1. PPS CENTRAL - Post Polio Related Info On The Internet Search or browse this comprehensive listing of PPS postpolio, post polio syndrome internet resources, original papers, surveys and polls. http://www.skally.net/ppsc/

Post-Polio Syndrome Central Search PPS-C Contact PPS-C Privacy Statement What's New ... PPMed Email List PLEASE NOTE: The PPS-C polls are for GENERAL INTEREST ONLY . They are NOT controlled and NOT reliable data. PPS Central Weekly Opinion Poll Poll idea thanks to Ethel Jean Iutsi: After being out in the cold weather (below freezing) do you have redness, seems very hot to the touch,and pain in your lower limbs the day after? Every Time. Never. Often. Rarely. Sometimes. Submit your own ideas for Poll questions Past Poll Results NOTICE! Proceeding beyond the following constitutes acceptance of these terms and conditions. POST POLIO SYNDROME EMAIL DISCUSSION LISTS AND USENET NEWSGROUPS Need one-on-one information, support or socializing? Email Discussion Lists and UseNets Groups are the place for you! Information and links to PPS related Email Discussion Lists and Usenet groups can be found by accessing the following two links: Post-Polio Syndrome Email Discussion Lists Post-Polio Syndrome Usenet News Groups POST POLIO SYNDROME INFORMATION ON THE WORLD PPS EVENTS Post-Polio Syndrome Related Calendar of Events. Listings and information on PPS conferences, seminars, get-togethers, reunions, etc being held around the world.

2. Post Polio Syndrome Resources - Polio/PPS Information For Polio Survivors. A personal web page with links to Polio/PPS and other Disability Information. http://www.ppsr.com/

/* Static Top Menu Script By Constantin Kuznetsov Jr. (GoldenFox@bigfoot.com) Featured on Dynamicdrive.com For full source code and installation instructions to this script, visit Dynamicdrive.com */ P ost P olio S yndrome R esources of Louisiana Carl's Story French German Italian Portuguese Spanish What is post-polio syndrome? What causes PPS? How is PPS diagnosed? How is PPS treated? ... Where can I go for more information? What is post-polio syndrome? Post-polio syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after recovery from an initial attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously injured by polio infection. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. Some patients experience only minor symptoms, while others develop spinal muscular atrophy or what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the first polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue.

3. Easter Seals Colorado - Post Polio Support Easter Seals Colorado provides quality rehabilitation and support services for children and adults with disabilities in Colorado. Polio Syndrome. 1.6 million individuals were affected by polio during the epidemics of the 1940s late effects of polio (post polio syndrome). post polio syndrome generally occurs 40 http://www.eastersealsco.org/postpolio/postpolio.html

Services AgrAbility Employment Services Rocky Mountain Village ... Warm Water Pool Easter Seals Colorado Providing Support Groups, Information and Resources for individuals experiencing late effects of Polio About Post Polio Program History and Description Program Innovations Support Group Listings ... Links to Other Web Post Polio Resources You are visitor # since October 24, 1997 Post Polio Library What Helps Post Polio Patients Feel Better! NEW Marny Eulberg: Polio patient and Medical Doctor Managing need in relationships Poliomyelitis revisited A review of Post Polio Syndrome Polio Support Groups: Still playing useful roles Pulmonary considerations in post polio syndrome < Breathing problems Bounce Back Without Guilt Post Polio Syndrome Reading List post polio mailing lists (for E-mail only) Mail List address To Subscribe send an E-Mail to: polio@sjuvm.stjohns.edu Caring support in a friendly environment. listserv@sjuvm.stjohns.edu leave the subject line blank in the message field type: subpolio YourFirstName YourLastName polio-life@eskimo.com

4. POST POLIO SYNDROME AN APPROACH TO THE PATIENT WITH SUSPECTED. post polio syndrome. Originally written by Dr. Warren Anderson and the Medical Advisory Board of the Post Polio Program Easter Seal Society of Oregon set of symptoms now known as post polio syndrome. In addition to these unexpected http://www.plee.com/pps/ppspamph.htm

