61. Parry Romberg Syndrome; Treatment, Prevention, Cure Parry Romberg syndromeSearch information from many of the best Parry Rombergsyndrome health sites. ParryRomberg s syndrome - Upcoming Get-Togethers. http://www.healthlinkusa.com/content/237.html

Latest Health News Find Drug Information Health Calculators All Words Any Words A B C D ... Z Sunday, January 4, 2004 Alternative therapy struggles to bridge East-West divide Click here to read more Doctors are not following guidelines recommending flu and pneumonia vaccinations for hospitalized adults, leaving millions of elderly patients vulnerable to potentially deadly ailment Click here to read more A helping hand for uninsured; Agencies find ways to provide health care for area children Click here to read more The government has approved the first generic version of the acne drug, Accutane Click here to read more Gates to give India $100m for AIDS; Microsoft CEO begins controversy-laced trip to fight virus Click here to read more Allergies and Asthma Alternative Medicine Arthritis and Your Health ... Women's Health Wednesday June 02, 2004 Spina Bifida: Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

62. Parry Romberg Syndrome; Treatment, Prevention, Cure Parry Romberg syndromeSearch information from many of the best ParryRomberg syndrome health sites. Quickly find information treatments http://www.healthlinkusa.com/content/237B.html

Latest Health News Find Drug Information Health Calculators All Words Any Words A B C D ... Z Sunday, January 4, 2004 Alternative therapy struggles to bridge East-West divide Click here to read more Doctors are not following guidelines recommending flu and pneumonia vaccinations for hospitalized adults, leaving millions of elderly patients vulnerable to potentially deadly ailment Click here to read more A helping hand for uninsured; Agencies find ways to provide health care for area children Click here to read more The government has approved the first generic version of the acne drug, Accutane Click here to read more Gates to give India $100m for AIDS; Microsoft CEO begins controversy-laced trip to fight virus Click here to read more Allergies and Asthma Alternative Medicine Arthritis and Your Health ... Women's Health Wednesday June 02, 2004 Spina Bifida: Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

63. Parry Romberg Syndrome ParryRomberg syndrome is a rare disorder characterized by slowly progressive degeneration(atrophy) of the soft tissues of half of the face (hemifacial atrophy http://www.bchealthguide.org/kbase/nord/nord489.htm

document.write(''); var hwPrint=1; var hwDocHWID="nord489"; var hwDocTitle="Parry Romberg Syndrome"; var hwRank="1"; var hwSectionHWID="nord489"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="NORD"; National Organization for Rare Disorders, Inc. Parry Romberg Syndrome Important It is possible that the main title of the report is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Progressive Facial Hemiatrophy Progressive Hemifacial Atrophy Romberg Syndrome PRS HFA Disorder Subdivisions None Related Disorders List Information on the following diseases can be found in the Related Disorders section of this report: Goldenhar Syndrome (Oculo Auriculo Vertebral Spectrum) Associated Congenital Disorders Lipodystrophy Scleroderma General Discussion Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy); distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg Syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg Syndrome experience symptoms before the age of 20 years.

64. Parry-Romberg Syndrome Mutual support for persons affected by Parry Romberg s syndrome (aka progressivefacial hemiatrophy or Romberg s syndrome), a rare, genetic disorder, their http://www.bchealthguide.org/kbase/shc/shc29par.htm

document.write(''); var hwPrint=1; var hwDocHWID="shc29par"; var hwDocTitle="Parry-Romberg Syndrome"; var hwRank="1"; var hwSectionHWID="shc29par"; var hwSectionTitle=""; var hwSource="cn6.0"; var hwProdCfgSerNo="wsh_html_031_s"; var hwDocType="SHC"; Self Help Clearinghouse Parry-Romberg Syndrome The Romberg's Connection Online. Founded 1997. Mutual support for persons affected by Parry Romberg's Syndrome (aka progressive facial hemiatrophy or Romberg's Syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Pen pal program online and via mail. Some face to face meetings. Phone support network in U.S. Future newsletter planned. E-MAIL: Rombergs@hotmail.com WEBSITE: http://www.geocities.com/HotSprings/1018/ VERIFIED: 5/19/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in the American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

