1. Potters We have created a cookbook as a fund raiser for future research and for the informationpackets that the National potters syndrome Support group mail s out. http://potterssyndromesupport.homestead.com/potters.html

Be sure to visit our main forum webpage with lots of informative links at: http://www.geocities.com/potters_syndrome/ This webpage is your entryway to the support group's forum, you can enter the forum by simply clicking on the teddy bears or by clicking on this link address: http://forums.delphiforums.com/potterssyndrome/start/ We have created a cookbook as a fund raiser for future research and for the information packets that the National Potters Syndrome Support group mail's out. If you are interested in purchasing a cookbook please send email to: schl@sssnet.com Thank You for visiting our webpage. If you wish to learn more about Potter's Syndrome and would like an information packet ($20 usd charge) from the National Potter's Syndrome Support Group please email: potters_syndrome@mailcity.com all donations are appreciated as this group is self funding. The information packets will be available for free download at our website: http://www.geocities.com/potters_syndrome by Spring 2003. Also if you do not feel comfortable posting on a message board but need to talk to someone please feel fee to email the online support group at: potters_syndrome@mailcity.com

2. Potter's Syndrome (www.whonamedit.com) potters syndrome is the term used to describe the total......Potter's syndrome The total absence or malformation of infant kidneys. Bilateral renal agenesis syndrome (BRA) syndrome, bilateral kidney agenesis syndrome, dysplasia renofacialis http://www.whonamedit.com/synd.cfm/2331.html

Home List categories Eponyms A-Z Biographies by country ... Contact Whonamedit.com does not give medical advice. This survey of medical eponyms and the persons behind them is meant as a general interest site only. No information found here must under any circumstances be used for medical purposes, diagnostically, therapeutically or otherwise. If you, or anybody close to you, is affected, or believe to be affected, by any condition mentioned here: see a doctor. Potter's syndrome Synonyms: Bilateral renal agenesis syndrome (BRA) syndrome, bilateral kidney agenesis syndrome, dysplasia renofacialis, oligohydramnios sequence, oligohydramnios tetrad, renofacial dysplasia, renofacial syndrome. Associated persons: Edith Louise Potter Description: Potters Syndrome is the term used to describe the total absence or malformation of infant kidneys in combination with other congenital abnormalities, including Potter's facies, pulmonary hypoplasia, oligohydramnios, failure of foetal urinary production and skeletomuscular anomalies such as clubbing of the hands and feet and contractures. Oligohydramnios (deficiency of the amount of amniotic fluid) is the cause of failure of lung development and of limb compression in the foetus. Males are more commonly affected than females. The affected children are usually stillborn or die shortly after birth. Authors disagree whether inheritance is autosomal dominant recessive. Bibliography: H. Madisson:

3. Potter's Syndrome Website Links WHAT IS potters syndrome? potters syndrome is the term used to describe the total absence or malformation In simple terms with potters syndrome the main problem is that the http://www.geocities.com/potters_syndrome/potterslinks.html

Potter Sequence Several entities use the eponym Potter: 1) Potter syndrome, now renamed either oligohydramnios sequence or bilateral renal agenesis (BRA) depending on whether the cause of the syndrome (BRA) or the mechanism is referred to. 2) Potter syndrome Type I is now referred to as Autosomal recessive polycystic kidney disease 3) Potter syndrome Type II is now referred to as Renal dysplasia 4) Potter syndrome Type III is now referred to as Autosomal dominant polycystic kidney disease WHAT IS THE KIDNEY FUNCTION IN THE BODY? All the body processes produce waste materials, which if allowed to accumulate could poison the body. Excretion is the process of cleaning this waste from the body, the skin excretes water and salt, the lungs excrete carbon- dioxide and water vapor, and the kidneys excretes urine. The kidneys are found at the back of the abdominal (or stomach) cavity in the region known as the small of the back. The normal adult kidney is about 7 cm wide and 12 cm long. A thin tube called the ureter connects the kidney with the bladder. Urine forms in the kidney and is passed down this tube into the bladder. The kidneys also receive blood from the heart which is full of oxygen in order to help the kidneys function and when this blood has been used it has to be passed back into the blood stream to be refilled with oxygen. The kidneys are composed of a vast network of tubes which are all vital to the proper function of each kidney. WHAT IS POTTERS SYNDROME?

