21. BOR Syndrome There are also members of the potters syndrome Support Forum who have BOR in theirfamilies and they can provide you with additional information regarding http://www.geocities.com/potters_syndrome/bor.html

For most people who have a child with Bilateral Renal Agenesis (BRA - no kidneys), it is a "fluke," a one-time occurrence that the doctors cannot explain. However, for some people, it is the result of a genetic disorder and can happen again in subsequent children.  One of the known genetic disorders that can cause BRA is a syndrome known as BOR.  According to recent studies, BOR is believed to occur in 1 in 40,000 people. It is estimated that 2% of the profoundly deaf have BOR. Taken from the BOR Research Project pamphlet put out by Boys Town National Research Hospital, Omaha, Nebraska, USA: What is BOR? BOR (Branchio-OTO-Renal) is a dominant genetic condition which can result in hearing loss, ear pits, branchial (neck) cysts or fistulas, and kidney anomalies. Individuals with BOR ususally do not have all of these symptoms, thus BOR is said to have variable expression. And although these are the most common symptoms, many others have been reported but are not common. About 90% of BOR patients have a hearing loss. The hearing loss found in BOR is highly variable. The loss can be sensorineural, conductive or mixed.  It can be stable or progressive and the severity can range from mild to profound. Ear pits are found in abour 80% of the BOR cases. An ear pit is a small hole immediately in front of the top of the ear. Of those persons with ear pits, some have only one while others have one in front of each ear. Some individuals have deformed outer-ear(s), middle-ear(s), and/or inner-ear(s).

22. Genitourinary Disorders - 378 Of The Best Sites Selected By Humans Michigan Health System Vesicoureteral Reflux Congenital_Anomalies -Hypospadias -PediatricOncall -potters syndrome Gateway Congenital_Anomalies Personal_Pages http://www.cbel.com/genitourinary_disorders/

Pages A-G 2 Columns Pages H-O Order by Alphabet Ordered by Theme Order by Popularity 3 Columns Pages P-Z 4 Columns Genitourinary Disorders CBEL Health ( 378 links, last update: 12 April 2004 ) * = new links [Find on this page] American Urological Association Laparoscopy and Urology. Medicine Net: Focus on Urological Disorders ... Your Urinary System and How It Works Bladder Bladder Disorders Daily Bladder Diary Health4Her - Atonic Bladder Health4Her - Cystitis ... Your Medicines and Bladder Control Bladder Cystocele Cystocele and Pelvic Floor Tone Cystocele Hub MCW Health Link: Fallen Bladder Methodist Health Care System ... ViaHealth Disease and Wellness Information Bladder Incontinence About Overactive Bladder About Stress Incontinence AFUD Urinary Incontinence American Foundation for Urologic Disease ... Womens Waterworks Bladder Interstitial_Cystitis About.com Interstitial Cystitis Ask Dr Stoll: Interstitial Cystitis Bladder Pain Canadian IC Resource Center ... Womans Diagnostic Cyber: Interstitial Cystitis Bladder Neurogenic_Bladder Frankford Hospitals - Neurogenic Bladder MCW HealthLink MedNets Patient Information Methodist Health Care System ... VhiHealth-e Bladder Urostomies Chronic Papillomatous Dermatitis Coloplast Ltd: Urinary Stomas in Children Hollister.com: Managing Your Urostomy

23. Forever Sleeping Angels Type Of Loss potters syndrome (aka multycystic kidney disease) Chooseanother message board, There are different types of potters syndrome. http://groups.msn.com/ForeverSleepingAngels/typeofloss.msnw?action=get_message&m

