1. John Wenberg's Retinitis Pigmentosa Page Information and links for people with retinitis pigmentosa and other Retinal Degenerative Diseases. retinitis pigmentosa is http://www.jwen.com/rp/rp.html

Retinitis Pigmentosa is an eye disease that affects a person's night vision and peripheral vision. It is a genetic disorder that is usually hereditary. Symptoms start with decreased night vision and later progress to a diminishing of peripheral vision. The rate of decline varies depending on the genetic makeup of the disorder and also varies somewhat in individuals. Usher Syndrome affects the eyesight in a manner similar to Retinitis Pigmentosa but also affects the hearing. Macular Degeneration affects the center of the Retina and is a leading cause of blindness among people over 55, though young people can be affected by the disease as well. All of these diseases affect the Retina and are usually lumped under the general category of Retinal Degeneration. These pages contain links and info about these diseases UPDATED August 17, 2002 Table of contents RP Links RP and associated links from around the web Mailing Lists Mailing lists for the visually impaired RP on the IRC Find out about RP Internet Chat The Inheritance of Retinal Degeneration An explanation of genetics and retinal degeneration Contacts Addresses of various organizations dealing with Retinal Degeneration RP FAQ Frequently asked questions about RP Personal Experiences with Retinal Degeneration stories by people with RP Usher Syndrome A Pamphlet from the National Institute on Deafness and Other Communicative Diseases RP E-Pals Correspond with people who have RP and other Retinal Degeneration diseases

2. EMedicine - Retinitis Pigmentosa : Article By Anthony De Beus, MD, PhD retinitis pigmentosa retinitis pigmentosa (RP) should be regarded as a phenotypic description of several related, yet distinct, dystrophies of the http://www.emedicine.com/oph/topic704.htm

(advertisement) Home Specialties Resource Centers CME ... Patient Education Articles Images CME Patient Education Advanced Search Consumer Health Link to this site Back to: eMedicine Specialties Ophthalmology Retina Retinitis Pigmentosa Last Updated: July 18, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: RP, hereditary dystrophies of the retinal pigment epithelium AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Anthony de Beus, MD, PhD , Consulting Staff, Associated Retina Consultants Coauthor(s): Kent W Small, MD , Director of Macular Disease Center, Director of Retina Division Research, Professor, Department of Ophthalmology, University of California at Los Angeles Medical Center Anthony de Beus, MD, PhD, is a member of the following medical societies: American Academy of Ophthalmology , and Association for Research in Vision and Ophthalmology Editor(s): Russell Jayne, MD

3. Retinitis Pigmentosa retinitis pigmentosa. Introduction to retinitis pigmentosa. Low Vision Help in retinitis pigmentosa. retinitis pigmentosa Low Vision Care. http://www.eyeassociates.com/retinitis_pigmentosa.htm

Retinitis Pigmentosa Introduction to Retinitis Pigmentosa Understanding the Visual Problems from Retinitis Pigmentosa by Richard Windsor, O.D. and Laura K. Windsor, O.D. Vision Enhancement magazine Low Vision Help in Retinitis Pigmentosa Retinitis Pigmentosa Low Vision Care Home Welcome About Our Doctors Practice Awards ... Appointments Special Programs Low Vision Systems Stroke/Brain Injury Care Visual Field Impairment Double Vision Management Retinitis Pigmentosa - Bioptic Driving Macular Degeneration

4. Retinitis Pigmentosa - VisionChannel Retinal Detachment. retinitis pigmentosa. Retinopathy of. Prematurity. Skin Cancer of the retinitis pigmentosa is a term that refers to group of hereditary disorders that affect the http://www.visionchannel.net/retinitis

