41. The Info Service Progressive Hemifacial Atrophy Queensland Association for People with Spina Bifidaor Hydrocephalus Rombergs Connection rombergs syndrome Smiles Spina Bifida http://info-s.com/birthdefects.html

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42. What Is Localized (Morphea And Linear) Scleroderma?  By  Surviving Scleroderma Parryrombergs syndrome, The Romberg s Connection; Photo of en coup de sabre ,Dermatlas; Scleroderma en coup de sabre and progressive facial hemiatrophy. http://www.sclerodermasupport.com/medical/facts/localized.htm

Site Search SD Facts Educate yourself on scleroderma About SD Types of SD Cause of SD SD Diagnosis ... SD FAQ SD Info Related Helpful Resources SD Symptoms SD Involvement SD Treatment SD Studies ... Men get it too! Emotional Info: Anger Anxiety Depression Fatigue ... Sadness Coping Issues Coping Daily Handicap Parking Sexual Issues Sleep Difficulties Communication: Our Doctors Our Families Finding... Our Inner self Our Strengths Activities: Gift making ideas Journal Writing Our Store Books, Gift ideas and more About Us: Site C opyright Site Affiliation Finance Issues ... Privacy Issues Additional Info: Acknowledgement Be a Volunteer Contact Info by Sherry Messick Read Site Go To Top Return Home Scleroderma Facts What is Localized Scleroderma? There are two main types of the localized form of scleroderma. These are Linear and Morphea. These forms of scleroderma happen most often to children however some cases are reported in young and older adults. Below is an alphabetical listing of information resources I hope will be of value to you. Adopt-A-Page Care Bear For The Scleroderma Fact Pages Sandra Lehman is your Adopt-a-page care bear for the Scleroderma Fact Pages. Sandra volunteers to ensure the links here are current and researches online for related information.

43. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome. Health and Home. Parry-rombergs syndrome. http://www.health-home.net/Support_Groups/Conditions_and_Diseases/Facial_Differe

Health and Home Parry-Rombergs Syndrome HOME LOGIN ADD A LINK MODIFY A LINK ... PARTNER Looking for something in particular? the entire directory only this category Home Support Groups Conditions and Diseases Facial Differences : Parry-Rombergs Syndrome LINKS: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Romberg's Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/ Parry-Rombergs Syndrome Last Update: Mon May 10 2004

44. Leather Sofa Bed Eliminating Debt Financial planner Ric b b Parry-rombergs syndrome rank 223 Up One Level Topia! Health Support Groups Conditions and Diseases http://www.esofastore.com/sofa/leather sofa bed&start=50

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45. Scleroderma (in Children) The Romberg s Connection is an international support group made up of over 200individuals and families whose lives are affected by rombergs syndrome http://ibis-birthdefects.org/start/sclerode.htm

Tips for printing Scleroderma (in children) Perry Romberg Syndrome About I.B.I.S. Home Search Topics Search all contents ... "In the News" Messages... Questions/comments Report Dead Links S.O.S. - Exchange Join I.B.I.S. ... Etchings Please Explore: Peters Plus S. Werner S. Support Groups Professional Associations ... Key Information Sources Contents include Titles and Centromeric Protein C1 Centromeric Protein C1 Pseudogene Coup De Sabre Crest Syndrome Crst Syndrome Hemifacial Atrophy Progressive HFA Increased Chromosomal breakage rate of Scleroderma Localized Scleroderma Morphea Morphoea PCNT Pericentrin Progressive Hemifacial Atrophy Raynaud's Romberg Perry Scleroderma (in children) Systemic Sclerosis Special Resources Scleroderma (in children) A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [**] [S] Scleroderma (in Children) An article by Thomas J.A. Lehman MD Scleroderma Foundation in Watsonville, California Scleroderma in childhood may occur as localized morphea, linear scleroderma, progressive systemic sclerosis or the CREST syndrome ... begin as areas of either increased or decreased pigmentation which are reddish at first and then become progressively hardened and "shrunken" ... no intervention is warrented unless the area of involvement overlies a joint ... progressive tightening of the skin and underlying tissues may produce flexion contractures ... Sclerodermatomyositis is an infrequent, but well - described entity ... characteristic changes of linear scleroderma accompanied by a dermatomyositis - like rash, weakness, and muscle inflammation ... Progressive systemic sclerosis and CREST syndrome are potentially severe, life threatening illnesses in children ...

