1. Romberg Syndrome / Family Village Library Romberg Syndrome. Rombergs This mailing list consists of the members of the Romberg sConnection, which is a support group for people with rombergs syndrome. http://www.familyvillage.wisc.edu/lib_rombs.html

Romberg Syndrome Synonyms: Parry-Romberg's Syndrome, Progressive Facial Hemiatrophy Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Romberg Syndrome" Who to Contact See: Craniofacial Disorders Where to Go to Chat with Others Rombergs This mailing list consists of the members of the Romberg's Connection, which is a support group for people with Rombergs Syndrome. Learn More About It Parry-Romberg Syndrome Information Page National Institute of Neurological Disorders and Stroke An Introduction to Parry Romberg Syndrome Progressive Hemifacial Atrophy from OMIM Web Sites The Rombergs Connection Back to [ Q - R Family Village Home Library Coffee Shop ... Information Last Updated 2/3/2004 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_rombs.html

2. Welcome To The Romberg's Connection individuals and families whose lives are affected by rombergs syndrome. We have come together to offer our Parryrombergs syndrome Information. National Organization of Rare Disorders http://www.geocities.com/rombergs

The Romberg's Connection is an international support group made up of over individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. A Romberg's Connection Meeting Notice Where: Dillon, Colorado When: June 18 - 19, 2004 Location Details: The Dillon Inn The Historic Mint The Dillon, Frisco and Silverthorne area Please contact Donna for more information. Parry-Rombergs Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album Our Stories Our Kelley's story appeared in the Rocky Mountain News recently. We are so proud of her for letting us all into her life. Read it here A follow-up to Kelley's story can be read here Parent's Page Share your experiences (New Story Added May 31, 2004) Romberg's Connection Meetings Where our members are located (Updated January 18, 2004) Our Own Romberg's Survey Results Our Romberg's 2000 Survey Results Our Romberg's 2003 Survey Results Parry-Rombergs: A Clinical Survey Surgery Soundboard ... Read Our Guestbook Guestbook Archives We've had visitors since January 1, 2004.

3. The DRM WebWatcher: Parry Romberg Syndrome personal website represents an international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome and who http://www.disabilityresources.org/PARRY.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 3/2003 A B C D ... About/Hint/Link Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face. Beyond the Mirror This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family. Hemifacial Atrophy, Progressive A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database. NINDS Parry Romberg Syndrome Information Page A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke. The Romberg's Connection This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links. Related Subjects Craniofacial Disorders Neurological Disorders Rare Disorders Resources in your state (c) 1997-2001 Disability Resources, inc.

4. Support Groups - Parry-Rombergs Syndrome Top Links Beauty, Child Health, Conditions and Diseases, Dentistry. Parryrombergs syndrome Web Site Links group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome http://www.support-group-directory.com/Top_Health_Support_Groups_Conditions_and_

Sub Categories Related Healthcare Subjects Addictions Alternative Animal Beauty ... Dentistry Parry-Rombergs Syndrome Web Site Links The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Other Useful Health Web Links National Institutes of Health (NIH) US Government department in charge of medical research. AHRQ: Clinical Information Clinical information on evidence-based practice, clinical guidelines, medical effectiveness, pharmaceutical therapy, new technology, screening and preventive services, outcomes research, and the National Guideline Clearinghouse. The UK Health Technology Assessment Programme Site contains details of program's many projects and publications; an NHS national research and development initiative.

5. Parry Romberg Syndrome Click Here to Refinance. Parry Romberg Syndrome. rombergs syndrome;This is Kelley Sperry s story Back to The Cannylink home page. http://www.cannylink.com/diseaseparryromberg.htm

Search mode: Parry Romberg Syndrome Marie's History With Romberg's Deformity Progressive Hemifacial Atrophy Rombergs Connection - support group for people with Romberg's. Rombergs Syndrome This is Kelley Sperry's story... Back to The Cannylink home page You can e-mail us at Webmaster@cannylink