Home Search SiteMap Ask the Dr. ... Medical Store advertisement RETINITIS PIGMENTOSA Overview Risk Factors Diagnosis Treatment CONDITIONS Amblyopia (lazy eye) Blepharitis Cataracts Color Vision Deficiency ... Refractive Errors Correction Retinal Detachment Retinitis Pigmentosa Retinopathy of Prematurity Skin Cancer of the Eyelids Tear Duct Obstruction RESOURCES Anatomy Basic Eye Exam Clinical Trials Links ... What Is an Ophthalmologist? What Is an Optometrist? What Is an Optician? Videos ABOUT US Healthcommunities.com Pressroom Bibliography Overview Retinitis pigmentosa is a term that refers to group of hereditary disorders that affect the retina’s ability to respond to light. It primarily affects rod cells, the photoreceptor cell that is responsible for night vision, seeing in dim light, and peripheral vision. Cone cells, which are responsible for color vision and seeing in bright light, may also be affected as the disease progresses. Retinitis pigmentosa may be caused by mutations in any one of at least ten different genes, resulting in a malfunction in the retinal pigment epithelial (RPE) cells and a breakdown of a portion of the outer segment disc membrane of photoreceptor cells. When cells are destroyed at an abnormal rate, the build-up of waste products interferes with normal retinal function. The result is the occlusion (blockage) of small blood vessels, an abnormal increase in the number of RPE cells (hyperplasia), and the loss of photoreptor cells. Incidence and Prevalence Retinitis pigmentosa is relatively rare. It affects 50,000 to 100,000 people in the United States. Worldwide, approximately 1.5 million people are afflicted.

5. Macular Degeneration, Retinitis Pigmentosa And Other Retinal Disease Research The Foundation Fighting Blindness is a nonprofit national organization that funds research for macular degeneration, retinitis pigmentosa (RP), Usher syndrome http://www.blindness.org/

Text Only Macular Degeneration Retinitis Pigmentosa Usher ... Resources FREE Online Newsletter Sign Up Here National Conference Aug 19 - 21, 2004 Conference Details 2004 Sponsors Register Here! Microsoft WebSpeak has been installed to read content on this site aloud. When you see this speaker icon, use your mouse to click on it and the wizard will be activated. Login Register Benefit Search: Macular Degeneration - Macular degeneration is a retinal degenerative disease that causes progressive loss of central vision. The risk of developing macular degeneration increases with age. More on Retinitis Pigmentosa - Retinitis pigmentosa (RP) is the name given to a group of inherited eye diseases that affect the retina. Retinitis pigmentosa causes the degeneration of photoreceptor cells in the retina. More on Usher Syndrome - Usher syndrome is an inherited disorder that is characterized by moderate to profound hearing impairment, and progressive vision loss due to retinitis pigmentosa. More on Stargardt Disease - Stargardt disease is the most common form of inherited juvenile macular degeneration. More on San Francisco, CA - Visionary Award Dinner

6. Retinitis Pigmentosa / Family Village Library Search Google for "retinitis pigmentosa" Who to Contact. retinitis pigmentosa International (HPI) P.O http://www.familyvillage.wisc.edu/lib_retp.htm

Retinitis Pigmentosa See also Usher Syndrome Who to Contact Where to Go to Chat with Others Learn More About It ... Search Google for "Retinitis Pigmentosa" Who to Contact Retinitis Pigmentosa International (HPI) P.O. Box 900 Woodland Hills, California, USA, 91365 818-992-3265 (fax) E-mail: info@rpinternational.org Web: http://www.rpinternational.org/ Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss. Retinitis Pigmentosa International publishes a quarterly newsletter The Night Lighter, and offers many pamplets on current treatments, and research in progress. They have available "How to Survive Losing Vision" in print and audio versions. Call for charges for these and any other information. Retinitis Pigmentosa International has local support groups and will provide materials and assistance to individuals wishing to start a group in their area. They also provide services for the visually impaired of all kinds, and in all states. Where to Go to Chat with Others Retinitis Pigmentosa A place for people with Retinal Degnerative diseases. Retinitis Pigmentosa, Ushers Syndrome, Macular Degeneration and others.

7. Retinitis Pigmentosa retinitis pigmentosa. and Usher's Syndrome Published in Vision Enhancement Journal. retinitis pigmentosa is a term coined by Donders in 1855 http://www.lowvision.org/retinitis_pigmentosa.htm

Retinitis Pigmentosa and Usher's Syndrome Understanding the Visual Problems of Retinitis Pigmentosa Richard L. Windsor, O.D., F.A.A.O. Laura K. Windsor, O.D., F.A.A.O. Published in Vision Enhancement Journal Retinitis pigmentosa is a term coined by Donders in 1855. It is not one disease, rather a group of retinal diseases with common attributes. The incident seems to be about one in every 4,000. It can be inherited by at least three different methods. Severity and speed of vision loss vary with each form of inheritance. The following are problems common to RP. Tunnel Visual Field Progressive loss of visual fields is a hallmark of RP. The visual field loss often begins as a donut like ring in mid-periphery. As it progresses both centrally and peripherally, the resultant tunnel vision begins to affect the patient’s activities, driving and mobility. Many patients still drive automobiles in the early stages of RP, but the risks for accidents increase as the field reduces. The functional field will be worse at night and in bad weather. Even RP patients in the early stages should not drive in these situations. As the field loss progresses, daytime driving must be curtailed. Studies suggest that on average, the visual field of the RP patient declines by 5% of the remaining field per year.