46. HighIndex - Health: Support Groups: Conditions And Diseases: Facial Differences: Category Search Engine Directory / Health / Support Groups / Conditions and Diseases/ Facial Differences / Parryrombergs syndrome. Directory Listings http://www.highindex.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di

categories site listings Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Romberg's Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/ More Resources

47. Support Groups: Conditions And Diseases: Facial Differences: Parry-Rombergs Synd Information on Support Groups, Conditions and Diseases, Facial Differences,Parryrombergs syndrome and much more Treasure Coast Health. http://treasurecoasthealth.com/woman_index.php/Health/Support_Groups/Conditions_

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48. Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge http//www.geocities.com/HotSprings/1018/, We are a newly founded internationalsupport group for people whose lives are affected by rombergs syndrome. http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html

PlasticWeb - websites of interest to plastic surgery patients. Explore PlasticWeb sites of interest to our plastic cosmetic hand and reconstructive surgery patients having concerns of facial difference. Learn about cleft lip and palate, makeup, deformity, scar treatment, prosthetics, and many other resources. Michael Bermant, MD Board Certified by the American Board of Plastic Surgery Reconstructive Hand Cosmetic Congenital Breast Skin Cancer Microsurgery About Dr. Bermant Find us Multimedia Lectures Kid's view Bulletin boards PlasticWeb PlasticArt Home Facial Difference on the Net Search Barnes and Noble for Plastic Surgery and Cosmetic Surgery Visit Barnes and Noble for cleft lip and cleft palate Visit Barnes and Noble for facial difference Visit Barnes and Noble - living with facial difference Ability OnLine www.ablelink.org E-mail: craig.mabee@ablelink.org Tel: (416) 650-6207 Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

49. Parry-Rombergs Syndrome Top Health Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome (4) http//www.inter-change-search.net/directory/Health http://www.inter-change-search.net/directory/Health/SupportGroups/ConditionsandD

World Wide Search Engine and Portal to the Best Sites on the Internet Over 15million sites and over 550,000 categories Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome (4) The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Back to ooBdoo Suggest a Site Feedback Link to ooBdoo ... Guarantee your site is listed This page also has modified,additions and deletions of information obtained from the Open Directory Project Help build the largest human-edited directory on the web.

50. Parry-Rombergs Syndrome Info. Overstock.com! Top Health Support Groups Conditions and Diseases Facial Differences Parryrombergs syndrome (4). The Romberg s http://www.searching-1.com/Health/SupportGroups/ConditionsandDiseases/FacialDiff

Searching-1 index Top Health Support Groups ... Facial Differences > Parry-Rombergs Syndrome (4) The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor

51. AJE Dir Health Support Groups Conditions And Diseases Parryrombergs syndrome. Site Listings. The Romberg s Connection Internationalsupport group for families whose lives are affected by Romberg s syndrome. http://www.ajemalaga.org/web.directory/Health/Support_Groups/Conditions_and_Dise

52. Parry Romberg Syndrome Back Home Next. Parry Romberg syndrome. NORD Parry Romberg syndrome. rombergssyndrome. rombergs Connection - support group for people with Romberg s. http://www.ability.org.uk/Parry_Romberg_Syndrome.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Parry Romberg Syndrome NORD - Parry Romberg Syndrome Judy's Parry-Romberg Story Marie's History With Romberg's Deformity Rombergs Syndrome ... Rombergs Connection - support group for people with Romberg's. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

53. AllRefer Health Health Links Directory Support Groups Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome . Uncover resources and links to Web sites http://health.allrefer.com/links/facial-differences-parry-rombergs-syndrome.html

54. Rombergs Connection rombergs Connection httphttp//www.geocities.com/HotSprings/1018/ Our primary purposeis to locate other people with Romberg s syndrome, (also known as Parry http://www.pslgroup.com/dg/3d7b2.htm

55. DermIS / Main Menu / DOIA / Hemiatrophia Faciei Progressiva / Info Facial Hemiatrophies, Facial Hemiatrophy, Hemiatrophies, Facial, Hemiatrophy, Facial,PARRYROMBERG syndrome, Romberg Disease, rombergs Disease, Romberg s http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=701030&topic=i