24. Forever Sleeping Angels potters syndrome (aka multycystic kidney disease), 5, MSN NicknameAngelSophieandRubysMom, 11/17/2003 244 AM. potters syndrome (aka. http://groups.msn.com/ForeverSleepingAngels/typeofloss.msnw

var nEditorialCatId = 96; MSN Home My MSN Hotmail Shopping ... Money Web Search: var zflag_nid="346"; var zflag_cid="20"; var zflag_sid="4"; var zflag_width="728"; var zflag_height="90"; var zflag_sz="14"; Groups Groups Home My Groups Language ... Help Forever Sleeping Angels ForeverSleepingAngels@groups.msn.com What's New Join Now •Welcome to FSA Easter Blessings ... Choose another message board View: Discussions Only Prev 50 Next 50 New Discussion Send to my Inbox Subject Messages Started By Last Reply Stillbirth-knot in the cord aprilthemom 5/16/2004 4:52 AM Murder chelld 4/30/2004 7:53 AM NEC 4/14/2004 3:40 AM suicide 3/28/2004 10:44 PM Chronic Illness 2/18/2004 9:12 PM SIDS waynejules 2/7/2004 1:30 PM Car Accident Bonnie 1/19/2004 7:32 PM welcome to our new Members AdorableScorpian 1/17/2004 8:27 AM candle DailyLadybug 1/11/2004 10:10 PM NEC (Necrotizing Enterocolitis) ryanrobertsmom 11/29/2003 8:29 PM Potters syndrome (aka multycystic kidney disease) AngelSophieandRubysMom 11/17/2003 2:44 AM Potters Syndrome (aka. Renal Agenesis) Lynda (Elliott's Mommy) 11/8/2003 11:33 AM Welcome Lynda (Elliott's Mommy) 11/8/2003 11:30 AM Back 1 Month Back 1 Week Forward 1 Week Forward 1 Month Prev 50 Next 50 New Discussion Send to my Inbox Notice: Microsoft has no responsibility for the content featured in this group.

25. Pregnancy And Infants' Illness Historical Posts June 1998 Re Potter s Syndrome. I too had a child with potters syndrome andalthough it was 14 years ago I am still searching for answers. http://askwaltstollmd.com/archives/preg/p061998.html

Pregnancy and Infants' Illness historical posts June 1998 Re: Potter's Syndrome Posted by Walt Stoll on June 02, 1998 at 12:18:01: Dear Georgina, Like many chronic problems, the best solution is prevention. That is a little late once the damage is done. HOWEVER, those who have had a child with this condition are a little more likely to learn how to never have something like that happen again. If everyone would read Paavo Airola, ND's classic "Every Woman's Book" (at least 2 years before conception) there would be less than 1% of the birth defects we see today. There would be much less hyperactivity, learning deficiencies and aggressive children as well. He died about 10 years ago but his family continues to keep this essential knowledge in print. There has been a lot learned in the past 10 years that, once the reader is sensitized to the process, would stick out like sore thumbs in the recent literature. Let us know what you learn. Walt Re: Potter's Syndrome Posted by Fiona Reoch on June 17, 1998 at 19:02:50: In Reply to: Re: Potter's Syndrome posted by Walt Stoll on June 02, 1998 at 12:18:01:

26. Ask Dr Stoll - Pregnancy And Infants' Illness Post Archive There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regardingPregnancy and Infants Illnesses, including potters syndrome. http://askwaltstollmd.com/archives/preg.html

Dr Stoll Home Dr Stoll BB Pregnancy and Infants' Illness Posts to Ask Dr Stoll BB regarding Pregnancy and Infants' Illness There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regarding Pregnancy and Infants' Illnesses, including Potters Syndrome. Many of them have been archived here. The archive is roughly chronological. I hope you find it useful. The archive also includes some posts on methods of contraception. Choose an archive: Jun Jul Aug Choose a thread of archived posts: February 05, 2004 - Interstitial Cystitis and Pregnancy February 01, 2004 - morning sickness and vitamin B6 January 21, 2004 - November 24, 2003 - pregnancy A DELIBERATELY HEALTHY PREGNANCY! November 16, 2003 - DRMore Varicose Vein Q's September 17, 2003 - DR STOLL.....morning sickness... i have read the archives July 21, 2003 - RHogam injectionfor pregant Mom July 20, 2003 - aldomet TESTIMONIAL June 12, 2003 - Breastfeeding Information April 17, 2003 - getting pregnant March 04, 2003 - Dr. Stoll - question for you December 26, 2002 - pregnancy December 04, 2002 -