AN APPROACH TO THE PATIENT WITH SUSPECTED POST POLIO SYNDROME Originally written by Dr. Warren Anderson and the Medical Advisory Board of the Post Polio Program Easter Seal Society of Oregon MEDICAL ADVISORY BOARD of the POLIO OUTREACH ADVISORY COUNCIL A Working Advisory Council to the Easter Seal Society of Washington Joshua Benditt, MD, Pulmonologist Evan Cantini, MD, Physiatrist Dianna Chamblin, MD, Physiatrist Margarette Forgette, MD, Physiatrist Bill Kelly, Physical Therapist Dennis Lang, RN, MPH, Polio Survivor Lawrence R. Robinson, MD, Physiatrist Mark Sumi, MD, Neurologist EASTER SEAL SOCIETY OF WASHINGTON 521 Second Avenue Seattle, Washington 98119 March 1995 TABLE OF CONTENTS I. Introduction - 1 A. Definition of Post Polio Syndrome - 1 B. Scope of the Problem - 1 C. Diagnostic Criteria - 1 II. Pathology: Physiologic and Clinical Consequences - 2 A. Extensive Neuronal Involvement in the Average Case - 2 B. Motor Unit Remodeling - 2 C. Decompensation Then Produces Post Polio Syndrome - 2 III. Patient Presentation - 3 A. Prime Symptoms - 3

5. Polio And Post Polio Syndrome the second time around post polio syndrome. post polio syndrome (PPS) is affecting 650 000 polios, who are now living with the after effects of a disease called "polio." http://www.geocities.com/Heartland/Ranch/5212/polio.html

the second time around... Post Polio Syndrome Post polio syndrome (PPS) is affecting 650,000 polios, who are now living with the after effects of a disease called "polio." I urge anyone who knows someone who had polio, even if they "recovered," to check into one of the many web sites or mailing lists for help and information. What you do not know could hurt your future health, knowledge is power. To read my polio story from 1953 to the present, go here . (Click here to see some of my pictures from the early 1950s and 60s). Meet me as a teenager who loved to "rock and roll" and do all those other teenage things. You will have a better idea of what we went through and why we get a little sad that we are rarely remembered now. I am thankful that the Polio Epidemics are a thing of the past for us, but we who had polio and survived are still here. We became doctors, nurses, teachers, engineers, as well as moms and dads. We succeeded in many ways after "fighting polio" and putting it behind us, or so we thought. Some call it a "dragon" that has come back to fight again, but this time we have less left to fight with! But, we adapt and learn and rest and go on, just like everyone else. I intend to do my best to enjoy the rest of my life and enjoy my "retirement"! Polio Poster Girl in 1953 (Lancaster County, PA)

6. Quick Registration A web discussion forum for people who have or think they have post polio syndrome. A forum where all are welcome, and to share from az pertaining to their PPS. disability. http://forums.delphiforums.com/bigcrusher/start

