21. Parry-Rombergs Syndrome parry rombergs syndrome. Links Health Support Groups Conditionsand Diseases Facial Differences Parryrombergs syndrome. Home http://www.zookle.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Diffe

zOO KLE link exchange top 100 Add Your Site Jokes ... parry rombergs syndrome Links: Health: Support Groups: Conditions and Diseases: Facial Differences: Parry-Rombergs Syndrome Home Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome Parry-Rombergs Syndrome Web Search Results Below Add Your Site or modify Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Romberg's Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/

22. Parry-Rombergs Syndrome : Meddie Health Search Home Consumer Support Groups Facial Differences ParryRombergsSyndrome. ITEMS LINKS Parry Romberg Syndrome Stories from http://www.meddie.com/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_

Search Meddie: the entire directory only this category More search options Home Consumer Support Groups Facial Differences : Parry-Rombergs Syndrome ITEMS: LINKS: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. (Rating: 0.00 Votes: 0) Rate It Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. (Rating: 0.00 Votes: 0) Rate It Romberg's Syndrome General information, contacts, on-line discussion groups and links. (Rating: 0.00 Votes: 0) Rate It The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. (Rating: 0.00 Votes: 0) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

23. DISEASE: Parry-Rombergs Syndrome DISEASE Featured Web Pages. ParryRomberg Syndrome Sourcebook - www.icongrouponline.com The Official Patient s Sourcebook on Parry-Romberg Syndrome. http://disease.bigtome.com/big/page/Parry-Rombergs_Syndrome

DISEASE: Featured Web Pages Parry-Romberg Syndrome Sourcebook - www.icongrouponline.com "The Official Patient's Sourcebook" on Parry-Romberg Syndrome. A comprehensive manual for anyone interested in self-directed research on Parry-Romberg Syndrome. Categories (1-1 of 1) Health: Support_Groups: Conditions_and_Diseases: Facial_Differences: Parry-Rombergs_Syndrome Put this Directory on Your Site! Submit a Site Become an Editor

24. BigTome.com Hydranecephaly Tricuspid Valve Disease Mad Cow Disease Hay Fever Hematuria MyositisMultiple Sclerosis Eosinophilia Parryrombergs syndrome Hearing Disorders http://disease.bigtome.com/bth/bt1_disease_1.shtml

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25. ScienceDaily -- Browse Topics: Health/Support_Groups/Conditions_and_Diseases/Fac Click Here. Top Health Support Groups Conditions and Diseases Facial DifferencesParryrombergs syndrome (4 links). News about Parry-rombergs syndrome http://www.sciencedaily.com/directory/Health/Support_Groups/Conditions_and_Disea

Match: sort by: relevance date Free Services Subscribe by email RSS newsfeeds PDA-friendly format loc="/images/" A A A Find Jobs In: Healthcare Engineering Accounting College Contract / Freelance Customer Service Diversity Engineering Executive Healthcare Hospitality Human Resources Information Tech International Manufacturing Nonprofit Retail All Jobs by Job Type All Jobs by Industry Relocating? Visit: Moving Resources Moving Companies Mortgage Information Mortgage Calculator Real Estate Lookup Front Page Today's Digest Week in Review Email Updates ... Facial Differences Parry-Rombergs Syndrome (4 links) News about Parry-Rombergs Syndrome New Cardiac Arrhythmia Syndrome Identified (June 1, 2004) full story Silence Of The Genes: Researchers Provide Unique View Of Inherited Disorders And Cancer (June 1, 2004) full story UW-Madison Scientists Find A Key To Cell Division (May 28, 2004) full story Vaccines Against Foodborne Disease On Horizon (May 25, 2004) full story Discovery Of Gene For Cornelia De Lange Syndrome Discovery May Lead To Prenatal Test For Debilitating Disorder (May 20, 2004) full story [ More news about Parry-Rombergs Syndrome Books about Parry-Rombergs Syndrome [ More books about Parry-Rombergs Syndrome Links about Parry-Rombergs Syndrome The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.