8. Retinitis Pigmentosa And Retinal Degeneration In Australia Information for people interested in retinitis pigmentosa and other forms of retinal degeneration is abundant on the internet. Find http://www.netserv.net.au/doonbank/rd.html

Dee's Site Map Search Help ... Contact Australian Retinitis Pigmentosa and Retinal Degeneration Retinitis Pigmentosa (RP) is the name given to a group of eye diseases often characterised by night blindness and the gradual loss of peripheral vision. RP causes visual field loss, and may lead to eventual blindness, by affecting the light sensitive photoreceptors in the retina. A genetic and degenerative disease affecting over four million people world wide and thousands of Australians, RP is a common form of retinal degeneration (RD). Related conditions include Macular Degeneration, Usher Syndrome, Choroideremia, Leber's Amaurosis and Retinoschisis. Information for people interested in retinal degeneration is abundant on the internet. Explore my site to discover some of the more relevant and useful RD resources. Access - Computer access and adaptive equipment. Action - There's 'nothing you can do' except... Chat - RD Chat details and tips (check out the new Australian chat times!). International - Organisations from around the world. Lists - Relevant internet mailing lists.

9. Texas Association Of Retinitis Pigmentosa (TARP) A nonprofit support group for people with RP and other retinal diseases. Includes articles, support, links and general information. http://www.geocities.com/HotSprings/7815/front.htm

Main Founder Ushers Syndrome Getting Support ... Contact Us This page last updated 4/25/1999 Created by John Wenberg http://www.jwen.com What is TARP? The Texas Association of Retinitis Pigmentosa, Inc., TARP is a nonprofit, 501 (c) (3) organization based in Texas. It serves as a national information sharing center to provide services to persons with progressive vision loss. What are our goals? Since the conception of TARP in 1979, our purpose has been to educate the public in general about eye diseases that cause blindness, and in particular, to assist individuals and their families who have just received a prognosis of Retinitis Pigmentosa and "impending blindness." Once a person leaves the doctor's office with the "bad news," their lives are changed forever. However, with better understanding, guidance, emotional support and connecting with others who have lived with it, the experience need not hold a bleak future for the individual. What are the symptoms of RP? Difficulty seeing in the dark or dim light Bumping into objects which seem to appear out of nowhere Missing steps and curbs Tripping, stumbling and fumbling

10. Svenska RP-föreningen Om sjukdomen retinitis pigmentosa och om f¶reningens arbete. http://www.srpf.a.se/

Svenska RP-föreningen In English Om Svenska RP-föreningen RP-info , RP-föreningens informationsblad Om RP , info-material från RP-föreningen På gång inom RP-föreningen. Nytt inom RP-forskningen , artiklar, länkar och stipendier. RP organisationer på Internet Information om Retinitis Pigmentosa (RP) och andra degenerativa, ärftliga näthinnesjukdowmar på internet Annan synskadeinformation Yngre retinitiker i Stockholm Nytt på RP-föreningens sidor Svenska RP-föreningen Gotlandsgatan 44 BV 116 65 STOCKHOLM Tel: 08 - 702 19 02 (OBS! Telefonsvarare!) E-post: ordf@srpf.a.se Ordförande sekr@srpf.a.se Sekreterare kassor@srpf.a.se Kassör Postgiro: 62 21 08-9 Postgiro: 24 75 19-2 (gåvor) Uppdaterad 2002-09-15 Kommentarer eller frågor till: webmaster@srpf.a.se

11. Retinitis Pigmentosa - Questions Questions Answers What is retinitis pigmentosa? What are Rods and Cones? What causes RP? What are the symptoms of RP? What is Macular Degeneration? http://www.rpsa.org.za/retinitis.htm

What is Retinitis Pigmentosa? What are Rods and Cones? What causes RP? What are the symptoms of RP? ... Education of RP and Macular Children Created and maintained by Intekom works Intekom

