yoga Many more topics available! Enter your email address: Enter your zip/postal code: HealthBoards Bulletin Board Rare Disorders Romberg Syndrome profile register preferences faq ... next oldest topic Author degreesofsanity Junior Member Posts: 12 From:St. Louis, Missouri, USA Registered: Jul 2003 posted 10-22-2003 12:13 PM Has anyone ever heard of this or have any experience with it. A couple of weeks ago, I noticed in my reflection in the side of my office building that my right cheek was a little sunken. This opted me to check the net and came up with Romberg Syndrome. From what I read it's an atrophy of one side of the face, usually before you're 20/years old. I'm 33 and know that others in their 30's and 40's have gotten this. This problem causes facial disfigurement. Starts in the fat and can move on to muscle and bone. Is there anything else that anyone here knows of that could cause your cheek to sink or atrophy? It makes me very nervous. Thanks for any help.

83. Facial/ Craniofacial Anomalies Ear Atresia), Moebius syndrome, Opitz, Pierre Robin syndrome, Robinow syndrome,Romberg syndrome, Stickler syndrome, SturgeWeber syndrome, Treacher Collins http://www.kumc.edu/gec/support/facial_d.html

Facial anomalies / Craniofacial conditions Apert Syndrome , Arhinia (absent nose) , Blepharophimosis, Crouzon Syndrome ear anomalies Goldenhar Syndrome (hemifacial microsomia) ... Cleft Lip, Cleft Palate Jackson-Weiss, Kabuki Syndrome Nager Miller Syndrome neurofibromatosis , Microtia (Ear Atresia) , Moebius Syndrome, Opitz, Pierre Robin Syndrome Robinow Syndrome , Romberg Syndrome, Stickler Syndrome, Sturge-Weber Syndrome, Treacher Collins syndrome , and other conditions AboutFace International, information and emotional support to individuals with facial differences and their families 123 Edward St., Suite 1003 Toronto, Ontario, Canada M5G 1E2 Phone: 416.597.2229 or 1.800.665.3223 (FACE) Fax: 416.597.8494 E-mail: info@aboutfaceinternational.org Web site: www.aboutfaceinternational.org/main.html Syndromes and Conditions Craniosynostosis and Positional Plagiocephaly Support Web site: www.CAPS2000.org Children's Craniofacial Association PO Box 280297 Dallas, TX 75243-4522 (Tel) 972-994-9902 (Fax) 972-240-7607 Web Site: www.ccakids.com

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Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome [4] Directory Results: Web Site Matches: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. url: www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. url: www.ninds.nih.gov/health_and_medical/disorders/par.... The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. url: www.geocities.com/HotSprings/1018/ Romberg's Syndrome General information, contacts, online discussion groups and links. url: www.familyvillage.wisc.edu/lib_rombs.html Home Link To Us About Us Submit URL ... Advertise Last update: 9:37 PT, Wednesday, May 23, 2001 Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Powered by ODP++ Modified by Any Search Info

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89. Healthfinder® — FACES: The National Craniofacial Association Microtia, Moebius syndrome; Miller syndrome; Nager syndrome; Nasal Encephaloceles;Orbital Hypertension; ParryRomberg syndrome; Pfeiffer syndrome; Pierre http://www.healthfinder.gov/orgs/HR0395.htm

health library just for you health care organizations search: help FACES: The National Craniofacial Association organization URL(s) faces@faces-cranio.org www.faces-cranio.org other contact information P.O. Box 11082 Chattanooga, TN 37401 800-332-2373 (Voice - Toll-free) 433-266-1632 (Voice) 433-267-3124 (FAX) description print resources Quarterly newsletter, available at no charge. related topics Craniofacial Deformities review date Thu Mar 25, 2004 accessibility freedom of information act privacy contact us ... U.S. Department of Health and Human Services

90. MeSH Hemifacial; Atrophy, Hemifacial; Hemifacial Atrophies; ParryRombergsyndrome; Parry Romberg syndrome; syndrome, Parry-Romberg; Parry-Romberg http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=mesh&list_uids=680