26. Localized Scleroderma: Linear, By The International Scleroderma Network (ISN) Parryrombergs syndrome. Parry-rombergs syndrome, is also known as ProgressiveHemifacial Atrophy or HFA. Parry-rombergs syndrome Includes patient stories. http://www.sclero.org/medical/about-sd/types/linear.html

ISN's Voices of Scleroderma Vol. 1 book is available through Booksurge (GU Books)! About the ISN Languages Medical Experts Newsroom Message Board Support Personal Stories SWA Sites to Surf! Support Groups Email ISN Corporate Donors Hope on the Horizon ISN Cafe Shops ... ISN Online Cafe Shop Help raise awareness with our scleroderma calendar, t-shirts, mugs, tote bags, cozy sweatshirts, and dozens of other gift items! We subscribe to the HONcode principles of the Health on the Net Foundation. Verify here. The International Scleroderma Network is a nonprofit agency. We welcome members and supporters from all countries! We will help you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email the ISN for information or support. Warm Hugs, Shelley Ensz ISN President This site is updated daily.

27. Cizgisel Skleroderma Nedir? (Turkish) AZ. See Also. Juvenile Scleroderma SD AZ. Parryrombergs syndrome Includespatient stories. Parry-rombergs syndrome. Scleroderma Photos http://www.sclero.org/lang/turkish/linear.html

ISN's Voices of Scleroderma Vol. 1 book is available through Booksurge (GU Books)! About the ISN Languages Medical Experts Newsroom Message Board Support Personal Stories SWA Sites to Surf! Support Groups Email ISN Corporate Donors Hope on the Horizon ISN Cafe Shops ... ISN Online Cafe Shop Help raise awareness with our scleroderma calendar, t-shirts, mugs, tote bags, cozy sweatshirts, and dozens of other gift items! We subscribe to the HONcode principles of the Health on the Net Foundation. Verify here. The International Scleroderma Network is a nonprofit agency. We welcome members and supporters from all countries! We will help you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email the ISN for information or support. Warm Hugs, Shelley Ensz ISN President This site is updated daily.

28. PillSupplier.com - Support Groups/Conditions And Diseases/Facial Differences/Par Category Parryrombergs syndrome. HOME Support Groups/Conditions andDiseases/Facial Differences/Parry-rombergs syndrome. Links Parry http://www.pillsupplier.com/dir/2697/

Category: Parry-Rombergs Syndrome HOME ABOUT US ORDER STATUS BMI CALCULATOR ... CONTACT US Prescription Drugs Diet Pills Adipex Bontril Didrex ... Login Support Groups/Conditions and Diseases/Facial Differences/Parry-Rombergs Syndrome Links: Parry Romberg Syndrome [rate it] [review it] Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page [rate it] [review it] Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome [rate it] [review it] General information, contacts, on-line discussion groups and links. The Romberg's Connection [rate it] [review it] International support group for families whose lives are affected by Romberg's syndrome. Search Looking for something in particular? the entire directory only this category More search options Pages Updated On: Fri May 28 2004 - 04:44:57 About Us Frequently Asked Questions Contact Us Order Status ... Health Resources

29. PillSupplier.com - Detailed View " Romberg's Syndrome " Home Support Groups Conditions and Diseases Facial Differences Parryrombergs syndrome Romberg s Syndrome. Title Romberg s http://www.pillsupplier.com/dir/detail/37916.html

Detailed View HOME ABOUT US ORDER STATUS BMI CALCULATOR ... CONTACT US Prescription Drugs Diet Pills Adipex Bontril Didrex ... Parry-Rombergs Syndrome : Romberg's Syndrome Title: Romberg's Syndrome URL: http://www.familyvillage.wisc.edu/lib_rombs.html Description: General information, contacts, on-line discussion groups and links. Statistics Added: Mon Sep 01 2003 Hits: Rating: 0.00 Votes: Visit this link Search Looking for something in particular? More search options Pages Updated On: Fri May 28 2004 - 04:30:08 About Us Frequently Asked Questions Contact Us Order Status ... Health Resources

30. Burn Support Groups Database ParryRomberg s Syndrome International Support Group, The Parry-Romberg s Linkto the Parry rombergs syndrome web site in the USA. To the top http://www.burnsupportgroupsdatabase.com/files/south-af.htm

South Africa Correponder? Est ce qui'l y a quelqu 'un qui veut corresponder en Français par e-mail avec Evelyne en Africe-du-Sud? (Evelyne a 24 ans et elle etait brûler en Gabon) E-mail: firechildren@icon.co.za Parry-Romberg's Syndrome International Support Group The Parry-Romberg's Syndrome is a degenerative disease thats eats away the tissues, muscles and bones of the face. The newly founded group's goal is to find people with Romberg's disease all over the world to offer support and friendship. Although the group is still relatively small and very new, they have faith that people will contact them through this database. Anyone out there who would like to join? Very little is still known about Romberg's ....so right now, all they have is each other. To contact my friend Theresa's group, e-mail or link: Auntie_5@hotmail.com Rombergs@hotmail.com Link to the Parry Rombergs Syndrome web site in the USA To the top of this page Return to Home page Return to database