56. PharmGKB: Facial Hemiatrophy Hemifacial Atrophies; Progressive Hemifacial Atrophy; Romberg Disease; Romberg FacialHemiatrophy; Romberg s Disease; rombergs Disease; syndrome, ParryRomberg. http://www.pharmgkb.org/do/serve?objId=PA444129&objCls=Disease

57. Facial Neuralgia Resources: Template Conditions PARRYROMBERG syndrome Related Disorders. DISCLAIMER. The majority of individualswith Parry-Romberg syndrome experience symptoms before the age of 20 years. http://facial-neuralgia.org/conditions/romberg.html

Facial Neuralgia Resources Together, we can make a difference facial-neuralgia.org Last Updated TABLE OF CONTENTS HOME CONDITIONS Facial Neuralgias Other Cranial Neuralgias ... SITE MAP PARRY-ROMBERG SYNDROME Related Disorders DESCRIPTION CAUSES SYMPTOMS ONLINE RESOURCES The names Progressive Facial Hemiatrophy, Progressive Hemifacial Atrophy, Romberg Syndrome, PRS, HFA are synonyms for this disorder TAKE A CLOSER LOOK READ ABOUT KELLEY , an extraordinary little girl who suffers from Parry-Romberg Syndrome, in an article published in the Rocky Mountain News. Don't miss reading the MANY MESSAGES sent to her from people all over the world. The following information is excerpted from the National Organization for Rare Disorders, Inc.database on rare disorders and is posted in compliance with the FAIR USE DOCTRINE and is for educational purposes only and not for commercial use. Description Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive wasting (atrophy) of the soft tissues of half of the face (Hemifacial atrophy.) It was described in the last century by Parry (1825) and Henoch and Romberg (1846).

58. NORD - National Organization For Rare Disorders, Inc. Parry Romberg syndrome. To purchase fulltext report ($7.50) Copyright 1987,1989, 1996, 1998, 1999, 2003 Synonyms of Parry Romberg syndrome HFA; http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Parry Romberg

59. Parry Romberg Syndrome Parry Romberg syndrome Important It is possible that the main title ofthe report Parry Romberg syndrome is not the name you expected. http://my.webmd.com/hw/raising_a_family/nord489.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Parry Romberg Syndrome Important It is possible that the main title of the report Parry Romberg Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Progressive Facial Hemiatrophy Progressive Hemifacial Atrophy Romberg Syndrome PRS HFA Disorder Subdivisions None General Discussion Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face (hemifacial atrophy); distinctive changes of the eyes and hair; and neurological abnormalities including episodes of uncontrolled electrical disturbances in the brain (seizures) and episodes of severe pain in tissues supplied by the fifth cranial nerve (trigeminal nerve) including the mouth, cheek, nose, and/or other facial tissues (trigeminal neuralgia). Symptoms and physical findings associated with Parry-Romberg Syndrome usually become apparent during the first or early during the second decade of life. In rare cases, the disorder is apparent at birth. The majority of individuals with Parry-Romberg Syndrome experience symptoms before the age of 20 years.

60. Parry-Romberg Syndrome The Romberg s Connection. ParryRomberg syndrome The Romberg s ConnectionOnline. Founded 1997. Mutual support for persons affected http://my.webmd.com/hw/health_guide_atoz/shc29par.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map You are in Medical Library Choose a Topic Our Content Sources Ask A Question Clinical Trials Health Guide A-Z Health Topics Symptoms Medical Tests Medications ... The Romberg's Connection Parry-Romberg Syndrome The Romberg's Connection Online. Founded 1997. Mutual support for persons affected by Parry Romberg's Syndrome (aka progressive facial hemiatrophy or Romberg's Syndrome), a rare, genetic disorder, their families and friends. Aim is to locate affected persons and offer strength, hope, courage and friendship. Pen pal program online and via mail. Some face to face meetings. Phone support network in U.S. Future newsletter planned. E-MAIL: Rombergs@hotmail.com WEBSITE: http://www.geocities.com/HotSprings/1018/ VERIFIED: 5/19/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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