21. The Children's Institute, Pittsburgh, PA Rehabilitation facility offering several rehabilitation programs, including special education, programs for learning disabilities and praderwilli syndrome, and special needs adoption. http://amazingkids.org/index.html?cState=tci

22. Center For The Study Of Autism praderwilli syndrome. Written Oregon. prader-willi syndrome is a disorder which is sometimes associated with, but not a subtype of, autism. http://www.autism.org/prader.html

Prader-Willi Syndrome Written by Stephen M. Edelson, Ph.D. Center for the Study of Autism, Salem, Oregon Prader-Willi Syndrome is a disorder which is sometimes associated with, but not a subtype of, autism. The classical features of this disorder include an obsession with food which is often associated with impulsive eating, compact body build, underdeveloped sexual characteristics, and poor muscle tone. Because of their obsession with food, many people afflicted with Prader-Willi Syndrome are overweight. Most individuals afflicted with Prader-Willi Syndrome have mild mental retardation. Some of the behaviors which are common to both Prader-Willi Syndrome and autism are: delays in language and motor development, learning disabilities, feeding problems in infancy, sleep disturbances, skin picking, temper tantrums, and a high pain threshold. Prader-Willi Syndrome affects approximately 1 in 10,000 people. Most individuals suffering from this disorder are missing a small portion of chromosome 15 which appears to come from the paternal side of the family. When a small portion of chromosome 15 is missing and comes from the maternal side, the person may suffer from Angelman Syndrome. The most effective form of treatment for people suffering from Prader-Willi Syndrome is behavior modification. In general, medications do not appear to very effective for these individuals.

23. Redirect http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176270

24. OMIM - PRADER-WILLI SYNDROME; PWS http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=176270

25. Florida Department Of Children & Families Information and links for those with mental retardation, autism, cerebral palsy, spina bifida, and praderwilli syndrome. http://www5.myflorida.com/cf_web/myflorida2/healthhuman/ddp/

directory contact us newsletters first time user Programs Abuse Hotline Adoption Foster Care Adult Services ... Mental Health Health Agencies Elder Affairs Health Health Care Veterans' Affairs The Developmental Disabilities site has moved ! The new location is : http://www.dcf.state.fl.us/ddp/ Please update your bookmarks to this new location. Thank you. Privacy Statement

26. PWSA (USA) Forwarding Page The praderwilli syndrome Association (USA) web site has moved to http//www.pwsausa.org. Please update your bookmarks. http://www.athenet.net/~pwsa_usa/

The Prader-Willi Syndrome Association (USA) web site has moved to: http://www.pwsausa.org Please update your bookmarks.

27. WCDD Home Page Statewide advocacy organization that represents people with autism, brain injury, cerebral palsy, epilepsy, mental retardation, and praderwilli syndrome. http://www.wcdd.org/

Skip navigation Mission and Population Served Guiding Principles Background and Responsibilities ... Community Inclusion (DAWN) Grassroots Advocacy Network Direct Service Workforce Employment Health ... Housing People Can't Wait Initiative Self Advocacy (People First WI) Self Determination Waiting Lists Legislative Platforms Adults Waiting for Services ... Search Welcome The Wisconsin Council on Developmental Disabilities was established to advocate on behalf of individuals with developmental disabilities, foster welcoming and inclusive communities, and improve the disability service system. The Council's mission is to help people with developmental disabilities become independent, productive, and included in all facets of community life. In the News: Our New Offices The offices of the Wisconsin Council on Developmental Disabilities have moved. We are now located at 201 West Washington Avenue, Suite 110, Madison, WI 53703. The offices are in the Tommy G. Thompson Building . The building is located on the southwest corner of West Washington Avenue and Fairchild Street. We hope to see you in our new space. WCDD Workforce Project Seeks Writers Call for Writers!