27. A Heartbreaking Choice Garden 1997 Logan Kyle Black May 8, 1997 potters syndrome Although you were onlywith us a brief time, you have touched our lives forever. Rest http://www.aheartbreakingchoice.com/garden97.htm

Our Rose Garden In Memory of the Babies Who Left Us Too Soon . . . We will forever feel your presence and love you always Click here if you wish to list your baby 03 babies 02 babies 01 babies ... 1994 and earlier babies 1997 Babies Luke Miller January 13, 1997 Spina Bifida Baby LM January 13, 1997 Spina Bifida Megan January 16, 1997 Trisomy 18 You live in my heart forever. D'aira Tyjae January 27, 1997 Finnish Congenital Nephrosis We will always love our sweet baby girl. Love, Mommy and Daddy Michael Aaron January 31, 1997 Triploidy Steven Robert February 6, 1997 Trisomy 21 Alex Rose February 20, 1997 Hypoplastic Left Heart Syndrome Baby Boy Mullins March 1, 1997 Lethal Multiple Ptyergium Syndrome Held Only In Our Hearts Rhiannon Sperling March 31st, 1997 My sweet little girl, I'll love you always. I think about you all the time. I hope you know I did the best I could. I'll love you always, and I'll always be your mommy. Thank you for choosing me. Thank you for sending me Cole. Love, Mom Baby Jacob April 2, 1997 Trisomy 21 Kimberly Ann Soul set free April 3, 1997

28. A Heartbreaking Choice Garden 1998 Kimberlay Louise September 7, 1998 potters syndrome A FLOWER THAT OPENEDAND CLOSED TOO SOON IN THE TENDER ARMS OF JESUS. GOD BLESS http://www.aheartbreakingchoice.com/garden98.htm

In Memory of the Babies Who Left Us Too Soon . . . We will forever feel your presence and love you always Click here if you wish to list your baby 03 babies 02 babies 01 babies ... 1994 and earlier babies 1998 Babies Tyler Johnathon Trias January 1, 1998 Trisomy 18 Tyler, you will always be in our hearts ~ Love Mommy and Daddy Baby Rachel January 9, 1998 Trisomy 21 wishing you were here Joshua January 12, 1998 Hypoplastic Left Heart Forever in our hearts, miss you angel. We will hold you in our arms again. Love, Mummy and Daddy Baby Tyo January 13, 1998 Anencephaly Christopher James January 14, 1998 Trisomy 21 Chloe Eve January 21, 1998 Trisomy 18 Sarah Rose January 27, 1998 at 12:04 a.m. Spina Bifida and Hydrocephalus You will always be with us. We love you! Love, Mommy and Daddy Destiny Raelynne Guffy February 2, 1998 Trisomy 18 Some people only dream of angels. We got to hold one in our arms. We miss you so very much and love you even more. Jamie Wettemann January 8, 1998 Triploidy We love you and miss you every day. Corbin Nicolas Born on February 4, 1998 Died on February 2, 1998

29. Abundance Of The Heart Our Angel Baby Join Date January 02, 2003 This is a Memorial done for myDaughter who I lost to a rare birth defect called potters syndrome. http://www.ringsurf.com/netring?ring=AOTH;action=list

30. My Parents Are Survivors Wings, Abigail Chrystal Kuzel Join Date January 02, 2003 This website is a memorialfor our baby girl who passed away from potters syndrome or renal agenesis. http://www.ringsurf.com/netring?action=info&ring=mpas

31. Baby Jessica We were told that the baby had potters syndrome and that she was notgoing to make it through the night. potters syndrome is very rare. http://sids-network.org/fp/jana.htm