31. Online And Offline Support: P ParryRomberg Syndrome/Romberg Syndrome. People served Individuals dealingwith rombergs syndrome; Services provided Information and support; http://www.widesmiles.org/support/p.html

P Pallister-Hall Syndrome Pallister-Hall Foundation People served: Families dealing with Pallister-Hall Syndrome Services provided: Information and referral, networking, and printed materials Address: RFD Box, 3000 Fairground Road, Bradford VT 05033 Pallister-Killian Syndrome Pallister-Killian Family Support Group People served: Individuals and families dealing with Pallister-Killian Syndrome and related syndromes Services provided: Information and support Address: 3700 Wyndale Court, Fort Worth TX 76109 Phone number: (817) 927-8854 Parry-Romberg Syndrome/Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Pituitary Disorders Please note: Pituitary disorders can occur with craniofacial conditions. Pituitary Tumor Network Association Network People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland Services: Offline: Information and referral, resource guide, news on diagnosis and treatment, and support

32. Online And Offline Support: R Romberg Syndrome/ParryRomberg Syndrome. People served Individuals dealingwith rombergs syndrome; Services provided Information and support; http://www.widesmiles.org/support/r.html

R Robinow Syndrome Robinow Syndrome Foundation People served: Individuals and families dealing with Robinow Syndrome Services provided: Information and support Address: P.O. Box 1072, Anoka MN 55303 Phone number: (763) 434-1152 Email Address: kmkruger@comcast.net Contact person: Karla Kruger Romberg Syndrome/Parry-Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex People served: Individuals dealing with Rombergs Syndrome Services provided: Information and support Email address: rombergs@hotmail.com Main Website: http://www.geocities.com/HotSprings/1018/ Annex Website: http://www.geocities.com/HotSprings/Spa/4818/ Rubinstein-Taybi Syndrome Please note: Children, teens, and adults with Rubinstein-Taybi Syndrome have specific facial features that do not require reconstructive surgery. Rubinstein-Taybi Parent Group (RTPG) People served: Parents of children with Rubinstein-Taybi Syndrome Services provided: Support, parent-matching, information, and newsletter Address: PO Box 146, Smith Center KS 66967 Phone number: (785) 697-2984 Contact people: Garry and Lorrie Baxter Email address: lbaxter@ruraltel.net

33. Wauu.DE: Health: Support Groups: Conditions And Diseases: Facial Differences: Pa Wauu.DE Health Support Groups Conditions and DiseasesFacial Differences Parryrombergs syndrome. http://www.wauu.de/Health/Support_Groups/Conditions_and_Diseases/Facial_Differen

Home Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome Search DMOZ-Verzeichnis: All Categories Categories Onlye Links: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm Romberg's Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/ © 1998- 2002 Ein Service von Wauu.de UserNet.DE Linktip: MnogoSearch.ORG Map TopTen TopTen eng Aktuelle Linktips Mozilla 1.7 RC 1 Basteln 0190 Warner Free Rund ums Rad ... Fantasy - Shop Webmaster-Links Webspace Free Subdomain Service Merchandise Fun SUMA - Forum ... Abmahnungen œber Wauu Regeln Webmasterservice Impressum b

34. CCDD: References: Links: Syndromes Romberg s Connection, An international support group made up of over 200individuals and families whose lives are affected by rombergs syndrome. http://www.hopkinsmedicine.org/craniofacial/References/LinkList.cfm?Category=All

35. Health Support Groups - 470 Of The Best Sites Selected By Humans Center Conditions_and_Diseases ParryRombergs_Syndrome -Parry Romberg Syndrome-Parry Romberg Syndrome Information Page -rombergs syndrome -The Rombergs http://www.cbel.com/health_support_groups/