The Post Polio Syndrome Forum Need Help? FAQ Main Page Registration Logging On Quick Registration In order to participate in Delphiforums.com's personalized discussion services, you must create a Delphiforums.com account. Your information is protected by the By completing this registration, you are agreeing to the Delphiforums.com Terms of Service Already a Member? Click here If you're not already a member, please complete this simple sign-up form: First Name Last Name E-Mail Address Desired Membername Password Minimum 6 characters; no spaces Confirm Type in your password again. Save password on this computer? Birth Year Select Year Gender Male Female State/Prov. (or select "Non-U.S.") Select State/Prov. Non-U.S. ALBERTA ALASKA ALABAMA ARKANSAS ARIZONA BRITISH COLUMBIA CALIFORNIA COLORADO CONNECTICUT DISTRICT OF COLUMBIA DELAWARE FLORIDA GEORGIA HAWAII IOWA IDAHO ILLINOIS INDIANA KANSAS KENTUCKY LOUISIANA MASSACHUSETTS MANITOBA MARYLAND MAINE MICHIGAN MINNESOTA MISSOURI MISSISSIPPI MONTANA NEW BRUNSWICK NORTH CAROLINA NORTH DAKOTA NEBRASKA NEWFOUNDLAND NEW HAMPSHIRE NEW JERSEY NEW MEXICO NOVA SCOTIA NORTHWEST TERRITORIES NUNAVUT NEVADA NEW YORK OHIO OKLAHOMA ONTARIO OREGON PENNSYLVANIA PRINCE EDWARD ISLAND PUERTO RICO QUEBEC RHODE ISLAND SOUTH CAROLINA SOUTH DAKOTA SASKATCHEWAN TENNESSEE TEXAS UTAH VIRGINIA VIRGIN ISLANDS VERMONT WASHINGTON WISCONSIN WEST VIRGINIA WYOMING YUKON ZIP or Postal Code (or enter "Non-U.S./Canada")

7. Post-Polio-Med PostPolio-Med Listserv email list for questions and answers about post polio syndrome, polio postpolio poliomyelitis. http://www.skally.net/ppmed/

This site accessible by people living with disabilities Welcome to the Post-Polio-Med @maelstrom.stjohns.edu Web Pages! An Email List for and about Post-Polio Syndrome Read about PPMed and PPS-Central and see the awards the sites have won Search PPS Central What's New Add URL ... PPS Survey Take the Post-Polio Syndrome/New Health Problems Survey! See the up to date results!: Post-Polio Syndrome Survey CAUTION! Proceeding beyond the following constitutes acceptance of these terms and conditions. IMPORTANT NOTE: YOUR PRIVACY Although this has been an unwritten policy since the first day ... due to recent events, we think it's wise to make all subscribers and potential subscribers aware of of this policy. At NO time will your email address will be loaned, given or sold to anyone for any reason, nor will anyone be subscribed to PPMed or any list associated with PPMed without their express permission permission or request. Harvesting email addresses from PPMed will NOT be tolerated. All email addresses and posts are considered property of the email address owner and PPMed. == INDEX == Info File Rules Archives Links to other PPS Information ... Maelstrom Listserv Mini-History, Policy and System News

8. Post Polio Syndrome Resources - Polio/PPS Information For Polio Survivors. PPSR offers support, live chat, email support, and general information regarding PPS and post polio syndrome. post polio syndrome Resources of Louisiana. http://ppsr.com/

/* Static Top Menu Script By Constantin Kuznetsov Jr. (GoldenFox@bigfoot.com) Featured on Dynamicdrive.com For full source code and installation instructions to this script, visit Dynamicdrive.com */ P ost P olio S yndrome R esources of Louisiana Carl's Story French German Italian Portuguese Spanish What is post-polio syndrome? What causes PPS? How is PPS diagnosed? How is PPS treated? ... Where can I go for more information? What is post-polio syndrome? Post-polio syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after recovery from an initial attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously injured by polio infection. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. Some patients experience only minor symptoms, while others develop spinal muscular atrophy or what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the first polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue.

9. Post Polio Syndrome (PPS) And The North Central Florida Post Polio Post Polio Support Group is to inform and educate polio survivors, families, friends, physicians, therapists and suppliers about post polio syndrome (PPS). http://www.postpoliosupport.com/

