21. Proteus Syndrome - Information / Diagnosis / Treatment / Prevention home genetic disorders proteus syndrome proteus syndrome. NORD proteus syndrome Offers synonyms, a general discussion and further resources. http://www.healthcyclopedia.com/genetic-disorders/proteus-syndrome.html

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... genetic disorders > proteus syndrome Proteus Syndrome Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Medical Definition Health News Web Directory: Related Topics: Rare Disorders Medical Definition: University of Newcastle-upon-Tyne Medical Dictionary: "proteus syndrome" Health News: Search millions of published articles for news on Proteus Syndrome Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: NORD: Proteus Syndrome Offers synonyms, a general discussion and further resources. Proteus Syndrome Foundation Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters. The CaF Directory A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.

22. Indian Pediatrics - Images In Clinical Practice proteus syndrome. The lesions in proteus syndrome tend to be progressive and minor variations in size may become more apparent with growth. http://www.indianpediatrics.net/june2001/june-677-678.htm

23. Radiology In Ped Emerg Med, Vol 7, Case 4 proteus syndrome Radiology Cases in Pediatric Emergency Medicine Volume 7, Case 4 Craig T. Nakamura, MD Kapiolani Medical Center For Women And Children http://www.hawaii.edu/medicine/pediatrics/pemxray/v7c04.html

Proteus Syndrome Radiology Cases in Pediatric Emergency Medicine Volume 7, Case 4 Craig T. Nakamura, MD Kapiolani Medical Center For Women And Children University of Hawaii John A. Burns School of Medicine <5th percentile). Height 164 cm (70%ile). She is a thin, well developed alert female in no distress. Skin: No rashes, lesions, thickened skin, or varicosities. Head: Normocephalic. EENT: Normal. Neck: No elongation or adenopathy. Chest: Symmetrical with normal anteroposterior diameter. No retractions. No scoliosis or kyphosis noted. Mild pectus excavatum is present. No tympany to percussion. A surgical scar is noted. Lungs: Mildly decreased breath sounds. No rhonchi, rales, or wheeze. No prolongation of the expiratory phase. Heart: Regular rate and rhythm. No murmur. Normal S2. No gallop. Abdomen: Benign. No organomegaly. Extremities: Enlarged left hand with long fingers. There is also joint enlargement involving her left hand. No other hemihypertrophy noted. Arterial blood gas: pH 7.39, pCO2 40, pO2 55, bicarbonate 24. Review her radiographs: Review her CXR at an early age. Review a later CXR.

24. Discovery Health :: Proteus Syndrome FrequentlyAsked Questions About proteus syndrome. By Elise Ritter. Find out what it is and what causes it What are the signs of proteus syndrome (PS)? http://health.discovery.com/convergence/elephantman/proteusfaq.html

June 02, 2004 EDT OAS_RICH("hedthick"); Frequently-Asked Questions About Proteus Syndrome By Elise Ritter In 1998, a panel of doctors at the National Institutes of Health surmised that Joseph Merrick's affliction may have been caused by a condition known as Proteus syndrome. Find out what it is and what causes it: What are the signs of Proteus syndrome (PS)? Atypical development of bone and tissue, resulting in overgrowth and enlargement of hands, feet, skull and often one entire side of the body. Other signs are multiple benign tumors and raised rough skin. Who is Proteus syndrome named after? The Greek god Proteus, who had the ability to change his body into different shapes in order to escape from his enemies. How common is Proteus syndrome? It is very rare, with only about 100-200 individuals currently afflicted worldwide. How is someone with Proteus syndrome treated medically today? Is there a cure? There is no known cure at this time. Today a multidisciplinary team would treat the symptoms of the disease. The caregivers involved would include a primary care physician to coordinate the care, plus a geneticist, an orthopedic surgeon, a reconstructive surgeon, a radiologist, a dermatologist, a pathologist and a psychologist. When was Proteus syndrome first discovered?

25. The Elephant Man's Bones Reveal Mystery death). Dr. Sharma determined that Merrick had proteus syndrome, an extremely rare disorder, itself only identified in 1979. Proteus http://rarediseases.about.com/library/weekly/aa031301a.htm