Pages A-G 2 Columns Pages H-O Order by Alphabet Ordered by Theme Order by Popularity 3 Columns Pages P-Z 4 Columns health Support Groups CBEL Health ( 470 links, last update: 12 April 2004 ) * = new links [Find on this page] Aarogya - The Wellness Site Accordant.com Allhealthnet.com ... Dana-Farber Cancer Institute Conditions_and_Diseases Breast 4essays: Breast Cancer Abreast of bridge Cancer Survivors Ask NABCO Online AVON- Women- The Crusade ... Y-me National Breast Cancer Organization, Ch... Conditions_and_Diseases Burns Burn Support Groups Database Moonlight Fund Peoples Burn Foundation Texas Burn Survivors Conditions_and_Diseases Cancer A Legacy of Hope Forum Acoustic Neuroma Mailing List Association of Cancer Online Resources Australian Cancer Self-Help Site ... Pain Connection - Chronic Pain Outreach Center (part 2) The Picpain Network American Cleft Palate/Craniofacial Associati... Born to be Cleft Charleston Clefts, Inc. ... Wide Smiles Conditions_and_Diseases Craniosynostosis Parents of Children with Craniosynostosis (PCC) The Craniofacial Group - Paris, France Bowel Disease Board Coeliac Society of Victoria (Australia) ... National Gulf Veterans and Families Association Conditions_and_Diseases Heartburn American Heartburn Association AskMen.com - Heartburn

36. Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences: Health Consumer Support Groups Facial Differences Parryrombergs syndrome News at 0007 on May 19, 2004 Random quote http://www.electricbrain.com/index/Health/Consumer_Support_Groups/Facial_Differe

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37. Support Groups www.geocities.com/HotSprings/1018/index.html Our group was formed in June of 97by Theresa Hildebrand and Terry Burau for people with Parry rombergs syndrome. http://www.worldcf.org/supportgroups.htm

CRANIOFACIAL TREATMENT CENTERS University of California - Los Angeles Director: H.K. Kawamoto, Jr. MD, DDS UCLA School of Medicine Division of Plastic Surgery 10833 Le Conte Ave. Los Angeles, CA 90024-1665 Phone: 310.825.5898 Fax: 310.825.2785 University of Southern California Director: John F. Reinisch, M.D. Children's Hospital - Los Angeles Division of Plastic Surgery 4650 Sunset Blvd. Phone: 213.669.4542 Fax: 213.669.4106 Stanford University Director: Stephen A. Schendel, MD, DDS Stanford U. Med. Center Stanford, CA 94305 Phone: 650.723.5824 Fax: 650.725.6605 Tampa Bay Craniofacial Center Director: Mutaz B. Habal, MD 802 W. Buffalo Ave. Tampa, FL 33603-3301 Phone: 813.238.0409 Fax: 813.238.1119 University of Kansas Director: Ned Garrigues, MD University of Kansas Plastic Surgery Sutherland Institute 3901 Rainbow Blvd. Kansas City, KS 66160-7389

38. Friendly Faces -- External Links Incorporated (NFI) NEVUS Nevus Outreach ORAL FACIAL DIGITAL SYNDROME NORD Entryfor Oral Facial Digital Syndrome PARRYrombergs syndrome The Romberg s http://www.friendlyfaces.org/links/

These links are continuously updated. If you wish to have your site linked here, please contact us The American Cleft Palate-Craniofacial Association Cleft Palate Foundation AboutFace International ... The Florida Cleft Palate-Craniofacial Association APERT SYNDROME apert.org (Teeter's page) ATRESIA/MICROTIA Reconstructive Ear Surgery for Microtia Microtia Resource Guide The Microtia And Aural Atresia Division BECKWITH-WIEDEMANN SYNDROME The Beckwith-Wiedemann Support Network Beckwith-Wiedemann Syndrome Website NORD Entry for Beckwith-Wiedemann Syndrome BELL'S PALSY National Institute of Neurological Disorders and Stroke (NINDS) Entry Trigeminal Neuralgia Association BURNS The Phoenix Society for Burn Survivors Inc. CANCER National Cancer Institute Cancer Resources Guide The Oral Cancer Information Center Support for People with Oral and Head and Neck Cancer ... National Coalition for Cancer Survivorship (NCCS) CHARGE SYNDROME/ASSOCIATION CHARGE Syndrome Foundation NORD Entry for CHARGE Syndrome The American Cleft Palate-Craniofacial Association Cleft Palate Foundation ... Cleft Notes CRANIOSYNOSTOSIS Craniosynostosis and Parents Support, Inc.

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40. SearchBug Directory: Health: Conditions_and_Diseases: P Panic (34) Papillotonic Psuedotabes (4) Paraphimosis (2) Parasitic Infections (327)Paresthesia (2) Parkinson s Disease (86) Parryrombergs syndrome (4) Passive http://www.searchbug.com/directory.aspx/Health/Conditions_and_Diseases/P/

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