65. Parry Romberg Syndrome Parry Romberg syndrome. Progressive facial wasting disorder. What is it? ParryRomberg syndrome is a disorder that affects the face and nervous system. http://rarediseases.about.com/library/weekly/aa111301a.htm

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') About Rare / Orphan Diseases Home Essentials ... Rare cancers zau(256,152,145,'gob','http://z.about.com/5/ad/go.htm?gs='+gs,''); Is it a Rare Disease? Rare Diseases A - B Rare Diseases C - D Rare Diseases E - H ... Help zau(256,138,125,'el','http://z.about.com/0/ip/417/0.htm','');w(xb+xb); Stay Current Subscribe to the About Rare / Orphan Diseases newsletter. zau(256,152,100,'hs','http://z.about.com/5/ad/hs.htm?zIhsid=00',''); Search Rare / Orphan Diseases Parry Romberg Syndrome Progressive facial wasting disorder Related Resources Links to Internet resources and information From Other Guides Just Like Any Other Girl Elsewhere on the Web The Rombergs Connection Facial Neuralgia Resources By Mary Kugler, MSN, RN,C Guide to Rare/Orphan Diseases What is it? Parry Romberg syndrome is a disorder that affects the face and nervous system. It typically becomes apparent during childhood or young adulthood when the soft tissue of one side of the face (usually the left) begins to waste away. Generally the first sign is facial changes above the upper jaw or between the nose and upper corner of the lip. As the soft tissue and fat begins to shrink, the skin starts to sink in and distort the face. Over the next three to five years, the mouth, eyebrow, ear, and cheek on the affected side begin to change as well. Are there other symptoms?

66. Parry Romberg Syndrome Parry Romberg syndrome. The majority of individuals with ParryRombergsyndrome experience symptoms before the age of 20 years. In http://www.meritcare.com/hwdb/showTopic.asp?pd_hwid=nord489

67. Parry-Romberg Syndrome ParryRomberg syndrome. Self Help Clearinghouse. The Romberg s Connection.Online. Founded 1997.Mutual support for persons affected http://www.meritcare.com/hwdb/showTopic.asp?pd_hwid=shc29par

68. Health Library - Parry Romberg syndrome. Synonyms The majority of individuals with ParryRombergsyndrome experience symptoms before the age of 20 years. In http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=

69. Parry-Romberg Syndrome,Progressive Facial Hemiatrophy,Progressive Hemifacial Atr ParryRomberg syndrome,Progressive Facial Hemiatrophy,Progressive Hemifacial Atrophy,Rombergsyndrome,PRS,HFA,Romberg Hemifacial Atrophy,Romberg-Parry syndrome http://www.icomm.ca/geneinfo/parry.htm

Parry-Romberg Syndrome,Progressive Facial Hemiatrophy,Progressive Hemifacial Atrophy,Romberg Syndrome,PRS,HFA,Romberg Hemifacial Atrophy,Romberg-Parry Syndrome,Parry-Romberg Syndrome,Progressive Facial Hemiatrophy,Progressive Hemifacial Atrophy,Romberg Syndrome,PRS,HFA For Information on Workshops and Seminars for Special Needs Children click here The GAPS INDEX to Information on the Internet about Genetic Disorders and Birth Defects Genetic Information and Patient Services, Inc. (GAPS) HOME DISORDERS GLOSSARY Parry-Romberg Syndrome also known as: Romberg Hemifacial Atrophy Romberg Syndrome Romberg-Parry Syndrome Progressive Facial Hemiatrophy Romberg Hemifacial Atrophy Progressive Hemifacial Atrophy (as defined by the National Organization for Rare Disorders PRELIMINARY DRAFT This preliminary draft has not been approved by our medical advisors; therefore, its accuracy cannot be guaranteed. Verification of medical accuracy is pending. This is the most current information that NORD has available at this time. Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive wasting (atrophy) of the soft tissues of half of the face (hemifacial atrophy); distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia).