North Central Florida Post Polio Supp ort Group The mission of the North Central Florida Post Polio Support Group is to inform and educate polio survivors, families, friends, physicians, therapists and suppliers about post polio syndrome (PPS). We are a not-for-profit support group reaching out to well over 800 survivors of polio within a 100-mile radius of Ocala, Florida, and now to hundreds of additional survivors throughout the world since our founding in 1990. Post Polio Evaluation Team Clicking here takes you to the page of the new Post Polio Evaluation Team of North Central Florida. It tells you about the Team Director and Team Members; it defines an "evaluation"; helps you understand if you may need one (you may also download an evaluation form); shows you who to contact for an evaluation and more. Post Polio Support Group Clicking here will take you to the pages of the North Central Florida Post Polio Support Group North Central Florida Post Polio Support Group mirror site in Japan (Our thanks to Web Administrator Shoji Nakagane for all of his hard and caring work) May 2004 ONLINE NEWSLETTER Home Archive ... Polio Vaccination Information Audio/Visual for our events are donated by Sharon Mixson and

10. Poems By LaVonne Schoneman-Noted Poet And Post Polio Syndrome Author Of "How To Features product topicrelated poems by this noted post polio syndrome author. http://www.justsmokedsalmon.com/poem.htm

JUST SMOKED SALMON tm POEMS JUSTSMOKEDSALMON Smoked Salmon is nice over rice try it once and you'll try it twice no other device could ever suffice not even miniature chocolate mice so don't rely on a toss of the dice eat JUSTSMOKEDSALMON if you want to be wise. SAVOR THE FLAVOR! Alder chips make a smoky blitz of seasoning for savoring salmon, steaks, ribs and wings vegies and almost anything! Summer - Fall - Winter - Spring we can celebrate them all with Just Smoked Salmon alder chips so write right now, email or simply call!! LaVonne Schoneman YANKS 'N PLANKS While closing ranks will win no thanks when cooking on planks some folks are "rebels" others are "yanks"

11. Post Polio Syndrome created to assist persons experiencing post polio syndrome. This is a site maintained For your Physician. post polio syndrome. post polio syndrome. post polio syndrome (PPS) An http://www.christring.org/helms/pps.htm

The Gideons International TRUE PEACE The Jesus Film The Ten Commandments The Declaration of Independence ... Email Us Best Viewed With IE 4+ Last Updated October 24, 2003 The estimated 1.3 million polio survivors in the United States are a finite class that diminishes with age, gradually moving toward extinction. Dan Moffett, Cox News Service Why This Page? My own story of the disability to recovery to disability rollercoaster ride with polio and Post Polio Syndrome. By Dick Helms. Definition of Post Polio Syndrome A nice short and concise layman's definition of Post Polio syndrome. Written by Tom Walter Post-Polio Syndrome An outstanding primer and "required reading" for those interested in knowing more about PPS. Written by Dr. Lauro S. Halstead (a polio survivor) and published in Scientific American , April 1998. Polio Survivors are Medicine's Lost Generation A fine article addressing the ongoing problems Polio survivors and PPS patients face today. Written by Dan Moffett and distributed/published by Cox News Service Post-Polio Syndrome, Fact Sheet

12. Easter Seals Colorado - Post Polio Pulmonary An article on the pulmonary considerations related to post polio syndrome. Pulmonary considerations in post polio syndrome. A postpolio http://www.eastersealsco.org/postpolio/PP_pulmonary.html

Services Post Polio AgrAbility Employment Services ... Warm Water Pool An article on the pulmonary considerations related to post polio syndrome. Pulmonary considerations in post polio syndrome A postpolio patient may present with classical respiratory problems associated with chronic lung disease, such as productive cough and chronic or recurrent infection. He or she may not be able to cough hard enough to clear phlegm from the chest even during a common cold because of chest and abdominal muscle weakness. The use of a portable positive pressure ventilator by mouth may be helpful for such a patient who can get along under normal conditions but who does not have enough volume to generate an adequate cough during a respiratory infection. Influenza and pneumococcal vaccination may be particularly important to postpolio patients with respiratory involvement or markedly weak abdominal muscles. Although there is a question about the need for pneumococcal vaccine in immunocompetent persons, many clinicians feel that even if it prevents only a few cases of pneumonia, it is worth trying in view of its safety. For most polio survivors, a tracheostomy is a frightening final chapter in the polio book. In the very rare instances when one is indicated, specific and thorough counseling should be provided to counter the extreme reaction of fear and anxiety that is possible. Postpolio support groups are an immeasurably valuable source of information and support for these patients.