4. Clayart - Thread 'crowbar Thank heaven fasting we all suffer from potters syndrome. What is potters syndrome? You open your kiln on a disaster Done that? You suffer from potters syndrome! Isn't it http://www.potters.org/subject19734.htm

pot tenderizer. this basic potters tool....' crowbar pot tenderizer. this basic potters tool.... updated wed 17 mar 99 Anthony Allison on sun 14 mar 99 anthony@mlecmn.net Hi all, I thought I had seen it all. There was the time I hatched the brilliant idea to tumble stack my kiln so I could salt lightly without ruining my shelves. Great idea except when I opened er up the 6 foot mass of pots had shrunk down to about 2 feet. Nice effects but unloading with a crowbar wasn't what I envisioned. 300 pots is a tough lesson in gravity. Then there was an unloading last year when I removed a pot off the top shelf and watched in horror as the top shelf shuddered and started the whole stack falling to the left. I jerked to catch the stack dropping the pot I had in my hands- caught the stack and sort of miraculously kept the domino effect at bay. I was alone and studied for 10 minutes as best I could if there was anything I could do to permenently stop the impending crash. Sure- if I could just quickly ram a pot between the shelves and the kiln wall, my nightmare would end. You guessed it, the pile has its own kinetic ideas. The hand was slower

5. POTTER SYNDROME: Contact A Family - For Families With Disabled Children: Informa There is no known treatment for potters syndrome and it is always fatal. In somecases, potters syndrome may be inherited as an autosomal dominant trait. http://www.cafamily.org.uk/Direct/p32.html

printer friendly POTTER SYNDROME home more about us in your area conditions information ... how you can help search this site Did you find this page helpful? yes no Potter syndrome was first described by Dr Edith Potter in 1946. It is an extremely rare condition involving a total absence (agenesis) or severe malformation (dysgenesis or dysplasia) of both infant kidneys. The normal function of the kidneys is to filter waste products from the blood, eliminating them as urine. Absence of one kidney (unilateral) is compatible with life whereas absence of both kidneys (bilateral) is incompatible with life. The first signs of Potter syndrome are evident in the womb before one month of development. At this stage, the ureteral bud, which forms the kidneys, fails to develop and as a result little womb amniotic fluid is produced. The production of amniotic fluid during pregnancy is vital to the development of the baby's lungs. In Potter syndrome, the lungs of the baby do not develop fully because of a lack of amniotic fluid (also known as oligohydramnios). During pregnancy, babies may appear to have normal weight and size for their age because the placenta performs the filtering work of the kidneys. However, babies die either during birth or very shortly thereafter mainly because of underdevelopment of the lungs (pulmonary hypoplasia). Another function of amniotic fluid is to 'cushion' the developing baby as it grows in the womb. If there is oligiohydramnios (reduced amounts of amniotic fluid), the baby may be compressed against the uterine wall. In addition, compression may cause growth retardation, a 'squashed' facial appearance and/or torso. Other features of Potter syndrome may include clubbing of the hands and feet and contractures (shortening of the muscle or of fibrous tissue).

6. ~Our Angel Baby Janine~ This site was created in memory of our daughter who we lost to potters syndrome on May 27,1999. http://www.geocities.com/angelbaby_janine/

to "Janine's Website" You are in our thoughts on this day and always! Happy 5th Birthday Janine, We Love you!! ~Memorial Saying from Janine's Maternal Grandparents~ To our little Angel Janine, You were only on this earth for such a short time however, you live on forever in our hearts! All of Our Love, The Origin Behind Janine's Middle Name. I come from a family of all girls and my parents only have 2 grandchildren. One is a girl named Melissa and of course our Colin. When I found out I was pregnant I tried to think of a way to carry on my Dad's name in some form or another seeing that this would be the last chance to have a Grandchild named in his honor. So, when we found out the baby was going to be a girl we gave her the middle name of Bobbi, named after my Dad, Robert! Little one, little one Where have you gone? Your going has darkened The brightest dawn Why did you leave us So soon, so soon? Where can we look for you? Over the moon? On butterflies' wings In the heart of a rose? Who knows