12. A Guide To Retinitis Pigmentosa BRPS A Guide to retinitis pigmentosa LIVING WITH retinitis pigmentosa. Accepting retinitis pigmentosa. Some Effects Of retinitis pigmentosa http://www.brps.org.uk/Graphics/G_Guide.html

A Guide to Retinitis Pigmentosa Black Text on White Background ] or [ Yellow Text on Black Background LIVING WITH RETINITIS PIGMENTOSA. Accepting Retinitis Pigmentosa Some Effects Of Retinitis Pigmentosa ... Inheritance Patterns LIVING WITH RETINITIS PIGMENTOSA Accepting Retinitis Pigmentosa You may have been told recently or you have known for some years that you have Retinitis Pigmentosa (RP). This diagnosis could well help to explain the months or years of not being able to see properly in the dark, of stumbling into things and of falling over objects which you did not see. You will possibly have been told that, at present, there is no cure for RP and that you have to face the prospect of slowly deteriorating sight. Slow loss of sight is a difficult disability to live with, especially as you may not receive the immediate sympathy and understanding usually shown to the totally blind. Indeed many people will not believe that you have a loss of sight because you have no obvious sign of visual impairment. The first and hardest step towards living positively with a disability is accepting it. If you have RP this means knowing the limitation of your vision and learning to use intelligently the visual clues you still receive. In certain circumstances a normally sighted person must also do this. For example, the driver who suddenly plunges into fog has two alternatives. He can panic and perhaps cause an accident or he can recognise his visual limitations, take note of what he can see and move cautiously down the road. Likewise those with RP can panic or they can adjust to their changed circumstances and move on down the road of life.

13. Retinitis Pigmentosa Links to national and international support for retinitis pigmentosa groups, clinics with genetic counselors and geneticists retinitis pigmentosa. RP International. PO Box 900 Fax (410) 3632393 retinitis pigmentosa. National retinitis pigmentosa Foundation, Inc. http://www.kumc.edu/gec/support/retiniti.html

Retinitis Pigmentosa RP International PO Box 900 Woodland Hills, CA 91365 Tel (818) 992-0500 Fax (818) 992-3265 E-mail: info@rpinternational.org The Foundation Fighting Blindness 11435 Cronhill Drive Owings Mills, MD 21117-2220 Phone: (800) 683-5551 (TDD) Fax: (410) 363-2393 Retinitis Pigmentosa National Retinitis Pigmentosa Foundation, Inc. 11350 McCormick Rd., #800 Hunt Valley, MD 21031-1002 Phone: 800/638-5683 TTY Also See: National organizations , information on genetic conditions or birth defects John Wenberg's RP Links Retinitis Pigmentosa , New Zealand Retinitis Pigmentosa , Blindness Resource Center Foundation Fighting Blindness , Canada RP Association , Spanish Retinal Preservation Foundation , South Africa RP Page , Australia Retinitis Pigmentosa , Johns Hopkins School of Public Health Swedish RP Foundation Swiss Retinitis Pigmentosa Association (Retina Suisse) British RP Society Retina France (French RP Association) Retina International Dutch Retina Foundation (Retinastichting Nederland) Retina New Zealand Retinitis Pigmentosa Lighthouse International Vision Resources The Finnish Retinitis Society (Retinitis-yhdistys ry) Canadian National Institute for the Blind Royal National Institute for the Blind Retinitis Pigmentosa Foundation , Norway American Foundation for the Blind National Federation of the Blind Retinitis Pigmentosa , EMedicine To locate a genetic counselor or clinical geneticist in your area:

14. An Overview Of Retinitis Pigmentosa Information on night blindness, including the relationship between retinal degenerative diseases and the retina as well as basics on genetics and heredity. http://www.geocities.com/retinitis_pigmentosa_rp

Retinitis Pigmentosa var site="sm5retinitis" An overview of retinitis pigmentosa (RP) Retinitis pigmentosa is a group of hereditary diseases that causes the degeneration of the retina. Often called night blindness, retinitis pigmentosa may develop in a family where either one parent or both parents are affected or where there is seemingly no familial history of the disease. In other cases, RP is observed in only the males of the family. Typically, symptoms start in childhood and early adolescents. They include decreased ability to see in dim light such as movie theaters or ball games, night blindness and bumping into or tripping over objects. There may also be loss of color vision and the inability to focus or see objects in detail. The symptoms experienced depend entirely on the type of retinitis pigmentosa. Long-term affects of RP include so called 'tunnel vision'. This loss of peripheral vision is usually gradual, reducing the visual field to a narrow area of the eye, directly in front of the individual. In many cases, people with retinitis pigmentosa are considered 'legally blind' by the time they're 40. In cases where retinitis pigmentosa and hearing loss or deafness occur, there is a chance of Ushers Syndrome. Ushers Syndrome is an inherited disease affecting 3-6 % of the deaf and is usually diagnosed in childhood.