28. Oconomowoc Developmental Training Center School, residential treatment, group homes for children developmentally disabled, emotionally disturbed with mental retardation, praderwilli syndrome, autism, dual diagnosis and others. http://www.odtc-wi.com/

29. What Is Prader-Willi Syndrome In Romanian SINDROMUL PRADERWILLI (PWS) (o abordare in echipa a managementului PWS). INTRODUCERE – Tratamentul copiilor cu PWS reprezinta http://www.ipwso.org/romania/what_is_pws_romania.html

O Echipa Cuprinzatoare de Abordare a Prader-Willi Syndrome Calendarul evenimentelor Raportul Conferintei ... Legaturi SINDROMUL PRADER-WILLI (PWS) (o abordare in echipa a managementului PWS) INTRODUCERE – Tratamentul copiilor cu PWS reprezinta o noua provocare pe terenul endocrinologiei pediatrice. Handicapurile si problemele copiilor afectati sint numeroase, multe dintre ele mai numeroase decit in oricare alt domeniu al endocrinologiei pediatrice, poate mai putin domeniul cariogramei. De aceea, managementul copiilor cu PWS poate fi incununat de mai mult succes prin abordarea unei ingrijiri adecvate. Unele centre au o mare experienta si cunostinte legate de managementul PWS. Totusi, aceste cunostinte sint atribuite experientei unei singure persoane. Prin studierea intensa a experientei si strategiei acestor centre si persoane, poate fi dezvoltata o abordare cuprinzatoare in echipa, care va permite centrelor din intreaga lume sa ofere ingrijirea optima pacientilor lor cu PWS. Urs Eiholtzer, MD

30. Connecticut Children's Medical Center: Rehabilitation/Child Development Center Comprised of a team of specialists who provide evaluation and consultation services for children and adolescents by bridging medical, developmental, behavioral and educational facets to produce a holistic view of the child. Developmental and behavioral challenges include Asperger's, fetal alcohol syndrome, motor skills disorders, traumatic brain injury, Williams Syndrome, austism, praderwilli syndrome and Tourette's, among others. http://www.ccmckids.org/departments/Ed_Rehab/chdvtctr.htm

Services: Evaluation Consultation/Training Programs Staff Office Locations The Child Development Center is comprised of a team of specialists who provide evaluation and consultation services for children and adolescents by bridging medical, developmental, behavioral and educational facets to produce a comprehensive view of the child. The mission of the Child Development Center is to assist in the facilitation of an improved quality of life for children and parents who face the challenges associated with a wide range of developmental and behavioral difficulties. We believe that children can realize their potential more fully, given the appropriate diagnosis and intervention. We provide services that are tailored to the needs of the individual child, family, and referral agency. Our evaluation services range from evaluations that are highly focused and specific to those that are comprehensive and integrated. Through diagnostic evaluation and concrete recommendations, we are able to help children and their families who may be challenged by many difficulties, including: Pervasive Developmental Disorders Asperger's Disorder/Syndrome Autistic Disorder/Syndrome Rett's Disorder/Syndrome Behavior Disorders Attention Deficit/Hyperactivity Disorder Oppositional Defiant Disorder Attachment Disorders Neurodevelopmental Disorders Fetal Alcohol Syndrome Fragile-X Syndrome Lesch-Nyhan Syndrome Prader-Willi Syndrome Williams Syndrome Learning Disabilities

31. MedlinePlus: Prader-Willi Syndrome praderwilli syndrome. Printer-friendly version, E-mail this page to a friend. Search MEDLINE for recent research articles on • prader-willi syndrome. http://www.nlm.nih.gov/medlineplus/praderwillisyndrome.html

@import url(http://www.nlm.nih.gov/medlineplus/images/advanced.css); Skip navigation Other health topics: A B C D ... List of All Topics Prader-Willi Syndrome Contents of this page: From the NIH General/Overviews Coping Nutrition ... Information from the Medical Encyclopedia Search MEDLINE for recent research articles on Prader-Willi Syndrome You may also be interested in these MedlinePlus related pages: Genetics/Birth Defects Mental Health and Behavior From the National Institutes of Health Genes and Disease: Prader-Willi Syndrome (National Center for Biotechnology Information) General/Overviews Questions and Answers on Prader-Willi Syndrome (Prader-Willi Syndrome Association) Also available in: Spanish Clinical Trials ClinicalTrials.gov: Prader-Willi Syndrome (National Institutes of Health) Coping My Child Has Prader-Willi Syndrome, Now What? (Prader-Willi Syndrome Association) Someone You Know Has Prader-Willi Syndrome (Prader-Willi Syndrome Association) Disease Management (Prader-Willi Syndrome Association) Also available in: Spanish Nutrition Prader-Willi Food Pyramid (Prader-Willi Syndrome Association) Specific Conditions/Aspects Patient's Guide to Low Testosterone (Endocrine Society, Hormone Foundation)