6. Omniseek: /Health /Consumer Support Groups /Facial Differences /Parry-Rombergs S Consumer Suppo . . . al Differences Parry-rombergs syndrome. Featured On Lycos A...... Facial_Differences/ParryRombergs_ Syndrome/) Parry-rombergs syndrome Information. No http://www.omniseek.com/srch/{26968}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives About AltaVista Ask Jeeves Euroseek Excite Google Goto HotBot Infoseek LookSmart Lycos Omniseek Snap Webcrawler Yahoo Don't forget to come back to this page and click the check mark to vote for a site! Health /Consumer Support Groups /Facial Differences /Parry-Rombergs Syndrome / The Romberg's Connection The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another. (http://www.geocities.com/HotSprings/1018/) Parry-Rombergs Syndrome Information No Description available (http://www.geocities.com/HotSprings/1018/info.htm) Medical Searches for Rombergs Medical Searches for More Information on Romberg's Syndrome First of all, let us say that we are NOT professional medical researchers. We're not even professional researchers. (http://www.geocities.com/HotSprings/1018/medsearch.htm) Featured On Lycos: A brief look at related pages Websites: Links hand-picked by volunteer editors The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by (dir.lycos.com/Health/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_Syndrome/)

7. Support Groups - Parry-Rombergs Syndrome Health All Topics. by Category. Health. Conditions. AZ. Gurus. Links. home support groups conditions and diseases facial differences parry-rombergs syndrome. Parry-rombergs syndrome published articles for news on Parry-rombergs syndrome. The eLibrary newspaper and http://www.healthcyclopedia.com/parry-rombergs_syndrome.html

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... facial differences > parry-rombergs syndrome Support Groups - Parry-Rombergs Syndrome Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Health News Web Directory: Health News: Search millions of published articles for news on Support Groups - Parry-Rombergs Syndrome Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome General information, contacts, on-line discussion groups and links.

8. Rombergs Disorder Syndrome and Plastic Surgery (1/28/98) 243 PM. rombergs syndrome (1/26/98) 156 PM 97) 939 AM. rombergs syndrome (10/23/97) 628 PM http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderMenu.html

Rombergs Disorder Menu This is a webforum to discuss and comment on Rombergs Disorder. Click here to Enter a new Neurology WebForum article... This Web Forum is not moderated in any sense. Anyone on the Internet can post articles or reply to previously posted articles, and they may do so anonymously. Therefore, the opinions and statements made in all articles and replies do not represent the official opinions of MGH and MGH Neurology. Neither is MGH or MGH Neurology responsible for the content of any articles or replies. No messages are screened for content. - Very Important Message! - Please Click Here to Read Current Posts: Oct 10, 1997 to Present Useful Websites can be found and posted here! New MGH Neurology Webforums! (12/30/99) 7:38 PM forum working OK now (12/27/99) 1:14 PM God centered post- prayer for all (12/7/99) 12:25 AM ... Test Posting (10/16/97) 3:13 PM IMPORTANT: If this page seems to be missing recently added documents, click the "Reload Page" button on your Web Browser to update the menu. Return to the main Neurology WebForum Page.

9. Support Groups - Parry-Rombergs Syndrome home support groups conditions and diseases facial differences parryrombergs syndrome Parry-rombergs syndrome. Information http://www.healthcyclopedia.com/support-groups/conditions-and-diseases/facial-di

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... facial differences > parry-rombergs syndrome Support Groups - Parry-Rombergs Syndrome Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Health News Web Directory: Health News: Search millions of published articles for news on Support Groups - Parry-Rombergs Syndrome Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome General information, contacts, on-line discussion groups and links.

10. Omniseek: /Health /Diseases And Conditions /All Diseases And Conditions /Parry R available Health/Diseases_and_ailments/Parry_ Romberg_syndrome) Drug Therapies Parry Romberg Syndrome...... ncbi.nlm.nih.gov/htbinpost/Omim/dispmim? 141300) rombergs syndrome. No http://www.omniseek.com/srch/{78033}

News Sections Business Community Computing Directory ... Travel Search Engine Omniseek Multisearch Article Archives About AltaVista Ask Jeeves Euroseek Excite Google Goto HotBot Infoseek LookSmart Lycos Omniseek Snap Webcrawler Yahoo Don't forget to come back to this page and click the check mark to vote for a site! Health /Diseases and Conditions /All Diseases and Conditions /Parry Romberg Syndrome Judy's Parry-Romberg Story No Description available (http://www.geocities.com/HotSprings/Spa/4818/Page.htm) Marie's History With Romberg's Deformity No Description available (http://www.geocities.com/HotSprings/1018/marie.htm) NORD - Parry Romberg Syndrome No Description available (http://www.stepstn.com/nord/rdb_sum/489.htm) Progressive Hemifacial Atrophy No Description available (http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?141300) Rombergs Syndrome No Description available (http://www.familyvillage.wisc.edu/lib_rombs.html) Canadian Museum of Civilization National museum of human history in Hull, Quebec includes exhibitions on Canadian First Peoples. (http://www.cmcc.muse.digital.ca/cmc/cmceng/welcmeng.html)