13. Post Polio Syndrome My own story of the disability to recovery to disability rollercoaster ride with polio and post polio syndrome. post polio syndrome post polio syndrome. http://christring.org/helms/pps.htm

The Gideons International TRUE PEACE The Jesus Film The Ten Commandments The Declaration of Independence ... Email Us Best Viewed With IE 4+ Last Updated October 24, 2003 The estimated 1.3 million polio survivors in the United States are a finite class that diminishes with age, gradually moving toward extinction. Dan Moffett, Cox News Service Why This Page? My own story of the disability to recovery to disability rollercoaster ride with polio and Post Polio Syndrome. By Dick Helms. Definition of Post Polio Syndrome A nice short and concise layman's definition of Post Polio syndrome. Written by Tom Walter Post-Polio Syndrome An outstanding primer and "required reading" for those interested in knowing more about PPS. Written by Dr. Lauro S. Halstead (a polio survivor) and published in Scientific American , April 1998. Polio Survivors are Medicine's Lost Generation A fine article addressing the ongoing problems Polio survivors and PPS patients face today. Written by Dan Moffett and distributed/published by Cox News Service Post-Polio Syndrome, Fact Sheet

14. Discovery Health Post Polio Syndrome PPS. If the initial bout with polio was severe, there is a greater chance of developing post polio syndrome. There PPS symptoms. http://health.discovery.com/diseasesandcond/encyclopedia/2945.html

15. Post Polio Syndrome Website currently treated. provides important background on Polio and post polio syndrome and an interview with a PPS patient. explains http://www.post-polio.org/cd/

In this website you will learn about the physiologic mechanisms that have been proposed to explain the emergence of PPS in Polio survivors; how PPS can be distinguished from other diseases; and how it is currently treated. ... provides important background on Polio and Post Polio Syndrome and an interview with a PPS patient. ... explains the latest thinking on the pathophysiology of PPS, by Dr. Neil Cashman. ... a diagnostic approach presented by Dr. Daria Trojan. ... describes current and experimental treatments for PPS. Contact Post-Polio Health International (PHI) for updated information about the late effects of poliomyelitis.

16. Post Polio Syndrome - Information / Diagnosis / Treatment / Prevention home infectious diseases viral poliomyelitis post polio syndrome post polio syndrome. Information • Diagnosis • Treatment • Prevention. http://www.healthcyclopedia.com/infectious-diseases/viral/poliomyelitis/post-pol

Home Health cyclopedia All Topics by Category The Good Health Search Engine Health Conditions A-Z Gurus ... poliomyelitis > post polio syndrome Post Polio Syndrome Information / Diagnosis / Treatment / Prevention External links (marked with an arrow ) open in a new window. This site is a web directory and does not offer medical advice. We cannot take responsibility for information found on listed sites. This Page Related Topics Health Portals Message Boards Health News ... Web Directory: Related Topics: Neurological Disorders/Neurodegenerative Diseases/Motor Neuron Disease Health Portals: MayoClinic.com Message Boards: Google Groups: alt.support.post-polio Health News: Search millions of published articles for news on Post Polio Syndrome Modern Medicine Aging The Ardell Wellness Report HealthFacts Medical Post Medical Update Men's Health and the National Women's Health Report Note: Subscription required to access the full text of articles. Web Directory: Gazette International Networking Institute (GINI) Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis. Post-Polio Syndrome Central Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.