32. Prader-Willi Syndrome Association Welcome to the praderwilli syndrome Association of New Zealand, host for the 2004 International PWS Conference. http://www.pwsa-nz.co.nz/

Welcome to the Prader-Willi Syndrome Association of New Zealand, host for the 2004 International PWS Conference An Overview of PWS Diagnostic Guidelines for parents Diagnostic Criteria for professionals Genetic Overview ... Families' stories Links to other PWS Associations: Australia Denmark Finland France ... USA Link to other health sites www.allhealthlinks.com Welcome to our website - we hope you find something useful here. We have tried to make our site as parent-friendly as we can, and there are links for professionals as well. We welcome your comments. We are proud to have hosted the 5th International IPWSO Conference, and the 9th Australasian PWS Conference in Christchurch, New Zealand, 9-12 April 2004. If you would like further information on this conference, or wish to order DVDs, please contact our office. Prader-Willi Syndrome (PWS) is caused by a very small deletion in the 15th chromosome (see Genetic Forms) It is a random occurrence and to date there has been no discovery as to why this happens. Statistics suggest that the occurrence rate is 1:25,000 giving a population in New Zealand of approximately 230 people. The PWS Association (NZ) knows about 130. Diagnosis is made through DNA testing and is almost always accurate. This can be done at all major medical centres in New Zealand. The PWS Association (NZ) Inc is a support group for those who have the syndrome, their families, and all who come in contact with PWS. We are the leading resource centre for PWS in New Zealand. We have parent contacts in most centres and can put you in touch with a support person anywhere in New Zealand.

33. Ontario Prader-Willi Syndrome Association OPWSA provides support and information to all those interested in finding out about this syndrome. A special emphasis on Canadian content. http://members.attcanada.ca/~opwsa/

34. Welcome To Gretton Homes Information about the organization that offers residential care for people with praderwilli syndrome. http://www.gretton-homes.co.uk/

Your browser does not support script We will strive to promote, maintain and improve the principles of rights, choice, privacy, independence and fulfillment for all of our residents. We will always endeavour to see the person first and the disability second. Gretton House - Main house incorporating head office. Gretton Homes has acquired a national and international reputation for supporting people with Prader-Willi Syndrome (PWS) and are now the market leaders in offering this service to anyone in the UK and occasionally abroad. With over twenty years experience we continue to strive to improve the opportunities and quality of life for people with the syndrome. We have proven beyond all doubt that with careful management of the condition people with PWS can lead relatively normal and fulfilling lifestyles. This was not the case a mere twenty years ago. We are ever hopeful that with great and rapid advances in medical science a breakthough in the diagnosis and treatment of PWS may be possible in the very near future. Until that time we will continue to support people with PWS and their families.

35. Home Includes news, important dates, fund raising, maps and links. http://www.pwsausa.org/nj/

New Jersey Chapter News Links Table of Contents Research ... Calendar PRADER-WILLI SYNDROME is a birth defect first identified in 1956 by Swiss doctors A. Prader, H. Willi and A Labhart. There are no known reasons for the genetic accident that causes this lifelong condition which affects appetite, growth, metabolism and behavior. Those affected by the syndrome - about one in 12,000 - are very much alike in their physical symptoms, behaviors and other characteristics. Both sexes and all races are affected. The Prader Willi Syndrome Association provides a resource for education and information about Prader-Willi and support for families, professionals and other interested citizens. Our Mission The Prader-Willi Syndrome Association, NJ Chapter is formed to provide support to parents and individuals with Prader-Willi Syndrome. We strive to help educate both educators and the medical field on the needs of people with PWS. We hold two meetings a year with featured speakers on Prader-Willi Syndrome and related areas. We try to be involved politically for persons with PWS and to assist in their life's planning.