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12. Parry-Rombergs Syndrome Information Parryrombergs syndrome. Listed below are links to clinic descriptionsof rombergs syndrome. rombergs syndrome is also known as Progressive http://www.geocities.com/HotSprings/1018/info.html

Parry-Rombergs Syndrome Listed below are links to clinic descriptions of Rombergs Syndrome. Rombergs Syndrome is also known as Progressive Facial Hemiatrophy (PFH). National Organization of Rare Disorders Online Mendelian IM entry National Institute of Neurological Disorders and Strokes Opinion on Parry Rombergs Syndrome From Two Doctors (Added May 8, 2003) Please understand that Rombergs affects everyone differently. No two cases are alike. Do not substitute these descriptions for a professional diagnosis from your doctor. Back to Main Page Last Updated May 8, 2003

13. Romberg's Syndrome Browse entry words starting with A, B, C, D, E, F, G, H, I, J, K, L, M,N, O, P, Q, R, S, T, U, V, W, X, Y, Z, Other characters, Romberg s syndrome,.Print this article, http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/ROMBERGS SYNDROM

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Romberg's syndrome, (Moritz Romberg, 17951873, German neurologist), wasting of the soft tissues on one side of the face with a sharp delineation. It may be associated with alopecia and neurological disorders such as trigeminal neuralgia, Horner's syndrome and epilepsy. Radiologically, there may be bone atrophy corresponding to the site of the soft tissue atrophy. HC The Encyclopaedia of Medical Imaging Volume VII Contacts GE Healthcare Making Waves

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"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

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16. Parry-Rombergs Syndrome The Romberg s Connection International support group for families whoselives are affected by Romberg s syndrome. Romberg s Syndrome http://www.thenewhealthfind.com/Health/SupportGroups/ConditionsandDiseases/Facia

Directory Home Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome (4) The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Quick Links uniforms scrubs Information On Zyban fitness equipment kidney stone ... Acid Reflux Diet The New Health Directory Site Map Privacy Contact Advertise ... Health Directory

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19. Rombergs Syndrome rombergs syndrome. Email Address rombergs@hotmail.com My name is TheresaHildebrand, I live in Chicago, Illinois, and I have rombergs syndrome. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/10.23.976.28PMRombergsS

Rombergs Syndrome This article submitted by Theresa Hildebrand on 10/23/97. Email Address: rombergs@hotmail.com My name is Theresa Hildebrand, I live in Chicago, Illinois, and I have Rombergs Syndrome. I used to think that I was alone in the world until I found Terry. Terry lives in Washington and he has Rombergs too. We decided to join forces and search for other people who also have Rombergs. Today is Thursday, October 22, 1997, and we have found 12 other people with Rombergs. They live mostly in the USA, but some are from Great Britain, South Africa, and Australia. There may be someone with Rombergs in your neighborhood that you could talk to. You are definitely not alone when it comes to Rombergs !! You can get in touch with us by e-mailing: rombergs@hotmail.com Or visit us, on our webpages: http://www.geocities.com/HotSprings/1018 OR http://www.geocities.com/HtoSprings/Spa/4818 Hope to hear from you soon, Theresa Next Article Previous Article Return to Neurological Disorder Topic Menu Here is a list of responses that have been posted regarding this article... Rombergs Syndrome (10/24/97) 3:53 PM question (10/23/97) 10:14 PM Rombergs (10/23/97) 7:09 PM If you want to post a completely new article on any topic you like

20. Rombergs Syndrome rombergs syndrome. Email Address LAPUDGE@aol.com I am looking for anyinformation on Romberg s Syndrome including surgical information. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/1.26.981.56PMRombergsSy

Rombergs Syndrome This article submitted by on 1/26/98. Email Address: LAPUDGE@aol.com I am looking for any information on Romberg's Syndrome including surgical information. This is such a rare disease. Anyone who has this, I am sure is in the same situation that I am. You have so many questions. How does this happen? Why does this happen? Is it genetic? i would never wish this on my children or anyone else for that matter. I want some answers. I have talked with a doctor who has also performed surgery on me, but he could give me very little information. Please help lapudge@aol.com Next Article Previous Article Return to Neurological Disorder Topic Menu Here is a list of responses that have been posted regarding this article... (8/26/98) 11:34 AM Parry-Romberg Syndrome (5/5/98) 11:47 PM romberg syndrome (5/5/98) 11:12 PM lupus depression (4/15/98) 1:28 AM ... We're here for you. (1/27/98) 7:26 AM If you want to post a completely new article on any topic you like, click here. If you would like to post a direct response to this article, fill out this form completely...

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