Help ensure that the Global Internet services of the SIDS Network continue to grow! Donate directly to the SIDS Network securely with a major credit card Donate your used car, truck, boat or RV to the SIDS Network, Inc. and receive a tax deduction Other ways to help can be found here Baby Jessica by Jana Date: Sun, 31 Jan 1999 As I sit here and read all these heart breaking stories feeling terrible for all these people, I felt is was about time for me to open up and share my story with you. We were so excited. When the day came me, my husband, and my dad made the drive to the hospital. At that time I was given my last ultrasound to see the position of the baby. She was still breach. Also at that time I was told that her lungs looked a little under developed; that at worst she would have to stay in the hospital for an extra 2-3 weeks. But once again, "not to worry." We went into delivery all excited. All I can remember was seeing all the doctors and nurses faces. For awhile I didn't hear her cry. It seems like forever but she did. I asked if everything was ok. They said yes. She had a hard time breathing but everything would be fine. They wouldn't let me see her. She needed to be cleaned and put on oxygen. We started to get very upset but we did remember what the doctor did say about her lungs. I was put in recovery when a doctor came in to tell me that the baby's heart was in distress. HER HEART!

32. OMRF Research Studies Polycythenia Rubra Vera, Polymyocitis. Polyneuropathy, potters syndrome.Primary Lateral Sclerosis, Prostrate Cancer. Protein S Deficiency, Psoriasis. http://www.omrf.org/OMRF/Admin/Development/ResearchStudies.asp

Current Research Studies Achalasia Addison's Disease Aging ADHD AIDS ALS (Lou Gehrig's Disease) Alcholism Allergies Alzheimer's Disease American Indian Children Amyloidosis Anemia Aneurysm Antiobiotic Resistance (Mechanisms) Aplastic Anemia APL Arteriosclerosis Arthritis Asthma Ataxia Atherosclerosis Autism Autoimmune Disease Bell's Palsy Biomembranes Bi-Polar (Mental Health) Birth Defects Blepharospasm (Meige Syndrome) Blood Disease Bone Cancer Bone Disease Bone Marrow Transplants Brain Diseases Brain Tumor Breast Cancer Bulimia Cancer Cardiovascular (CVA) Cerebral Hemorrhage Cerebral Palsy Cerebral Vascular Disease Charcot Marie Tooth Disease Children's Disease Fund Chronic Fatigue Immune Def. (CFIDS) Clinical Pharmacology Colon COPD - Chronic Obstr. Pulmonary Disease Cortico Basal Ganglionic Degeneration Crest Syndrome Creutzfeldt-Jakob Syndrome Crohn's Disease (Ileitus) Crystallography Cushing Syndrome Cystic Fibrosis Cystinosis Cytomegalovirus Dementia Depression Dermatomyositis Diabetes Diffuse Lewybody Disease Down's Syndrome Dystonia Emphysema Epilepsy Familial Tremors / Essential Tremors Fibromyalgia Flesh Eating Disease (Antiobiotic Resistance) Gastric Ulcer Gastrointestinal Gaucher's Disease General Research Genetics George Garrison Pediatric Research Geriatrics Goodpasture Syndrome Graves Disease Guilain-Barre Syndrome Hardening of Arteries Head Trauma Heart Heart By-pass Surgery Hematology Hemophilia Hepatitis/Hepatitis C Hodgkins Disease Huntington's Chorea

33. NEWS Detail identified antenatally (Table 1). Six fetuses had major structural abnormalitiesdiagnosed sonographically, namely potters syndrome, multicystic dysplastic http://www.imj.ie/news_detail.php?nNewsId=2088&nVolId=69

34. NEWS Detail hypoxia, retroplacental haemorrhage and fetomaternal haemorrhage respectivelyand the fourth was a neonatal death at six hours from potters syndrome. http://www.imj.ie/news_detail.php?nNewsId=2296&nVolId=89

35. Wauu.DE: Home: Family: Pregnancy: Loss: Memorials: Stillbirth: Page 2 Our Angel Baby Janine This site was created in memory of our daughterwho we lost to potters syndrome on May 27,1999. http//www http://www.wauu.de/Home/Family/Pregnancy/Loss/Memorials/Stillbirth/more2.htm

