41. The Coenraads Home Page A family's battle with rett syndrome, plus help links and information. http://www.coenraads.com/

Welcome to Coenraads.com Our 2001 Holiday picture: Chelsea, Tyler and Alex (click on the blue to email) Pieter Pieter@Coenraads.com Pieter's job at Greenfield Online: Monica Monica@Coenraads.com Monica's volunteer job at RSRF: Chelsea Chelsea@Coenraads.com Alex Alex@Coenraads.com Tyler Tyler@Coenraads.com An Appeal Letter for the Love of Chelsea Take a look at our photo galleries: Recent shots - Summer 2001 Spring 2001 Winter 2001 December 2000 ... Happy Mother's Day! Missing Pictures Under Construction 1999 First 4 Months 1998 Holiday Pictures Picture Archive (through 11/24/98) The Coenraads Brothers ... Grandparents Monica's Magnificent Media Milestones: People Magazine - Monica's letter gets published - May 24, 1999 Howard Stern Show - Monica calls in! Stamford Advocate Article - Music Therapy - April 13, 1999 Connecticut Public TV Recording Connecticut Post Article - Jan 10, 1999 Stamford Advocate Article - Front Page! - Dec 28, 1998 The Trumbull Times - Nov 19, 1998 Reflections: Short Story Hands - by Jewel I am the child Wishes in the Dark Rett Hands Here's a listing of a few of our favorite sites: Get to know Chelsea's challenge at the Rett Syndrome Research Foundation: RSRF The picture thumbnail pages are generated by: ThumbsPlus

42. Kim Johnson - The Rett Syndrome Experience The deterioration associated with rett syndrome has left her severely dyspraxic and without speech. Personal story. http://home.vicnet.net.au/~dealccinc/Kim1.htm

KIM JOHNSON Introduction Kim Johnson has Rett Syndrome , a condition unrecognised in the 1960s when she was born. Although she developed normally for nearly two years, the deterioration associated with Rett Syndrome has left her severely dyspraxic and without speech. Kim lives in Melbourne, and completed the final year of secondary school at the end of 1997, ten years after DEAL Communication Centre showed her how to communicate by typing with a head-pointer. From that time her family and friends gradually came to know a totally new Kim, who has led them all into uncharted waters. Hi! I'm Kim's mother, Jill. Kim would like me to tell you something about herself, as her communication is very slow and tires her rapidly. She also wants to tell you quite a bit herself, though, and her words will be found typed in UPPER CASE BOLD . Often you'll be able to tell by the style who is doing the talking; Kim's expression is very concise, as she has a lot of time to think but not much energy to type. Rosie Crossley has described it in her latest book " Speechless " as ...."as if she were writing a telegram and being charged by the word"!

43. Coping With Rett Syndrome News , Coping With rett syndrome. A debilitating disorder that strikes only girls, rett syndrome challenges physicians, patients, and families. http://www.ars.usda.gov/is/AR/archive/feb99/rett0299.htm

Advanced Browse Help About Us ... Careers Printer Friendly Email this page News Magazine  Subscriptions Editorial Staff ... News > Coping With Rett Syndrome A debilitating disorder that strikes only girls, Rett Syndrome challenges physicians, patients, and families. One symptom of Rett Syndrome is profound growth failure. Pediatrician and nutritionist Kathleen J. Motil with the USDA- ARS Children's Nutrition Research Center (CNRC) in Houston, Texas, is finding innovative ways to promote adequate nutrition, improve health, and enhance growth for some of these patients. Rett Syndrome occurs in 1 out of 23,000 live births. The onset is baffling: A healthy, active infant gradually stops developing normally. Typically, she regresses, losing her speech and walking skills, as well as the ability to play with toys. Repetitive hand-wringing and hand-washing movements are common, as are breathing abnormalities. Growth failure and muscle wasting may occur as early as 1 year of age. Motil and others have done studies suggesting this poor growth and wasting may be linked in part to the girls' need for special nutritional care. Andreas Rett, the medical doctor who first described this neurodevelopmental disease in 1966, noted the symptoms of wasting and slowed growth. Growth retardation is one of the factors supporting the diagnosis of Rett Syndrome. Other researchers, including Motil's colleagues, pediatric neurologist Daniel G. Glaze and nurse practitioner Rebecca J. Schultz, have reported in medical journals a deceleration in the rate of gain in head circumference, height, and weight.