zJs=10 zJs=11 zJs=12 zJs=13 zc(5,'jsc',zJs,9999999,'') About Rare / Orphan Diseases Home Essentials ... Rare cancers zau(256,152,145,'gob','http://z.about.com/5/ad/go.htm?gs='+gs,''); Is it a Rare Disease? Rare Diseases A - B Rare Diseases C - D Rare Diseases E - H ... Help zau(256,138,125,'el','http://z.about.com/0/ip/417/0.htm','');w(xb+xb); Stay Current Subscribe to the About Rare / Orphan Diseases newsletter. zau(256,152,100,'hs','http://z.about.com/5/ad/hs.htm?zIhsid=00',''); Search Rare / Orphan Diseases Joseph Merrick, the "Elephant Man" Joseph Merrick, the "Elephant Man" Email to a friend Print this page Stay Current Subscribe to the About Rare / Orphan Diseases newsletter. Elsewhere on the Web Who Was the Elephant Man? The Elephant Man's Mistaken Identity Elsewhere on the Web Most Popular ALD and Lorenzo's Oil The Elephant Man's Bones Reveal Mystery Prune Belly (Eagle-Barrett) Syndrome Progeria Syndromes ... Mad Cow Disease and Humans What's Hot Autoimmune Kidney Disease Tourette Syndrome Christmas Disease Bugs, PANDAS, and Tics ... Dystonia and Botox Injections The Elephant Man's Bones Reveal Mystery From Mary Kugler Your Guide to Rare / Orphan Diseases Sign up for my Newsletter He stumped physicians for 100 years Joseph's story Over the next years, Joseph left home, tried working in a factory but was abused by the workers there, and finally ended up in a freak show. By now his face was distorted by the overgrown half of his head, and the flesh around his nose had grown, too, leading the show promoter to dub Joseph "The Elephant Man."

26. ORPHANET - Rare Diseases - Orphan Drugs Printing version, DISEASE proteus syndrome, ICD Q87.8, proteus syndrome is a rare disorder characterized by malformations and overgrowth of multiple tissues. http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=744

27. ORPHANET® Proteus Syndrome proteus syndrome. Direct access to data Summary proteus syndrome is a rare disorder characterized by malformations and overgrowth of multiple tissues. http://www.orpha.net/static/GB/proteussyndrome.html

28. DermIS / Main Menu / DOIA / Proteus Syndrome / Images DermIS / main menu / DOIA / proteus syndrome / images, deutsch español portugues français. / images for the diagnosis proteus syndrome . Click to enlarge. http://www.dermis.net/doia/diagnose.asp?zugr=d&lang=e&diagnr=9940&topic=t

29. DermIS / Main Menu / DOIA / Proteus Syndrome / Images / Enlarged image DermIS / main menu / DOIA / proteus syndrome / images / enlarged image, deutsch español portugues français. / image for the diagnosis proteus syndrome . http://www.dermis.net/doia/image.asp?zugr=d&lang=e&cd=40&nr=23&diagnr=9940

30. Proteus Syndrome Information Diseases Database proteus syndrome,Encephalocraniocutaneous lipomatosis,Fishman syndrome, Disease Database Information. Medical information linksproteus syndrome specific sites. http://www.diseasesdatabase.com/ddb30070.htm

Diseases Database Index Sponsors Contact ... Previous Page Proteus syndrome Information Search 3 synonyms or equivalents were found. Proteus syndrome aka/or Encephalocraniocutaneous lipomatosis aka/or Fishman syndrome may cause or feature (Follow link for list) may be allelic with (Follow link for list) belong(s) to the category of (Follow link for list) Proteus syndrome: Definition(s) via UMLS Code translations and terms via UMLS Proteus syndrome: specific sites Send Proteus syndrome to medical search engines (JavaScript enabled browsers only) If your browser has no JavaScript you can still use these: Search using Internet medical databases Search using Internet search engines (non-specialist) We subscribe to the HONcode principles of the Health On the Net Foundation i-medicine.info - the evidence based medicine, informatics and audit portal Valid XHTML 1.0 Served 2004-06-03 02:40:46 Metadata Updated 2004-05-22

31. TheFetus.net - Proteus Syndrome -Submitted By Elke Sleurs, MD*&, Luc De Catte, M 200102-16-10 proteus syndrome © Sleurs www.TheFetus.net. proteus syndrome. There presence is almost pathognomonic for proteus syndrome but is not mandatory. http://www.thefetus.net/page.php?id=436

32. Clinical Trial: Study Of Proteus Syndrome And Related Congenital Disorders Study of proteus syndrome and Related Congenital Disorders. Patients with proteus syndrome and their parents may be eligible for this study. http://www.clinicaltrials.gov/ct/gui/show/NCT00001403?order=3

33. Proteus Syndrome proteus syndrome. of the syndrome, a list of diagnostic criteria, newsletters, links and a medical bibliography. proteus syndrome;. http://omni.ac.uk/browse/mesh/C0085261L0087079.html

low graphics Proteus Syndrome broader: Abnormalities, Multiple Limb Deformities, Congenital other: Alagille Syndrome Angelman Syndrome Beckwith-Wiedemann Syndrome Branchio-Oto-Renal Syndrome ... Proteus Foundation This is the home page of the Proteus Syndrome Foundation, a US based organisation dedicated to providing information and support for sufferers of Proteus Syndrome (sometimes known as Elephant Man Disease) and their carers and families, and to educate the health care profession about this rare disease. The site contains a brief description of the syndrome, a list of diagnostic criteria, newsletters, links and a medical bibliography. Proteus Syndrome Last modified: 27 May 2004