Home Home Family Pregnancy ... Stillbirth : Page 2 Search DMOZ-Verzeichnis: All Categories Categories Onlye Links: In Memory of Darin Krystofer Watson Biggs Lost due to an umbilical cord accident at 22 weeks gestation, on 4th october 1998. http://www.angelfire.com/de3/darinkrystofer In Memory of David "You are truly our son, our second baby born, but from our loving arms you were too early torn." http://members.tripod.com/~texashunee/index3.html In Memory of Heather Marie This is a dedication site to Heather Marie, who was born still on April 16, 1996. http://hometown.aol.com/jules416/heather.html In Memory of Jordan Jordan came and went in an instant on May 23, 1997 taking with him a lifetime of hopes, dreams and plans. http://www.geocities.com/Heartland/Prairie/8410/ In Memory of Jordan Bailey Audino Jordan was born still at 37 weeks, read her story and celebrate the life of an angel. http://www.angelfire.com/pa/audino/index.html In Memory of Justin A memorial site for Justin Michael Rosen, born prematurely at 23 weeks. http://home.nc.rr.com/justinrosen/

36. Birth Defects Research For Children Pierre Robin Syndrome, Add to Shopping Cart. potters syndrome (Renal Agenesis),Add to Shopping Cart. Poland s Syndrome, Add to Shopping Cart. http://www.birthdefects.org/ilmnop.htm

Fact Sheet Catalog (I-P) This page is a listing of Current Fact Sheets available for download, click the Add to Shopping Cart link to include the fact sheet in your order. Immune Deficiency Add to Shopping Cart Learning Disabilities Add to Shopping Cart Limb Reduction Defects Add to Shopping Cart Microcephaly Add to Shopping Cart Moebius Syndrome Add to Shopping Cart Neural Tube Defect (NTD) Add to Shopping Cart Neurogenic Bladder Add to Shopping Cart Obsessive Compulsive Disorder Add to Shopping Cart Omphalocele Add to Shopping Cart Pectus Excavatum Add to Shopping Cart Pierre Robin Syndrome Add to Shopping Cart Potters Syndrome (Renal Agenesis) Add to Shopping Cart Poland's Syndrome Add to Shopping Cart Polycystic Kidney Disease Add to Shopping Cart Porencephaly Add to Shopping Cart PPD Add to Shopping Cart Premature Births Add to Shopping Cart Pyloric Stenosis Add to Shopping Cart

37. Infant Deaths due to doctor s negelgeince) Mom Heather S. Ariel (inuterotriplet to JD Austin)Mom Sheri J. Austin (potters syndrome-triplet to Ariel JD) Mom Sheri J http://www.angelmoms.com/causes/infantdeaths.html

Causes of Death Sudden Infant Death Syndrome Alexis Sierra Hitchcock - Mom: Heather W. Catherine Theresa Doherty - Mom: Debra D. Teddy - Mom: Patricia S. Heather Nicole Runge - Mom: Patricia B. Dennie J. Faucher, Jr. - Mom: Mary D. Jered Paul Morales - Mom: Cindy M. Logan Reid Allen - Mom: Melissa B. Meaghan Nichole Wells - Mom: Kerri W. Tyrell Thunder Runns - Mom: Cristy A. Kayla Ann Carbone - (Unknown) Mom: Tammy P. Meaghan - Mom: Margaret S. Georgina "Georgie" Elizabeth Rosina - Mom: Nicki W. Jay Thomas Struck - Mom: Joanne S. Ryan - Mom: Kathy Andrew Richards - Mom: Havivah C. Alaina Michelle Moyers - Mom: Tiffany R. Danielle Sueann Joan Cox - Mom: Sueann C. Vanessa Jane - Mom: Andrea Bradlee Leeland Wiacek - Mom: Dawn Melissa Renee Davis - Mom: Virginia G. Elijah Daniel Gregory Foster - Mom: Jessica F. Kiersten "Kiki" Eline Fontenot - Mom: Jeanne F. Timothy Andrew, Jr. "TJ" - Mom: Jennifer Jackson Dale Jernigan (SIDS/RSV ) Mom: Joanna J. Still Birth Nicole Rayann Frederick - Mom: Rachel F.