70. Health Library - Parry Romberg syndrome. Important It is possible that the main title ofthe report Parry Romberg syndrome is not the name you expected. http://yalenewhavenhealth.org/library/healthguide/IllnessConditions/topic.asp?hw

71. NINDS Parry-Romberg Syndrome Information Page ParryRomberg syndrome information sheet compiled by the National Instituteof Neurological Disorders and Stroke (NINDS). Disorders http://accessible.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm

Disorders - National Institute of Neurological Disorders and Stroke (NINDS) Skip menus Main sections of the NINDS web site Home About NINDS Disorders-you are in this section ... Find People Disorders section pages and search Image Description Science For the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system. Select Topic Disorder Quick Links Alzheimer's Autism Cerebral Palsy Chronic Pain Epilepsy Headache Multiple Sclerosis Parkinson's Stroke Traumatic Brain Injury More about NINDS Parry-Romberg Syndrome Information Page Studies with patients Research literature Press release NINDS Search (search help) Contact us My privacy NINDS is part of the National Institutes of Health Contact us Content for this page NINDS Parry-Romberg Syndrome Information Page Synonym(s): Progressive Hemifacial Atrophy Reviewed 12-01-2003 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Parry-Romberg? Is there any treatment? What is the prognosis? What research is being done? ... Organizations What is Parry-Romberg? Is there any treatment?

72. ScienceDaily -- Browse Topics: Health/Conditions_and_Diseases/R River Blindness@ (6); Robinow syndrome@ (4); Rocky Mountain SpottedFever@ (4); Romberg s syndrome@ (4); Rosacea@ (24); Rotator Cuff http://www.sciencedaily.com/directory/Health/Conditions_and_Diseases/R

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73. Statistics About Parry Romberg Syndrome - WrongDiagnosis.com Statistics about Parry Romberg syndrome as a medical condition including prevalence,incidence, death rates, and social and hospital statistics. http://www.wrongdiagnosis.com/p/parry_romberg_syndrome/stats.htm

Diseases Parry Romberg Syndrome IMPORTANT! Use of this site is subject to our and Home Symptoms Diseases Risks Search: We show you all these ads in order to provide this free site; give your feedback WrongDiagnosis TM Premium Report: Diabetes Diagnosis and Misdiagnosis Available Now! Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Parry Romberg Syndrome Next chapters: Pelizaeus-Merzbacher Disease Periodic Paralyses Hypokalemic periodic paralysis Hyperkalemic periodic paralysis ... Feedback Statistics about Parry Romberg Syndrome About statistics: This page presents a variety of statistics about Parry Romberg Syndrome. The term 'prevalence' of Parry Romberg Syndrome usually refers to the estimated population of people who are managing Parry Romberg Syndrome at any given time. The term 'incidence' of Parry Romberg Syndrome refers to the annual diagnosis rate, or the number of new cases of Parry Romberg Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like

74. Prognosis Of Parry Romberg Syndrome - WrongDiagnosis.com Prognosis of Parry Romberg syndrome including probably outcomes, duration,recurrence, complications, deaths, and survival rates. http://www.wrongdiagnosis.com/p/parry_romberg_syndrome/prognosis.htm

Diseases Parry Romberg Syndrome IMPORTANT! Use of this site is subject to our and Home Symptoms Diseases Risks Search: We show you all these ads in order to provide this free site; give your feedback WrongDiagnosis TM Premium Report: Diabetes Diagnosis and Misdiagnosis Available Now! Condition Lists By Organ By Symptom By Class By Prevalence ... List A-Z Current chapter: Parry Romberg Syndrome Next sections Symptoms of Parry Romberg Syndrome Treatments for Parry Romberg Syndrome Statistics about Parry Romberg Syndrome Next chapters: Pelizaeus-Merzbacher Disease Periodic Paralyses Hypokalemic periodic paralysis Hyperkalemic periodic paralysis ... Feedback Prognosis of Parry Romberg Syndrome About prognosis: The 'prognosis' of Parry Romberg Syndrome usually refers to the likely outcome of Parry Romberg Syndrome. The prognosis of Parry Romberg Syndrome may include the duration of Parry Romberg Syndrome, chances of complications of Parry Romberg Syndrome, probable outcomes, prospects for recovery, recovery period for Parry Romberg Syndrome, survival rates, death rates, and other outcome possibilities in the overall prognosis of Parry Romberg Syndrome. Naturally, such forecast issues are by their nature unpredictable. Prognosis for Parry Romberg Syndrome: The prognosis for individuals with Parry-Romberg syndrome varies. In some cases, the atrophy stops before the entire face is affected. In mild cases, the disorder usually causes no disability other than the cosmetic effects.