36. The Prader-Willi Alliance For Research A nonprofit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments for prader-willi syndrome. http://www.p-war.org

37. Prader-Willi Syndrome - Diagnostic Criteria, Links And Books The following criteria for a diagnosis of praderwilli syndrome are based on Holm et al. prader-willi syndrome Concensus diagnostic criteria. http://www.isn.net/~jypsy/prader.htm

The following criteria for a diagnosis of Prader-Willi Syndrome are based on Holm et al. (Pediatrics 91, 398, 1993). Because infants and young children have fewer symptoms than older children and adults with PWS, the scoring system differs by age group. Major Criteria (Count as 1 point each) Neonatal and infantile central hypotonia with poor suck, gradually improving with age. Feeding problems in infancy with need for special feeding techniques and poor weight gain/failure to thrive. Excessive (crossing two centile channels) or rapid weight gain on weight-for-length chart after 12 months and before age 6; central obesity in the absence of intervention. Characteristic facial features with dolichocephaly in infancy, narrow face or bifrontal diameter, almond-shaped eyes, small-appearing mouth with thin upper lip, downturned corners of the mouth (three or more of these characteristics required). Hypogonadism-includes any of the following, depending on age: a.

38. Prader-Willi Syndrome - The Early Years Click for General Guide, Click for Members Library. The information here has been written by parents of infants with praderwilli syndrome (PWS). http://www.pws.asn.au/infant.html

The information here has been written by parents of infants with Prader-Willi Syndrome (PWS). It is a brief guide for parents who have recently had a diagnosis and it provides some helpful tips on coping with these early years, and early interventions. Most parents find that taking things a day at a time is the best way of dealing with this diagnosis. You will find that there is more detailed information about PWS within this site but some people find that this is enough for the time being. Y Very recently you were told that your child had been diagnosed with Prader-Willi Syndrome (PWS). This syndrome is characterised by a disorder of growth and development, which, in 99% of cases is not inherited. It must have come as a shock to you and you will be wondering just how this will affect you and your family. It is important to say that you and your child are not alone. Estimates show that about 1 in 15,000 people are born with PWS. It occurs in both males and females equally and is seen in individuals of all races. The name of the syndrome is derived from the names of the doctors who first described the disorder in 1956. Y Every child is an individual and not every person affected by the syndrome will have all of the characteristics. They are also seen in varying degrees. Early diagnosis can give your child a more positive start with early intervention and sensible eating plans. It is important to understand that children with PWS are generally happy and delightful and it is very easy to love them.

39. Ontario Prader-Willi Syndrome Association Welcome! The Ontario praderwilli syndrome Association (OPWSA) is a non-profit, charity which was established in 1982. Our mission http://members.allstream.net/~opwsa/

What is Prader-Willi Syndrome? Health News Events Real Life Stories ... Conference 2004 Home Welcome! The Ontario Prader-Willi Syndrome Association (OPWSA) is a non-profit, charity which was established in 1982. Our mission is to enhance the quality of life for individuals with Prader-Willi Syndrome. OPWSA has a membership of 1000, including individuals with PWS, their families and interested professionals. This website was created to be a source of information for those interested in and affected by Prader-Willi Syndrome. Here you will find: Specific information on identifying the syndrome Updated medical research and studies Discover the true face behind PWS The OPWSA publishes a newsletter quarterly ... Annual Prader-Willi Syndrome Conference The Ontario Prader-Willi Association is a registered non-profit charity organization, established in 1982. CHARITABLE NO.:

40. OPWSA: What Is Prader-Willi Syndrome? What is praderwilli syndrome? prader-willi syndrome (PWS) is a genetic condition which is generally caused by a deletion in Chromosome 15. http://members.allstream.net/~opwsa/whatispws.htm

What is Prader-Willi Syndrome? Health News Events Real Life Stories Newsletter ... Home What is Prader-Willi Syndrome? Prader-Willi Syndrome (PWS) is a genetic condition which is generally caused by a deletion in Chromosome 15. The current incidence of PWS is 1-12,000. It is believed that there is a close connection between PWS and disturbance of the hypothalamus-an area of the brain which controls a number of bodily systems.The following is an overview of characteristics common to Prader-Willi Syndrome. However, not all symptoms are present in all individuals and the intensity of characteristics varies from person to person: INFANTS Characteristics: Hypotonia (weak muscle tone) Difficulty with feeding because of poor sucking ability Respiratory difficulties Helpful Interventions: Most infants will benefit greatly from early interventions with a physio/occupational therapist who can help set up a program to encourage development and provide assistive devices which will help. A nutritionist can provide information about diet, ensuring that adequate calories are provided. As your baby grows, speech therapy may also enhance your child's skills. Most infants with PWS have a happy disposition and respond well to people. A pediatric endocrinologist can provide information on growth hormone therapy which can assist greatly in muscle development and growth.

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