38. Pregnancy, Birth, Infant Care Ask Dr. Stoll BBS There have been a few posts to the Ask Dr Stoll Bulletin Board(BB) regarding Pregnancy and Infants Illnesses, including potters syndrome. http://www.findhealer.com/link/pregnancy.php3

M y H o l i s t i c . c o m F i n d H e a l e r . c o m Pregnancy, infant care Articles Sites Birth Page Good News Network Extensive Information and Articles relating to Midwifery Kidz are People Too (Info: Pregnancy, Childbirth, Infant Care, etc.) attachment parenting,attachment, breastfeeding,extended breastfeeding,toddlers,nursing toddlers,mothering,motherhood,Christian parenting,Christian attachment parenting,parenting,vaccinations,vaccines,babies, stay at home mom, GFI, Growing Kids God's Way,SAHM,children, Ezzo, childbirth, newborn, infant, crying, spanking, alternatives to spanking,positive discipline,breastmilk,breast milk,breast feeding,immunizations,childbirth stories,natural childbirth,pregnancy,pro-life,mommy,gentle discipline, discipline,loving guidance,bonding,Dr. Sears,ap,La Leche League, LLL,abortion,shots,Gary Ezzo,the Ezzos,William Sears,fussy baby,childcare, natural mothering,natural parenting,housewife,wife,homemaker,keeper of the home Midwifry Archives Motherstuff Web Page (Extensive! Links: Birth, Breastfeeding, Midwifes, Parenting, etc.)

39. Findsupport Directory - Unclassified : : Findsupport National Directory - Direct Peter le Marchant Trust PEX Action on Pesticide Exposure Pierre-Robin ContactGroup Porencephaly Contact Group potters syndrome Contact Group Prader Willi http://www.findsupport.co.uk/Unclassified/

DIRECTORY - Findsupport Directory - Unclassified : To make it easier to find a relevant group, we have organised them into categories. This is still a new feature of Find support.co.uk so if you think that a group should be in a different category, or if you think categories need renaming, or restructuring, then please let us know CATEGORY Top Unclassified SUB-CATAGORIES There are no sub-categories. Please see below for a list of groups... GROUPS IN THIS CATEGORY Access Travel Act Against Bullying Active Women's Group Actors' Benevolent Fund ... Zoe's Place Baby Hospice Errors, or incorrect categories? Please let us know SEARCH Can't find what you're looking for in the directory? You could try a quick search: NEWSLETTER Subscribe to the findsupport newsletter: The contents of this website are for information purposes only, and should not be used as a basis for diagnosis or choice of treatment. For further information please go to the Conditions of Use

40. Sharing Our Stories/Thoughts - Along This Path Our son, Kyle was born at 7 months, with no kidneys(potters syndrome)in 1988. Just this past week, I heard of a family, here in http://www.shareatlanta.org/fiveyears.htm

SHARE Atlanta "Sharing" Our Stories/Thoughts - Along this Path "Forever in Our Hearts" Memories from Five to Fifteen Years Later Thoughts by Parents with Subsequent Children or Surviving Children - as Time Passes... Our house is full of activity... constantly... ...but a Mother's heart NEVER forgets the child who should have also been here with us... "KYLE LANDON RITCHEY" by Karen Vancouver, B.C. Letters or Poems on this page "You Never Forget" by Patti (5/97) "Dear Heather" by Lisa (11/97) "KYLE LANDON RITCHEY" by Karen (1/98) with four entries over a period of time. "I loss my third child..." by Nancy (2/98) "Six years ago...not much help, then.." by Wendy (2/98) "the loss of my first born... by Leanne (2/98) "My Darling baby girl..." by Jenny (3/98) "Ryan" by Francine (4/98) "Lovely little one" by Diane (6/98) "Always to be our little ones" by Keren (7/98) "My first...so many years have gone by and I have never forgotten, ever. " by Tonya (9/16/98) "Joys and Sorrows" by Barb (9/27/98) "Jeffery" by Mary Jane (10/6/98)...after five years...Mary Jane's thoughts and Marcia's thoughts on

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