75. Health, Support Groups, Conditions And Diseases, Facial Differences: Parry-Rombe Parry Romberg syndrome Information Page Information compiled by theNational Institute of Neurological Disorders and Stroke (NINDS). http://www.combose.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Diff

Top Health Support Groups Conditions and Diseases ... Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor The combose.com directory is based on the Open Directory and has been modified and enhanced using our own technology. About ComboSE Download Combose Toolbar

76. Healthwise Topic Parry Romberg syndrome, Back to previous page. The majority of individualswith ParryRomberg syndrome experience symptoms before the age of 20 years. http://www.suttercoast.org/health/healthinfo/index.cfm?section=healthinfo&page=a

77. Health Library - Parry Romberg syndrome. Important It is possible that the main title ofthe report Parry Romberg syndrome is not the name you expected. http://yourhealth.healtheast.org/Library/HealthGuide/IllnessConditions/topic.asp

78. The Official Patient's Sourcebook On Parry-Romberg Syndrome : A Revised And Upda Compare prices on The Official Patient s Sourcebook on ParryRomberg syndrome A Revised and Updated Directory for the Internet Age by Icon Health http://www.allbookstores.com/book/0597830789

Search By: Keyword Title Author ISBN Browse: Choose a subject: Art Children's Books Christian Books History Gardening Horror Mystery Oprah Book Club® Photography Reference Romance Science Science Fiction Sports Technology Travel Art Children's Books Christian Books History ... Store Directory The Official Patient's Sourcebook on Parry-Romberg Syndrome : A Revised and Updated Directory for the Internet Age Author: Icon Health Publications Format: Paperback Published: October 2002 ISBN: List Price: Pages: Publisher: Lightning Source Inc Add this book to your wish list View your wish list Add your own review! Search By: Keyword Title Author ISBN Browse: Choose a subject: Art Children's Books Christian Books History Gardening Horror Mystery Oprah Book Club® Photography Reference Romance Science Science Fiction Sports Technology Travel About Us Affiliate Program Contact Us Help ... Webmasters

79. Health Library - Parry Romberg syndrome. Synonyms The majority of individuals with ParryRombergsyndrome experience symptoms before the age of 20 years. In http://www.wellspan.org/library/healthguide/IllnessConditions/topic.asp?hwid=nor

80. Burns/Disfigurement Etc. Support Group Database ParryRomberg s syndrome. The Parry-Romberg s syndrome is a degenerativedisease thats eats away the tissues, muscles and bones of the face. http://www.burnsupportgroupsdatabase.com/files/australi.htm

Australia Parents of Burn Survivors Lisa Smith is looking to share support and information with other parents of burns surviors. Anybody out there? You can contact her by e-mail: Lisa Burn Camp: Camp Oz Location: Brisbane, Australia Contact: Sandra King, OT, Director of Burn Camp Royal Children's Hospital 9 Roseby Avenue, Clayfield Queensland 4011 Australia Tel: 011 617-3262-7242 Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital Information: Season Length (days) # Kids Age Range Spring/October Burn Camp: Camp Oz II Location: Brisbane, Australia Contact: Sandra King, OT, Director of Burn Camp Royal Children's Hospital 9 Roseby Avenue, Clayfield Queensland 4011 Australia Tel: 011 617-3262-7242 Fax: 011-617-3262-8247 Affiliation: Royal Children's Hospital Information: Season Length (days) # Kids Age Range Spring/October 13 and up Burn Camp: Children's Burn Camp Location: Sydney, Australia Contact: Cheri Templeton, Coordinator

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