44. Index Introduction to rett syndrome and Angelman Syndrome, a personal view, photographs, and links. http://geocities.com/melicamay

Welcome To Touched By An Angel Click angel to enter

45. The Rett-Syndrome Julia promotes the. International rett syndrome Association . What is the rett syndrome? The International rett syndrome Association. http://www.juliaroberts.de/x-rett.htm

Julia promotes the "International Rett Syndrome Association" What is the Rett Syndrome? Rett Syndrome is a neurological disorder seen almost exclusively in females, and found in a variety of racial and ethnic groups worldwide. The child with Rett Syndrome usually shows an early period of apparently normal or near normal development until 6-18 months of life. A period of temporary stagnation or regression follows during which the child loses communication skills and purposeful use of hands. Soon, stereotyped hand movements, gait disturbances, and slowing of the rate of head growth become apparent. The International Rett Syndrome Association Please visit the homepage of the organisation to learn more about the Rett Syndrome and the efforts of the " International Rett Syndrome Association ". What´s Julia´s participation? Julia appears in a documentary about the Rett Syndrome titled "Silent Angels". The shooting took place in Seattle, Los Angeles, Baltimore and New York. Julia is narrator of the project. The documentary aim is to discuss Rett Syndrome through the eyes of several families and with the assisstence of geneticists and other researchers. At the moment there are only 4.178 Rett cases identified in the whole world. But it must be much more. This film wants to find those missing or misdiagnosed kids.

46. Welcome To Debbie Schilling And Tom Bundy's Web Site! Personal stories and various links for rett syndrome information. http://www.bundlings.com/

selectCSS(document.URL,1); Bundlings.com: Main Events Family Fun ... Click here to see what's new! document.write(''); Bundlings.com: Main Events Family Fun ... Site Index

47. Rett, Syndrome : Sites Et Documents Francophones Translate this page Synonyme(s) MeSH Syndrome Rett. Voir aussi retard mental . Arborescence(s) du thesaurus MeSH contenant le mot-clé Rett, syndrome rett syndrome http://www.chu-rouen.fr/ssf/pathol/rettsyndrome.html

Rett, syndrome Menu général CISMeF Synonyme(s) MeSH Syndrome Rett Voir aussi retard mental Arborescence(s) Rett, syndrome Rett syndrome maladies et malformations congénitales, héréditaires et néonatales système nerveux, maladies Position du mot-clé dans l' (les) arborescence(s) : Vous pouvez consulter toutes les ressources ou seulement les principales ou utiliser l' outil de recherche les recommandations les documents concernant l' enseignement les documents destinés aux patients Ou consulter ci-dessous une sélection des principales ressources : guide ressources Rett, syndrome de [Par Pr Mancini J. Site éditeur Orphanet base de données sur les maladies rares et les médicaments orphelins. Direction Générale de la Santé / INSERM ; ; pays : France ; langue : français ; format : html ; accès : gratuit ; non parrainé ; daté de : 2002 ; visité le : 14/07/2001]. mots clés : * Rett, syndrome Rett, syndrome diagnostic type(s) : * texte structure recherche guide ressources association patients patient AFSR - Association Française du Syndrome de Rett ; pays : France ; ville : Paris ; langue : français ; format : html ; accès : gratuit ; non parrainé ; visité le : 09/07/2001].