7. Potter's Syndrome Other characters, Potter s syndrome,. Print this article, (Edith Potter,born 1901, American pathologist) (also called Potter s sequence). http://www.amershamhealth.com/medcyclopaedia/medical/Volume VII/POTTERS SYNDROME

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Potter's syndrome, (Edith Potter, born 1901, American pathologist) (also called Potter's sequence). Clinical manifestations are those of an infant with a dysmorphic facies: a flat face, widely spaced eyes, low ears, micrognathia; with fetal growth retardation, limb anomalies such as rocker bottom feet and severe oligohydramnios secondary to renal agenesis or dysplasia. The renal disease leads to pulmonary hypoplasia and the children may present with pneumothorax and pneumomediastinum. HC The Encyclopaedia of Medical Imaging Volume VII Contacts GE Healthcare Making Waves

8. Potter's Syndrome, Renal Manifestation Potter s syndrome, renal manifestation,. Print this article, Infants with Potter ssyndrome usually die of respiratory failure within a few hours after birth. http://www.amershamhealth.com/medcyclopaedia/medical/Volume IV 2/POTTERS SYNDROM

Amershamhealth.com Search for: Type a word or a phrase. All forms of the word are searchable. Browse entry words starting with: A B C D ... Other characters Potter's syndrome, renal manifestation, (Edith Potter, 20th century, American physician), a syndrome including low set floppy ears, inner canthal eye folds, a broad flat nose, a small recessed chin and hypoplastic lungs, and often renal failure. Oligohydramnios due to the lack of fetal urinary output is thought to be responsible for these features. It can also be caused by primary defects of the mesoderm. Infants with Potter's syndrome usually die of respiratory failure within a few hours after birth. The absence of urinary flow, leading to oligohydramnios and inadequate lung development can be attributed to the absence of kidney tissue ( agenesis renal ), or to disordered, nonfunctional kidney tissue (dysgenesis), or to an obstruction of the urinary tract ( hydronephrosis ). Since these anomalies occur at different stages of development, Potter's syndrome appears to be a heterogeneous condition with a number of different causes. Antenatal ultrasound can show the oligohydramnios and the renal anomalies clearly. Fetal MRI is a developing modality which can also assess fetal disorders.

9. Information About Potters Syndrome. My son, Elliott had a rare, but fatal congenital condition called ‘Bilateral RenalAgenesis’, or to give it a more common name, ‘Potter’s Syndrome’. http://www.angelelliott.dabsol.co.uk/page20.htm

Song Playing: Immortality My son, Elliott had a rare, but fatal congenital condition called ‘Bilateral Renal Agenesis’, or to give it a more common name, ‘Potter’s Syndrome’. This condition occurs where the baby’s renal system (i.e. kidneys and bladder and associated tubal connections and arteries) fail to develop at around day 31 of gestation. Failure of this development means that the baby cannot urinate to create extra amniotic fluid; fluid which is vital to the development of the baby’s lungs. Babies diagnosed with Potter’s Syndrome sadly die either during the birth or very shortly thereafter, the main cause of death being from ‘Pulmonary Hypoplasia’, i.e. underdeveloped lungs. Babies with this condition often appear to be of a normal weight and size for their gestation; this is because the placenta does all the filtering work in place of kidneys whilst the baby is in-utero. However, some Potter’s babies have features which are due to compression against the uterine wall because of the lack of fluid to ‘cushion‘ them as they grow; such as wide-set eyes, low-set ears, a recessed chin and flattened nose, ‘squashed’ facial appearance and/or torso, and talipes (clubbed feet). Fortunately, my son, Elliott, did not display any of these features, although it is all the more upsetting to me because he looked perfectly normal; a miniature version of his elder sister, Chloë.