17. Post Polio Syndrome - MossRehab ResourceNet these survivors. What causes post polio syndrome? PPS is caused of stability. How is post polio syndrome diagnosed? Doctors arrive at http://www.mossresourcenet.org/polio.htm

Quick Links ResourceNet Home Accessible Travel Fact Sheets I ... n The News Post Polio Syndrome Fact Sheet What causes Post Polio Syndrome? How is Post Polio Syndrome diagnosed? How is Post Polio Syndrome treated? What is the role of exercise in the treatment of Post Polio Syndrome? There has been much debate about whether to encourage or discourage exercise for polio survivors or individuals who already have PPS. Some doctors believe that too much exercise can worsen the patient's condition, and that rest will preserve energy. These doctors think patients will wear out their muscles by overusing them in exercise activities. However, others consider this notion unfounded and not scientifically documented. There is much misinformation on this subject and many doctors do not know what effect exercise has on individuals with PPS. A commonsense approach, in which patients use individual tolerance as their limit, is currently recommended. Tolerance is the level at which one starts having discomfort or fatigue. Researchers at the NIH are addressing the exercise issue, not only to determine if exercise is helpful, harmful, or ineffective, but also to define the most effective type isotonic, isometric, isokinetic, or repetitive. Can PPS be prevented?

18. MossRehab ResourceNet - Post Polio Syndrome Text Homepage MossRehab ResourceNet post polio syndrome Homepage. graphics version. post polio syndrome Fact Sheet. http://www.mossresourcenet.org/txtpolio.htm

MossRehab ResourceNet Post Polio Syndrome Homepage graphics version Home Accessible Travel Fact Sheets ... Translation Post Polio Syndrome - Fact Sheet Fact Sheet Organizations Internet Resources Newsgroups ... Listservs What causes Post Polio Syndrome? How is Post Polio Syndrome diagnosed? How is Post Polio Syndrome treated? What is the role of exercise in the treatment of Post Polio Syndrome? There has been much debate about whether to encourage or discourage exercise for polio survivors or individuals who already have PPS. Some doctors believe that too much exercise can worsen the patient's condition, and that rest will preserve energy. These doctors think patients will wear out their muscles by overusing them in exercise activities. However, others consider this notion unfounded and not scientifically documented. There is much misinformation on this subject and many doctors do not know what effect exercise has on individuals with PPS. A commonsense approach, in which patients use individual tolerance as their limit, is currently recommended. Tolerance is the level at which one starts having discomfort or fatigue. Researchers at the NIH are addressing the exercise issue, not only to determine if exercise is helpful, harmful, or ineffective, but also to define the most effective type isotonic, isometric, isokinetic, or repetitive. Can PPS be prevented?

19. Polio And Post-Polio / Family Village Library Where to Go to Chat with Others. POLIO SJU Polio and post polio syndrome List. PostPolio-Med Post Polio Survivors. Post Polio Post-Polio Syndrome Group. http://www.familyvillage.wisc.edu/lib_poli.htm

Polio and Post-Polio Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Polio" or "Post Polio Syndrome" Who to Contact International Polio Network 4207 Lindell Boulevard #110 St. Louis, MO 63108-2915 Call (314) 534-0475 (314) 534-5070 - fax E-mail: info@post-polio.org Web: http://www.post-polio.org/ International Polio Network, coordinated by Gazette International Networking Institute, publishes the quarterly Polio Network News. The newsletter features articles by health professionals and polio survivors, the latest research information, a listing of the latest journal articles, upcoming post-polio related meetings, etc. When polio survivors leave their name and mailing address via email, they send a sample copy of the newsletter. IPN also publishes the annual Post-Polio Directory which lists clinics, health professionals, and support groups by state and is available for five dollars within the United States. Polio Connection of America POB 182 Howard Beach,NY 11414

20. Boards - Post-Polio Syndrome Post New Thread. Threads in Board PostPolio Syndrome, Board Tools. post polio syndrome DRUGS. johnmichael. 05-04-2003 0218 PM by moderator1 Go to last post. 4, 261. http://www.healthboards.com/boards/forumdisplay.php?f=104

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