48. Kimbo's Korner Story of a young woman living with rett syndrome. Many pictures and links. http://www.rettangels.org/members/kimberly

Kimberly's Korner Hello, my name is Kimberly. I am 18 years old. I am in a special needs class at Clay-Chalkville High School. I have Rett Syndrome . I am not able to walk or talk, but I am told that I say a whole lot with my eyes! Some of my favorite things are: music, TV, flirting My Photo Gallery - From 3 Months to 17 Years About Rett Syndrome Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females. The prevalence of RS in females is approximately one in every 10,000-23,000 individuals and is found in all racial and ethnic groups worldwide. It is known that RS can occur in males but is extremely rare. It is named for Dr. Andreas Rett, an Austrian physician who identified the syndrome in 1966, although it remained unknown in the United States until 1983. Symptoms: RS has its clinical onset in most females between 6-18 months of age. Development to that time appears normal. They then enter a period of regression, losing speech and hand skills they had acquired. Most children develop seizures, repetitive hand movements, irregular breathing and motor-control problems.* A slowing of the rate of head growth also becomes apparent. Most researchers now agree that RS is a developmental disorder rather than a progressive, degenerative disorder as once thought. Survival into adulthood is now expected barring other illnesses or serious physical complications. Girls and women with RS can be expected to demonstrate a full range of emotions and enjoy satisfying social, recreational, and educational experiences at home and in the community.

49. Esmerel's Collection Of Rett Syndrome Resources rett syndrome Resources. (Courtesy Resources. This page is dedicated to rett syndrome resources. This list is growing constantly. http://www.esmerel.org/specific/rett.htm

Rett Syndrome Resources (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is dedicated to rett syndrome resources. This list is growing constantly. If you know of any other resources or have suggestions, please email Heather. Australian Rett Syndrome Home Page Was established in 1993 to set up a facility for population based research in Australia Cure Rett Syndrome Now IRSA: International Rett Syndrome Assocation Over 500 pages of information about Rett Syndrome and the IRSA. Living with Rett Syndrome Our Rett Syndrome Home Page Profile of Rett Syndrome Rebekah's Page on Rett Syndrome ... Back to the Disabled Directory This page is maintained by Heather Last updated: May 23, 2000

50. Rett Center rett center, rett syndrom, kurser om rett syndrom, Rett Center, retts center, rett s center, retts syndrom, rett s syndrom, rett syndrome, retts syndrome http://www.jll.se/rett/

Rett Center rett center, rett syndrom, kurser om rett syndrom, Rett Center, retts center, rett's center, retts syndrom, rett's syndrom, rett syndrome, retts syndrome, rett's syndrome nationallt Centret samlar en flerprofessionell kompetens E-mail: rett.witt@jll.se

51. The DRM WebWatcher: Rett Syndrome A Disability Resources Monthly guide to the best online resources about rett syndrome. rett syndrome is a neurological disorder affecting primarily females. http://www.disabilityresources.org/RETT.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Rett Syndrome Updated 4/2004 A B C D ... About/Hint/Link Rett Syndrome is a neurological disorder affecting primarily females. Children with Rett syndrome often exhibit autistic-like behaviors, such as repetitive hand movements, prolonged toe walking, body rocking, and sleep problems. Visit these sites for information about Rett syndrome. International Rett Syndrome Association Information about Rett syndrome, profiles of children with Rett syndrome, research news, information about the organization, and many links. Information about and the archives of the Internet discussion group RettNet is also included. Our Rett Syndrome Page The mother of a child with Rett syndrome has compiled an excellent page that includes basic information about Rett syndrome, getting support, events, newsletters from the Indiana Rett Syndrome Group, recommended readings and videos, links, and more. Rett Syndrome A fact sheet from the National Institute of Neurological Disorders and Stroke. Rett Syndrome Europe Links to Rett Syndrome organizations in western and eastern Europe.