10. WebRing: Hub of my handsome little boy, Elliott, who was born into Heaven with potters syndrome, January 14, 2000. Abigail chrystal kuzel, who died of potters syndrome. The site contains our http://www.webring.org/hub?ring=potters

11. Special Friends From The Forum. At the potters syndrome Support Group, I have met many people who, sadly and mosttragically, know only too well the devastation caused by the loss of a baby http://www.angelelliott.dabsol.co.uk/page19.htm

Song Playing: Friends. Special Friends From The Forum At the Potters Syndrome Support Group, I have met many people who, sadly and most tragically, know only too well the devastation caused by the loss of a baby to Potters Syndrome. One of these people is Alison Hunt from Victoria, British Columbia, Canada. Already a Mummy to Zoe and Caileigh, Alison and her dear husband Pierre lost their son, Alex Fabien, to Potters Syndrome on August 28, 2002. Angel Alex Fabien When Alison entered the Potters Syndrome Support Group, I quickly posted replies to her, as I so badly knew just what she was going through, having just lost her only son. I remember only too well the wilderness in which David and I walked, dealing with our grief (or trying to) on our own, isolated and so very, very alone. I offered support, guidance and above all, much needed friendship. Alison and Pierre have embraced me with open arms and our friendship is one to last a lifetime. Friends from afar, we share one thing

12. WebRing: Hub to commemorate and honour the precious and everlasting memory of my handsome littleboy, Elliott, who was born into Heaven with potters syndrome, January 14 http://r.webring.com/hub?ring=potters

13. Tim And Annette's Newsletter potters syndrome Support Group potters syndrome is caused by a variety of birth defects, including potters syndrome Memorials - This memorial page was started in order to honor http://www.msnusers.com/TimandAnnettesNewsletter/renalagenesisinfo.msnw

var nEditorialCatId = 106; MSN Home My MSN Hotmail Shopping ... Money Web Search: document.write(''); Groups Groups Home My Groups Help Tim and Annette's Newsletter TimandAnnettesNewsletter@www.msnusers.com What's New Join Now Our Whippet Page Guest Book ... Tools Renal Agenesis Info Add Link Edit Link Delete Link List View Alliance of Grandparents, a Support in Tragedy Provides support for grandparents who have lost a grandchild and gives information on how to help their children (the parents). Abiding Hearts Abiding Hearts contains information for parents continuing their pregnancies after prenatal testing has revealed fatal birth defects. The Compassionate Friends The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. Potters Syndrome Support Group Potters Syndrome is caused by a variety of birth defects, including Renal Agenesis. Potters Syndrome Memorials This memorial page was started in order to honor and remember all the Potters Syndrome babies.

14. WOMENS-HEALTH Messages For March, 1997: Re: Potters Syndrome OBGYN.net Banner Ad (468x60). Re potters syndrome. At Thu, 13 Mar 1997, MubarakaJafferji wrote Do you know why potters syndrome takes place. http://forums.obgyn.net/forums/womens-health/WHF.9703/0213.html

-VISIT OUR OTHER FORUMS- Breast Health Forum Endo@OBGYN.net Mujer (en español) PCOS Forum PCOS Diet Forums PCOS Medication Forum Vrouw en Gezondheid (nederland) Women's Health Forum Young Women's Health Forum s earch this forum: Re: Potters Syndrome From: R.Daniel Braun, MD anonymous@obgyn.net Fri, 14 Mar 1997 10:51:09 -0600 (CST) Messages sorted by: [ date ] [ thread ] [ subject ] [ author ] Next message: Noelle Haland: "Re: Home pregnancy testing REALLY early" Previous message: Harvey S. Marchbein, M.D.: "Re: Home pregnancy testing REALLY early" In reply to: Mubaraka Jafferji: "Potters Syndrome" At Thu, 13 Mar 1997, Mubaraka Jafferji wrote: R.Daniel Braun, MD FACOG Clinical Professor of Obstetrics and Gynecology Indiana University School of Medicine Indianapolis, IN "Heisenberg might have slept here." Unknown Next message: Noelle Haland: "Re: Home pregnancy testing REALLY early" Previous message: Harvey S. Marchbein, M.D.: "Re: Home pregnancy testing REALLY early"

15. WOMENS-HEALTH Messages For March, 1997: Potters Syndrome potters syndrome. From Mubaraka Jafferji (anonymous@obgyn.net) Thu, 13 Mar1997 212347 0600 (CST) Do you know why potters syndrome takes place. http://forums.obgyn.net/womens-health/WHF.9703/0211.html