34. Proteus Syndrome proteus syndrome Foundation. proteus syndrome proteus syndrome Foundation Provides education and support for families or children with proteus syndrome. http://my.webmd.com/hw/raising_a_family/shc29prt.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... Proteus Syndrome Foundation Proteus Syndrome Proteus Syndrome Foundation International network. Founded 1991. Provides education and support for families or children with Proteus syndrome. Supports research into cause and cure of this disorder. Newsletter, pen pals, literature, and database of families. Fund-raising. WRITE: Proteus Syndrome Fdn. 4915 Dry Stone Drive Colorado Springs, CO 80918 CALL: 719-264-8445 Kim Hoag day 901-756-9375 Barbara King day E-MAIL: kimkhoag@aol.com WEBSITE: http://www.proteus-syndrome.org VERIFIED: 6/6/2003 The above information is based upon information available through the "verified" date at the end of each listing. Since American Self-Help Group Clearinghouse's resources are limited; it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information and assistance about self-help groups, please contact the American Self-Help Group Clearinghouse in Cedar Knolls, New Jersey, by email at: info@selfhelpgroups.org

35. Proteus Syndrome proteus syndrome Important It is possible that the main title of the report proteus syndrome is not the name you expected. Please http://my.webmd.com/hw/raising_a_family/nord579.asp

var guid_source = ""; var guid_source_id = ""; //unused var encodedurl = ""; WebMD Today Home WebMD News Center Member Services WebMD University My WebMD Find a Physician Medical Info Check Symptoms Medical Library Quizzes, Calculators Clinical Trials ... Women, Men, Lifestyle Who We Are About WebMD Site Map Health Topics Symptoms ... For a Complete Report Proteus Syndrome Important It is possible that the main title of the report Proteus Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. Synonyms Hemihypertrophy, Macrocephaly Partial Gigantism of Hands and Feet, Nevi, Hemihypertrophy, Macrocephaly encephalocraniocutaneous lipomatosis Disorder Subdivisions None General Discussion Proteus syndrome is an overgrowth condition that affects the body in a patchy or mosaic manner. It causes overgrowth of bones, fatty tissues, and skin. Resources NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse 1 AMS Circle Bethesda, MD 20892-3675

36. National Human Genome Research Institute - Biesecker Lab We also study proteus syndrome, a disorder of postnatal overgrowth. This disorder presents with severe disproportionate overgrowth http://www.genome.gov/page.cfm?pageID=10000356

37. First National Proteus Syndrome Conference http://www.genome.gov/Pages/Hyperion/CONF/Proteus/

38. Proteus Syndrome Medical Information on proteus syndrome. For whom is this information intended? Website www.viscotland.org.uk. Medical Information on proteus syndrome. http://www.ssc.mhie.ac.uk/eyeconds/Prote.htm

Scottish Sensory Centre Medical Information on Proteus Syndrome For whom is this information intended? The information contained in this document is intended for use primarily by parents, other members of the family and older children with visual impairment. The information will also be of use to interested health professionals, carers and teachers. The purpose of each information document The purpose of the information is to explain: The way the eyes and brain normally work to make 'vision' The reason why vision may become impaired by a specific condition The cause of the condition The effects of the condition on the child's vision How the condition is diagnosed What can be done to help This document is written with the minimum use of medical terms and jargon. It is impossible to avoid all medical terms but where we have used them we have attempted to explain them as clearly as we can. Although the information is intended to describe most aspects of the condition each child is different and there will always be exceptions to the rule. As far as we can determine these pages are true and accurate and have been written in good faith. Inevitably there will be some mistakes. We apologise for this. What this information is not for This document is not a substitute for a consultation with a Health Professional and should not be used as a means of diagnosing a condition.

39. Proteus Syndrome Articles, Support Groups, And Resources proteus syndrome articles, support groups, and resources for patients from Med Help International (www.medhelp.org). proteus syndrome. http://www.medhelp.org/HealthTopics/Proteus_Syndrome.html

[Health Topics A-Z] A B C D ... Z Proteus Syndrome Support Groups: Proteus Syndrome Foundation [Med Help Home] [Library Search] [Medical Forums] ... [Patient Network] Revised: 6/2/2004

40. Proteus Syndrome - Medical Dictionary Definitions Of Popular Medical Terms MedicineNet Home MedTerms medical dictionary AZ List proteus syndrome. Advanced Search. http://www.medterms.com/script/main/art.asp?articlekey=5087

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