52. GeneDis RTT Syndrome Mutations GeneDis Human Genetic Disease Database. rett syndrome. Scientific editors Dr. Avi GeneDis Website for rett syndrome. rett syndrome is a http://life2.tau.ac.il/GeneDis/Tables/Rett/rtt.html

GeneDis Human Gene tic Dis ease Database Rett Syndrome Scientific editors: Dr. Avi Orr-Urtreger Department of Human Genetics, Sackler Medical School, Tel Aviv University, Israel. Database coordinator: Dr. Rachel Kreisberg-Zakarin Bioinformatics Unit , G.S. Wise Faculty of Life Sciences, Tel-Aviv University, Israel. GeneDis Website for Rett Syndrome Rett Syndrome is a neurodevelopmental disorder characterized by loss of acquired skills after a period of normal development in infant girls due to mutations in the MeCP2 gene. The GeneDis web site for Rett Syndrome includes the wild type primary sequences of the MeCP2 gene and protein. Known mutations are incorporated in the gene and in the protein sequences using hyperlinks. Users can compare MeCP2 DNA or protein sequences to the wild type hyperlinked sequences present in GeneDis. The pairwise alignment output retains the hyperlinks, which enable the user to browse through the Rett Syndrome mutation table. The mutation table shows the location of the mutation on the cDNA, genomic DNA and protein sequences, the number of exon or intron, the severity of the disease associated with the mutation and a reference in which the mutation was first described. Go to "Search the Rett Syndrome Database with your primary DNA or protein sequence" Go to "GeneDis Homepage" Disease description Rett syndrome (RTT) ( OMIM 312750 ) is a neurological disorder characterized by a period of early normal growth and development followed by regression with loss of speech and acquired motor skills, stereotypical hand movements, and seizures (

53. UAB Health System | Unveiling The Mysteries Of Rett Syndrome Unveiling The Mysteries Of rett syndrome. Unveiling the Mysteries of rett syndrome. He also established the Blue Bird Circle rett syndrome Center at Baylor. http://www.health.uab.edu/show.asp?durki=55670

54. Rett Syndrome - Information / Diagnosis / Treatment / Prevention home neurological disorders rett syndrome rett syndrome. Information • Diagnosis • Treatment • Prevention. Subtopics rett syndrome Personal Pages, http://www.healthcyclopedia.com/neurological-disorders/rett-syndrome.html

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... neurological disorders > rett syndrome Rett Syndrome Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Subtopics Related Topics Medical Definition Health News ... Web Directory: Subtopics: Rett Syndrome > Personal Pages Related Topics: Genetic Disorders Mental Health/Disorders/Child and Adolescent/Mental Retardation/Causes Rare Disorders Medical Definition: University of Newcastle-upon-Tyne Medical Dictionary: "Rett syndrome" Health News: Search millions of published articles for news on Rett Syndrome Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Rett Syndrome Research Foundation Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered. Faculty: Glaze, D.G.

55. Kim Johnson - The Rett Syndrome Experience Kim Johnson has rett syndrome and has severe communication impairment. Kim Johnson has rett syndrome, a condition unrecognised in the 1960s when she was born. http://home.vicnet.net.au/~dealcc/Kim1.htm

KIM JOHNSON Introduction Kim Johnson has Rett Syndrome , a condition unrecognised in the 1960s when she was born. Although she developed normally for nearly two years, the deterioration associated with Rett Syndrome has left her severely dyspraxic and without speech. Kim lives in Melbourne, and completed the final year of secondary school at the end of 1997, ten years after DEAL Communication Centre showed her how to communicate by typing with a head-pointer. From that time her family and friends gradually came to know a totally new Kim, who has led them all into uncharted waters. Hi! I'm Kim's mother, Jill. Kim would like me to tell you something about herself, as her communication is very slow and tires her rapidly. She also wants to tell you quite a bit herself, though, and her words will be found typed in UPPER CASE BOLD . Often you'll be able to tell by the style who is doing the talking; Kim's expression is very concise, as she has a lot of time to think but not much energy to type. Rosie Crossley has described it in her latest book " Speechless " as ...."as if she were writing a telegram and being charged by the word"!