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92. GREENSEEK Parry Romberg syndrome Stories from people affected by Parry Rombergsyndrome, support and information. » Parry Romberg syndrome http://www.greenseek.de/internet/index.php/Health/Support_Groups/Conditions_and_

SEITE ANMELDEN NEUZUGÄNGE IM KATALOG FORUM UND COMMUNITY WETTERBERICHTE ... WEBDESIGN-VORLAGEN an abmelden im Katalog deutschem Web gesamten Web internationaler Katalog KATALOG Health Parry-Rombergs_Syndrome Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The content of this directory is based on the Open Directory Powered by GREENSEEK

93. Webverzeichnis Parry Romberg syndrome Stories from people affected by Parry Rombergsyndrome, support and information. Parry Romberg syndrome http://www.online-reise-buchen.com/odp/index.php/Health/Support_Groups/Condition

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94. BioDirectory.Net - Biological Sciences Search Engine Web Sites. Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. url www.cannylink http://www.bioinformatics.vg/cgi-bin/odp/index.cgi?base=/Health/Support_Groups/C

95. Untitled Document http://www.martis.freeserve.co.uk/Parry/

96. Gimenei >> Health >> Support_Groups >> Conditions_and_Diseases >> Facial_Differe Gimenei.com, Search for Scope All Words, Results per page 10.Request Timeout 2, http://www.gimenei.com/directory/top/Health/Support_Groups/Conditions_and_Diseas

Search for: Scope: All Words Any Word Phrase Results per page: Request Timeout: Search Depth: Gimenei Health Support Groups Conditions and Diseases ... Facial Differences Parry Rombergs Syndrome Electronics: Motorola T5720 GMRS/FRS 2-Way Radio (Pair, AA Batteries) - It is not as good as i hoped. Bottom line, too much batteries, (batteries are expensive) and it goes through them like a fat woman through chocolate.I will write a review on batteries as soon as i find them and boy will they get theirs.Motorola is not the best walkie talkie company. Its range is only 5 miles that five miles can make the difference between life and death when you are lost in a vietnamese jungle during the rainy season.And it is too quiet and their are not enough channels. And when you are playing mission impossible in the heating vents the range is reduced to like, 30 feet more or less. And shortly after mission impossible it ran out of batteries. Electronics: Motorola T5950 Rechargeable GMRS 2-Way Radios (Pair) - These are terrific little units with awesome range. I keep a pair in every car I have for trips to Costco, the Mall, Seaworld or wherever. My only complaint if the NiCAD batteries. They do get a memory if you don't use them a lot. NiMHD would have been a better choice considering the way you'll likely use them. The batteries will lose their charge whe sitting unused so they are less available for last minute emergency use.

97. SearchBug Directory: Health: Support_Groups: Conditions_and_Diseases: Facial_Dif Search the Web Web. Open Directory. Search ParryRombergsSyndrome, http://www.searchbug.com/directory.aspx/Health/Support_Groups/Conditions_and_Dis

All Searches Auctions CompanyFinder Entertainment ... Travel Search the Web: Web Images Audio Files News Multimedia Shopping Open Directory Search: Parry-Rombergs Syndrome Health Support Groups Conditions and Diseases Facial Differences ... Go to Directory Home Web Pages - ranked by popularity Parry Romberg Syndrome Information Page http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection http://www.geocities.com/HotSprings/1018/ International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome http://www.familyvillage.wisc.edu/lib_rombs.html General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome http://www.cannylink.com/diseaseparryromberg.htm Stories from people affected by Parry Romberg syndrome, support and information. Help build the largest human-edited directory on the web.

98. P From Linkspider UK Health Directory Parasitic Infections; Paresthesia; Parkinson s Disease; ParryRombergsSyndrome; Passive-Aggressive Personality Disorder; Patellofemoral http://linkspider.co.uk/Health/ConditionsandDiseases/P/

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99. America S Contacts - Only Contacts Database United States of America . Illinois ParryRomberg s SyndromeSupport Group (International). The relatively small and very http://contacts.nechron.com/dir1/america's_contacts.html

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