-VISIT OUR OTHER FORUMS- Breast Health Forum Endo@OBGYN.net Mujer (en español) PCOS Forum PCOS Diet Forums PCOS Medication Forum Vrouw en Gezondheid (nederland) Women's Health Forum Young Women's Health Forum s earch this forum: Potters Syndrome From: Mubaraka Jafferji anonymous@obgyn.net Thu, 13 Mar 1997 21:23:47 -0600 (CST) Messages sorted by: [ date ] [ thread ] [ subject ] [ author ] Next message: Harvey S. Marchbein, M.D.: "Re: Home pregnancy testing REALLY early" Previous message: D. Ashley Hill, M.D.: "Re: lack of periods" Next in thread: R.Daniel Braun, MD: "Re: Potters Syndrome" Reply: R.Daniel Braun, MD: "Re: Potters Syndrome" Do you know why potters syndrome takes place. My two babies had potters syndrome and I am pregnant and obviously worried because the doctor told me we cant do anything about it because it is very rare and they will take an utrasound on the 16th week Next message: Harvey S. Marchbein, M.D.: "Re: Home pregnancy testing REALLY early" Previous message: D. Ashley Hill, M.D.: "Re: lack of periods" Next in thread: R.Daniel Braun, MD: "Re: Potters Syndrome"

16. BrainTalk Communities - Potters Syndrome potters syndrome. On August 15th ,1989 , Our son , Nathanial James , wasborn . but exploratory surgery again pointed to Potter s Syndrome .. http://brain.hastypastry.net/forums/showthread.php?goto=lastpost&t=8922

17. BrainTalk Communities - Coping With The Loss Of Child Go to last post. 10, 238. potters syndrome. Cloud1962. 0423-20040201 AM by Cloud1962 Go to last post. 4, 121. Hello Everyone. Ellgey.04 http://brain.hastypastry.net/forums/forumdisplay.php?f=22

18. Reflections YOUNG , From DERYSHIRE/ENGLAND , email MARKRAMMIE@AOL.COM OUR DARLING LITTLE BOY,ETHANWAS BORN ASLEEP ON MARCH 20TH 2003,DUE TO potters syndrome..WE MISS http://virtual-memorials.com/vm/servlet/Reflections?memid=42&prevDate=2003-07-02

19. Reflections Our doctor told us when he was only 22 weeks old that he had potters syndrome,but he and God gave us the hope that Patrick might be okay somehow. http://virtual-memorials.com/vm/servlet/Reflections?memid=42

20. Augnews Thanks, Michele. National Potter s Syndrome Support Group message Don t forget tohelp us get information out about potters syndrome, tell your doctors about http://www.potterssyndrome.org/newsletter/augnews.html

THE POTTER'S SYNDROME FORUM ONLINE NEWSLETTER http://www.delphi.com/potterssyndrome/start/    Published Monthly Online                                               August 2000    BIRTHDAY REMINDERS.. Lori's Daughter Chloe (Baby August 1, 1999 Amber's Son Wesley (Baby) August 12, 1998 Misti's Son Gregory (Baby) August 26, 1991 Nicole (Mommy) August 8th Renee (Mommy) August 9th This is our first official online newsletter and my first attempt at doing this.  So forgive all the boxes straight down as the computer doesn't seem to like anything else right now.  I will attempt different formats monthly and see which one eventually works the best.  I wanted different sized boxes in various locations but what you want isn't always the way it happens.  So welcome to our first newsletter and please feel free to submit anything via the Forum or my email at potters_syndrome@mailcity.com Thanks, Michele National Potter's Syndrome Support Group message: (Delores)  Ok, everyone Evy wanted me to pass this along to everyone, that she is moving to Alaska and will not have computer access until sometime around Christmas.   So please pass the word along that if anyone is wanting an information packet from her they will need to wait to email her as she will not be able to send anything or receive any email for a while. Also, did everyone get their newsletter from her? As I have not yet and I think it must have gotten lost in the mail.  If someone could please mail me a copy of it I sure would appreciate it.  Delores

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 1     1-20 of 94    1  | 2  | 3  | 4  | 5  | Next 20