56. Rett Syndrome Affects Communication And Movement. rett syndrome is a severe disorder of the nervous system. Girls with rett syndrome need therapy to help them with movement and communication. http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Rett_syndrome_aff

57. HealthlinkUSA Rett Syndrome Links Searching For rett syndrome? Try Free Smileys Instead! Kanoodle.com. Click here for page 1 of rett syndrome information from the HealthlinkUSA directory. http://www.healthlinkusa.com/Rett_Syndrome.htm

58. Rett Syndrome Symposium SLOVENIA. rett syndrome. Organizers Bengt Hagberg (Sweden), Alan Percy (USA) Local organizer Milivoj Velickovic Perat (Slovenia). http://www2.mf.uni-lj.si/~rett/

PRE-CONGRESS SATELLITE SYMPOSIUM 11 - 12 SEPTEMBER 1998 BLED SLOVENIA RETT SYNDROME Organizers: Bengt Hagberg (Sweden), Alan Percy (USA) Local organizer: Milivoj Velickovic Perat (Slovenia) the scientific programme general information reply form Programme for the piano recital updated on 18 March, 1998 Page visited times since 24/12/1997.

59. Defective Gene Linked To Rett Syndrome Defective Gene Linked To rett syndrome. rett syndrome is the first human disease found to be caused by mutations in this type of gene. http://www.applesforhealth.com/defectivegene1.html

Volume 1, Number 21 - October 22, 1999 Search Applesforhealth.com Search The Web or super search the health web Select A Search Topic Clinical Trials Doctors Dentists Pediatric Dentists Hospitals Chiropractors Eye Doctors Alternate Health Prof. Drug Interactions Medications Diseases Poisons Injuries Mental Health Medical Tests Surgical Procedures Children's Health Men's Health Women's Health Parenting Senior Health Google Search Yahoo Health News Medical Search Health Library Health Topics Gyms Currency Converter Travelers' Health People Word Finder Thesaurus Search Zip Codes Maps Small Business Help Home Repair Small Business Health Insurance library of health Select a Focus Topic Allergy Alternative Medicine Arthritis Asthma Beyond Dieting Body Aches and Pains Breast Cancer Cancer Awareness Cardio Health Children's Health Colon Cancer Contraception COPD/Emphysema Dental Health Diabetes Elder Care Emergency Room Epilepsy Eye Care Fertility Fitness Gastrointestinal Health Hair Loss Headache Health care Today Healthy Aging HIV and AIDS Infectious Diseases Kidney Health Leukemia Liver Health Lung Cancer Lymphoma Overview Multiple Sclerosis Men's Health Mental Health Nutrition Osteoporosis Sexual Health Skin Health Sleep Disorders Special Events Stroke Surgeries and Procedures Teen Health Thyroid Health Urologic Health Vascular Health Women's Health Click Here To Subscribe To Applesforhealth.com For FREE

60. Rett Syndrome Information rett syndrome. International rett syndrome Association (IRSA) Organization calling for rett syndrome research and education. A Child With rett syndrome. http://www.geocities.com/HotSprings/Spa/3247/rett_syndrome.html

Rett Syndrome International Rett Syndrome Association (IRSA) Organization calling for Rett syndrome research and education. Provides information and support to patients and their families. http://www2.paltech.com/irsa/irsa.htm National Academy for Child Development, Inc. An international organization dedicated to helping children and adults cope with developmental issues. http://www.nacd.org/index.html One to One Individualized Therapeutic Recreation A long list of therapeutic recreation links, including links for Rett Syndrome. http://www.erols.com/dawnie1/oneto1.htm Our Rett Syndrome Page Another great resource for finding information about Rett Syndrome. http://pages.prodigy.com/DebbieSchilling/irsg.htm Rett Syndrome Has technical medical information on Rett Syndrome. http://www.icondata.com/health/pedbase/files/RETTSYND.HTM Rett Syndrome Great resource page for information on Rett Syndrome, how to chat with others, personal accounts and more. http://www.familyvillage.wisc.edu/lib_rett.htm Rett~Angels Gallery A photo gallery of girls suffering with Rett Syndrome and links to their websites.

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 3     41-60 of 114    Back | 1  | 2  | 3  | 4  | 5  | 6  | Next 20