15. RP Links NEW LINKS NEW LINKS NEW LINKS Western Australian retinitis pigmentosa Foundation; Judy s County; EMedicine Page on retinitis pigmentosa; http://www.jwen.com/rp/rplinks.htm

RP Links Table of Contents New Links General RP Links Research Links Foundation Fighting Blindness ... Return to Main RP Page NEW LINKS NEW LINKS NEW LINKS Western Australian Retinitis Pigmentosa Foundation Judy's Jolts of Hope - For Macular Degeneration Return to top of page General RP Links RP Get Together 2000 Intellihealth page for RP Retina Vitreous Associates - Experts in the Diagnosis and Treatment of Vitreoretinal Disease Foundation Fighting Blindness - Canada RP Association Portugal Spanish RP Association Harvard Magazine Article on Gordon Gund ... Johns Hopkins School of Public Health - RP Page Swedish RP Foundation British RP Society Home Page Family Village RP Page Hong Kong RP Society Page ... TARP Home Page - Texas Association of Retinitis Pigmentosa Retina France - French RP Association Retina International Dutch Retina Foundation HealthTouch - Usher and RP referrals Retinitis Pigmentosa Foundation in Norway Canadian Ophthalmological Society - RP page RP International Leber's Optic Neuropathy Home Page Health Link USA - RP Page Low Vision Centers of Indiana - RP Page Prevent Blindness America - RP FAQ Grand Rapids Ophthalmology - RP Page Retina New Zealand Lighthouse International Vision Resources - RP Page RP, Through a Tunnel Darkly

16. R.P. Retinitis Pigmentosa Synproblem Näthinnan Ögon Ögonsjukdom Om Annika, som har retinitis pigmentosa. http://www.abc.se/~m10039/annika.htm

Hjälp mig innan det är försent. Hej, jag heter Annika Wistrand/Högel och är 26 år. Jag föddes med en sjukdom som heter R.P. ( Retinitis Pigmentosa ). Läkarna trodde först att jag var skelögd och gav mig lapp för ögat och glasögon för översynthet. Först vid 14 års ålder märkte jag själv att något inte stämde. Innan dess hade jag kunnat läsa en tidning utan glasögon och blev förskräckt över hur mycket min syn hade försämrats. Nästa gång jag märkte en försämring var när jag och en kamrat kastade freesbe, först såg jag den och i nästa stund var den borta. Det var då jag kontaktade min ögonläkare för kontroll av synen, och fick bekräftat att en kraftig försämring hade inträffat. Sjukdomen består av så kallade fläckar på näthinnan, och i dessa fält som fläckarna utgör, försvinner min syn. Idag har jag en syn som ligger på ca 5 % av det normala men den försämras allt eftersom. På det här sättet hoppas jag få kontakt med forskare världen över som studerar denna sjukdom, Retinitis Pigmentosa; Läkare, Professorer, Universitet eller Sjukhus och/eller personer som är i samma situation som jag. Läkarnas diagnos är : Progredierande retinal degenerativ sjukdom.

17. Western Australian Retinitis Pigmentosa Foundation Chat room, links, information and support on retinal disorders and fighting blindness. http://members.iinet.net.au/~warpf/index.html

Western Australian Retinitis Pigmentosa Foundation Fighting Blindness What is Retinitis Pigmentosa? Retinitis Pigmentosa is the name given to a group of diseases which affect the retina of the eye. The retina, located in the back of the eye, is the part of the eye that acts like the film in a camera. It is a delicate layer of cells which picks up the picture and transmits it to the brain - where "seeing" actually occurs. In RP, the retina begins to degenerate, which causes vision to diminish. One of the earliest symptoms of RP is difficulty seeing at night or in dimly lit places (night blindness). Later there is a reduction in side (peripheral) vision. The symptoms of RP generally increase over the years. It is known that certain cells in the retina, known as rods and cones, die in RP. The cause of cell death however, is not known at present, but research provides us with the opportunity to seek solutions. RP bodies throughout the world support research in a number of medical centres and hospitals internationally to find the cause, prevention and treatment of retinal degenerative diseases like Retinitis Pigmentosa, Usher syndrome and Macular Degeneration. Some of these centres also provide a clinical evaluation of the patient's RP or other retinal degenerations. They may also perform special tests requested by the patient's own ophthalmologist. Through the efforts of RP organisations in many countries, the number of highly qualified investigative scientists working full time on RP and related diseases continues to grow. Research efforts into these types of retinal diseases are difficult because there is no opportunity to safely biopsy - that is, remove and examine living retinal tissue under a microscope - the delicate eye.

18. Retinitis Pigmentosa Resources And Links The purpose of this site is to define all the retinitis, Retinitis Pigmentosis Resources available on the Internet. This page will be updated frequently as new sites are added. Feel free to retinitis pigmentosa Links. Alternate view Yellow Text on Black Background Links to retinitis pigmentosa. British retinitis pigmentosa Society. Organization is a self help group which http://www.geocities.com/retinitispigmentosa

Retinitis Pigmentosa Links Alternate view: Yellow Text on Black Background Black Text on Yellow Background The purpose of this site is to define (in one place) all the Retinitis Pigmentosis Resources available on the Internet. This page will be updated frequently as new sites are added. Feel free to suggest a site. Lets work together to advance our understanding of this disease. New Sites: Wellspring Clinic for Holistic Medicine : Treating RP using the WVIP (Wellspring Vision Improvement Protocol). The WVIP based on Traditional Chinese Medicine (acupuncture and herbs) has dramatically improved the eyesight in some patients. Links to Retinitis Pigmentosa British Retinitis Pigmentosa Society Organization is a self help group which seeks to help its members live with and overcome their visual problems and to bring relief by stimulating research into the causes and eventually the treatment of RP. Site contains an excellent guide that would be a good starting point for anyone wanting to learn more about this disease. Retina International Voluntary charitable umbrella association of 34 national societies each of which is formed by people with retinal degenerative diseases. Site contains an image gallery of what life looks like thru the eyes of those suffering from this disorder.

19. What Is Retinitis Pigmentosa? retinitis pigmentosa. Macular Degeneration, retinitis pigmentosa and Other Retinal Disease Research retinitis pigmentosa What is retinitis pigmentosa? http://www.blindness.org/content.asp?id=45

20. Pro Retina Augsburg -Selbsthilfevereinigung Von Menschen Mit Netzhautdegeneratio Selbsthilfevereinigung von Menschen mit Netzhautdegeneration, retinitis pigmentosa, MakulaDegeneration, Usher-Syndrom. Regionalgruppe Augsburg. http://home.t-online.de/home/0821581682-0002/

P ro R etina D eutschland e. V -Infoseite Augsburg- Selbsthilfevereinigung von Menschen mit Netzhautdegeneration Ihre Ansprechpartner in der Regionalgruppe Augsburg Organisation und Planung Bertl Croe, Telefon (0821) 46 36 86 Marion Goth, Telefon (0821) 44 12 12 Reiner Jecho, Telefon (08294) 86 19 95 E-Mail: jecho@skydsl.de Sozialberater und Homepagebetreuung Dieter Stanzel, Telefon (0821) 58 16 82 Barrierefreiheit und Verkehr Manuel Rodriguez, Telefon (0821) 99 82 28 3 E-Mail: rodriguez.augsburg@freenet.de Robert Kraus (Optiker), Telefon (0821) 43 74 34 E-Mail: optiker.kraus@euronet-server.com Hier erhalten Sie weitere Informationen* Pro Retina Deutschland e.V. Regionalgruppentreffen / Veranstaltungen Jugendhomepage Arbeitskreis Soziales der Pro Retina Deutschland e.V. ... Pro Retina Deutschland e.V. kann in unserer in Aachen angefordert werden. Das Leben ist wie ein Puzzle... RETINITIS PIGMENTOSA (RP) MAKULADEGENERATION (MD) USHER-SYNDROM Dies sind degenerative Erkrankungen der Netzhaut des Auges (Retinal Degeneration = RD) Typische Zeichen der Sehverschlechterung sind: verlangsamte Hell-Dunkel-Anpassung Nachtblindheit hohe Blendempfindlichkeit Die Schauspielerin Witta Pohl ist Mitglied im Kuratorium der Pro Retina Deutschland e.V.

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